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Medical Forum / Diseases and Disorders / Arthritis / March 2005Anyone here had Rituxan [rituximab] Infusions?
Small chat today with my RD after my Remicade and he suggested trying to add this. It is four infusions, one week apart which should hold for about 9 months. It is in addition to all else I am stuffing in my body. Anyone here tried it? Duckie  Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Duckie :) Cindy Plume is in a trial right now for Ocrelizumab, which is a sister drug to rituximab. It's been very exciting!! She's done the two infusions and has already woken up with no stiffness. If you wanna read about it - holler at me and I'll send you the links where you can read about it over on rheumorweb. Hugs, Kimmy Send away. Duckie > Duckie :) > [quoted text clipped - 7 lines] > Hugs, > Kimmy Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >Small chat today with my RD after my Remicade and he >suggested trying to add this. It is four infusions, one >week apart which should hold for about 9 months. It is >in addition to all else I am stuffing in my body. >Anyone here tried it? >Duckie You mean you world be on both remicade and rituxan? Wow. Interesting. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. That is what he said. Said he didn't want to take from me just in case and with this we could just add. The 15 page brochure [read printed xerox copies] he handed me are straight off the doctor's manual and too deep for a benedryl challanged mind. I will have to re-read tomorrow when I can focus a bit better. Duckie >>Small chat today with my RD after my Remicade and he >>suggested trying to add this. It is four infusions, one [quoted text clipped - 10 lines] > > Please remove "Ima" to reply. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >That is what he said. Said he didn't want to take from >me just in case and with this we could just add. The 15 [quoted text clipped - 3 lines] >tomorrow when I can focus a bit better. >Duckie Sounds promising anyway. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. > It is >in addition to all else I am stuffing in my body. >Anyone here tried it? I have not tried it but I know for cancer doses it has a high potential for infusion reactions. Cancer patients receive it in hospital due to the reactions. Some of the RA studies had patients taking high doses of steroids before the rituxan infusion. You might also ask about that. -- MZ Visit my website: http://www.mzuschlag.com Boy, Duckie, after reading what Mary Z posted, I think I would be checking to make sure that the addition of the rituxan wouldn't mess with your remicade and make it easier for you to react to both the rituxan and the remicade. That would be a concern for me. May want to check into it thoroughly before going ahead with it all. Good luck with whatever decision you make! Donna G The two medications attack different cells and this doctor is using it on others with good results. Just kind of nervous. Especially over the bronchospam stuff. Got enough trouble with breathing issues. I think this will be a group doctor chat decision. I think they will all need to be in on the decision -- that will make me more comfortable about it. Besides, I am on so many medications that I want all on board to question the wisdom. Duckie > Boy, Duckie, after reading what Mary Z posted, I think I would be > checking to make sure that the addition of the rituxan wouldn't mess [quoted text clipped - 4 lines] > > Donna G Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Is he using both remicade and rituxan as part of a formal study? I was just wondering if there is anything published yet on the results of the combo. You are wise to be cautious about the highly increased risk of infection. Karen > The two medications attack different cells and this > doctor is using it on others with good results. Just [quoted text clipped - 15 lines] > > > > Donna G I don't think it is part of any study. The papers I have in front of me look like the papers a doctor would receive at a conference. All detailed and technical. Apparently this drug has been used for cancer with lymphoma patients which is interesting as Remicade has been shown to produce lymphoma in some populations after continued use. What he said was that he had been using it in several cases with success and he wanted me to consider it. Yesterday when I was at the drug store, I gave my pharmacist of 20 years the name of the drug and told him I was also on Remicade [neither he would know about since he doesn't fill them. Asked him if it would have any problems with all the rest I am on. He said he had never heard of it as it doesn't come across his counter but give him three days and he would research it. That makes me feel better as this guy is good and it gives me a different look on the subject. The good news is that I trust my RD. Actually have given his name to several others on this group and they love him too. So, I will continue to gather facts. I will keep everyone posted on what I decide. Duckie > Is he using both remicade and rituxan as part of a formal study? I was just > wondering if there is anything published yet on the results of the combo. > You are wise to be cautious about the highly increased risk of infection. Papers look like there will be 50mg of benedryl added to the iv before the rituxan. That and you take tylenol. With that much benedryl, I will need to be driven to and from. 25mg puts me out for two hours and still leaves me foggy. 50 will put me in a coma. lol They were using the clinical names and I had to look it all up. They also said that if there is a reaction, that once the reaction settled the drip could resume at a lower infusion rate. So we will see. Papers sounded like I need to take my inhaler with me. Can't make up my mind to do this before or after Oregon. I am thinking after but I will call and see. I have blood test scheduled next week. That trip to ER three weeks ago showed lower white blood cell count and he was worried over that. Duckie >>It is >>in addition to all else I am stuffing in my body. [quoted text clipped - 8 lines] > Visit my website: > http://www.mzuschlag.com Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) How are your veins? I just wondered hgow the extra infusions would affect that or if you would need some other form of delivery. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Actually, as long as they use the small needle, my veins are better than they used to be. I really work at drinking a ton of water the day before and more the day of. It has helped. And then so has the weight lifting. They plump right up. Duckie > How are your veins? > I just wondered hgow the extra infusions would affect that or if you [quoted text clipped - 4 lines] > > Please remove "Ima" to reply. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) |
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