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Medical Forum / Diseases and Disorders / Arthritis / February 2005MRI results
Hi! The RD ordered a hand MRI after my last exam when I expressed doubts that this is RA. The results are: "No evidence of acute inflammatory arthropathy. After contrast, there is evidence of effusion or cystitis." First of all, I think 'cystitis' is an error. They didn't MRI my bladder. Perhaps the Radiology Dr mis-spoke when dictating or the transcriber couldn't understand his speech. I looked up MRI's of hands, and they talk about synovitis. Doesn't that seem more likely? I find out what it all means in April when I see the RD again. But this seems like really amorphous info. Yeah, effusion is seen in RA. But it's also seen in so many other things. Well, if the Plaquenil works, we will have a diagnosis through medication. Adelle  Signature[please remove the obvious to respond] > Hi! > [quoted text clipped - 13 lines] > > Adelle i'm with you, i think "cystitis" was a definite error. i almost laughed out loud when i read that. why not athelete's foot of the liver?<g> y'know, adelle, i'm not sure that i even want to cheer on the plaquinel. i wouldn't wish RA on anybody. so, what other kinds of things is effusion seen in? i might prefer to cheer on the failure of plaquinel for you. kate I have RA and Plaquenil did not work for me. Please don't think that if the Plaquenil fails that means you do not have RA. When I was first developed RA it came in like a lion. Went to sleep one night and the next morning I couldn't move. It wasn't until a year later that I developed swelling and more visual signs of RA. If I waited for medicine to diagnose me, well, I would still be looking for an answer 10 years later. Remicade, MTX, Enbrel...did not help with me feeling better or my lab tests. Not to say that you do have RA but research it, and get a few RD opinions if you do not feel comfortable that the RD is correct. The worst thing you can do is ignore it. Don't get too sure of yourself that you don't listen at all...I do that myself sometimes :) Synovitis and effusion do happen in other illnesses but unless there is some injury it is usually arthritis and/or autoimmune related. Since you have until April, really read about RA and other things it could be, write down concerns and discuss them with the RD. Hope you find the answers that will help you! Shandi > Hi! > [quoted text clipped - 16 lines] > -- > [please remove the obvious to respond] >I have RA and Plaquenil did not work for me. Please don't think that if >the [quoted text clipped - 23 lines] > Hope you find the answers that will help you! > Shandi Shandi, My mom has RA. My younger sister had JRA (now in remission as an adult). But my first symptoms (six years ago?) were neurological and muscular. It really seemed like MS. Then there was the possibility of Lyme Disease, an ambiguous test result. Vioxx got rid of the symptoms. As did doxycycline for the Lyme. They would come back within days of the meds being stopped. I keep hoping it's something that will eventually go away. Or at least come up with a definitive diagnosis instead of a - "we think its this... " I want to be able to explain to my kids why one day I can carry laundry baskets and such, and the next I can't unload the car after shopping, or why every once in a while I sleep on and off all day and am just not there for them. With Vioxx off the market, my stomach is having trouble coping with NSAIDS - and I'm already taking Prevacid and ranitidine! So I'd really like the Plaquenil to work. My mom has tried everything and is now on Kineret (plus mtx and steroids). But her white cell count plunged, and landed in the hospital with pancreatitis again. I'd like this to be something that either responds to less toxic drugs, or doesn't require them at all. Yeah, I know, river in Egypt. Adelle I'd like this to be something that either > responds to less toxic drugs, or doesn't require them at all. > > Yeah, I know, river in Egypt. > > Adelle LOL, please let me say it is a pleasure to read how your mind works and takes apart what is taking place. :-) We all splash around in that river every now and then. Harv here's something that might make you smile, adelle. i just heard on cnn that merck is considering bringing vioxx back, since it seems to have relatively the same side effects as the other cox2s still on the market.<smile> kate >>I have RA and Plaquenil did not work for me. Please don't think that if >>the [quoted text clipped - 51 lines] > > Adelle > here's something that might make you smile, adelle. i just heard on cnn > that merck is considering bringing vioxx back, since it seems to have > relatively the same side effects as the other cox2s still on the > market.<smile> I do wonder about the study and just who was prone to vascular and coronary complications. The test group seemed to be an elderly demographic already prone to stroke and heart problems. Does that risk, based on the history of the drug, go across all demographics? Now I was on a high dose long term - 50 mg. But I'd like to see what ages the people were who had these complications and what dosages. Is there prevalence of another pre-existing condition that, combined with the Vioxx, created the situation for complications. Has anybody done a real analysis? OK, soapbox has been put away. (For now) the not knowing is so hard and can go on for so long. been there and done that, and suffered the "all in your head" stuff from both doctors and husband. and sometimes even myself. i hope you're able to get a real diagnosis soon rather than later. i hate to say it, but with your family history of autoimmune diseases, i think the reality is that's what you have, RA or some other. (you're family might be interested in participating in the family autoimmune disease study at . . . can't remember the name. Long Island Jewish Hospital? I'd have to look it up, but i'm at starbucks at the moment. My family's involved in the study and it's very interesting.) I, too, heard they might bring vioxx back. much better than taking them all off the market, which was my fear. by the way, i've taken prevacid forever, and before that prilosec. i saw my GI doc yesterday. my last endoscopy showed stomach polyps, and he said long term use of these drugs cause them. once the drugs are stopped, tho, they go away. of course i can't seem to stop these drugs, so not sure what the logical conclusion is there. i'm rambling to avoid work. so i'll sign off now. hugs, diane > the not knowing is so hard and can go on for so long. been there and > done that, and suffered the "all in your head" stuff from both doctors > and husband. and sometimes even myself. i hope you're able to get a > real diagnosis soon rather than later. i hate to say it, but with your > family history of autoimmune diseases, i think the reality is that's > what you have, RA or some other. Reality - two excellent diagnosticians have said it is probably RA and will treat me as if that's what it is. I'm RF negative. But family history, and the fact the pain/swelling is even on both sides of the body point to RA. It just doesn't explain the neuro-muscular stuff that were the first symptoms for years. >(you're family might be interested in > participating in the family autoimmune disease study at . . . can't > remember the name. Long Island Jewish Hospital? I'd have to look it up, > but i'm at starbucks at the moment. My family's involved in the study > and it's very interesting.) I would. Not sure about Mom or sister. > I, too, heard they might bring vioxx back. much better than taking them > all off the market, which was my fear. I'll reserve the happy dance 'til it happens. > by the way, i've taken prevacid forever, and before that prilosec. i > saw my GI doc yesterday. my last endoscopy showed stomach polyps, and > he said long term use of these drugs cause them. once the drugs are > stopped, tho, they go away. of course i can't seem to stop these drugs, > so not sure what the logical conclusion is there. Hmm. It's always sumptin! (Best Roseanne Rosanadana) Thanks! Adelle Adelle wrote: >>evidence of effusion or cystitis...think 'cystitis' is an error. Hi Adelle... Maybe not. I have synovitis...inflammation of the synovial membrane surrounding the joint. I also have several inflamed cysts in my fingers (elbows and wrists, too). They're much different than my synovitis. My RD uses the term 'cystic,' and claims it's not uncommon in RA. So, it's not a stretch to think inflamed cysts might be called cystitis. Effusion's an escape of fluid 'from an anatomical vessel' into surrounding tissue and also common in RA. Maybe you had/have inflamed cyst/s that burst or are leaking? They wouldn't necessarily be visible to the eye. I have 8 or 9 of them, but, only notice 2 of them regularly. The others become more visible when I'm flaring. Well, that made things clear as mud, didn't it? LOL : ) -- Hugs, Patty Hoping your hills are never too steep. |
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