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Medical Forum / Diseases and Disorders / Arthritis / February 2005

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Another @$$*&^ DVT

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RoseB - 12 Feb 2005 01:50 GMT
I could hardly sleep last night with leg pain, right in the area I had
the DVT last January. (also a headache) I went to the doc after school
and my right calf was 5 cm larger than the left. I have to go for the
doppler on Monday, but the doc is pretty sure it is another DVT, as am
I., There is a distinctive feeling, and the pain is pretty bad,
I have started on the fraxiparine and coumadin.

Not happy. :(

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Jo Firey - 12 Feb 2005 02:48 GMT
>I could hardly sleep last night with leg pain, right in the area I had
> the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 4 lines]
>
> Not happy. :(

Well shoot.  That isn't good.

Sounds like you may be on coumadin from here on out.  At least it will
likely make the pain go away pretty quickly.  Rest and take it easy.  Hope
it is only a tiny one and that it dissolves quietly where it is ASAP.

Jo
Joan Carter - 12 Feb 2005 03:02 GMT
>I could hardly sleep last night with leg pain, right in the area I had
>the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 4 lines]
>
>Not happy. :(

Good grief, Rose, it never rains but it pours. Now hear this, everyone on ASA.
Get well, now, no more pain, no more Crohn's, none of that stuff. I am declaring
a moratorium on illness NOW!
---
Joan
Nann Bell - 12 Feb 2005 13:05 GMT
(((((((Rose)))))))  

It just ain't fair!  It just ain't fair..........

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Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

PattyDFX1 - 12 Feb 2005 14:54 GMT
{{{{{Rose}}}}}
----
Patty
Hoping your hills are never too steep.
Gwen Love - 12 Feb 2005 22:36 GMT
Rose, that report doesn't make me happy either.  Really hope it can be
stopped very quickly if it is another DVT.
Gwen

> I could hardly sleep last night with leg pain, right in the area I had
> the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 9 lines]
>
>      Please remove "Ima" to reply.
Caroline Marold - 14 Feb 2005 03:37 GMT
What can they do to keep these from happening again --
permanent coumadin?
Hope this resolves quickly.
Duckie

> I could hardly sleep last night with leg pain, right in the area I had
> the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 9 lines]
>
>      Please remove "Ima" to reply.

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RoseB - 14 Feb 2005 10:52 GMT
>What can they do to keep these from happening again --
>permanent coumadin?
>Hope this resolves quickly.
>Duckie

I think so.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Caroline Marold - 14 Feb 2005 22:58 GMT
My mother is on that now permanently due to a heart
which is beating too fast and no way to slow it down
[they tried - twice]. Certain foods she has to watch
and no vitamin K in her vitamins. But a livable situation.
Duckie

>>What can they do to keep these from happening again --
>>permanent coumadin?

>>Duckie
>
> I think so.
RoseB - 14 Feb 2005 22:23 GMT
>I could hardly sleep last night with leg pain, right in the area I had
>the DVT last January. (also a headache) I went to the doc after school
>and my right calf was 5 cm larger than the left.

So I went for teh doppler, and the technician says that he can not see
any sign of a dvt, but what he can see a lot of is fluid all
throughout my leg. He asked me if it was really painful and burning,
to which I said yes. So he said it appears to be synovial fluid coming
from your knee. Well I have not had knee pain, but in the past have
not had ankle pain before this thing started the other way (when I get
the evil foot thing). I have had both knees replaced many years ago.

On Saturday this currrent problem visibly changed so that it seemed
less like a dvt and more like the evil foot thing but instead this
covered my whole leg. I had a temp of 38.2  most of the weekend and
had that really crummy feeling I get. I wondered if I had a dvt and
the evil foot thing.

So it will be back on the pred for me, and I am going to take some
time off. It would be difficult to work this way anyway.

If I am having such an over production of synoviall fluid and it is
somehow making its way either up or down my leg, then my RA must not
be very well controlled at all. Perhaps if the Rd can see this report,
he will have a greater understanding of what is going on, as I have
this (in the foot and spreading up) regularly. This is one of the
first times it has gone the other way.
I am glad it is not a DVT, but also hopeful that this will be a
breakthrough to figuring out the whole thing.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Jo Firey - 14 Feb 2005 22:32 GMT
>>I could hardly sleep last night with leg pain, right in the area I had
>>the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 30 lines]
>
>     Please remove "Ima" to reply.

So very glad it isn't another DVT.  And you are right, maybe this will help
them get things right.

When my right leg first acted up, it began to swell from the foot up.  It
all hurt, not specifically the knee, just everything from the knee on down.
The only reason I suspected it was all really the knee was the problems I'd
had with the left knee.  I talked the doc into draining and injecting the
knee and he was shocked at the amount of fluid that came out of it.  The
whole lower leg improved greatly with the steroid shot.  And the shots that
followed every so many months.  Now MTX seems to be keeping my knees under
control.  But the right leg stays slightly swollen from the knee down.
Drives the nurses crazy when I'm in the hospital and they have to check my
feet for swelling.  Cause swelling in the right one doesn't count.

Jo
Caroline Marold - 14 Feb 2005 23:16 GMT
Amen to figuring the whole thing out. And glad there is
no DVT at least none he saw.
Duckie

> So I went for teh doppler, and the technician says that he can not see
> any sign of a dvt, but what he can see a lot of is fluid all
[quoted text clipped - 25 lines]
>
>      Please remove "Ima" to reply.

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    _
  _('< -quack
 (_<_)

    _
 __('< *QUACK!*
<_{__)

  _('< "|,,|_"
 (_<_)

  _('< "AFLAC!"
 (_<_)

Nann Bell - 15 Feb 2005 00:23 GMT
> I am glad it is not a DVT, but also hopeful that this will be a
> breakthrough to figuring out the whole thing.

truly.  very interesting thing you have going on, but I imagine you'd rather
be boring and under better control again.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

d'huit - 16 Feb 2005 14:42 GMT
>>I could hardly sleep last night with leg pain, right in the area I had
>>the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 26 lines]
> breakthrough to figuring out the whole thing.
>     Rose   @}>->--

(((((((((((((rose)))))))))))))))))  it must be very frustrating for you,
from time to time.  after reading this entire thread, i'm so glad no dvt was
found and being hopeful, with you, that this new information will help
create a better control protocol for you.  sending healing vibes your way
and keeping you in my prayerful thoughts.

how's your new furbaby doing with his new mommie?  has he claimed his new
home yet?  what have you named him?

kate

>     Being educated means that rather than fearing the unknown, one seeks
> to understand it. RB
>
>     Please remove "Ima" to reply.
RoseB - 16 Feb 2005 15:59 GMT
>>(((((((((((((rose)))))))))))))))))  it must be very frustrating for you,
>from time to time.  after reading this entire thread, i'm so glad no dvt was
>found and being hopeful, with you, that this new information will help
>create a better control protocol for you.  sending healing vibes your way
>and keeping you in my prayerful thoughts.

Thanks, Kate. My family doc was not impressed with what the tech said.
He continues to believe that this is vasculitis. But why the fluid? It
is a mystery still. The pred certainly helps, but at what cost? I have
been on high dose pred so many times in the past few years. It may be
better to just stay on low dose and see if that prevents the whole
thing. Too bad the rheumy is so far away. I do have an appointment
next month, though.

>how's your new furbaby doing with his new mommie?  has he claimed his new
>home yet?  what have you named him?

I am actually calling him Quigly. He is an adorable cat. I have taken
pics both with my new digital camera and my old one. I just have not
done anything with them yet. Everyone that has seen him loves him. His
breed does not climb, but this little fellow is a jumper, who right
now is looking down on me from the top of the kitchen cabinets.

Susan, the lady who gave him to me, took him to see his previous
owner in the nursing home last week. The man was barely conscious, but
there was a glimmer of recognition when the man saw Quigley, and the
kitten slept on the man's tummy for a bit. She then took him to visit
the other seniors. He came home loooking a bit ruffled from being
petted the wrong way, but none the worse for all the attention. It was
perfect timing, because his preveious owner passed away on the
weekend.

So today is my follow-up appointment with the Orthpod. Will keep you
posted.

Thanks for asking.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
d'huit - 16 Feb 2005 16:52 GMT
well, poop!  i was hoping the new info would trigger a different response
from your doctor.  here's hoping your orthopod or rd will acquire a new
insight from the doppler report info.

i love the name quigley, rose.  waaay cute.  adorable name for your adorable
little ragdoll.  jumpers are fun and funny to watch.  can't wait to see a
picture of him.  it was very touching to read how quigley napped on his
previous owner's tummy.  a very sweet good-bye.

kate

>>>(((((((((((((rose)))))))))))))))))  it must be very frustrating for you,
>>from time to time.  after reading this entire thread, i'm so glad no dvt
[quoted text clipped - 39 lines]
>
>     Please remove "Ima" to reply.
RoseB - 16 Feb 2005 19:35 GMT
>well, poop!  i was hoping the new info would trigger a different response
>from your doctor.  here's hoping your orthopod or rd will acquire a new
>insight from the doppler report info.

I am going to see the Orth about my hip, so I don't know how much
opportunity there will be to discuss this. My swelling has gone down a
lot from the pred, so I don't know how noticeable the whole thing will
be. If the opportunity presents, I will ask him for an opinion as
well.

>i love the name quigley, rose.  waaay cute.  adorable name for your adorable
>little ragdoll.  jumpers are fun and funny to watch.  can't wait to see a
>picture of him.  it was very touching to read how quigley napped on his
>previous owner's tummy.  a very sweet good-bye.

I wanted something different. He does not come to that mane yet, but
in time he may.
I think the timing was great for him to visit his "grandpa" and
visiting the other seniors was good too.

Thanks Kate.
Gotta brush my teeth and am on my way.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Squirrely - 24 Feb 2005 19:47 GMT
This is good Rose about the doppler. Have they figured out yet what the
fluid is from. I know you were thinking the knee.

Is there something they can do to stop this.

I hope the pred has worked and that you are doing much better by now.

Have been thinking of you.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

>>I could hardly sleep last night with leg pain, right in the area I had
>>the DVT last January. (also a headache) I went to the doc after school
[quoted text clipped - 30 lines]
>
>     Please remove "Ima" to reply.
RoseB - 25 Feb 2005 00:21 GMT
>This is good Rose about the doppler. Have they figured out yet what the
>fluid is from. I know you were thinking the knee.
[quoted text clipped - 4 lines]
>
>Have been thinking of you.
Thank you. This was just a reoccurrence of the problem I seem to have
every two months or so. No one really knows what it is. The family doc
stays with the diagnosis of vasculitis. It is not typical fluid, as
this fluid really burns.
I am much  better thanks.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Squirrely - 25 Feb 2005 03:42 GMT
Glad you are much better. How has your mom been doing? Haven't heard you
mention her much lately.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Thank you. This was just a reoccurrence of the problem I seem to have
> every two months or so. No one really knows what it is. The family doc
[quoted text clipped - 5 lines]
>     Being educated means that rather than fearing the unknown, one seeks
> to understand it. RB
RoseB - 25 Feb 2005 04:02 GMT
>Glad you are much better. How has your mom been doing? Haven't heard you
>mention her much lately.

She can be pretty feisty at  times./ LOL

She continues to improve. She has been getting out a bit with the
scooter. She is not always happy about her location, though as her
mobility has been impaired a lot. Before, she was able to go downtown
more than once a day, and wander around, get the mail, and so on. Now
it is substantially more difficult.

She is getting there though.

Thanks for asking.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
 
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