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Medical Forum / Diseases and Disorders / Arthritis / February 2005New Here.........
I am 40, have Cerebral Palsy and I have arthritis in my back, wrists, and hands. I am on 800 mg Ibuprofen 2 x a day (once if I don't need a second dose). I have not yet been refered to a rheumatologist. I can always tell when the pill wears off--because my hands etc...hurt. Bonnie Welcome Bonnie. Hold on to your chocolate! DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________ > I am 40, have Cerebral Palsy and I have arthritis in my back, wrists, > and hands. [quoted text clipped - 6 lines] > > Bonnie Welcome! Tina2 > Welcome Bonnie. Hold on to your chocolate! > [quoted text clipped - 15 lines] > > > > Bonnie Bonnie, please ask your doctor to refer you to a rheumatologist. You really need someone who is an expert to help you and tell you exactly what kind of arthritis you have. Gwen > I am 40, have Cerebral Palsy and I have arthritis in my back, wrists, > and hands. [quoted text clipped - 6 lines] > > Bonnie Yeah I'm kinda wondering why he hasn't done that already (had arthritis diagnosed in back since June 2003)--that 800 mg pill lasts about 6 hours--sometimes less--before it starts hurting again in my hands--which began a couple months ago. Not gonna put up with it too much longer--waited 4 months of hurting before I found out why my back was hurting I wanted to know WHY-- and he finally orders x-ray. Bonnie Called doc to find out what his game plan is,,,,,,,,waiting for his call Just took another four 200 mg Advil tabs. I use the 800 tabs in the a.m, and the 2nd dose is the (4) 200 mg tabs. How long was it before you were sent to a rheumatologist?? Bonnie > Called doc to find out what his game plan is,,,,,,,,waiting for his call > [quoted text clipped - 4 lines] > > Bonnie In my case it was about 6 years. Wayyyyy too long. The RD said I had RA on the first visit and some people will go 2-3=4 years before the doc says ,,RA.... Harv > How long was it before you were sent to a rheumatologist?? I had pain in my back, so I went to an ortho MD who diagnosed my ankylosing spondylitis in 1977 and put me on Indocine. I never heard the word "rheumatologist" until 1991, and when I did start seeing one, she kept me on Indocine until I dropped her in 1999. Going to go to my regular doctor on Tuesday. May try different pain management meds--ibuphrofen 800 mgs. don't work that long--about 5 or 6 hours for me. Bonnie > Going to go to my regular doctor on Tuesday. > > May try different pain management meds--ibuphrofen 800 mgs. don't work > that long--about 5 or 6 hours for me. > > Bonnie Ibuprofen really is supposed ot only last around 6 hours. The maximum prescription dose is 800 mg 4 times/day - I know, I've been on it - but you really need a referral to a rheumatologist.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Yeah I realized that-- my hands are in pain tonight--will take 400 more mgs before I go to bed and maybe a cold pack--will numb the pain..... You can always tell when the IB wears off! PAIN! Bonnie You are fortunate it stills works, they come at me with nothing less than Percs, and barely do the trick for the long haul Bruce > Yeah I realized that-- > [quoted text clipped - 7 lines] > > Bonnie Well my doc put me on Diclofenac (Voltaren), and took two tubes of blood (rheumatoid panel??) from my hand with a "butterfly needle" He also sent me to the Hospital for hand x-rays. I believe he's looking for the type of arthritis, I have. Bonnie If more than one vial of blood I insist that they use the butterfly. Otherwise they can blow through the vein and I don't have that many they can use anymore. Now you wait in the ASA waiting room for result and the next doctor visit. Duckie > Well my doc put me on Diclofenac (Voltaren), and took two tubes of blood > (rheumatoid panel??) from my hand with a "butterfly needle" > He also sent me to the Hospital for hand x-rays. > I believe he's looking for the type of arthritis, I have. > > Bonnie Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) ASA ?? alt.support.arthritis > ASA ?? Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Hopefully doctor will call with results........awaiting med to arrive from store in the mail--probably tomorrow.... My new med.......Voltaren...... Bonnie That's a good suggestion. Only problem is that many labs and blood sites do not have staff certified to use butterfly. It is actually a very dangerous technique when done by an individual not properly trained. I used to do tons of them on IV drug users. Aside from the Doc's I was the only one in the clinic certified to do them.\ Bruce > If more than one vial of blood I insist that they use the butterfly. > Otherwise they can blow through the vein and I don't have that many they [quoted text clipped - 8 lines] >> >> Bonnie Doctors office called-- I have osteoarthritis......my new med arrived Voltaren 100 mgs extended release 1 x a day (can't pronounce generic). I skipped the IBU 800's and immediately took the new one. How long before it'll kick in ?? Bonnie The reason the "butterfly needle" is used for me is i have thin veins....pediatric needle They poke and bruise and dig the hell outta my arms---my arm veins won't sit still using the bigger regular needle--bigger bruise too! Bonnie I think it is a safe needle..I ask for it all the time they draw blood. They get blood out of a vein from the top of my hands Only unsafe in the WRONG hands....My doctor was close by. Bonnie >I think it is a safe needle..I ask for it all the time they draw blood. >They get blood out of a vein from the top of my hands <snip> I am a real vein problem child (nearly 70 LOL). The vampires normally bruise my arms and the back of my hands so I look like a long-term junkie. The young girls at Clini-Path used to have good success with the butterfly needles, but, because I'm hooked up in a Clinical Trial I had to switch to Path Centre. Initially, I had real probs there as they don't use butterflys. But now I'm OK as one of the females there is very astute. Gets me to run my hand/s under a warm tap for 5 mins and uses thinner needles always between my knuckes. Absolutely NO bruising and FULL vials every time :) -- Reader to complete... -- Please reply to this ng as my email adress is fake: -- Regards -- CC Oh -- sore subject with me. It was 15 years. I might still have my wrists, fingers, and knee [original equipment] had I seen one within that first year. You don't have to wait to be told to see a RD -- you can demand to see one and with luck you will get a good one. If you don't you can try a different one. Sometimes you find an RD who graduated at the bottom of his class, or you find one with a personality that doesn't jibe with yours, or you find one who had his training so long ago and refuses to step into 2005 or even 1985... Hope you see one soon. Duckie ... > How long was it before you were sent to a rheumatologist?? > > Bonnie Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) > Called doc to find out what his game plan is,,,,,,,,waiting for his call > [quoted text clipped - 4 lines] > > Bonnie It took me 2 weeks to get the bonehead doctor who misdiagnosed me to write a referral to a rheumy. Then it took 2 months to get in to the rheumy. The crappy PCP told me it was 'just arthritis'. When I asked if it was the crippling kind (cuz I didn't know the word) he assured me it was not and prescribed 800 mg. ibuprofen, which did nothing but eat my stomach. By the time I got the referral I couldn't sleep more than 2 hours at a time and hat to have help with buttons. By the time I saw the RD, my left leg wouldn't straighten and hubby had to help me to sit on and get off of the toilet. Don't wait for the Dr. to decide what to do. Call and request a referral. Several times if you have to. Time is the enemy right now. I ended up with a marvelous RD, who took one look at me, injected my knee, took x-rays, prescribed good meds., and let me listen while he tore into the PCP for his misdiagnosis. I am still doing well, eleven years later, with minimal damage, at least none that shows much. Do it for yourself, cuz nobody else will. Kelly C.;o) Sorry you had to find us, but welcome to the sandbox. Duckie > I am 40, have Cerebral Palsy and I have arthritis in my back, wrists, > and hands. [quoted text clipped - 6 lines] > > Bonnie Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Welcome Bonnie, Sorry you have to be here, but it's a good place for support and knowledge. Please go to a specialist to see what kind of arthritis you may have. Have you tried Mobic (an anti-inflammatory) or some other NASAID that might help with the pain and you might not have to take such high doses. Ask your doc about this. Another good thing you can start on is a supplement, Glucosomine and Chondrontin. You can take the glucosomine seperate or take them in combo. This is especially good for osteoarthritis or joints in general. Hope you find some help here. debbie m. http://www.angelfire.com/ga2/angels1/ > I am 40, have Cerebral Palsy and I have arthritis in my back, wrists, > and hands. [quoted text clipped - 6 lines] > > Bonnie Hi Bonnie, nice to meet you :) Sounds like it time to see the doc and step up treatment. I can relate to pills wearing off - the box may say 8 hour relief but 7 hours later.... :) I'll second the glucosamine. I've been taking it for a couple months and have noticed fewer aches. Arthritis can be annoying (ha!) but there are ways of getting a lot of relief Skip > I am 40, have Cerebral Palsy and I have arthritis in my back, wrists, > and hands. [quoted text clipped - 6 lines] > > Bonnie |
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