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Medical Forum / Diseases and Disorders / Arthritis / February 2005Adrenal Supression
Has anyone in the group developed Adrenal Suppression secondary to the use of steroids and immune Suppressant meds. I have, I used to be tired allot now I'm totally exhausted. I make myself do things but they are done slowly. Bruce I wonder at times if I have that. I am totally dependant on Prednisone and can not get off of it. I do not know what to do RhondaM Has anyone in the group developed Adrenal Suppression secondary to the use of steroids and immune Suppressant meds. I have, I used to be tired allot now I'm totally exhausted. I make myself do things but they are done slowly. Bruce I wonder at times if I have that. I am totally dependant on Prednisone and can not get off of it. I do not know what to do RhondaM Your RD can help you with a decreasing about plan and it is done with the doctor knowledge because the doc will be watching for changes in your condition. I did it with 1 mg pills. I now only take prednisone to handle flares. Harv whats up bruce? after about 12 years of few ill effects from the pred. over the last 3 i have now developed every side effect documented except diabetes. the osteoporosis and cushings syndrome being the worst. the osteo has gotten so bad i am reducing the pred to 10 despite the active RA. Hopefully some of the problems will ease a bit but it has become critical to get the bone destruction under control. johnie > Has anyone in the group developed Adrenal Suppression secondary to the > use of steroids and immune Suppressant meds. I have, I used to be tired > allot now I'm totally exhausted. I make myself do things but they are > done slowly. > Bruce I hear you, I'm tired of new diagnosis and new medications. If the pills were candies: I'd have rotten teeth, have diabetes, weigh twice as much as I do and be purging nightly. I'll have name that pill for 400 Alex! Bruce > whats up bruce? after about 12 years of few ill effects from the pred. > over the last 3 i have now developed every side effect documented except [quoted text clipped - 10 lines] >> done slowly. >> Bruce Has anyone in the group developed Adrenal Suppression secondary to the use of steroids and immune Suppressant meds. I have, I used to be tired allot now I'm totally exhausted. I make myself do things but they are done slowly. Bruce If you take more than 10-15 mg a day or prednisone,,,, if you receive more than 4 steroid shots in a year,,, it is suppressed and that is all of us. Harv I second that! "Bruce" <rbmm@ns.sympatico.ca> wrote in message news:2mzLd.223109$Np3.9317309@ursa-nb00s0.nbnet.nb.ca... Has anyone in the group developed Adrenal Suppression secondary to the use of steroids and immune Suppressant meds. I have, I used to be tired allot now I'm totally exhausted. I make myself do things but they are done slowly. Bruce If you take more than 10-15 mg a day or prednisone,,,, if you receive more than 4 steroid shots in a year,,, it is suppressed and that is all of us. Harv Bruce, I only use pred packs now if I really need them and only have an injection if I'm desperate. This is because of extreme high blood pressure along with the fatigue factor due to pred, and rapid heartbeat. I have been on pred many times over the years and thought it was my salvation at times though. I will echo the warning about tapering off it though. I always went very, very slowly over the course of weeks or months to get off per my doctor's orders. Ann I will try this post again. It was addressed to Harv but it never showed up here, so I'm posting again. Sorry if it duplicates. My question is how do you take predisone for flares? My dr. has me taking 20,10,15 then 5 for the next 20 days. I'm having a bad flare right now. Was down to 2.5 mg after taking predisone for the last 24 years. Also on Rhemicade and Rhelafan. Can I hope to get back to 2.5mg anytime soon it took years to get to this low doseage. jan >I will try this post again. It was addressed to Harv but it never > showed up here, so I'm posting again. Sorry if it duplicates. My [quoted text clipped - 5 lines] > > jan Hi Jan,,, I am sorry but you confuse me. You say that your doctor has you making 5 mg jumps at decreasing your prednisone (which is way too fast IMO) but then you say it took years to get to this low dosage. Believe me when I say that it is the Remicade and Rhelafan that is or is not controlling your immune system and prednisone is only a helper. You and your RD need to talk more and have a better understanding of what is taking place. We can go over some ins and outs but its you and your RD that need to pull together. Harv Sorry for confusion. Lets go about this diffferently and may address the whole group. How does your doctor prescribe predisone for a flare. > Sorry for confusion. Lets go about this diffferently and may address > the whole group. How does your doctor prescribe predisone for a flare. How does your??? That is what counts. Harv > Sorry for confusion. Lets go about this diffferently and may address > the whole group. How does your doctor prescribe predisone for a flare. My last time it was 20 for 10 days, 15 for 10 days, 10 for 10 days 5 for 10 days and 2.5 for 10 days. But I've had all sorts of different schedules. For asthma I usually could be off in two weeks. But had to go six months once time with that. I like a nice ole shot for a flare so I don't have to deal with a taper. Jo I've had more steroids for asthma than arthur. With asthma I can count on at least 3-4 courses a yr. 95-96 I was off prednisone or iv solu-medrol a total of 10 days, one of the worst years of my life by far. On top of the oral and IV stuff I'm on massive doses of Inhaled steroids. No wonder I have adrenal suppression and at 42 my bone density scan looks like that of a 90 yr old man with osteo. And my Resp and GP wonder why I'm concerned about all the falls I take from my knee giving out. I'm waiting for a hip, wrist or ankle fracture; It's certainly not if but when. Bruce Bruce >> Sorry for confusion. Lets go about this diffferently and may address >> the whole group. How does your doctor prescribe predisone for a flare. [quoted text clipped - 8 lines] > > Jo My dad did to an extent. They couldn't drop him below a certain level of medrol, I forget what it was. He was in his late 70s by then, so they just kept him on it. (all of which ties in with some disatisfctions I ahd with his RD, but I won't get into that).  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >My dad did to an extent. They couldn't drop him below a certain level of >medrol, I forget what it was. He was in his late 70s by then, so they just >kept him on it. (all of which ties in with some disatisfctions I ahd with >his RD, but I won't get into that). Sounds like where my Mom is right now, but she's been on low doses the whole time, still is, but she's so tired now and the doctor fears her natural adrenals are long gone. Horrible. I warned her about it years ago, not that she listened, but maybe she had no choice either. J. > Sounds like where my Mom is right now, but she's been on low doses the > whole time, still is, but she's so tired now and the doctor fears her > natural adrenals are long gone. have they tested her? I forget what the lab test was my dad had, but there was something that determined it all. Ordered by his PCP, mind you, not the "nationally known" RD. I didn't know until then that this RD had him on Medrol for a decade with no attempt to get him off completely. sigh...... of course age and developing heart probs didn't help his energy level any either. His PCP eventually worked out some rotating dosage that got his Medrol as low as they could. > Horrible. I warned her about it years ago, not that she listened, but > maybe she had no choice either. It's so hard to know what's the best option and eventually it's about maximizing the time you have left. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare J, your mom sounds like my mother was. She had horrible RA when steroids first started being used and cortisone was a wonder drug. He doctor gave her numerous shots. It helped for a while and then he would give her another one. She had way too many, but she was at the point that she had to have something for the terrible pain. She was damned if she did take cortisone, and damned if she didn't. She ended up with ulcers, very thin skin, soft bones---all kinds of problems. But she just really had no choice. Gwen > >My dad did to an extent. They couldn't drop him below a certain level of > >medrol, I forget what it was. He was in his late 70s by then, so they just [quoted text clipped - 9 lines] > > J. >>My dad did to an extent. They couldn't drop him below a certain level of >>medrol, I forget what it was. He was in his late 70s by then, so they [quoted text clipped - 10 lines] > > J. It varies from person to person. Basically it depends on whether your adrenals are willing to pick up the slack and function when you taper off. If not, you have to keep up a maintenance dose of (I think) 5mg a day. If the adrenals do not start to function on their own, you have no choice. No one in their right mind takes or prescribes prednisone lightly. But there are a lot of times when it is the best option there is. Jo > No one in their right mind takes or prescribes prednisone lightly. But > there are a lot of times when it is the best option there is. There are still far too many times when it is the only option. johnie >> No one in their right mind takes or prescribes prednisone lightly. But >> there are a lot of times when it is the best option there is. > > There are still far too many times when it is the only option. > > johnie Don't I know it. I can't take any NSAIDs anymore. Much as I hate Medrol and Prednisone, they have saved my life more than once. Jo i was hospitalized last year with adrenal insufficiency. i had taken about 2 years to go from 20 mg of prednisone to 3 mg - thanks to humira (i believe) and they did attribute that to the decrease in steroids - so what is the treatment, but massive doses of steroids - when i left the hospital i was on 80 mgs!!! now, almost a year later i am back down to twenty, and now starting 19...but i am with out the humira now, which makes it a lot tougher. had i known 15 years ago the long term side effects of steroids (diabetes, brittle bones, etc) i am not sure i would have started it, BUT having said that, i would not be walking with out it....a double edged sword, i say kandi Bruce, I lost my sites I was looking for for you so I am sending these. I just looked them up. I hope you will be able to find something that will help you in your search. I overlook the ads and such. I just read the info. So hope these are ok for you to look at. I know I had a few of these saved for my adrenal gland problems. But I guess when my puter messed up I didn't get them saved. http://www.healthboards.com/boards/archive/index.php/t-133999 http://www.endotext.org/protocols/protocols1/protocolsframe1.htm http://www.indyrad.iupui.edu/public/lectures/HTML/GU/rp/adrenal.htm http://www.csrf.net/CSRFAnswers.htm http://eee.uci.edu/clients/dgromis/hormones.htm http://www.thedoctorslounge.net/clinlounge/diseases/endocrinology/cushing.htm http://www.endocrineweb.com/adrenal.html http://store.yahoo.com/herbal-remedies-usa/adrenalglands.html http://www.nlm.nih.gov/medlineplus/ency/article/002219.htm http://www.umm.edu/endocrin/addison.htm http://www.mercksource.com/pp/us/cns/cns_hl_adam.jspzQzpgzEzzSzppdocszSzuszSzcns zSzcontentzSzadamzSzencyzSzarticlezSz002219zPzhtm http://www.pihealth.com/adrenal_glands_and_stress.htm Squirrely Jo Has anyone in the group developed Adrenal Suppression secondary to the use of steroids and immune Suppressant meds. I have, I used to be tired allot now I'm totally exhausted. I make myself do things but they are done slowly. Bruce Oh shoot, I thought I sent these to Bruces email addy. I am sorry about sending them here. I apologize for this. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Bruce, > [quoted text clipped - 36 lines] > slowly. > Bruce I now see where I went wrong. I had three messages about the adrenal supression and posted it to the group instead of to the one really addressed to Bruce. I am so sorry. I know there are some commercial sites there, I don't read that part of what they are trying to sell. I read the part that has info on the adrenal glands. I can't believe I got the wrong post to respond to. Well I can, I am brain dead. Too tired and should get off this puter for now. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Oh shoot, I thought I sent these to Bruces email addy. I am sorry about > sending them here. I apologize for this. SJ, I wouldn't lose any sleep over it my friend! We've all posted things at one time or another that we thought we were sending to someone privately. Been there done that!!! You are fine and who knows, maybe it was just meant for you to post those sites here and maybe they will help someone else! Hugs! Donna G > Oh shoot, I thought I sent these to Bruces email addy. > I am sorry about sending them here. I apologize for this. Don't worry about it. Some of us may find those site interesting, if only as an anatomy lesson. <g> ... If you want breakfast in bed, sleep in the kitchen. I guess that depends on what you want for breakfast....lol Bruce SignatureI believe in the separation of Church and Hate > >> Oh shoot, I thought I sent these to Bruces email addy. [quoted text clipped - 4 lines] > > ... If you want breakfast in bed, sleep in the kitchen. |
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