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Medical Forum / Diseases and Disorders / Arthritis / January 2005restless legs
What do you do for restless legs? So irritating not to be able to sleep because of the weird feeling in your legs! I dont have twitching, just a bit of tingling and restlessness. Anyone have this prob and know what to do? Am on Humira and 8mg pred...have been reducing the pred gradually...maybe that is it! Think of you all often and pray for you daily. Blessings, Polly sweetie, i scanned an article awhile back about dealing with this. i just looked for it in my asa folder and found it again for you. if you email me, i'll forward it to you. use this email addy, but remove the numbers in my e-addy. kate > What do you do for restless legs? So irritating not to be able to sleep > because of the weird feeling in your legs! I dont have twitching, just [quoted text clipped - 7 lines] > Blessings, > Polly > What do you do for restless legs? So irritating not to be able to sleep > because of the weird feeling in your legs! I dont have twitching, just > a bit of tingling and restlessness. > Anyone have this prob and know what to do? actually, I get up and get on the computer (if it's available! LOL) and sit there jiggling my legs like there's no tomorrow until I'm so exhausted I can't do it any more. Then I go to bed and generally sleep well. I do take Zanaflex, a muscle relaxer, for my fibro and have learned the the restless legs thing is worse for the first couple of hours after taking it, so I don't take it near bedtime any longer. But the jiggle thing works well for me. My husband calls it the "jim-jams" for some reason and has become quite accustomed to seeing me at the computer trying to get back to sleep-ability.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Polly I can sympathize with you cause I have also had this problem.Nanns idea is one way to get some relief. I also take neurontin for neuropathy in my feet and that seems to help my RLS. I have spent many nites up jiggling my legs because I couldnt sleep. The strange thing was it didnt happen til I got into bed. hope some relief will be soon janice | What do you do for restless legs? So irritating not to be able to sleep | because of the weird feeling in your legs! I dont have twitching, just [quoted text clipped - 7 lines] | Blessings, | Polly > What do you do for restless legs? So irritating not to be able to sleep > because of the weird feeling in your legs! I dont have twitching, just [quoted text clipped - 4 lines] > > Think of you all often and pray for you daily. Hi Polly, I have a problem with this when I lay "wrong" whether in bed or on the couch. Sometimes I can resolve it by switching positions. If that doesn't work, I take a big old pain pill which knocks me out! GaryZ > Blessings, > Polly The withdrawal from pred sets mine off worse so that could be it for you as well. The TKR has set my restless leg stuff off really big time... They have doubled my Neurontin dose so now up to 600 mg and that helps a lot. Duckie > What do you do for restless legs? So irritating not to be able to sleep > because of the weird feeling in your legs! I dont have twitching, just [quoted text clipped - 7 lines] > Blessings, > Polly Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >What do you do for restless legs? My theory is it is caused by a low-fat diet. Just my theory. Nothing to back it up. Are you on a low-fat diet? Don <donwiss at panix.com>. Not now. Used to be but not since South Beach. On good fats now. Duckie >>What do you do for restless legs? > > My theory is it is caused by a low-fat diet. Just my theory. Nothing to > back it up. Are you on a low-fat diet? > > Don <donwiss at panix.com>. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >>>What do you do for restless legs? >> >> My theory is it is caused by a low-fat diet. Just my theory. Nothing to >> back it up. Are you on a low-fat diet? >Not now. Used to be but not since South Beach. On good >fats now. Good fats? Maybe I should say my theory is this is caused by a low saturated fat diet. Don <donwiss at panix.com>. >>>>What do you do for restless legs? >>> [quoted text clipped - 8 lines] > > Don <donwiss at panix.com>. Do you have any reason for this theory? I mean there must be something that helped you connect the two. Signaturespammage trappage: replace fishies_ with yahoo I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. To jump to the end of the story, as a result of this I need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ Restless Leg Syndrome/Periodic Limb Movement Disorder can be caused by a wide variety of problems, including low iron levels and electrolight imbalances. It can also occur as a centrally mediated condition, similar to Parkinsons. In fact, many drugs developed for Parkinsons are used in the treatment of RLS/PLMD. One such is Mirapex, which is what I use. A competent neruologist or sleep specialist should be able to help you find a treatment that works for you. Walt Walt -- you used the dreaded I*** word... running quack > Restless Leg Syndrome/Periodic Limb Movement Disorder can be caused by a > wide variety of problems, including low i*** levels and electrolight [quoted text clipped - 6 lines] > > Walt Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >>>>>What do you do for restless legs? >>>> [quoted text clipped - 9 lines] >Do you have any reason for this theory? I mean there must be something >that helped you connect the two. My experience with a mild case when on a low saturated diet. Plus a couple other anecdotes. I lump leg twitches, restless legs, and a leg falling asleep all as the same. After switching to a Paleolithic diet, which is high in saturated fats, it went away. But not immediately. And not 100% of the twitches. So by asking here I'm trying to see if all the people complaining about this are on a low (or no) saturated fat diet. Don <donwiss at panix.com>. >>>>>>What do you do for restless legs? >>>>> [quoted text clipped - 13 lines] > other anecdotes. I lump leg twitches, restless legs, and a leg falling > asleep all as the same. Okey dokey. I tend to put restless legs in a group on their own. > After switching to a Paleolithic diet, which is high in saturated fats, it > went away. But not immediately. And not 100% of the twitches. Dietary changes, from my experience, take a couple of weeks at least to have an effect, so that fits. > So by asking here I'm trying to see if all the people complaining about > this are on a low (or no) saturated fat diet. > > Don <donwiss at panix.com>. Signaturespammage trappage: replace fishies_ with yahoo I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. To jump to the end of the story, as a result of this I need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ > I lump leg twitches, restless legs, and a leg falling > asleep all as the same. the problem is don they are not all the same. RLS is a very complex DX. Mine is pretty much untreatable. Some relief with opiods. With 2 sleep studies it was determined that its all neuro. Even when i think im asleep im being jolted awake every 3 to 8 seconds. I havent had a real nights sleep in 2 years. I have been offered some very potent experimental drugs but the side effects are just too nasty. Some RLS is more muscle related and can be treated with muscle relaxants. I think this is the category you are dealing with. It would seem logical that it could be helped with diet. johnie Have you tried the Parkinsons drugs Johnie? It takes a pretty high dose of Mirapex to keep my RLS under control. Walt >> I lump leg twitches, restless legs, and a leg falling >> asleep all as the same. [quoted text clipped - 10 lines] > > johnie > Have you tried the Parkinsons drugs Johnie? It takes a pretty high dose of > Mirapex to keep my RLS under control. walt, this is a class of drug i have never been offered. i will put it on my list for my next RD appt. i am fortunate to have an RD whose judgment i trust. i will report back what she has to say. thanks, i have read a little about its use. have you had any side effect or interaction issues? what dose are you on? johnie >> Have you tried the Parkinsons drugs Johnie? It takes a pretty high dose >> of Mirapex to keep my RLS under control. [quoted text clipped - 6 lines] > > johnie I take 3 mg/day, spread throughout the day. It is a little sedating, so you have to watch that. Otherwise, I've had nothing but good success with this drug. Walt Had RL before while eating a low fat diet which wasn't helping with the weight. Now eating lots of fats compared to 10 years of low fat food. Only change in my restless legs was the TKR. So as usual, any theory and my body don't jib but nothing new there. :) Let me add though that if it is working for you, then it is a good theory. I've got a few of those myself -- one in particular involves all my allergies and the number 10. Duckie >>>>What do you do for restless legs? >>> [quoted text clipped - 8 lines] > > Don <donwiss at panix.com>. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) I took Quinine Sulfate and started taking a minimum of 1200mg of Calcium a day. Klonopin also helps. RLS is SO frustrating. good luck Nicole I feel for you. I have restless legs quite often. I can't take any muscle relaxers because that will cause a real blow up of it. It is the closest I ever come to wanting to off myself. I have had them since I was a young child. Mom used to call them "growing pains" and said they will get better. I remember being eight years old and writhing on the floor for what seemed like hours. I have found the only thing that stops them is Darvocet or another pain reliever like Ultram or Vicodin. Of course, doctors will not give you rx for them because they don't believe in restless legs. They think it is just something you have to live with. Sometimes I watch those Irish dancers and think that I could do that easily with my restless legs. I don't have to worry about adding exercise to my life because I get at least an hour's worth of heavy exercising whenever I have a bout, which is about twice a week. I have tried magnesium, iron, and all the other "miracle supplements" and they don't help. Good luck. I hope you can find relief. Val in Boise | What do you do for restless legs? So irritating not to be able to sleep | because of the weird feeling in your legs! I dont have twitching, just [quoted text clipped - 7 lines] | Blessings, | Polly Val, if your doctors don't believe in RLS, get new doctors. Seriously, it is a well defined medical condition with specific treatment protocols. Have you seen a sleep specialist? Walt >I feel for you. I have restless legs quite often. I can't take any muscle > relaxers because that will cause a real blow up of it. It is the closest [quoted text clipped - 31 lines] > | Blessings, > | Polly I get restless legs as well but I also feel like my skin is too tight on my legs. I drink soda water with Quinine (my RA doctor's suggestion)which also helps my digestion. I also massage my legs and feet with lotion or get my husband to do it before I go to bed. It really helps me. Good luck. Elizabeth |
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