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Medical Forum / Diseases and Disorders / Arthritis / January 2005

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Neurontin Anyone

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Newfie Mom - 21 Jan 2005 20:20 GMT
Is anyone taking Neurontin for their arthritis and if so what do you
think of it? I started taking it a few months ago and it makes me
really woozy still so I decided to stop it and my pain increased in a
major way so I have started taking it again. I guess I can either be
woozy or in intollerable pain
Any experiences would be msot appreciated.

Take Care,
Kim
Adelle - 21 Jan 2005 21:17 GMT
> Is anyone taking Neurontin for their arthritis and if so what do you
> think of it? I started taking it a few months ago and it makes me
[quoted text clipped - 5 lines]
> Take Care,
> Kim

Hey, Kim;

Welcome aboard. I'm Adelle, 44, attorney by training, full time mom by
choice. I have rheumatoid arthritis. Oh - I'm the official keeper of the
dark chocolate. Dark chocolate needs careful climate control and I promise
it will be well cared for.

Now that the levity portion of the show is over, I take Neurontin for nerve
pain, not muscle or joint pain, but not at the dosage first prescribed. It
made me a zombie. I take 100mg 3 to 4 times a day as needed. If it's really
major, I'll take 200mg. But that does make me woozy. I never do the 300 mg
at night which the doc initially prescribed cause I have trouble waking out
of it to get the kids up and out to school.

Between neurontin and Tylenol #3's, I've got pretty decent pain control,
when I use it.

What dosage are you on?

Adelle
Rosemarie Shiver - 21 Jan 2005 22:07 GMT
  I'll hold the milk chocolate :-) Not for long, but a little while.

  I'm also on Neurontin for nerve pain from my lower spine. I'm on 100mg in
the AM and 200mg at bedtime.

 I find caffeine clears up the fog and I'm able to function thru the
day....then I quit all caffeinated drinks by 7 PM so the 200mg at bedtime
will knock me out.

  I had 10 years of only partial pain control and the Neurontin Rx'd by a
pain management doc 2 yrs. ago is the first time I've had real relief in the
dozen years.

HTH!

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> > Is anyone taking Neurontin for their arthritis and if so what do you
[quoted text clipped - 27 lines]
>
> Adelle
Sonatabv - 22 Jan 2005 04:14 GMT
Hi!  I'm also a full time Mommy by choice.  But mine are teenagers and I'm
schooling them at home.  You know Chemistry, Spanish, Algebra, etc!  It's a lot
of fun and I won't trade these years for anything!

I also hold the milk chocolate!

I take Neurontin for nerve pain.  I use 300 mg at night and still have a
problem sleeping.  I cannot take anymore and still function.  I've taken it for
5-6 years now.

Vickie B.
Newfie Mom - 22 Jan 2005 04:32 GMT
Hi Adelle,

Glad the dark chocolatae is in good hands. That is the healthiest with
the most flavanoids!!!! I am an exercise physiologist now managing
pharma and medical device clinical trials.

I am on 300 mg twice a day and 900 mg at night, now wonder i am woozy
but it sure helps my pain. Hip OA causes bad nerve pain and referred
pain to the knees and ankles.

I guess right now i prefer being woozy. I know my hips are getting
worse and Dr. Mont will inject both with cortisone on Feb 1 and
hopefully I will get at least a little relief for a while.
Take Care,
Kim
Lee Thompson-Herbert - 22 Jan 2005 08:19 GMT
>Hi Adelle,
>
[quoted text clipped - 9 lines]
>worse and Dr. Mont will inject both with cortisone on Feb 1 and
>hopefully I will get at least a little relief for a while.

Did they taper your dose up, or did they just stick you on that dose
from the start?  They're _supposed_ to start you out with the 100mg
pills and slowly ramp your dose up to let your body get used to the
stuff.  Takes about a month to get up to the dose you're on.  If your
doc *isn't* using a tapered dose, he or she probably doesn't know enough
about the side effects to be prescribing it.  Neurontin has the least side
effects by far of all the antiepileptics, but it still has some.  I
eventually had to switch from Neurontin to Topamax because the Neurontin
combines badly with the other drugs I'm on.  It was starting to affect my
eye tracking (the neurologist noticed that in the office), as well as
making me into a zombie.  One of the popular names for the drug is "morontin"
because it can really trash your short-term memory if the dose is too high.

If the Neurontin is actually starting to affect your ability to function,
tell your doctor.  There _are_ other drugs you can try.  

Signature

Lee M.Thompson-Herbert        lee@retro.com         KoX 1995, SP4
Head Muso, White Rats Morris, Faultline Morris
See my CafePress Shops: http://www.retro.com/employees/lee/CafePress.html
"A head-on collision between Morticia Adams and Martha Stewart"

Tina Underwood - 22 Jan 2005 16:35 GMT
Hi and welcome!
I was on neurontin for nerve pain, but it made me too woozy. And made me
sleepwalk! I couldn't get up to a theraputic dose so we stopped it.
My Dad is on 2400mg a day and it does seem to help him without too many side
effects.

Good luck!
~KJ
Akron, Ohio
Newfie Mom - 22 Jan 2005 19:52 GMT
I was started on 300 mg three times a day tapered up to 600 then 900 at
night. Even at a lower dose it had the same effect on me. It is really
odd because I had gotten pretty tolerant to it and was doing pretty
well but am now pretty woozy again.

My hematologist is presscribing  it. I see him because the allergy to
the poly in my prosthetic knee has caused me to develop an abnormal
protien in my blood called monoclonal gammopathy of undetermined
significance = MGUS which is the precursor to myltiple myeloma or bone
marrow cancer. He is working on my pain control because as a
hematologist/oncologist he has a lot of experience with pain control.

We don't know if keeping the poly in my body willl ultimately cause the
conversion to full blown multiple myeloma but what choice do i have.
Either keep the poly or end up with a fused leg = NOT an option I care
to explore. Andw e do not know for sure if teh allergy caused the MGUS
but several docs think it may have.
Take care and eat lots of chocolate!!!
Kim
debbie m. - 22 Jan 2005 13:52 GMT
Kim,

You are on a high dose.  That is where the wooziness is coming from.  Maybe
try cutting back some.

debbie m.
http://www.angelfire.com/ga2/angels1/

> Hi Adelle,
>
[quoted text clipped - 11 lines]
> Take Care,
> Kim
debbie m. - 22 Jan 2005 13:50 GMT
Kim,

I take Neurontin, but at a very low dose.  I take 100mg at night.  It does
help with my pain as I have some nerve involvment.  Maybe you can cut back
on the dose and take it at night.  That might help.

debbie m.
http://www.angelfire.com/ga2/angels1/

> Is anyone taking Neurontin for their arthritis and if so what do you
> think of it? I started taking it a few months ago and it makes me
[quoted text clipped - 5 lines]
> Take Care,
> Kim
Cindy - 23 Jan 2005 14:40 GMT
While we are on the subject of Neurontin...And by the way Welcome,
And you really should hide your chocolates...Do you want me to keep them for
you? Since I had weight loss surgery I don't eat them anymore....Well
sometimes I will have a bite or two...lol
But anyone here with Fibromyalgia that has problems with clothes touching
thier arms...It is almost painful but really annoying to me to have my
clothes fit on my arms...And sometimes legs too...Would the neurontin help
with that?
I got three new knit tops for Christmas that are soososo cute..But I can't
stand to wear them....
Hugs Cindy
> Is anyone taking Neurontin for their arthritis and if so what do you
> think of it? I started taking it a few months ago and it makes me
[quoted text clipped - 5 lines]
> Take Care,
> Kim
Nann Bell - 23 Jan 2005 21:28 GMT
> But anyone here with Fibromyalgia that has problems with clothes touching
> thier arms...It is almost painful but really annoying to me to have my
> clothes fit on my arms...And sometimes legs too...Would the neurontin help
> with that?

i've never tried Neurontin for it, but I've had that with my legs this
winter, especially with certain pairs of jeans that never bothered me before.
I spend most of my time at home in sweat pants and just wear others when I'm
in public.  It might be worth at least talking to your doctor about it.  
Heck, you need something on your arms for winter!
Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

debbie m. - 24 Jan 2005 00:35 GMT
--
http://www.angelfire.com/ga2/angels1/
> While we are on the subject of Neurontin...And by the way Welcome,
> And you really should hide your chocolates...Do you want me to keep them for
[quoted text clipped - 16 lines]
> > Take Care,
> > Kim
debbie m. - 24 Jan 2005 00:38 GMT
Cindy,

I have fibro w/neurological involvement.  I can't stand to bump into
anything or anyone to bump into me.  It jars my whole body.  The neurotin
has helped me!
Also a supplement that I take has helped.  If you are interested e-mail me
privately.  Change dm8 to dmal8 on the e-mail.

debbie m.
http://www.angelfire.com/ga2/angels1/

> While we are on the subject of Neurontin...And by the way Welcome,
> And you really should hide your chocolates...Do you want me to keep them for
[quoted text clipped - 16 lines]
> > Take Care,
> > Kim
debbie m. - 24 Jan 2005 00:39 GMT
PS - Cindy, I only take 100 mg at night.

debbie m.
http://www.angelfire.com/ga2/angels1/

> While we are on the subject of Neurontin...And by the way Welcome,
> And you really should hide your chocolates...Do you want me to keep them for
[quoted text clipped - 16 lines]
> > Take Care,
> > Kim
Cindy - 24 Jan 2005 01:39 GMT
Thanks Debbie
In December my Rheumy was thinking of me trying it as I have alot of leg
pain. He thought it might help.We decided to try another feel good all over
shot..They call it the Christmas shot. It has b12, cortisone and another
hormone in it...It does usually help to pull us out of our flares...Did I
mention I have the best Rhuemy in the world and his PA....Just as good or
better...
Hugs Cindy
> PS - Cindy, I only take 100 mg at night.
>
[quoted text clipped - 24 lines]
>> > Take Care,
>> > Kim
Flickadee - 23 Jan 2005 15:33 GMT
>Is anyone taking Neurontin for their arthritis and if so what do you
>think of it? I started ftaking it a few months ago.

I took Neurotin for a few weeks and coujldn't handle the dizziness.  I had to
take it far enough ahead of driving or I had to stay at home.  I quit!  I need
to be able to dricve, safely.
Ann - 23 Jan 2005 17:12 GMT
I also took Neurontin or nerve pain but couldn't handle the woozy
feeling.  I was staggering around the house and bumping into things so
decided it was not for me. However, many people have excelent results
from it and I may not have given it a chance and quit too soon.

Ann
North - 24 Jan 2005 02:11 GMT
I too, was on Neurontin. It was some time ago. I think the reason they
tried it on me, was for my migraines. It never helped me, and I was up
to 1800 mgs. a day. I too have Fibro. and it gets quite bad sometimes,
that I can't bear too be touched.
TC,
MM

>I also took Neurontin or nerve pain but couldn't handle the woozy
>feeling.  I was staggering around the house and bumping into things so
>decided it was not for me. However, many people have excelent results
>from it and I may not have given it a chance and quit too soon.
>
>Ann
Lee Thompson-Herbert - 25 Jan 2005 03:13 GMT
>I also took Neurontin or nerve pain but couldn't handle the woozy
>feeling.  I was staggering around the house and bumping into things so
>decided it was not for me. However, many people have excelent results
>from it and I may not have given it a chance and quit too soon.

Hah.  The last time the pharmacy had problems getting my Topamax filled
on time, I went back to taking Neurontin for a couple days.  I actually
ran my rollator into a wall.  Missed the turn into the kitchen.  I knew
it was there.  "Gotta turn...no, wait...turn!*BLAM*"  Reminded me exactly
why I wanted off that drug.  It probably doesn't help that I take another
GABAnergic drug, Baclofen, to manage muscle spasms.  Baclofen by itself
doesn't make me dopey or drowsy, it just makes me into a ragdoll if the
dose is too high.  But combined with the Neurontin, I was too messed up
to walk around the house, much less drive anywhere.

When I was just on the Neurontin by itself and had tapered the dose up
slowly, it wasn't that bad.  But I definitely still had a lot of side
effects from it.  I was able to convince the neurologist to let me try
Topamax because I _do_ have pretty vicious migraines (it's approved for
that).  I have a feeling non-specialists are probably still pretty
nervous about prescribing some of the newer anti-epileptics for chronic
pain.  Topamax has been in clinical studies for diabetic neurapithy, but
I don't think it's approved for that use yet.

Signature

Lee M.Thompson-Herbert        lee@retro.com         KoX 1995, SP4
Head Muso, White Rats Morris, Faultline Morris
See my CafePress Shops: http://www.retro.com/employees/lee/CafePress.html
"A head-on collision between Morticia Adams and Martha Stewart"

Rex - 25 Jan 2005 22:50 GMT
Hi:
Was on for a while for chest pain following CABG. Did not get relief and
decided to quit cold turkey. BIG mistake. Went into a hellacious flare
until we figured out that you must taper off just like pred.

Rex

> Is anyone taking Neurontin for their arthritis and if so what do you
> think of it? I started taking it a few months ago and it makes me
[quoted text clipped - 5 lines]
> Take Care,
> Kim
jb - 26 Jan 2005 04:43 GMT
FYI

there is a generic neurontin on market now. I checked with sams club today
and it is 1/2 half the price of brand name.  Sure helps me since I dont have
any insurance.  Still 150.00 for a months supply of 800mg.
jb

| Hi:
| Was on for a while for chest pain following CABG. Did not get relief and
[quoted text clipped - 12 lines]
| > Take Care,
| > Kim
Gwen Love - 26 Jan 2005 18:58 GMT
Janice, I wish I could find generics for all of mine--do have on some.  But
my prescription bill last month was $1,000.60, and I don't have any
insurance either.
Good thing my son & dil feed me most of the time!
Gwen

> FYI
>
[quoted text clipped - 19 lines]
> | > Take Care,
> | > Kim
 
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