Medical Forum / Diseases and Disorders / Arthritis / December 2004
no more Bextra for me
|
|
Thread rating:  |
Janet R - 30 Dec 2004 00:31 GMT Howdy!
I had a great Christmas! My hubby got me exactly what I wanted! I had all my kiddos with me and my parents too. I am almost finished setting up my glass studio...I will have to take some pics soon and post them on the net!
then......
I went to my RD yesterday. He took my Bextra away :(
He told me if I still wanted Bextra I had to go to my cardiologist and get a full work-up and allow the Cardio to prescribe the Bextra. He said he would rather up my MTX than add Bextra back. I also now take pred at a low dose (moon face here I come!)
Well, this just kinda sucks. Today I am stiffer than a statue. Joints are swelling up nicely too. I'm cannot take NSAID's....so I'm just basically whining.
I probably just need to let things settle down a little, let the MTX kick in, and let the pred kick in too. Ok, I'm hobbling back to my recliner.
 Signature Janet
d'huit - 30 Dec 2004 00:47 GMT (((((((((janet)))))))) i remember how much bextra helped me and i miss it. i can imagine how much you must miss it. but, i was the one who gave it up, before my rd confirmed it was a good idea. (i had that heart attack scare back in feb. and wasn't going to push my luck with bextra.) mobic seems to help a little, after i was permitted to double the dose, but not as well as bextra helped.
maybe once your rd has tweaked the doses of your meds enough, until he figures out what helps you most, things will settle down for you, janet. at least, i sure hope that will be true for you.
glad you had a good christmas! what glass studio? stained glass studio or blown glass? i'd love to see those pictures!
i've always wanted to learn how to do stained glass. went to sign up for a fall class this year, but the teacher's wife had recently passed away. understandably, those were cancelled.
kate
> Howdy! > [quoted text clipped - 19 lines] > kick in, and let the pred kick in too. Ok, I'm hobbling back to my > recliner. Janet R - 30 Dec 2004 01:30 GMT My glass studio is for making glass beads...called Lampworking. I use Moretti, Maurno and Lauscha rod glass...and all types of stained glass to make my beads. The electrician installed my circuit to run my kiln this afternoon, but I was a tad too stiff to start annealing my beads.
I will get to work on those pics....
Janet R
| (((((((((janet)))))))) i remember how much bextra helped me and i miss it. | i can imagine how much you must miss it. but, i was the one who gave it [quoted text clipped - 44 lines] | Checked by AVG anti-virus system (http://www.grisoft.com). | Version: 6.0.822 / Virus Database: 560 - Release Date: 12/22/2004 Nann Bell - 30 Dec 2004 13:06 GMT > My glass studio is for making glass beads...called Lampworking. I use > Moretti, Maurno and Lauscha rod glass...and all types of stained glass [quoted text clipped - 4 lines] > > Janet R how wonderful! We used to know some folks who made their own glass beads back when we did the art show circuit in Florida. Beautiful stuff. I spent a lot of time drooling over their stuff, but never could bring myself to spend the $$$ for the ones I really wanted to hang on me. (I have expensive tastes in some things! )
I look forward to seeing the pictures!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
d'huit - 30 Dec 2004 18:32 GMT > My glass studio is for making glass beads...called Lampworking. I use > Moretti, Maurno and Lauscha rod glass...and all types of stained glass [quoted text clipped - 4 lines] > > Janet R this sounds like beautiful beads. can't wait to see the pix of your studio. hope you include a picture or two of the beads themselves or what you create from them. would love to see that, too.
kate
> | (((((((((janet)))))))) i remember how much bextra helped me and i > miss it. [quoted text clipped - 63 lines] > | Checked by AVG anti-virus system (http://www.grisoft.com). > | Version: 6.0.822 / Virus Database: 560 - Release Date: 12/22/2004 Kelly - 30 Dec 2004 02:02 GMT Low dose prednisone shouldn't cause moon face - how low is he talking Janet. We increased my prednisone and took away celebrex. Seemed safer in my case and I feel better about it.
That said it wasn't working anyhow so.... come to think about it enbrel isn't working that well lately either or else I am just going through flare from hell again. Getting really sick of it. Another sinus infection too so will go off enbrel and back on antibiotics probably again - go to the doctor tomorrow.
Just get so sick of it. Anyhow talked to the RD last week and it looks like maybe another drug trial in April. If it works like the last one well it might be worth getting my hopes up again. This is another new biologic so....
At least there are more choices out there than there were.
Hang in there and don't panic over the moon face. If the prednisone is kept low dose and you keep faithfully taking the vitamin d and calcium you shouldn't be too bad (depending on what he calls low dose).
Hugs, Kelly
> Howdy! > [quoted text clipped - 19 lines] > kick in, and let the pred kick in too. Ok, I'm hobbling back to my > recliner. Janet R - 30 Dec 2004 15:14 GMT Well, it helps when you aren't starting out with a nice little pudgy face...LOL. I tend to be quite sensitive to pred, so I can take lower doses than most folks. I am on 7.5 now...anything over 20mg has me bouncing off the wall in a nice little mania (it's quite funny to watch!)
Once when my dose was 30mg due to plueral effusions (sp)...my hubby brought me to a book store and I was jumping out of my skin...I started touching everything in the store...opening all the books...reading all the titles out loud. He nearly had to hog-tie me to get me out of the store. Then on the way home...I would try to guess when each stop light would change..."red, red, red, GREEN!!!!...no, red, red, now GREEN!". I'm surprised he didn't leave me on a street corner.
He called my RD ASAP.....we went back down to 20mg!
I completely understand your feeling of "being sick of it". We just have to hang in there -- together!
{{{{{{{Kelly}}}}}}} We all manage somehow! :)
Janet R
| Low dose prednisone shouldn't cause moon face - how low is he talking Janet. | We increased my prednisone and took away celebrex. Seemed safer in my case [quoted text clipped - 43 lines] | > kick in, and let the pred kick in too. Ok, I'm hobbling back to my | > recliner. Kelly - 30 Dec 2004 16:22 GMT Okay Janet - 7.5 is what I have been on forever! It is a high low dose. We will both have slightly pudgy faces. I can't take anything over that without being hyper too. At 20 mg they give me valium to go with it.
Hange in there - hopefully the rise in mtx will help.
Kelly
> Well, it helps when you aren't starting out with a nice little pudgy > face...LOL. I tend to be quite sensitive to pred, so I can take lower [quoted text clipped - 87 lines] > my > | > recliner. firechief - 30 Dec 2004 19:17 GMT > Then on the way home...I would try to guess when each > stop light would change..."red, red, red, GREEN!!!!... > no, red, red, now GREEN!". You just reminded me of all the times I thought dad was performing magic by "blowing" the red light out and making the green light would come on. <g>
Kenny - 30 Dec 2004 02:30 GMT That's a tough one Janet. I do hope you get to feeling much better soon. That really sucks about the Bextra though. That's one thing I've never even tried but have heard good things about it. {{{{{Janet}}}}} Very gentle hug for you.
~Kenny
>Howdy! > [quoted text clipped - 19 lines] >kick in, and let the pred kick in too. Ok, I'm hobbling back to my >recliner. Janet R - 30 Dec 2004 15:16 GMT Thanks Kenny... Actually I am feeling a little better today. I am even going to take my son to get his ~DRIVER'S LICENSE~....
Where's my Jack Daniels?
Janet R
| That's a tough one Janet. I do hope you get to feeling much better | soon. That really sucks about the Bextra though. That's one thing I've [quoted text clipped - 26 lines] | >kick in, and let the pred kick in too. Ok, I'm hobbling back to my | >recliner. firechief - 30 Dec 2004 19:19 GMT > Where's my Jack Daniels? It won't be like the "old" Jack Daniels you may be used to. The alcohol content was lowered in 2004, earning the company a "distinction of the year" award.
As one editorial remarked, "Jack Daniels must be turning over in his grave,"
Janet R - 30 Dec 2004 21:12 GMT The HUMANITY! Lowered?
Might as well drink a Near Beer.
Janet R (btw..I really don't drink...im goofy enough)
| > Where's my Jack Daniels? | [quoted text clipped - 5 lines] | As one editorial remarked, "Jack Daniels | must be turning over in his grave," Nann Bell - 30 Dec 2004 13:06 GMT (((((((Janet)))))))) Maybe he could give you a pain med to carry you through this time or let you take a higher dose of pred for a couple of days with a quick taper back to your low dose, just to kickstart the pred effects some.
It sucks that the trade-offs have become so potentially lethal for some folks. I feel more and more blessed that I can take most NSAIDs. May be time for another DMARD in your basket, too.
Thanks goodness you had a nice Christmas before this big disappointment!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Janet R - 30 Dec 2004 15:19 GMT Thanks Nann, I feeling better today...the pred kicked in about 10 pm last night and I got a decent nights sleep!
I took the max of Ultracet and that helped too. Thanks for the hugs...I really needed them yesterday.
Janet R
| (((((((Janet)))))))) Maybe he could give you a pain med to carry you through | this time or let you take a higher dose of pred for a couple of days with a [quoted text clipped - 5 lines] | | Thanks goodness you had a nice Christmas before this big disappointment! DeeTee and Bob Taggart - 30 Dec 2004 15:29 GMT {{{{{Janet}}}}} Sorry, babe. I hope they come up with SOMETHING to help you. It's frustrating.
DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________
> Howdy! > [quoted text clipped - 19 lines] > kick in, and let the pred kick in too. Ok, I'm hobbling back to my > recliner. DCHAM - 30 Dec 2004 22:08 GMT sorry about the bextra, janet. that's rough. i guess he won't let you do celebrex either?
diane
Janet R - 31 Dec 2004 02:26 GMT Nope...he has taken all his patients off all Cox-2's.
Janet R
| sorry about the bextra, janet. that's rough. i guess he won't let you do | celebrex either? | | diane Rosemarie Shiver - 30 Dec 2004 18:58 GMT Dang!
My PCP says I can stay on it. She said that what the news stories say is exaggerated and the studies aren't so negative. Plus I have GERD and erosions...the risks of average NSAID's are too high for me.
But then again, it could be my age. I'm 47 and the study subjects had 20 yrs.seniority on me.
Sorry your RD is dropping Bextra...wish you had my PCP instead. I did fine and dandy on MTX, it wuz the Bitch in a Bottle ( Pred.) I couldn't do.
Cox-II Hugs from Rosie
 Signature "If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat Outta Hell II
> Howdy! > [quoted text clipped - 19 lines] > kick in, and let the pred kick in too. Ok, I'm hobbling back to my > recliner. Janet R - 30 Dec 2004 21:13 GMT I'm only 37 and a half?! LOL
Actually I am feeling even better today with a low dose of pred....I am pretty sure I can stick this out.
Janet R
| Dang! | [quoted text clipped - 32 lines] | > kick in, and let the pred kick in too. Ok, I'm hobbling back to my | > recliner. firechief - 31 Dec 2004 06:27 GMT > I'm only 37 and a half?! LOL Dang, 3 of my 4 sons were born before you. <g>
|
|
|