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Medical Forum / Diseases and Disorders / Arthritis / January 2005question about rheumatoid
id just like to know if anyone with rheumatoid, does like me. i do hurt during the day but not to where i cant stand it.my problem is at night. ill sleep good till about 1 or 2, then ill wake up with deep gut wrenching pain, different places every night. all i can do is lay there and cry. it hurts so bad. about an hour after i get up im fine, just sore. any info will be appreciated, Sandy >id just like to know if anyone with rheumatoid, does like me. i do hurt >during the day but not to where i cant stand it.my problem is at night. >ill sleep good till about 1 or 2, then ill wake up with deep gut >wrenching pain, different places every night. all i can do is lay there >and cry. it hurts so bad. about an hour after i get up im fine, just >sore. any info will be appreciated, Sandy Sometimes the pain is worse at night. I think there are a variety of reasons for this, including the position you are in, the pressure that is being placed on certain joints, the fact that you are immobile and that joints tend to stiffen up. I think too we notice it more at night than in the day when we are busy or mentally engaged in other things. I am wondering though, what are you doing to control your RA? What meds are you on? It sounds as though whatever you are taking is not working. Your Rd should know that you are experiencing "gut wrenching pain" . You need better pain control, as well as better RA control. There is no good reason for putting up with the pain. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. i've certainly been there with the crying-at-night pain. there's nothing quite like it. haven't had that in years, though, (or at least rarely), not since the good dmards. what treatment are you on? diane Hi Sandy. Wow, I'm trying to identify with you. I've only recently been diagnosed with RA and am taking Plaquenil and MTX at the present time. I also have OA and Fibromyalgia, so it's sometimes hard to differentiate where the pain is coming from. I suspect all 3! :-( What I'm wondering, Sandy, is if you have anything to take for sleep? I take Soma and Doxepin at night, which enable me to sleep pretty well. Occasionally, like with weather changes, I wake up anywhere from 2:30-4:00 a.m. from pain. I just take another dose of Soma and 2 Excedrin PM's, go back to bed and sleep until I wake up for the day. I don't work outside of the home anymore, so this might be more of a problem if you work full-time and have to get up early. Anyhow, it sounds to me like you may need some addition or adjustment to your meds. Take care. Nanny > id just like to know if anyone with rheumatoid, does like me. i do hurt > during the day but not to where i cant stand it.my problem is at night. > ill sleep good till about 1 or 2, then ill wake up with deep gut > wrenching pain, different places every night. all i can do is lay there > and cry. it hurts so bad. about an hour after i get up im fine, just > sore. any info will be appreciated, Sandy > id just like to know if anyone with rheumatoid, does like me. > i do hurt during the day but not to where i cant stand it.my [quoted text clipped - 3 lines] > about an hour after i get up im fine, just sore. any info will > be appreciated, Sandy Sandy, when were you diagnosed with rheumatoid, and what does you rheumatologist say about this night pain? What medications are you taking? Or have taken? I've been using KETOPROFEN (a salve), and LIDOCAIN patches at night. They've worked so far in taming pain in the rib cages, groin/hip, neck/shoulders, and knees. I was diagnosed about 4 years ago and went to a rheumatologist at a charity hospital for while. All he would do is give me a cortisone shot and Celebrex. I havent seen a doc in awhile and Im not taking anything right now. I use different creams and take Excedrins like candy. My husband is very unsupportive. He will not even take me to a doc and when Im laying there crying, hes snoring. I dont work anymore, which is very depressing, cause Ive worked all my life. I guess the reason I joined here is to make some friends and have someone to talk to. Ive been reading on here for almost 2 weeks before I joined, and you all seem like a nice group of people. Thanks for replyng to me. i'm so sorry you're husband is unsupportive. you MUST find a way to see a rheumatologist! there are new drugs in the last four years that can help you immeasurably. damage is being done to your joints right now if you have rheumatoid arthritis. please find a way to get to the doctor. diane If you can possibly get in to see a doctor now, please do so. You weren't treated appropriately before and a decent mediacation program makes a huge difference. I'm still not dancing in the streets, but I am much better than I have been in recent years thanks to constant adjusting of my meds. There are meds that are affordable options if you have no insurance and a decent doctor will work with you to get you meds through giving you samples or getting on patient assistance programs. The quantity of Excedrin you say you're taking is very bad for you, you are risking life-threatening complications from it. Please try to see a doctor to get safer meds and/or be monitored for these side effects. And please keep us posted. We do care. (oh, and yes, I've been there with the waking overnight in major pain. It's not unusual.)  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > I was diagnosed about 4 years ago and went to a rheumatologist at a > charity hospital for while. All he would do is give me a cortisone shot [quoted text clipped - 6 lines] > reading on here for almost 2 weeks before I joined, and you all seem > like a nice group of people. Thanks for replyng to me. Thank you for yur support. I do want to see a doctor. I can tell that Im getting worse. But, like I said, my husband doesnt care, nor my family. They dont seem to think its bad. Ive tried to get them to read up on it, and at times they see how it is when I cant hardly walk or when Im hurting bad. I dont have a vehicle(my husband does) so I dont go anywhere. I stay stressed out all the time. He is also an alcoholic, which doesnt help any. Its just that no one seems to care about my condition. I wouldnt wish this type of pain on anyone, but sometimes I wish him or my family coud feel it one time, just to see what I go through. I dont take but maybe 5 Execdrin a day now which is better than the amount I used to take. do you have health insurance to see the doctor? are there cabs in your town? is there a women's center in your area? please call them and tell them your situation. you need help from outside your family. diane >do you have health insurance to see the doctor? are there cabs in your town? >is there a women's center in your area? please call them and tell them your >situation. you need help from outside your family. > >diane Excellent advice. Even a girl friend that could take you to see a doctor, anyone. RA is far more than joint pain; it is also joint destruction, potential damage to internal organs, damage to eyes, ears, larynx, and etc. You need to be on proper medications that will slow or stop the damage that is being done. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Sandy, Diane gave you very good advice...I hope you can work something out and take care of yourself--you are important, please remember that. donnah > do you have health insurance to see the doctor? are there cabs in > your town? [quoted text clipped - 3 lines] > > diane i do not have any type insurance. i live in a very small town, 60 miles either way from a larger town > i do not have any type insurance. i live in a very small town, > 60 miles either way from a larger town You haven't mentioned where you reside, but most - if not all - states have some civil (and even penal) laws about a spouse furnishing food, clothing, shelter, and medical care. I live in Louisiana. Dont know if they have those laws or not. Just to give you an example of what I go through. I was up night before last, all night long, hurting very bad. I was crying and couldnt move, the pain was so bad. My husband turned his back to me, covered his head up and proceeded to sleep and snore. The next morning he never said a word to me. I could hardly walk(even the bottom of my feet hurt). I asked him to take me to a doc somewhere so at least maybe I could get a cortisone shot. He said he couldnt take off a few hours of his $60 a day job. So after he left, I called my Dad and stepmom. She couldnt take me because she had a headache. So, I started taking my Celebrex again yesterday(which doesnt do much good). Anyway,so now this is just a sample of the loving people I have in my life. I will just continue to try and keep my spirits up and take care of myself best as I can. Im not trying to whine to anyone, just really need someone right now. I have no friends around here. They, too, seem caught up in their own lifes. I really dont believe that anyone thinks how serious rheumatoid is, or they just dont care as long as its not them. Okay, I think Ive said enough this time. Thanks to all of you that write me back. I feel so sorry for you. I have a very loving family. Even my young grandchildren ask if they can help. I do know people who are in your position. Do you have a church group or other you can join to make friends. God Bless audie Thank you for caring. It does help me to hear from all of you. Im gonna be okay. Im a pretty strong person. Have to be around here. I had another bad night last night, but Im better today. If anyone would like to email me, just send to ziphandel04@webtv.net. It really makes me feel better hearing from you all. Im glad I joined this group. You all are great. Hope to hear from you soon. Sandy I'm so sorry to hear that your SO is so callous in regard to your RA and terrible pain level you're presently experiencing. You take very good care of yourself, if no one else will! Nanny >I live in Louisiana. Dont know if they have those laws or not. Just to > give you an example of what I go through. I was up night before last, [quoted text clipped - 14 lines] > they just dont care as long as its not them. Okay, I think Ive said > enough this time. Thanks to all of you that write me back. Sandy, I emailed you privately. I hope things get better soon. Don't give up. Please find some way to get to the doctor. Church, neighbor, taxi, whatever it takes. debbie m. http://www.angelfire.com/ga2/angels1/ > I live in Louisiana. Dont know if they have those laws or not. Just to > give you an example of what I go through. I was up night before last, [quoted text clipped - 14 lines] > they just dont care as long as its not them. Okay, I think Ive said > enough this time. Thanks to all of you that write me back. Sandy, I sure hope your hubby and family get to understanding and being there for you. I feel for you. My heart goes out to you. I wish you didn't have to suffer so much. I know how it is with having no vehicle to go anywhere when no one is there to take you. It does get frustrating. Sending hugs your way. Joe and Nicole, Thanks for posting what you did. I think I will try the calcium at bedtime. I will also check into the cortisol level thing Nicole, because my cortisol level is really messed up with the adrenal gland masses. It would make it worth while to check it out. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Thank you for yur support. I do want to see a doctor. I can tell that Im > getting worse. But, like I said, my husband doesnt care, nor my family. [quoted text clipped - 7 lines] > through. I dont take but maybe 5 Execdrin a day now which is better than > the amount I used to take. From what my dr told me, pain increases at night due to rising cortisol levels. I'm sorry you have so much pain. Is your RA being treated? With what meds? If not, find a good rheumatologist and a pain doctor. Nicole > id just like to know if anyone with rheumatoid, does like me. i do hurt > during the day but not to where i cant stand it.my problem is at night. > ill sleep good till about 1 or 2, then ill wake up with deep gut > wrenching pain, different places every night. all i can do is lay there > and cry. it hurts so bad. about an hour after i get up im fine, just > sore. any info will be appreciated, Sandy > From what my dr told me, pain increases at night due > to rising cortisol levels. I read last week (maybe posted it here) that the body loses more calcium at night than during the day, and it was recommeded to take calcium suppliments at bedtime - rather than morning - for that reason. Now I'm wondering if our night pain is being caused by the action of that calcium loss. |
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