 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Arthritis / December 2004new to group
hi, my name is Theresa, im 39 years old and was born with arthrogryposis. ~Theresa www.hometown.aol.com/terry2745/index.html > hi, my name is Theresa, im 39 years old and was born with > arthrogryposis. > ~Theresa > www.hometown.aol.com/terry2745/index.html Welcome to ASA. The best support group on the internet when used by people that regularly post here and not some mess from crossposting. Let me first to say that I have never seen the word arthrogryposis before and if you want to explain it, I thank you. Harv Welcome Theresa, > > hi, my name is Theresa, im 39 years old and was born with > > arthrogryposis. [quoted text clipped - 7 lines] > > Harv Hi Harv, A Google search found: http://www.orthoseek.com/articles/arthrogryposis.html Which say's; "Arthrogryposis translated from the Greek literally means "curved or hooked joints." Hence, this term is used to describe multiple joint contractures present at birth. There are many causes for congenital multiple joint contractures, and could be due to abnormal nerve or muscle development in the womb. However, the commonest form of arthrogryposis, present in 40% of cases, is a condition called amyoplasia." GramPaHugs, Alex, -- Any information is included for informational or entertainment purposes only, is based on my personal experiences & is an expression of my opinion. No endorsement is implied or intended. **************************************************** * Love radiating from 45.10n x 93.30w M/SP Mn * <a href="http://home.mn.rr.com/apbiii">AOL Click</a> * <a href="http://grampahugs.is-a-geek.org/">AOL Click</a> **************************************************** > Hi Harv, > A Google search found: [quoted text clipped - 10 lines] > called > amyoplasia." Thanks, Alex. I was totally unfamiliar with the word, too. Theresa, has this condition been as difficult and painful as it sounds? What can you tell us about your treatment for it?  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Hi, sorry it took me a while to reply, Its been busy! And to answer the Q has this condition been as dificult & painful as it sounds? Well, not if it sounds painful & dificult! lol To me, its my way of life, so its not dificult at all. the pain comes from arthritis, & so far im able to kinda control it by just taking BC powdered asprins. For the person commenting about my webpage opening slow IM SORRY!! i think I have to many pics on it & thats the reason. SORRY :( ~Theresa www.hometown.aol.com/terry2745/index.html Hi Theresa, good to meet you! Skip > hi, my name is Theresa, im 39 years old and was born with > arthrogryposis. > ~Theresa > www.hometown.aol.com/terry2745/index.html > Hi Theresa, good to meet you! > [quoted text clipped - 4 lines] >>~Theresa >>www.hometown.aol.com/terry2745/index.html Hi Theresa, Welcome aboard! Nell >hi, my name is Theresa, im 39 years old and was born with >arthrogryposis. Hi, and welcome. Arthrogryposis is nasty stuff. How badly affected are you? If you like chocolate, better hide it, a lot of people here might steal it. But they are nice people, despite their tendency to steal chocolate. I will guard it for you, free of charge. :-) --- Joan Welcome Theresa. I don't post very often but I read everything and I know you'll be able to find any info you might need here ... and you'll be welcomed with open arms. Guard your chocolate though because some of these guys REALLY like it. *Grin* And by the way, I like my chocolate with coffee. ;-) Jean Welcome! Tell us a little about yourself. DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________ > hi, my name is Theresa, im 39 years old and was born with > arthrogryposis. > ~Theresa > www.hometown.aol.com/terry2745/index.html hi theresa! welcome to the sandbox. the "family" here, sans trolls, is a great group of people and this ng is considered a refuge, by many. there is a vast array of knowledge, wisdom and abilities here. you will find, in this group, a lot of love, caring and compassion, as well as silly fun. pull up a chair and sit awhile, as our mama char would say if she had seen your post first. i'm sorry you have athrogryposis. it sounds very painful. please tell us more about yourself. and, do you like chocolate? do you have any? you may have to present it to our chocolate inspector (i'll let her introduce herself) who will make certain any of your chocolate, that has even minor imperfections, never touches your lips. our guardian of chocolate, would be more than willing to lock it up for safe keeping, if she weren't so busy at the moment. we need to appoint someone pro-tempore for that position, until donnah gets back. our clubhouse has a huge chocolate safe of which only donnah knows the combination, though why we didn't appoint donnag, who only likes gumdrops, to that position is something i'll never fathom. it is really very odd how chocolate shrinks in time, but donnah assures us it is a natural chocolate aging process. duckie, our resident dancer is currently recovering from knee replacement surgery at the moment. generally, she frquently will do her chocolate ceremonial dance, while our melinda performs the requisite rituals to insure our adequate supply of chocolate. kimmy and kj, upon request, will teach you how to create sumptuous chocolate margaritas for youself. adelle, our clubhouse's resident attorney and whose fee for service is a trace of chocolate, will handle all the legal work to insure your chocolate does not fall into the hands of unscrupulous brigands and protect it from false claims. mama char, our clubhouse chef extraordinaire, will prepare positively sinful delicacies from your chocolate for you. maryz, our resident chocolate conservationist, will teach you how to conserve it and take it for kayak rides, occassionally, to keep its chocolate spirit robust. johnie, our "dessert dweller", will take it on ceremonial hikes into his desert surrounds to keep it smooth and creamy for you. me, i just write poetry about it. i know i've missed a number of people in our group with a wide range of chocolate skills of which you might wish to avail yourself. i'll let them introduce themselves to you. in the meantime, feel free to jump in anywhere on any thread and get to know the rest of us as we get to know you. kate > hi, my name is Theresa, im 39 years old and was born with > arthrogryposis. > ~Theresa > www.hometown.aol.com/terry2745/index.html Well hello all & thank you for the nice welcome!!!! 1st of all, I was asked to tell a bit about myself, well im 39 years old, I live in Indiana & Im an artist & I was born with a diff-ability called arthrogryposis. it effect the joints. I have small structure & limited mobility with joints fixed. but it doesnt stop me! & YESSSSS I LOVE CHOCOLATE!!! :) & sorry i trust NOONE to gaurd mine hahaha thanks anyway!!! O:) I dont consider my arthrogryposis "nasty" though, I have accepted me for me! :) I do have arthritis in my joints too, I am not on any arthritis meds YET, just BC powdered asprin right now!! If you want to know more or see my art its on my webpage www.hometown.aol.com/terry2745/index.html Thanks 4 the sweet welcome again!!! ~Theresa Hello Teresa and welcome to ASA. you have a new joint issue about which I'll need to educated myself. So welcome to the sandbox- melinda >I dont consider my arthrogryposis "nasty" though, I have accepted me >for me! :) That's good. The only patient I ever saw with arthrogryposis was a wee baby who had major joint involvement. We did a lot of physio on him and I have often wondered how he made out. --- Joan >I do have arthritis in my joints too, I am not on any arthritis meds >YET, just BC powdered asprin right now!! Wow, just had a brief look at your web page, and Tucker's. I wish the orthopedic surgeon who told me we were wasting our time doing physio and teaching his mum to do physio. That didn't stop us, though, nurses are sometimes stubborn. :-) --- Joan Im glad you guys didnt listen to the doctor!!! I honestly havent been seen by many that truely understand arthrogryposis! Most have never hear of it!!! I met Tucker & his mom online almost 7 years ago. when i 1st got online service i typed in arthrogryposis, to see if there was any info. & i found Tuckers website. he was only 3 months old at the time with arthrogryposis. Now he will b 7 in Feb. & hes my buddy! His mom & I are best friends now! Even tho we have never met in person yet. u see, they are in CA & im in IN. but someday!!! ~Theresa www.hometown.aol.com/terry2745/index.html Well hello all & thank you for the nice welcome!!!! 1st of all, I was asked to tell a bit about myself, well im 39 years old, I live in Indiana & Im an artist & I was born with a diff-ability called arthrogryposis. it effect the joints. I have small structure & limited mobility with joints fixed. but it doesnt stop me! & YESSSSS I LOVE CHOCOLATE!!! :) & sorry i trust NOONE to gaurd mine hahaha thanks anyway!!! O:) I dont consider my arthrogryposis "nasty" though, I have accepted me for me! :) I do have arthritis in my joints too, I am not on any arthritis meds YET, just BC powdered asprin right now!! If you want to know more or see my art its on my webpage www.hometown.aol.com/terry2745/index.html Thanks 4 the sweet welcome again!!! ~Theresa I had replyed befor reading your reply. Just finished my first purusal through your website. I have a billion comments. First, I love the term diffability. It is much more graceful than differently abled. I am hoping I can conclude by the members of your fur family, that you are a dog person? I love your work- My favorite though is the piece with the kid sliding. The motion just brings tears to my eyes. I was the original slide queen in my baseball days. Is that pic with the young man in the military, Michael? Thanks for the links about arthrogryposis- Once again, welcome melinda well, heck, melinda. you just said what i was going to! so now, i have to say, "me too" to what you said.<g> lovely watercolors, theresa, just lovely! your web page is very uplifting and inspiring. kate >I had replyed befor reading your reply. Just finished my first purusal >through [quoted text clipped - 18 lines] > > melinda hi &thank you!!! I love that term myself, it "fits" me better!!! YESSS i am a dog person!! I had a Sheltie for 10 years, he died 2 years ago, he was my baby. now I have a Shih-tzu, hes my baby now!! & hes a brat lol The painting of the kid sliding in is my nephew Michael, I saw that picture & it was a chalenge! But i did it! The young man in the Military is my friends son, Tad. im soooooooooo proud of him!! As you can tell by my webpage im very proud of my nephew too! Hes a big senior this year. & hes an awesome kid! Great baseball player too! You will prob see him profesionally someday! Thank you to all of you that welcomed me so warmly & said great things about my art!! ~Theresa www.hometown.aol.com/terry2745/index.html > I had replyed befor reading your reply. Just finished my first purusal through > your website. I have a billion comments. First, I love the term diffability. [quoted text clipped - 14 lines] > > melinda welcome theresa, and thank you for sharing your inspirational website! i have two shelties myself and loved the sheltie painting. i hope you'll stick around. just ignore the trolls. diane visit my website at http://www.dianechamberlain.com Loved your site and your pictures. You did a great job on them. By the way if I didn't say it already, welcome to the group. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > hi &thank you!!! I love that term myself, it "fits" me better!!! YESSS > i am a dog person!! I had a Sheltie for 10 years, he died 2 years ago, [quoted text clipped - 36 lines] > > > > melinda > Loved your site and your pictures. You did a great job on them. > >> www.hometown.aol.com/terry2745/index.html How much time did it take to load? I'm on high-speed cable and exited after 65 seconds of looking at a blank page. Then the damned site took another minute++ before it would return me to OE. This was the second time. I tried it last week when the URL was first posted. about the same time as your high speed one did. ;-P SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > > Loved your site and your pictures. You did a great job on them. > > [quoted text clipped - 8 lines] > This was the second time. I tried it last week when the > URL was first posted. Theresa, I am amazed looking at your and Tucker's websites. My hat's off to both of you. And I want to add my welcome to all the others. Gwen > Well hello all & thank you for the nice welcome!!!! > 1st of all, I was asked to tell a bit about myself, well im 39 years [quoted text clipped - 11 lines] > Thanks 4 the sweet welcome again!!! > ~Theresa Hi Theresa welcome and nice to meet you janice | hi, my name is Theresa, im 39 years old and was born with | arthrogryposis. | ~Theresa | www.hometown.aol.com/terry2745/index.html >hi, my name is Theresa, im 39 years old and was born with >arthrogryposis. >~Theresa >www.hometown.aol.com/terry2745/index.html Pleased to meet you Theresa. What a beautiful webpage! Your artwork is breathtaking. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. > hi, my name is Theresa, im 39 years old and was born with > arthrogryposis. >> Theresa > www.hometown.aol.com/terry2745/index.html Hi, Theresa! Welcome to the sandbox! Jump in wherever you like. Unfortunately, we've had a troll around recently attacking one of our beloved members. Don't be frightened away by angry sounding threads - just hit the delete button. This person usually retreats again after a while. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare On or about 12/6/2004 10:22 AM, Theresa.com posted the following: > hi, my name is Theresa, im 39 years old and was born with > arthrogryposis. > ~Theresa > www.hometown.aol.com/terry2745/index.html Welcome to our group. I enjoyed my visit to your website, thanks. JDShine |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2009 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.