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Medical Forum / Diseases and Disorders / Arthritis / July 2004remicade denied again..i hate my life
darn bcbs. not sure exactly why this time. cant do enbrel cuz crap, who can afford the 800 a month that it would cost me with insurance. I dont qualify for any free assitance because I have insurance. my rd is gone for the week. he gets back next week, then im gone for the week. im off my nsaids and dmards cuz they are making me sick, im depressed as hell, i cant post onthe other newsgroup because peopel think im crazy, im feeling paranoid, unloved, and just feel like crying all the time. i have to hide it from my husband because he doesnt know how to fully handle it yet. Hes getting better,dont get me wrong , finally knows that when im feeling like this i just want him to hold me, not fix it (hes that kinda guy, if something is wrong and he cant fix it, it frustrates him). All i have for pain is enough, and i am able to sleep so im trying to concentrate on those 2 good things. Hardly any of my friends are talking to me anymore. the band ive followed for 10 years of my life is ending this summer. I cant get a job, cuz i have to puff for pain and the jobs i could do they all test, im just a mess. I havent had a chance to get anything but 2 post cards out. I fail at everything i do, i just, ijust, i just dont know what to do anymore. marnie check out my newly updated list! http://db.etree.org/telafree Learn something if you dare: http://spondylitis.org/ http://www.butyoudontlooksick.com/spoons.htm sorry to hear you are having alot of down days. we all do on this post but look forward to the good days coming. they are out there. go to the park, movies or museum or even in church you can meet some nice people who know how you feel. i am one who knows how you feel. please keep us posted and keep your chin up God Bless audie > sorry to hear you are having alot of down days. we all do on this post but > look forward to the good days coming. they are out there. go to the park, > movies or museum or even in church you can meet some nice people who know how > you feel. i am one who knows how you feel. please keep us posted and keep your > chin up God Bless audie Well said Audie.... We have to try to do the best we can with each day but I have to admit that there are some days when things seem to kind of stack up but they pass and things do get better with our help. There are times when everyone just has to keep putting one foot infront of the other and just keep going. Harv Aw, Sweetie...all I can say is "I'm sorry". I'm sorry about everything that is crappy about your life right now. I'm sorry that we all feel for you, but can't really do anything about it. I'm just sorry. I think maybe a trip to that beautiful online wedding album wouldn't hurt a thing, or cost a cent and might make you smile a little. It sure made me happy to see you two having so much fun with your friends. I know I haven't solved any problems or fixed anything, but I wanted you to know that I care. Hugs, Kelly C. >I know I haven't solved any problems or fixed anything, but I wanted you to >know that I care. thanks to you, and to the others who have already responded here and tomy private email box. Its the constant battling on the other newsgroup, seeing my name thrown in the mud, combined with my health, the fact that the last phish tour is coming up, everytghing is all just coming to this point where I have no idea what I'm gonna do with my life. Its defintely like a death, i dealt with the death of my father better then im dealing with all the crap now. I feel lame just for complaining because i know there are other people out there who are way worse off then me, but i cant stop the tears. thanks again... marnie check out my newly updated list! http://db.etree.org/telafree Learn something if you dare: http://spondylitis.org/ http://www.butyoudontlooksick.com/spoons.htm dear marnie, I feel your pain and I just want you to know that I will continue to pray for you. I have been weaning off of pred and it has been very painful....this am has been the worst..my husband has to help me constantly. I have about four hours during the day when my pain is tolerable. I have been strict about using pain med. Do not want to get addicted to them...I have come down from 33mg of pred to 10mg. I have been on Enbrel and alot of other stuff and had too many infec with them..I am going to start methotrexate in a couple of weeks...I have been on that before but we are trying it again...dont have too many choices. Sometimes all we can do is to let people love us... God bless you, Polly I can honestly say that I've said a few of the same things this week. I'll tell you what I've been telling myself. It's time to get your back up and come out fighting. Would an appeal with your insurance help at all? I think it's worth a try. Hope things settle down soon. I know it's SO hard sometimes. (((((marnie)))))) melissa <who's life ain't so great either> >darn bcbs. not sure exactly why this time. cant do enbrel cuz crap, who can >afford the 800 a month that it would cost me with insurance. I dont qualify for [quoted text clipped - 21 lines] >http://spondylitis.org/ >http://www.butyoudontlooksick.com/spoons.htm >Would an appeal with your insurance help at all? I think it's worth a try. Im not sure. My doc is outta town this week (of course ;-D) but when he gets back we will see what happens. I think he is going to be surprised and i know that the other wonderful people who work in his office were pretty upset that it got denied a second time. They are workin hard on it. I have complete faith in my doc and his office and that is the ONE THING that keeps me going when there's nothing left. marnie check out my newly updated list! http://db.etree.org/telafree Learn something if you dare: http://spondylitis.org/ http://www.butyoudontlooksick.com/spoons.htm appeal time for sure, Marnie. Have you checked out clinical trials? Hang in there m {{{{{marnie}}}}} hold on, girl--the corner is just ahead--and blue skies after you turn it.....Alix Marnie, I am sorry to hear this. I hope something works out for you soon. I feel for you sweetie. I wish there was something I could do for you to help you out. We at ASA are still your friends and we talk with you. We don't care about other stuff that normal people care about. We see you as you post or email and we see a very good compassinate person. We love you and care about you.  SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > darn bcbs. not sure exactly why this time. cant do enbrel cuz crap, who can > afford the 800 a month that it would cost me with insurance. I dont qualify for [quoted text clipped - 21 lines] > http://spondylitis.org/ > http://www.butyoudontlooksick.com/spoons.htm {{{{{{{{{{{{{{{{{Marnie}}}}}}}}}}}}}}}} I sure hope the skies are a bit bluer today but I just wanted you to know that I am thinking of you and that you are loved. Duckie > darn bcbs. not sure exactly why this time. cant do enbrel cuz crap, who can > afford the 800 a month that it would cost me with insurance. I dont qualify for [quoted text clipped - 22 lines] > http://www.butyoudontlooksick.com/spoons.htm > Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) |
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