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Medical Forum / Diseases and Disorders / Arthritis / July 2004

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Delurking-a couple of questions about RA

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Willow - 23 Jul 2004 02:44 GMT
Hi,
I'm coming out of delurking because this seems to be a very
knowledgable and supportive group. I'm wondering if you could answer a
couple of questions?
First, what connection does dry eyes have with RA or it it just a side
effect of medication?
Second, for those of you with RA, at what age were you finally
diagnosed? What were the symptoms that led to the diagnosis? How long
do you remember the symptoms before being diagnosed?
Sorry for so many questions and thanks for taking the time to read and
hopefully answer this.
Lisa
RoseB - 23 Jul 2004 03:19 GMT
>First, what connection does dry eyes have with RA or it it just a side
>effect of medication?

NO. with RA there are associated conditions. Dry eyes (and any other
typically moist area) is one of those. In its full blown form it is
Sjogren'sSyndrome, when it is somewhat milder, it is referred to as
Sicca syndrome.
>Second, for those of you with RA, at what age were you finally
>diagnosed?
15
painful swollen joints
stiffness upon arising
a general feeling of malaise, what is described as vague flu-like
symptoms
fatigue
weakness

What were the symptoms that led to the diagnosis? How long
>do you remember the symptoms before being diagnosed?

I was seriously ill for several months because I refused to go to the
doctor. When I did go finally, the diagnosis was made very quickly and
with little doubt.

When I was really young, I had what the family doc then thought was
rheumatic fever. As an infant, my mother said that I cried a lot as if
I were in pain. Mt Rd thinks that I had early onset JRA, that remitted
and reappeared several times before it reappeared in its full blown
form when I was 15.
>Sorry for so many questions and thanks for taking the time to read and
>hopefully answer this.
>Lisa

Questioning is good. It is how you find out about things.

Rose
@}>-->>>
Please remove "Ima" to reply privately!
Nanny - 23 Jul 2004 03:29 GMT
Lisa, I was diagnosed with RA only 3 weeks ago.  I have OA and FM as well.
A few of the symptoms I had before the blood test finally indicated a
positive factor for RA:  Swelling and tenderness in my wrist and ankle
joints, usually accommanied by lots of pain in those areas.  Then, my SED
rate started getting high, and my doctor would bring it down with
Prednisone, but after being off Pred for awhile up it would go again.  Then,
finally, 5 years ago when I had my total knee replacement, the orthopedic
surgeon suspected RA instead of OA, because of the amount of inflammation
when he got inside the knee.  But, when I came back to my home town, that
rheumy said I had OA with inflammation.  I guess I'm an official "gimp" now.
Rosie may tell you what that means.  Nanny
> Hi,
> I'm coming out of delurking because this seems to be a very
[quoted text clipped - 8 lines]
> hopefully answer this.
> Lisa
Harvey R. Stone - 23 Jul 2004 14:07 GMT
Hi Nanny,    It means that you have had RA all along and way before your
knee procedures.   I do not know how many people have post here with
damage,,, operations,,, loss of function where they were told that they had
OA with inflammation....  Grrrrrrr.    I really do not know what can be done
about doctors that will in not admit to a diagnosis of inflam. arth. like
RA, PA, AS,,ect.
Harv
> Lisa, I was diagnosed with RA only 3 weeks ago.  I have OA and FM as well.
> A few of the symptoms I had before the blood test finally indicated a
[quoted text clipped - 7 lines]
> rheumy said I had OA with inflammation.  I guess I'm an official "gimp" now.
> Rosie may tell you what that means.
Nanny
Willow - 23 Jul 2004 15:11 GMT
Rose and Nanny,
Thank you for taking the time to answer. I do appreciate it.
Lisa :0)
donnah - 23 Jul 2004 18:07 GMT
(((Lisa)))
I don't have answers just hugs right now...glad you are de-lurking!
donnah

> Hi,
> I'm coming out of delurking because this seems to be a very
[quoted text clipped - 8 lines]
> hopefully answer this.
> Lisa
Rebecca Ford - 23 Jul 2004 20:17 GMT
Dry eyes are common, as Rose has said. I had plugs put in my tear ducts
several years ago and they work wonders. I only occasionally need eye drops
now.

I was diagnosed right before my 31st birthday. I gave birth to my second
child and withing 6 weeks the pain and swelling in my feet, ankles,
shoulders, hands, wrists, and hips were so bad I couldn't get around without
help, couldn't drive , couldn't change a diaper and basically couldn;t
function. All this with a 3 yr old and a newborn while supposedly packing to
move into a new house. I was fortunate that I had rapid onset because I was
diagnosed only three months after my duaghter's birth. I was in such bad
shape that there was no doubt as to my diagnosis.

On the positive side of things, I had 5 mostly good years damn close to a
medicated remmission on just Enbrel. I've since added mtx and after five
weeks the flares are settling down, as well as the duration of the side
effects.

Glad you delurked and feel free to ask any questions.

Signature

Rebecca Ford

> Hi,
> I'm coming out of delurking because this seems to be a very
[quoted text clipped - 8 lines]
> hopefully answer this.
> Lisa
Caroline Marold - 25 Jul 2004 06:41 GMT
Welcome Willow. Too tired to answer you now but just wanted to say hello.
Duckie

> Hi,
> I'm coming out of delurking because this seems to be a very
[quoted text clipped - 8 lines]
> hopefully answer this.
> Lisa

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Willow - 25 Jul 2004 19:07 GMT
Thank you so much to each person who took the time to post something.
I really do appreciate it. Your posts led to a couple more questions.
What is mtx?
Also having suffered from an autoimmune thyroid disorder I remember
the various doctors I saw including 3 endocrinologists (the last
luckily was excellent and I got his name from the thyroid ng so I have
tremendous faith in other patients as support and information
sources:) until I finally got a diagnosis and appropriate treatment
and am very scared of beginning another descent into medical
purgatory. Do you have an advice as to what type of doctor I begin
with? A rheumatologist? I was recommended a doctor at Cedars Sinai in
Los Angeles. Is there any doctor you know of who is very good?
Thank you again for all your support.
Lisa
email: ixchel@rediffmail.com
Char - 26 Jul 2004 10:40 GMT
>What is mtx?

Methotrexate  A chemo therapy drug, which is used to treat inflammatory
arthritis, but in much smaller doses than is used for cancer treatment

Char

"Remember, I'm pulling for ya'. We're all in this together." Red Green
Nann Bell - 26 Jul 2004 14:49 GMT
>> Second, for those of you with RA, at what age were you finally
>> diagnosed? What were the symptoms that led to the diagnosis? How long
>> do you remember the symptoms before being diagnosed?

the docs go back and forth on whether I have RA or PA.  I was initially
diagnosed at 28 with RA.  First symptoms were swollen and painful finger
joints, accompanied by a strong desire to scream and cry whenever I used them
at all.  Doctors held off on an official diagnosis for a while to avoid
screwing me with insurance companies.  But I got into the doctor ASAP and
they were leaning towards that diagnosis from the start as my dad had it
pretty bad.

I had intermittent mild symptoms for years previously, but usually for only a
month or so at a time.   It had only sent me to doctors once before with pain
and clicking in my toes.  But I was in college then and our health service
doctors were real bozos in many ways and just shrugged it off as "a bit of
arthritis".  (at teh time I was having to tape my toes in order to tolerate
walking across sampus!)

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Nann
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