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Medical Forum / Diseases and Disorders / Arthritis / July 2004

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just testing ignore please..

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PHISHISHP - 16 Jul 2004 04:36 GMT
thank you, nothing to see here ;-)

check out my newly updated list! http://db.etree.org/telafree

Learn something if you dare:
http://spondylitis.org/
http://www.butyoudontlooksick.com/spoons.htm

Kelly Cobb - 16 Jul 2004 05:14 GMT
Marnie, Marnie, Marnie...you know us better than that...we *always* have to
look.

Kelly C.;o)

> thank you, nothing to see here ;-)
>
[quoted text clipped - 3 lines]
> http://spondylitis.org/
> http://www.butyoudontlooksick.com/spoons.htm
PHISHISHP - 16 Jul 2004 05:15 GMT
>Marnie, Marnie, Marnie...you know us better than that...we *always* have to
>look.

hehe, of course ;-)

how you doin kell? i havent been around much. Ive been getting so much bull
crap from my other newsgroup (them calling me a fake handicapper/whiner/fat)
and that meant turning off the computer, which meant not reading/posting here.
I marked all read so im not quite up to date.

*gentle hugs and some free chocolate*

marn

check out my newly updated list! http://db.etree.org/telafree

Learn something if you dare:
http://spondylitis.org/
http://www.butyoudontlooksick.com/spoons.htm

Char - 16 Jul 2004 08:08 GMT
> Ive been getting so much bull
>crap from my other newsgroup

What ng is that Marnie?  Hopefully not a "support? ng.

Char

"Remember, I'm pulling for ya'. We're all in this together." Red Green
PHISHISHP - 16 Jul 2004 09:42 GMT
>What ng is that Marnie?  Hopefully not a "support? ng.

rec.music.phish. a newsgroup that i have been a member of for almost 7 years
now. Around january, someone started posting inflammatory posts about myself
and kris, now its been going on for 8 months. I have met close to 100 people,
maybe even more, and when i was in a wheelchair last year, i was open and
honest on the newsgroup about the change in my health. This for some reason
offended someone because they chose to start completely stalking me on the net.
It stops every now and then. The cops were called when the person threatened to
kill my husband. After that happened it was quiet for a bit, but it just
started up again last week when someone who was at the phish movie simulcast
watched kris and i for the entire movie. Someone stood up to dance (everyone
else was dancing in the aisles, or in the back) We asked the person nicely to
move and he wouldn't. I got up and left, and I guess kris got into some sort of
altercation. I'm not quite sure what. But now we have been deemed the enemy for
the trolls that hang around there. If you are so inclined, (or bored)..you can
go here. and search using the author dunnner4life@aol.com or
queenofrmp@aol.com.There is another person who is convinced that kris and i
just possibly cant be as nice as we are and are hiding this sinister attitude.
All the people who know us personally don't listen to what this troll says, but
it never stops. Kinda like the way the rosie shiver posts come up here. I don't
know what made kris and I the target of this person or persons who have nothing
better to do then spend their time writing posts like 'these two fat pigs F*#k
each other' and 'marnie fakes being handicapped'

Its definitely teaching me how to have a thick skin, but sometimes im so
frustrated that i have to turn off the computer. But then I remember who I am,
and the people who love me dont love me cuz they 'feel sorry for me' as this
troll says. anyways..

You can even see, the first post right now (1:41am pacific) is written using
this name instead of my real name.

http://groups-beta.google.com/group/rec.music.phish

I have contacted the cyber angels, they haven't done squat. I really wanted to
ask all you guys to go over there and flame him but of cousre that would mean
we were lowering ourselves to his level. Basically I have a filter that filters
out all the posts by him. We have some ideas of who it might be, but absolutely
no idea who it really is. As of august, it will be 8 months of this and its
definitely an annoyance.

marnie

check out my newly updated list! http://db.etree.org/telafree

Learn something if you dare:
http://spondylitis.org/
http://www.butyoudontlooksick.com/spoons.htm

Nann Bell - 16 Jul 2004 13:38 GMT
> . This for some reason
> offended someone because they chose to start completely stalking me on the
[quoted text clipped - 4 lines]
> started up again last week when someone who was at the phish movie simulcast
> watched kris and i for the entire movie.

some people really are nuts.............. this guy seriously needs to get a
life!  (and even if he doesn't do so, he needs to get OUT of your life!)

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Harvey R. Stone - 16 Jul 2004 14:41 GMT
Basically I have a filter that filters
> out all the posts by him. We have some ideas of who it might be, but absolutely
> no idea who it really is. As of august, it will be 8 months of this and its
> definitely an annoyance.
>
> marnie

Hi Marnie,,,,  There really are some evil basterds on the internet.   So
many people are on line now that a person can say,,, in the world around us
and be correct.    You know that it is not tolerated in this newsgroup and
when one of them start this crap,,,,, we take it to them as best we can or
kill file the hell out of them.
   Now,, no more using that catch up button or read all button and take
part here where people know you and care about you.

Harv
Squirrely - 17 Jul 2004 06:50 GMT
Just keep posting here where your real friends are that will support you no
matter what. I know you like the other group too. It would be hard to leave
it, I am sure.

that is the one bad thing about some ngs, not this one of course, but they
seem to gang up on you when there is a flame war or fight going on. I wish
it was different for you.

I hope you and hubby find out who is doing this and then have the book
thrown at them.

Thinking of you. Take care

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> >What ng is that Marnie?  Hopefully not a "support? ng.
>
[quoted text clipped - 45 lines]
> http://spondylitis.org/
> http://www.butyoudontlooksick.com/spoons.htm
Nann Bell - 16 Jul 2004 13:35 GMT
> how you doin kell? i havent been around much. Ive been getting so much bull
> crap from my other newsgroup (them calling me a fake handicapper/whiner/fat)
> and that meant turning off the computer, which meant not reading/posting
> here.

well, in that case just sign off them for a while and come visit us!  We know
better.

((((((((((((Marnie)))))))))))))

how's your summer going?

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Kelly Cobb - 16 Jul 2004 15:21 GMT
> >Marnie, Marnie, Marnie...you know us better than that...we *always* have to
> >look.
[quoted text clipped - 9 lines]
>
> marn

Aww, sweetie, I'm sorry about that...you better stay here where it's safe.
I'm doing well and Rachel is doing great, so life is good and I hope it's
the same for you and Kris.

Save your chocolate, I'm a Jelly Belly bean girl.lol

Kelly C.;o)
Daniel Hoffmeister - 17 Jul 2004 11:50 GMT
...
> http://www.butyoudontlooksick.com/spoons.htm

Had to de-lurk to say I just read this and you totally nailed it!

A while back, I was trying to explain my life with active RA to an old
friend I hadn't see for a long time.  I explained how it was that trivial
movements and daily tasks took so much attention and energy.  She thought
about it and said something interesting, that maybe the opposite of poor
health was rich health.  That being rich meant you don't have to think
much about how you're spending your resources, where being poor meant you
have to watch every "penny" and make choices all the time.

I am truly fortunate to be enjoying somewhat richer health these days.  
More spoons!

Re-lurking now.

Dan
Nann Bell - 17 Jul 2004 15:05 GMT
> A while back, I was trying to explain my life with active RA to an old
> friend I hadn't see for a long time.  I explained how it was that trivial
[quoted text clipped - 3 lines]
> much about how you're spending your resources, where being poor meant you
> have to watch every "penny" and make choices all the time.

Thanks for de-lurking to share that comment, Dan.  I really like it.  I need
to remember that one.

please continue to jump in whenever you want to.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

donnah - 17 Jul 2004 15:09 GMT
Dan, you are not allowed to re-lurk...once out, ya have to stay out!
said with a welcoming smile...
donnah

> ...
> > http://www.butyoudontlooksick.com/spoons.htm
[quoted text clipped - 15 lines]
>
> Dan
Ifish2b - 18 Jul 2004 01:04 GMT
http://www.butyoudontlooksick.com/spoons.htm

Wow, that really does a good job of explaining what it's like to have an
illness like this.

Sarah L

"Friends are those people who know the words to the song in your heart and sing
them back to you when you have forgotten the words."  (unattributed)
Jo Firey - 17 Jul 2004 18:07 GMT
> ...
> > http://www.butyoudontlooksick.com/spoons.htm
[quoted text clipped - 15 lines]
>
> Dan

A very good analogy.  We often have mornings where Charlie and I will do a
"budget" session.  We will go over what needs to be done.  Then how much we
realistically can do.  And agree on how to "spend" the resources available.

Jo
 
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