Medical Forum / Diseases and Disorders / Arthritis / July 2004
HELP! LadyAndy asking for help for a friend!
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Lady Andy2 - 15 Jul 2004 01:28 GMT Hi, people! Sorry for being a pain, but I have a friend who needs help badly and I am trying to do what I can.
Do you guys remember the letter from Dr. Susan about applying for social security or disability? I reallllly could use a copy of that post if someone has it archived.
Please e-mail it to me at LadyAndy2@aol.com ASAP if you have it or can put your hands on it.
Thanks a bunch!
Best regards, LadyAndy2@aol.com
Mary Z - 15 Jul 2004 02:00 GMT >Hi, people! Sorry for being a pain, but I have a friend who needs help badly >and I am trying to do what I can. [quoted text clipped - 10 lines] >Best regards, >LadyAndy2@aol.com I snooped out a few:
From: Susan Hoch MD) Subject: Re: !Help ASAP! SS disability interview View: Complete Thread (25 articles) Original Format Newsgroups: alt.support.arthritis Date: 1998/03/19
I must second Anne's great recommendation here. Realistically, you are the one RESPONSAIBLE for making sure that the Social Security administration has the documentation necessary for you to meet their Blue Book criteria.
1. Social Security is not going to call your docs and hunt around for records they have not received.
2. The best way to make sure that Social Security has your records is to get the copies from all your docs in your own hands, make an extra copy in case Social Security loses them and hand carry them to social security making sure they are in your file. My office, which generally works well, has occasionally failed to send records but more often, we have sent records which somehow never got to the patient's file.
3. Make sure your records do two things
A. Make sure your records show that you are disabled - i.e. if the doc's notes says - Doing well, no problem - sorry you have a big problem. If the doc's notes say - unable to dress herself, has difficulty moving from chair to examining table etc, then you have good documentation. So it pays to look at the notes BEFORE you submit them and see if they are going to help you. If not, ask your doc to dictate a letter telling Social Security what your disabling condition is and how it has disabled you from working and functioning. Most rheumatologists are quite used to writing such letters.
B. Make sure the records indicate what diabling condition you have and even better, what it's code is in the Blue Book. The Blue Book is the Feds list of disabling conditions - you can find it on the net at the Social Security site and each conditon has criteria and a code. I always indicate in my letters a sentence like the following
Mrs ________ suffers from rheumatoid arthritis, a disabling condition listed in the Social Security Blue book on page _____, Code Number _______. Remember your forms are being processed by a clerk with a high school educatioin. If they see their own codes, it helps.
Where you get into trouble is where the condition is not listed, for example, yesterday I dictated a letter for a patient with sarcoidosis which is not a listed disease. Fibromyalgia is not listed either. When it's not listed, you have to compare it to something that is listed and indicate how it is disabling.
Get a lawyer - yes, I don't love lawyers either but there are good and decent ones out there. For any of you in the Phila area, I have two wonderful disability lawyers my office uses - they have never lost a case for our patients and no one seems to have felt ripped off.
Regards,
Dr Susan
Visit my website: http://www.mzuschlag.com
debbie m. - 15 Jul 2004 19:02 GMT This is great info. I saved it for later reference. I am on disability. Three or four years ago, can't remember, when my lawyer filed for me she had just been to a forum where fibromyalgia had to be recognized as an illness. I don't know if it is listed, but do know it is recognized as such.
debbie m. http://www.angelfire.com/ga2/angels1/
> >Hi, people! Sorry for being a pain, but I have a friend who needs help badly > >and I am trying to do what I can. [quoted text clipped - 76 lines] > Visit my website: > http://www.mzuschlag.com Mary Z - 15 Jul 2004 02:06 GMT >Do you guys remember the letter from Dr. Susan about applying for social >security or disability? I reallllly could use a copy of that post if someone >has it archived. > >Please e-mail it to me at LadyAndy2@aol.com ASAP if you have it or can put your >hands on it. Here is the second that might help:
From: Susan Hoch MD Subject: Re: Disability View: Complete Thread (125 articles)
Newsgroups: alt.support.arthritis Date: 1998/01/01
Skipper, I am sorry to hear about your problem with SSI but not surprised. Many SSI applications are turned down initially; I tell my patients not to take it personally. Remember your application is being read by a clerk with a high school education, not by someone with medical training. They have a book in front of them, put out by the Social Security administration which lists by codes, the designated impairments. If your medical information matches the listed impairment and better yet, if you doc has the same book in front of him or her and uses the social security code for your disease, then it is more likely that you will get it on the first go round.
If you have rheumatoid arthritis, it is a listed impairment (I can;t give you the code right now because I'm at home and the guideline are in my office but you are welcome to e-mail me privately for this. For RA you need to have had the disease for more than 3 months with continued activity and need either a positive rheumatoid factor or an elevated sedimentation rate or a positive ANA or a biopsy of a nodule(the guidelines are a bit strange). So RA isn't a problem. Much more of a problem is back pain for example from disc disease because nerve root involvement as demonstrated on EMG must be demosntrated. Lupus is a problem because the guidelines are purposely vague describing frequent exacerbation without describing what frequent is. Lupus is almost always turned down initially but will win on appeal. Fibromyalgia is not a listed impairment so unless the patient has another problem such as depression and can get disability under mental illness, it is always an appeal case.
My recommentations for patients are as follows: 1. Make sure that your records get to the social security office. Make sure that all of your docs send them out. Even better, pick them up yourself, and hand deliver them (keep copies in case your file is lost). Remember, the clerk reading them is not going to follow up on Dr Jones" records that you indicated would be coming. It's your job to make sure all your documentation is there.
2. Look at the records yourself and make sure they say what you want them to say. For example, if you have back pain and nerve root involvement, make sure the notes say so, because if all your doc says is low back pain and he/she doesn't comment on the nerve involvement in his/her notes, it's a turndown. If you don't think your docs notes are adequate you have two choices: 1. ask your doctor to write a letter to social security indicating what impairment you have (and even better using the code) and how this impairment makes you disabled from your present job,
example: Mrs X.Y. developed rheumatoid arthritis involving her hands, wrists, knees, and ankles in March 1997. She was rheumatoid factor positive with a titer of 1:512 and had an elevated sedimentation rate of 55 mm/hr. Despite medical treatment, her disease continues to be active today, 9 months later. She previously worked as a secretary and has been unable to work at her occupation which requires extensive typing since July 5, 1997. In my medical and professional opinion, Mrs XY satisfies the Socia; Security Administration guidelines for disability due to her rheumatoid arthritis (code I think1.01 A and B - this code may not be right).
Trust me, this letter will help and if you are denied with such a letter in your file, a disability lawyer will love this letter because it will make his/her job easier.
2. If your doctor isn't going to support you and if his/her documentation isn't supportive, then, in my opinion, you need another doc.
3. Most important, if you are applying for disability, you cannot continue to work. This is the catch 22 of disability - you need to work for the income but you can't because you are disabled. You must stop working to be eligible for disability.
4. If you are fired because you could not do your job because of disability, you have several potential choices. One is, to go on unemployment. The problem with unemployment is that it assumes that you are ready and able to work should a job appear. If you are disabled, that is not going to be the case. If you can prove that you were fired because you could not do the job because of a federally recognized diabling condition (again RA, not fibromyalgia), then you may be able to sue and win under the American with Disabilities act. Many people don't want the hassle and don't want to deal with lawyers. I can understand that. However, it becomes sort of like polluters. If I can dump pollution in the river and no one stops me, I'll keep dumping. If a company can fire people because their disability alters what they can do in the workplace. they are going to keep doing it until someone slaps them in the pocketbook and in the media where it hurts. The final option, is that if you are fired and are disabled, go immediately to social security and begin the process since it may take up to a year.
5. Remember disability need not be the end. The same system that brings you disability has vocational rehabilitation. I have patients who couldn't work at certain jobs who are now getting further education, for example a secretary who is going to college, a waitress who is studying psycology to deal with drug addicted clients, a prison guard with lupus who is going back to college to study criminal justice. All of these patients now have income from social security, health insurance through social security and may someday be back in the work force and off social security.
I'll be glad to discuss specific issues with people if they wish.
Wishing you all a healthy happy New Year. May we learn more about how to treat, cure and prevent various arthritic conditions in 1998.
Regards,
Dr Susan
Visit my website: http://www.mzuschlag.com
Lady Andy2 - 15 Jul 2004 02:18 GMT Thank you thank you thank you thank you! That is it exactly. I know my friend will be very grateful.
Best regards, LadyAndy2@aol.com
Char - 15 Jul 2004 06:49 GMT Here you go Lady A- This is a post that LadyAndy reposted in Jan 00. Sorry but I don't know when Dr. Susan originally posted it. Tery
"I am sorry to hear about your problem with SSI but not surprised. Many SSI applications are turned down initially; I tell my patients not to take it personally. Remember your application is being read by a clerk with a high school education, not by someone with medical training. They have a book in front of them, put out by the Social Security administration which lists by codes, the designated impairments. If your medical information matches the listed impairment and better yet, if you doc has the same book in front of him or her and uses the social security code for your disease, then it is more likely that you will get it on the first go round.
If you have rheumatoid arthritis, it is a listed impairment (I can;t give you the code right now because I'm at home and the guideline are in my office but you are welcome to e-mail me privately for this. For RA you need to have had the disease for more than 3 months with continued activity and need either a positive rheumatoid factor or an elevated sedimentation rate or a positive ANA or a biopsy of a nodule(the guidelines are a bit strange). So RA isn't a problem. Much more of a problem is back pain for example from disc disease because nerve root involvement as demonstrated on EMG must be demosntrated. Lupus is a problem because the guidelines are purposely vague describing frequent exacerbation without describing what frequent is. Lupus is almost always turned down initially but will win on appeal. Fibromyalgia is not a listed impairment so unless the patient has another problem such as depression and can get disability under mental illness, it is always an appeal case.
My recommentations for patients are as follows: 1. Make sure that your records get to the social security office. Make sure that all of your docs send them out. Even better, pick them up yourself, and hand deliver them (keep copies in case your file is lost). Remember, the clerk reading them is not going to follow up on Dr Jones" records that you indicated would be coming. It's your job to make sure all your documentation is there.
2. Look at the records yourself and make sure they say what you want them to say. For example, if you have back pain and nerve root involvement, make sure the notes say so, because if all your doc says is low back pain and he/she doesn't comment on the nerve involvement in his/her notes, it's a turndown. If you don't think your docs notes are adequate you have two choices: 1. ask your doctor to write a letter to social security indicating what impairment you have (and even better using the code) and how this impairment makes you disabled from your present job, example: Mrs X.Y. developed rheumatoid arthritis involving her hands, wrists, knees, and ankles in March 1997. She was rheumatoid factor positive with a titer of 1:512 and had an elevated sedimentation rate of 55 mm/hr. Despite medical treatment, her disease continues to be active today, 9 months later. She previously worked as a secretary and has been unable to work at her occupation which requires extensive typing since July 5, 1997. In my medical and professional opinion, Mrs XY satisfies the Social Security Administration guidelines for disability due to her rheumatoid arthritis (code I think1.01 A and B - this code may not be right).
Trust me, this letter will help and if you are denied with such a letter in your file, a disability lawyer will love this letter because it will make his/her job easier. 2. If your doctor isn't going to support you and if his/her documentation isn't supportive, then, in my opinion, you need another doc. 3. Most important, if you are applying for disability, you cannot continue to work. This is the catch 22 of disability - you need to work for the income but you can't because you are disabled. You must stop working to be eligible for disability. 4. If you are fired because you could not do your job because of disability, you have several potential choices. One is, to go on unemployment. The problem with unemployment is that it assumes that you are ready and able to work should a job appear. If you are disabled, that is not going to be the case. If you can prove that you were fired because you could not do the job because of a federally recognized diabling condition (again RA, not fibromyalgia), then you may be able to sue and win under the American with Disabilities act. Many people don't want the hassle and don't want to deal with lawyers. I can understand that. However, it becomes sort of like polluters. If I can dump pollution in the river and no one stops me, I'll keep dumping. If a company can fire people because their disability alters what they can do in the workplace. they are going to keep doing it until someone slaps them in the pocketbook and in the media where it hurts. The final option, is that if you are fired and are disabled, go immediately to social security and begin the process since it may take up to a year. 5. Remember disability need not be the end. The same system that brings you disability has vocational rehabilitation. I have patients who couldn't work at certain jobs who are now getting further education, for example a secretary who is going to college, a waitress who is studying psycology to deal with drug addicted clients, a prison guard with lupus who is going back to college to study criminal justice. All of these patients now have income from social security, health insurance through social security and may someday be back in the work force and off social security."
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Char
"Remember, I'm pulling for ya'. We're all in this together." Red Green
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