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Medical Forum / Diseases and Disorders / Arthritis / June 2004Fosamax Question:
Hi!! I have rheumatoid arthritis and osteogenesis imperfecta, a hereditary brittle bone disorder. I was told I had RA in Oct.of 2002. My RA doctor put me on fosamax last month. I would like to know if anybody had any luck or side effects taking fosamax? I can not exercise like I use to because of pain from my RA. When I do exercise to get stronger, I get stiff and achy joints. Also I have been on Enbrel about a year. I do lurk in this group allot, your a fine group of people. And I like dark chocolate!!! Thanks for any help... Take Care! Paul F. Paul - I couldn't take Fosamax due to it trying to kill me on the first dose with acid reflux from hell and since I never had that before, didn't want to add it to my list. They then put me on Acetonel which is basically the same as Fosamax but half the dose. That was okay until recently when the acid reflux is slowly creeping back. I also take Evista which is a daily medication and can be taken any time with or without food. I sure hope it is helping some because I don't know what the next options will be otherwise. My husband is a dark chocolate guy and if you are careful, some of his Father's Day stash is still in the kitchen. Duckie > Hi!! I have rheumatoid arthritis and osteogenesis imperfecta, a > hereditary brittle bone disorder. I was told I had RA in Oct.of 2002. My [quoted text clipped - 8 lines] > Paul F. >  Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) nice to meet you paul , i too have osteogenisis imperfecta , but have the tarda form (26 traumatic fx to date 2 spontaneous and 1 compression fx on top of ra , as and a few other nifty little arthritides thrown in just for giggles . i had an awful time with both fosamax and the doc changed me to actonel ..... perhaps this might be an option for you too ........ hope this helps , all the best !! I couldn't take fosamax. YUCK! Dr changed me to actenol, but I haven't tried it yet...too chicken!!! ~KJ Akron, Ohio http://arthritisinsight.com Knowledge is power...support is essential. Tina's Togs Quality Plus Size and Vintage Fashions http://www.stores.ebay.com/tinastogs >but I haven't tried it >yet...too chicken!!! kj, i've had the actenol sitting in my kitchen drawer for over a year. i wish we lived closer. we could take it together and give each other courage. diane, with crumbling bones Gee you guys, at least I took mine for over a year. Have now stopped the stuff and hope to find out Wednesday when I see my PCP just what is next. If you check both sites [Fosemax and Actonel] it is exactly the same medication but the Actonel is half the dose of Foseamax. If neither of you are prone to blood clots, maybe Evista would help. It is for the same thing [although my doctor did give it to me prior to totally menopause] and it can be taken anytime of the day with or without food. It has never bothered my tummy. Wonder if there are some new something -- like an injection, or infusion [I am there anyway], or .... Duckie >>but I haven't tried it >>yet...too chicken!!! [quoted text clipped - 3 lines] > > diane, with crumbling bones Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Thanks for the replies everybody, I have been on Fosamax for 8 weeks, so far I have had no stomach troubles. I also sometimes take 800 mil. of ibuprofen twice a day, guess I am lucky so far. I was alittle worried because I read one of the other side affects of Fosamax is muscle pain and bone pain in some people. Take Care! Paul F. Oh watch out Mama Char is back and she is good. Real good. You all better behave, and do what she says. Hey Mama Char, I have a nice big bag of choc. chips would you like some. (Boy can I be such a big suck up). Hey I am being good, really I am Mama Char. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >Hey Mama Char, I have a nice big bag of choc. chips would you like some. Naw honey. You go ahead and eat them. Or better yet, make choc chip cookies. Or if you like, I can give you my recipe for no bake choc chip cheese cake. Char "Remember, I'm pulling for ya'. We're all in this together." Red Green > Gee you guys, at least I took mine for over a year. Have now stopped the > stuff and hope to find out Wednesday when I see my PCP just what is next. [quoted text clipped - 6 lines] > Wonder if there are some new something -- like an injection, or infusion > [I am there anyway], or .... that's what Forteo is, and injection. I don't know further details, but I know that much! Bozo RD was pushing it on me despite the fact that I'm doing fine on Fosamax! (repeat after me "my PCP and I are on top of it" - said in a "back off!" voice LOL) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >that's what Forteo is, and injection. I don't know further details, but I >know that much! Yeah, my RD and I discussed that last time. Neither of us were too keen on giving me another daily injection, one is enough. Diane C, maybe you and I can take the first dose of actenol together, same time, same day....but we have to promise to actually take it, no cheating!!! ~KJ Akron, Ohio http://arthritisinsight.com Knowledge is power...support is essential. Tina's Togs Quality Plus Size and Vintage Fashions http://www.stores.ebay.com/tinastogs >Diane C, maybe you and I can take the first dose of actenol together, same >time, same day....but we have to promise to actually take it, no cheating!!! > >~KJ can we wait a while to start this, please? diane, nervous >>Diane C, maybe you and I can take the first dose of actenol together, same >>time, same day....but we have to promise to actually take it, no cheating!!! >> >>~KJ > >can we wait a while to start this, please? Sure!!!!! LOL We can wait as long as you want! ~KJ Akron, Ohio http://arthritisinsight.com Knowledge is power...support is essential. Tina's Togs Quality Plus Size and Vintage Fashions http://www.stores.ebay.com/tinastogs >Sure!!!!! LOL We can wait as long as you want! > >~KJ great!! and let's eat a lot of chocolate while we wait. CVS (drug store) has those huge hershey bars on sale, buy one get one free! diane >great!! and let's eat a lot of chocolate while we wait. CVS (drug store) has >those huge hershey bars on sale, buy one get one free! I do like the way you think! After all, if we eat enough MILK chocolate we'll rebuild our bones with calcium and won't need the actenol!! ~KJ Akron, Ohio http://arthritisinsight.com Knowledge is power...support is essential. Tina's Togs Quality Plus Size and Vintage Fashions http://www.stores.ebay.com/tinastogs >>can we wait a while to start this, please? > >Sure!!!!! LOL We can wait as long as you want! OK. This is Mama Char talking. That stuff isnt going to help either of you, sitting in a drawer. So TAKE THE DAMN STUFF. I really do understand your reluctance. I do. But you two are showing an amazing ability for procrastination. Bite the bullet and get it done. And that is an order! Char "Remember, I'm pulling for ya'. We're all in this together." Red Green >Bite the bullet and get it done. And that is an order! PPppppfffffffffffffffffffffft! I will when Diane does! <eg> ~KJ Akron, Ohio http://arthritisinsight.com Knowledge is power...support is essential. Tina's Togs Quality Plus Size and Vintage Fashions http://www.stores.ebay.com/tinastogs charrrrrrrrr. please don't make me. :-( diane >charrrrrrrrr. please don't make me. :-( You are both big girls. I can not make you do anything you dont want to do. But I highly recommend that you just DO THIS and get over with. The fear and anticipation are probably going to be far worse than the actual deed. You are both flirting with bones that break way too easily, and possibly crippling yourselves unnecessarily. So please, just take the damn stuff, OK? Char "Remember, I'm pulling for ya'. We're all in this together." Red Green >> charrrrrrrrr. please don't make me. :-( > [quoted text clipped - 5 lines] > crippling yourselves unnecessarily. So please, just take the damn stuff, OK? > Char Good to have you back Mama Char! We miss you when you aren't here and obviously we need you! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Uh oh, you all better listen to Mama Char and do as she says. You already got her stirred up now! Donna G >So please, just take the damn stuff, OK? >Char Ommm, you guys made MomaChar say Damn, you better do what she says now or you're gonna get in trouble. Sarah L "Friends are those people who know the words to the song in your heart and sing them back to you when you have forgotten the words." (unattributed) >Ommm, you guys made MomaChar say Damn, you better do what she says now or >you're gonna get in trouble. > >Sarah L i'm just quietly skulking away. . . . . diane >i'm just quietly skulking away. . . . . > >diane You dont have to. I love you anyway. But I sure wish you would take the medication. Char "Remember, I'm pulling for ya'. We're all in this together." Red Green Uh oh, a faint memory comes back when I first checked into this group a couple years ago. It seems a couple of eager chocolate lovers were fighting over who got what, and mama Char intervened with some words of her own ;-) Nanny > >So please, just take the damn stuff, OK? > >Char [quoted text clipped - 6 lines] > "Friends are those people who know the words to the song in your heart and sing > them back to you when you have forgotten the words." (unattributed) >over who got what, and mama Char intervened with some words of her own Yeah. But I have been sick, and nobody listens to me anymore. Sigh! Char "Remember, I'm pulling for ya'. We're all in this together." Red Green > >over who got what, and mama Char intervened with some words of her own > > Yeah. But I have been sick, and nobody listens to me anymore. Sigh! > Char Ya but we lub ya anyway and worry about ya. Harv >Ya but we lub ya anyway and worry about ya. >Harv Thanks Harv-I know that and appreciate it more than you can ever know. Char "Remember, I'm pulling for ya'. We're all in this together." Red Green >> over who got what, and mama Char intervened with some words of her own > > Yeah. But I have been sick, and nobody listens to me anymore. Sigh! > Char don't worry, you'll get everyone straightened out again! Like all children, they must relearn that Mama means business! <bg> SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare I listen to you Mama Char. :) Duckie [who is good at sucking up] >>over who got what, and mama Char intervened with some words of her own > > Yeah. But I have been sick, and nobody listens to me anymore. Sigh! > Char > > "Remember, I'm pulling for ya'. We're all in this together." Red Green Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >I listen to you Mama Char. :) >Duckie [who is good at sucking up] No you dont. But I enjoy the sucking up. ROFL Char "Remember, I'm pulling for ya'. We're all in this together." Red Green Now you two have done it. na-na-na-na-na quack >>>can we wait a while to start this, please? >> [quoted text clipped - 7 lines] > > "Remember, I'm pulling for ya'. We're all in this together." Red Green Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Ha! Ha! Ha! You people are funny! Make sure you drink lots of water. Then I guess you earned your chocolate. Take Care! Paul F. Well, you two let me know. The first one to actually do it will win a prize. Duckie >>that's what Forteo is, and injection. I don't know further details, but I >>know that much! [quoted text clipped - 11 lines] > Tina's Togs Quality Plus Size and Vintage Fashions > http://www.stores.ebay.com/tinastogs Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Hi! It is scary to think what might happen when I get older, with having RA and this brittle bone trouble. I am 50 years young, but sometimes feel like 90. Take Care! Paul F. Welcome to ASA,,, Paul.... Sorry you need to be here but this is the place for you and several people take fosamax but not me. I did take Enbrel for over 2 years and they were good years. Harv > Hi!! I have rheumatoid arthritis and osteogenesis imperfecta, a > hereditary brittle bone disorder. I was told I had RA in Oct.of 2002. My [quoted text clipped - 7 lines] > Take Care! > Paul F. Hi Paul, I've only been on Fosamax for a couple of months so can't say much. It does bug a stomach a bit, but only a bit - I have a fairly tolerant tummy. Part of the problem with exercsing with these illnesses is the fatigue that is always lurking below the surface. It doesn't take much for it to rear its ugly head again. I've been flaring a lot the last 6 weeks and can't come close to exercising as much as I was in April. It sucks, but I will get back there again! stick around, anyone who likes dark chocolate must be an exceptional person :) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Paul My RD prefers Actonel. Apparently she says patients experience few if any side effects. Even with the pain try to exercise as much as you can. My RD was quite emphatic about that and she said if it means taking pain meds 45 mins before you exercise then so be it. It aids in keeping the joints from totally ceasing up and the bones will benefit as well. Bruce > Hi!! I have rheumatoid arthritis and osteogenesis imperfecta, a > hereditary brittle bone disorder. I was told I had RA in Oct.of 2002. My [quoted text clipped - 7 lines] > Take Care! > Paul F. oh Man Paul, you have alot going on there. I hope you get the help you need. I hear you about being 50 and feeling 90. It is not fun at all. Thank you for saying we are a fine group of people. Just for that you get the prize of more dark choc. ;-) Take care and hugs to you. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Hi!! I have rheumatoid arthritis and osteogenesis imperfecta, a > hereditary brittle bone disorder. I was told I had RA in Oct.of 2002. My [quoted text clipped - 7 lines] > Take Care! > Paul F. "Squirrely" <squirrely@tekrealm.net> wrote in message news:... > oh Man Paul, you have alot going on there. I hope you get the help you need. > I hear you about being 50 and feeling 90. It is not fun at all. > [quoted text clipped - 14 lines] > > Take Care! > > Paul F. |
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