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Medical Forum / Diseases and Disorders / Arthritis / September 2006

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Zonagram/Zonegran?

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Gigglz - 26 Apr 2004 17:07 GMT
Hello :-)

Does anyone use this medication verses Neurontin?  Any comments on
side effects, etc. would be deeply appreciated!

Thanks a bunch!!

Gigglz
debbie m. - 26 Apr 2004 22:31 GMT
Gigglz,

Haven't heard of that, but I do take a 100mg of Neurontin at night.  It has
really helped me.

debbie m.
http://www.angelfire.com/ga2/angels1/

> Hello :-)
>
[quoted text clipped - 4 lines]
>
> Gigglz
Gigglz - 26 Apr 2004 22:40 GMT
Thank you, Debbie.  I guess it's in the same 'family' as Neurontin.
Since I don't do well on Neurontin, I was going to try it...but first
was hoping to talk to those who take it.

I appreciate your response!!

G

>Gigglz,
>
[quoted text clipped - 12 lines]
>>
>> Gigglz
donnah - 27 Apr 2004 01:05 GMT
G, I'll be watching for responses too! I can not tolerate Neurontin,
either.
good luck with it!
donnah

> Hello :-)
>
[quoted text clipped - 4 lines]
>
> Gigglz
Gigglz - 27 Apr 2004 01:21 GMT
I'm sorry you can't take it either :-(
It made me really dizzy and nauseous.  I have also tried Topamax, and
it did the same thing.  I don't do well on meds.  I hope this one
works, should I decide to take it.

Thank you!

G

>G, I'll be watching for responses too! I can not tolerate Neurontin,
>either.
[quoted text clipped - 9 lines]
>>
>> Gigglz
Tina Underwood - 27 Apr 2004 02:07 GMT
>I hope this one
>works, should I decide to take it.

If you do decided to take it, let us know how you do. I am taking neurotin, but
can't get to a high enough dose because of the side effects.

Zonegran has the added bonus of weight loss and an antidepressant effect. That
one might do me a world of good!

~KJ
Akron, Ohio
http://arthritisinsight.com
Knowledge is power...support is essential.
Tina's Togs Quality Plus Size and Vintage Fashions
http://www.stores.ebay.com/tinastogs
Gigglz - 27 Apr 2004 02:35 GMT
>>I hope this one
>>works, should I decide to take it.
[quoted text clipped - 7 lines]
>~KJ
>Akron, Ohio

Wow, an antidepressant AND weight loss?  Sounds like a miracle drug to
me!!

I think that alone will make me try it!  :-)

Gigglz
DeeTee and Bob Taggart - 27 Apr 2004 14:39 GMT
Is it OTC or would I need a prescription?   Should I get "permission" from
my various doctors first or just start using it?

DeeTee
________________________________
DeeTee and Bob Taggart
http://www.marykay.com/dtaggart3
http://mysite.verizon.net/vze8fwov/
________________________________
> >I hope this one
> >works, should I decide to take it.
[quoted text clipped - 11 lines]
> Tina's Togs Quality Plus Size and Vintage Fashions
> http://www.stores.ebay.com/tinastogs
DiWitt - 27 Apr 2004 20:23 GMT
I did some reading about this last night cause it sounded too good to be
true. It's RX only but I plan on talking to my neuro about it tomorrow. It
does have a laundry list of side effects but for those who can tolerate it,
it's sounds like a miracle drug. It's especially helpful in Bi-polar
disorder when other drugs have failed. I have been thinking that neurontin
would help my back pain which has been a recurrent problem and put me on bed
rest the past week. But Neurontin makes me gain weight and I don't want to
go there. Plus I'm limited to what anti-depressants I can take because of a
low seizures threshold. So this could really be a good drug for me if I can
take it and it works.  Gotta do something about this pain cause the only
position that doesn't hurt is flat on my back or standing. But standing and
walking will make the pain worse after a fashion. It's improved in the past
week but not enough to where I can get anything done. In fact, I've stopped
three times since I started this reply to move around cause sitting hurts so
bad.  Gotta get stuff done!  I'll let you know what the dr says about it
tomorrow. Seeing both neuro and physiatrist.

Signature

Cyberhugs,
DianeW

It is only with the heart that one can see rightly; what is essential
is invisible to the eye. --Antoine de Saint Exup?ry

> Is it OTC or would I need a prescription?   Should I get "permission" from
> my various doctors first or just start using it?
[quoted text clipped - 22 lines]
> > Tina's Togs Quality Plus Size and Vintage Fashions
> > http://www.stores.ebay.com/tinastogs
Gigglz - 27 Apr 2004 20:55 GMT
I will be curious to hear what your doctor has to say about it
tomorrow.  Would you mind posting?  I'm not seeing my doc for a few
weeks.  I truly understand the pain you are in...and how hard it is to
function!  I'm sorry for you.  I always wish I could keep up in here
with the posts because it's such a nice group...but I'm in a few
others and have trouble keeping up with those.  The joy of pain, huh?
Any way..I will wait to hear what your doctor says :-)  I hope it's an
option for you!   Feel free to email me any time...and good luck!

Please take care!

Gigglz

>I did some reading about this last night cause it sounded too good to be
>true. It's RX only but I plan on talking to my neuro about it tomorrow. It
[quoted text clipped - 12 lines]
>bad.  Gotta get stuff done!  I'll let you know what the dr says about it
>tomorrow. Seeing both neuro and physiatrist.
DiWitt - 29 Apr 2004 05:55 GMT
Well I saw my neuro today. It was actually a visit to the MS clinic where I
see the nurse fractioned first and then the neuro sticks his head in for a
few minutes if he has time. Well I got a little more of his ear today since
he was also seeing Mom. I had completely forgotten to ask Connie (NP) about
the neuron/zonagran until the dr came into the room. She had even ask me if
there was anything they could do for me and I just zoned out. Wasn't
picturing talking to her in my mind when I thought about asking about
zonegran if that makes sense.

But I finally did remember and he put me on something called LAMICTAL. It's
another anti=seizure med which has the same types of properties as neurontin
except it doesn't effect the weight. He was very curious why I was asking
about zonegran. I told him what I had heard about it and that I really liked
the weight loss properties of it. He said that since Neurontin has come out,
a lot of the newer seizure meds try to support the same claims as far as
relief of nerve pain and mood stabilizer. He feels that zonegran is too new
and that the data doesn't support that enough yet to warrant trying it when
there are other good drugs on the market we haven't tried and that have an
existing track record. He mentioned Topamax, I think, and of course
Lamictal, which is what he decide to give me.

Signature

Cyberhugs,
DianeW

It is only with the heart that one can see rightly; what is essential
is invisible to the eye. --Antoine de Saint Exup?ry

> I will be curious to hear what your doctor has to say about it
> tomorrow.  Would you mind posting?  I'm not seeing my doc for a few
[quoted text clipped - 25 lines]
> >bad.  Gotta get stuff done!  I'll let you know what the dr says about it
> >tomorrow. Seeing both neuro and physiatrist.
Squirrely - 29 Apr 2004 09:09 GMT
I heard that Topamax is good for a few people. I hope I am thinking of the
right one.

How is things going with your Mom?

You are luckier than I am, you remembered when the dr came in. I usually get
home and go oh shoot I forgot to ask about such and such. It is usually
something about what they just told me or something I guess remembered and
didn't have on my list. ;-)

I do that with Jim alot too. Send him to store with list and then remember
two or three things while he is gone that wasn't on the list. ;-)

I hope this meds works great for you. You could sure use a break from it
all.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Well I saw my neuro today. It was actually a visit to the MS clinic where I
> see the nurse fractioned first and then the neuro sticks his head in for a
[quoted text clipped - 57 lines]
> > >bad.  Gotta get stuff done!  I'll let you know what the dr says about it
> > >tomorrow. Seeing both neuro and physiatrist.
dadand1 - 28 Apr 2004 21:06 GMT
Hi Di,
Yes, the nuerontin has made me gain weight. Also, lack of exercise hasn't
helped any either and I don't know which to blame for how much gain! lol The
nuerontin has to also keep increasing in dosage to be effective. It did help
me for some time though, then I added tramadol and the two do wonders for my
pain. A bit hard on my brain though! The nuerontin kinda restricts nerve
conduction somehow.
Anyway, hope you find something to help soon. I hate that situation where
you can't sit, can't stand, can't lay down.
Z

> I did some reading about this last night cause it sounded too good to be
> true. It's RX only but I plan on talking to my neuro about it tomorrow. It
[quoted text clipped - 40 lines]
> > > Tina's Togs Quality Plus Size and Vintage Fashions
> > > http://www.stores.ebay.com/tinastogs
Gigglz - 27 Apr 2004 20:51 GMT
It's a prescribed drug, so you would have to see your doctor.  It's
the same type of drug as Neurontin...only less side effects from what
I'm hearing from others.  After I see my doctor in a few weeks and try
it...I will post any information in here to any interested parties :-)

Gigglz

>Is it OTC or would I need a prescription?   Should I get "permission" from
>my various doctors first or just start using it?
[quoted text clipped - 22 lines]
>> Tina's Togs Quality Plus Size and Vintage Fashions
>> http://www.stores.ebay.com/tinastogs
donnah - 27 Apr 2004 21:23 GMT
good! I'm very interested, G...
and I have an appt with my neuro in a few weeks...
donnah

> It's a prescribed drug, so you would have to see your doctor.  It's
> the same type of drug as Neurontin...only less side effects from what
[quoted text clipped - 30 lines]
> >> Tina's Togs Quality Plus Size and Vintage Fashions
> >> http://www.stores.ebay.com/tinastogs
Gigglz - 28 Apr 2004 02:41 GMT
I doubt I'll have any problems having it prescribed.  He will try
anything to make me feel better.  I'll keep you posted :-)
My appointment is May 13th.

G

>good! I'm very interested, G...
>and I have an appt with my neuro in a few weeks...
[quoted text clipped - 38 lines]
>> >> Tina's Togs Quality Plus Size and Vintage Fashions
>> >> http://www.stores.ebay.com/tinastogs
donnah - 28 Apr 2004 14:33 GMT
grand, G! my appt is the end of May...
donnah
thanks!

> I doubt I'll have any problems having it prescribed.  He will try
> anything to make me feel better.  I'll keep you posted :-)
[quoted text clipped - 44 lines]
> >> >> Tina's Togs Quality Plus Size and Vintage Fashions
> >> >> http://www.stores.ebay.com/tinastogs
Gigglz - 28 Apr 2004 16:34 GMT
Good timing :-)

G

>grand, G! my appt is the end of May...
>donnah
[quoted text clipped - 57 lines]
>> >> >> Tina's Togs Quality Plus Size and Vintage Fashions
>> >> >> http://www.stores.ebay.com/tinastogs
baskains - 30 Sep 2006 16:48 GMT
I have been diagnosed with neuropathy that partially parallyzised me in my
legs for a time.  Thanks to a really great doctor at Southwest Medical in
Dallas, I have been walking and working since my parallysis.  I take
Neurontin at a miminum dose of 800 mg twice a day and sometime have to go to
four times a day.  I promise that without Neurontin, I would not be walking
now.  As far as I know after taking it for 9 years, I am suffering no side
effects.

>>I hope this one
>>works, should I decide to take it.
[quoted text clipped - 11 lines]
>Tina's Togs Quality Plus Size and Vintage Fashions
>http://www.stores.ebay.com/tinastogs
DiWitt - 28 Apr 2004 14:08 GMT
by the way, it's spelled Zonegran?

Signature

Cyberhugs,
DianeW

It is only with the heart that one can see rightly; what is essential
is invisible to the eye. --Antoine de Saint Exup?ry

> Hello :-)
>
[quoted text clipped - 4 lines]
>
> Gigglz
Gigglz - 28 Apr 2004 16:34 GMT
Thanks...I wasn't sure at the time of my post :-)

G

>by the way, it's spelled Zonegran®

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