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Medical Forum / Diseases and Disorders / Arthritis / November 2006Neuropathy
Hi everyone. I have been having problems with neuropathy (woke up from burning pain in leg tonight). Neuropathy can cause pain, tingling and numbness. I swing between numbness and burning pain. I am trying to figure out what caused it. Has anyone had this problem while on anti-TNF inhibitors? It can also be caused by Vitamin B-12 deficiency or simply as another autoimmune disease (my doctor's diagnosis}. Since I've had RA for 35 years and this hasn't happened before, I can't help but think it might be related to Enbrel/Humira. I'm also leaning toward B-12 deficiency since I haven't been getting my B-12 shots as regularly since my most recent compression fracture. I would appreciate hearing from others who have experienced this problem. Thanks, Linda > I have been having problems with neuropathy Linda-In my family, we have something called familial neuropathy. I dont have it, but my brother does. So there are more causes than the ones you listed. And they may never be able to pinpoint it. Good luck. Char "Remember, I'm pulling for ya'. We're all in this together." Red Green > > I have been having problems with neuropathy > [quoted text clipped - 8 lines] > > "Remember, I'm pulling for ya'. We're all in this together." Red Green Thanks Char, I only came up with those three in my 3 AM research, but I was googling "Neuropathy + possibilities I could think of". I don't know anyone in my family who has had this problem, don't know of anyone having RA either, but it could be a generation or two away. Don't you think I should probably see a neurologist to find the cause instead of taking my RD's diagnosis for granted? I hope you're doing okay thee days. Linda > Don't you think I should >probably see a neurologist to find the cause instead of taking my RD's >diagnosis for granted? If that is what it is going to take, to make you feel OK about this, then by all means see a Neurologist. It is all about you being satified with your medical care. Char "Remember, I'm pulling for ya'. We're all in this together." Red Green > > Don't you think I should > >probably see a neurologist to find the cause instead of taking my RD's [quoted text clipped - 5 lines] > It is all about you being satified with your medical care. > Char Well, at 3:00 a.m. things seem a lot scarier than in the morning after sleeping, but he did once diagnose me with a fungus when it turned out I was having an allergic reaction to Arava. Antifungal medication did not help so I asked a doctor friend, and he said it was an allergic reaction and prescribed large, but decreasing, doses of prednisone which cleared it up. I spent a week of unbearable itching all over my stomach because of the misdiagnosis. He is supposed to be a good RD, so I guess he should be better able to diagnose an autoimmune disease than a skin rash. I think I need a neurologist anyway because ever since my fourth compression fracture 4 months ago, I have sciatica so bad I can't walk more than 50 feet. I hope a neurologist can do something. Prednisone for RA caused my osteoporosis. Thank heavens I am now taking Forteo (parathyroid hormone), which builds bone back to the normal level for most people (per my doctor). I'm sorry to be venting but I've had a bad the couple of years, and I've been feeling discouraged.On Monday morning, I woke up in so much pain I felt like shooting myself, but called my doctor and asked for Humira, and I'm feeling better after the first shot two days ago. Thanks for listening . Linda "Prednisone for RA caused my osteoporosis. " Its funny you say that. Me and my brother have arthritis; I have sought treatment, my brother has not. Although my arthritis is better, I now have so much more medical problems than before. My brother does not have any other additional health problems. I can't help but wonder if my additional health problems were a result of my arthritis treatment. http://www.cbc.ca/stories/2003/08/05/hosp_infections http://abcnews.go.com/sections/Primetime/Living/schaap031023-1.html http://www.msnbc.com/news/992470.asp?0si=-&cp1=1 http://www.cbsnews.com/stories/2003/10/23/60minutes/main579657.shtml > "Prednisone for RA caused my > osteoporosis. " [quoted text clipped - 4 lines] > additional health problems. I can't help but wonder if my additional health > problems were a result of my arthritis treatment. It's well-known that prednisone can cause bone loss. You might want to research your medications or ask your pharmacist for complete information on them to see if you are having side effects. What are you taking for arthritis? Immunosuppressants, of course, can cause more infections, among other things. If you think your medications are causing other problems, you should talk to your doctor about it. Linda wOw...you go girl!! donnah > > "Prednisone for RA caused my > > osteoporosis. " [quoted text clipped - 16 lines] > > Linda >What are you taking for >arthritis? Nothing right now; but over the years, I've used various steroids and epidurals of sorts... http://www.cbc.ca/stories/2003/08/05/hosp_infections http://abcnews.go.com/sections/Primetime/Living/schaap031023-1.html http://www.msnbc.com/news/992470.asp?0si=-&cp1=1 http://www.cbsnews.com/stories/2003/10/23/60minutes/main579657.shtml > I can't help but wonder if my additional health >problems were a result of my arthritis treatment. You and your brother have arthritis, doesnt begin to cover it. Do you have the same form of arthritis? There are over 170 different diseases and conditions that fall under that general heading. Treatments that are available to treat inflammatory arthritis CAN cause additional health problems, but that is why we are monitored so closely. To stop them before they really get started. But very often people with one autoimmune disease have others as well. I dont think your additional health problems can be blamed on being treated for arthritis, but that is only my opinion. But an educated opinion. Char "Remember, I'm pulling for ya'. We're all in this together." Red Green >Do you have the >same form of arthritis? Well, our symptoms were very much the same... I don't know for sure though, he does not go to doctors... http://www.cbc.ca/stories/2003/08/05/hosp_infections http://abcnews.go.com/sections/Primetime/Living/schaap031023-1.html http://www.msnbc.com/news/992470.asp?0si=-&cp1=1 http://www.cbsnews.com/stories/2003/10/23/60minutes/main579657.shtml >Well, our symptoms were very much the same... I don't know for sure though, >he >does not go to doctors... What type of arthritis do you have? ~KJ Akron, Ohio http://arthritisinsight.com Knowledge is power...support is essential. Tina's Togs Quality Plus Size and Vintage Fashions http://www.stores.ebay.com/tinastogs "What type of arthritis do you have?" The doctor believes its a form Ankylosing Spondylitis. http://www.cbc.ca/stories/2003/08/05/hosp_infections http://abcnews.go.com/sections/Primetime/Living/schaap031023-1.html http://www.msnbc.com/news/992470.asp?0si=-&cp1=1 http://www.cbsnews.com/stories/2003/10/23/60minutes/main579657.shtml >>Do you have the >>same form of arthritis? If you're not identical twins, then your assumptions are probably unfounded.  Signaturespammage trappage: replace fishies_ with yahoo because you are related does not mean you will have the same reactions, problems, or outcomes... unless you share the same body and brain... donnah > "Prednisone for RA caused my > osteoporosis. " [quoted text clipped - 12 lines] > > http://www.cbsnews.com/stories/2003/10/23/60minutes/main579657.shtml (((Linda))) oh...try and hang tough! we are here for you... donnah > > > Don't you think I should > > >probably see a neurologist to find the cause instead of taking my RD's [quoted text clipped - 30 lines] > > Linda How have your blood sugar readings been? Harv > Hi everyone. I have been having problems with neuropathy (woke up from > burning pain in leg tonight). Neuropathy can cause pain, tingling and [quoted text clipped - 13 lines] > > Linda > How have your blood sugar readings been? > > Harv Hi Harv, I had a diabetes test done a few weeks ago and was told I don't have that. I did read last night that diabetes could cause neuropathy, but discarded that possibility because of recent tests. I'm not really sure the doctor was right, of course. I don't know why I can't take what they say as positively right. I guess because I don't think doctors are infallible. and my RD came up with autoimmune neuropathy without any type of testing. Thanks for answering my post. I hope you are doing well thes days. Linda > Thanks for answering my post. I hope you are doing well thes days. > > Linda Hi Linda, I am doing pretty well for a guy that is 65 and has had RA since he was 38. :-) Your problem really needs answers. Pinched nerves,,,swelling pressure,,,,MS and others. Neuropathy can cause muscles to waste. None of this can go on and on without a price. Please see your doctor and get good answers to stop the worry. Harv > > Thanks for answering my post. I hope you are doing well thes days. > > [quoted text clipped - 7 lines] > > Harv Thanks for your support Harv. I'm glad you are doing pretty well. I too will be 65 in June with many years of RA behind me I'm hoping to be doing pretty good on Humira by then. Linda (((Harv))) Dad's RA started in his late thirties, also...a long and hard battle isn't it? donnah > > Thanks for answering my post. I hope you are doing well thes days. > > [quoted text clipped - 7 lines] > > Harv Harvey, What do you recommend that I should do ? I just turned 30 this month. I have RA, Neuropathy, Chronic Daily Migraines, Cysts 1 on each ovary every month that about kill me, Fibromyalgia, and Myofascial pain. I have had the RA, since I was 12 yrs. old, only it never got found out about till, the end of last year. My Neurologist has me seeing a PT person, him, he is setting an app. up to see a RA doctor, and I'm seeing a Gyn. They are having trouble trying to treat me. I'm very sensitive to medications. I'm on 1800 mgs of Neurontin a day, which the only thing thats doing is helping my mood. I'm on Bextra, 20 mgs. a daay {which we cant afford} Medicade doesn't want to approve it. I take Phenerghan for my nausea. Clonazapam 0.5 mgs. at night for depression {is not helping}. Am being given Lortab for pain {ha } is not helping my pain, my pain is so intense so like up in the hundreds. Am afraid to ask for anything stronger. It's just I'm tired of hurting so bad. I have 3 children the oldest will turn 13 this August, the middle chils is 9 will turn 10 in July, and my youngest just turned 8 a couple of days b4 Christmas. I cant do things with them bcause I'm hurting too bad. Sorry so long. Take care, migraine momma >> Thanks for answering my post. I hope you are doing well thes days. >> [quoted text clipped - 7 lines] > >Harv > Harvey, > What do you recommend that I should do ? Hi Linda, Please continue to read and post here where you will find several people that that dealt with everything you have listed. Continue to see you doctors making sure that they all know what the other is doing and what you are taking. With a working husband and children just keeping going and doing to keep their lives together is a big job and they may not understand what you are dealing with. Please try to stay positive and doing what you can do for yourself and talking about it here. Harv > Harvey, > What do you recommend that I should do ? Ps,,,, Sorry I listed your name as Linda,,,MM but there was two or three people in your post. Thats okay Harvey, I have gotten mixed up on this thing too b4. Thanks for your advice. Am having a hard time staying positive, I hurt all the time. :( Take care, migraine momma >> Harvey, >> What do you recommend that I should do ? > >Ps,,,, Sorry I listed your name as Linda,,,MM but there was two or three >people in your post. Linda I have neuropathy very bad in my feet but have been diagnoised as diabetic and they have decided that is the cause of mine. I am taking neurontin for this but it doesnt make it go away completly hope you start feeling better soon!~! janice > Hi everyone. I have been having problems with neuropathy (woke up from > burning pain in leg tonight). Neuropathy can cause pain, tingling and [quoted text clipped - 13 lines] > > Linda > Linda > I have neuropathy very bad in my feet but have been diagnoised as diabetic > and they have decided that is the cause of mine. I am taking neurontin for > this but it doesnt make it go away completly > hope you start feeling better soon!~! > janice Thanks for your good wishes, Janice. I'm glad to hear you are taking something that helps, but sorry you have this problem as well as diabetes and arthritis. Thanks for telling me about Neurontin. Linda Janice, I have it throughout my body. It is the worst in my arms,legs,hands,and feet. Wish you the best. migraine momma >Linda >I have neuropathy very bad in my feet but have been diagnoised as diabetic [quoted text clipped - 20 lines] >> >> Linda Hi Linda, I have been diagnosed with having Neuropathy as well. I am only 30 , and have RA {since the age of 12] only it did not get found out about, untill the very end o last year. I don't really do good with a vitamin intake. Could have a little to do with it. What is anti-TFN ? I'm not on any Embrel. I had the problems/ symptoms b4 even being put on anything for the RA. But I was already put on the Neurontin b4 I had the Neuropathy issue arise. I wish you the best. migraine momma >Hi everyone. I have been having problems with neuropathy (woke up from >burning pain in leg tonight). Neuropathy can cause pain, tingling and [quoted text clipped - 13 lines] > >Linda Hi MM, I was wondering if Enbrel (Anti-tumor-necrosis factor) could have played a part in my Neuropathy since I had read it could cause demyelination of nerves as a side effect. I didn't have Neuropathy before taking it. I guess it was just a coincidence, though, since so many people have the Autoimmune Neuropathy along with the RA. Enbrel is one of the newer Disease Modifying Drugs. I'm sorry to hear you are having so many problems. I'm glad you will be seeing an RD to get some help. It is hard to raise a family when you have RA. My children were 3 and 1 when I was diagnosed. Hopefully, a rheumatologist will be able to get your symptoms under control. There are many good treatments for RA now. Good Luck! Linda > Hi Linda, I have been diagnosed with having Neuropathy as well. I am > only 30 , and have RA {since the age of 12] only it did not get found [quoted text clipped - 15 lines] > >Since I've had RA for 35 years and this hasn't happened before, I can't > >help but think it might be related to Enbrel/Humira. I'm also leaning > >toward B-12 deficiency since I haven't been getting my B-12 shots as > >regularly since my most recent compression fracture. [quoted text clipped - 4 lines] > > > >Linda Hi Linda, I dont know if it could have played a part in that or not. I do know that my M-in-Law has Neuropathy, and she uses Embrel. If she did not use the Embrel she would not be able to even get out of bed. She has many medical problems , far more than I. I cant remember if she had the N. before taking the Embrel. Damn Migraine trying to kick me hard. Will have to go lay down or something. Thank you. Im glad Im gonna see a RD doc too. Yes very hard to raise a family like this. I hope they will too. My gosh, how did you do it? I mean with your childred that little. Thanks again Linda, Take care, MM >Hi MM, > [quoted text clipped - 44 lines] >> > >> >Linda Hi Linda, I can't believe that I found you... I have had neuopathy symptoms (tingling and numbness plus cold hand and feet for the past 3 months. I have had RA for 15 yrs and have been on Embrel then Remacade (stopped do to cost and insurance) then back to Embrel which worked for 3 more yrs then 4 months ago it stopped working and I was switched to Humira 2 months ago (no relief). I also had a 3 amalgam fillings replaced right before my symptoms appeared. I asked my Dr. and dentist about the possibility of toxic metal poisoning, from the mercury in the fillings, causing these symptoms too and he basically poo-poo'd me. I hate to hear that you too are having these symptoms but at least I am not crazy for thinking that it may be the meds too. I am going back to my doctor Tues and will insist on a test for heavy metal toxins. Heavy metals can cause neurologial symptoms too. I've gone off the TNF meds and am on Prednizone for now to control swelling. If I find out someting I will be sure to let you know. In the mean time, I feel your pain. Julie >Hi everyone. I have been having problems with neuropathy (woke up from >burning pain in leg tonight). Neuropathy can cause pain, tingling and [quoted text clipped - 13 lines] > >Linda |
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