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Medical Forum / Diseases and Disorders / Arthritis / January 2009Rheumie visit
I am going to start rituxan. In this province there is a fair amount of paper work that is needed to initiate the process, then I have to determine where I will go for the infusions, since they cannot be done locally. Hopefully the infusion centre will be in Kamloops (1 hour away) as opposed to Kelowna (1.5 hours over a bad road in winter) or Penticton (same as previous). Since I will need to be driven, I will need to consider what is best for my driver. The rheumy did not seem convinced that I would be ready to return to work next Monday. We will see what the surgeon says tomorrow. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Rose, is your rheumie going to talk with your surgeon to see if they can extend your time off for a bit longer? Also, will your rheumie keep you on the humira until you are approved for the rituxan since it is a long approval process? Sure hope the rituxan is the magic bullet for you and that you can get things better controlled. It is nice to only have to go for those infusions once or twice a year! Also pray that you can find an infusion center fairly close by! Keep us posted! Hope it works wonders. BTW, am wondering how it is working for DeeTee? Hey DeeTee, has your rituxan kicked in for you yet? . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) May God's richest blessings be upon you both today and throughout the year. May His blessings flow through you to touch the lives of everyone you meet. Well, I screwed up BIG TIME on the surgical follow-up appointment! My appointment was on Friday (the 23rd) not today. I went all the way to Kamloops only to find out that I had the wrong day. The doc was not even there, so they could not try to fit me in. She is squeezing me in this Friday only because I insisted I needed to see the doc before going back to work on Monday. This is a real problem because if there are any changes that need to be made, it does not give me or the school district much time. I will go in tomorrow and see my principal and explain what happened. Today was not a good day for another reason. I ordered some shoes on-line. They tried to deliver them yesterday, but I was not home. I went to their Internet address last night and changed the delivery date for tomorrow, but they did not get the message in time. That was their final delivery attempt. Now the shoes will have to be picked up in Kamloops. If they do not work for me, I am hooped. All I have been wearing is my oink fuzzy bedroom slippers, and I don't think I can wear them to work. I cannot find shoes in a store, and all my old shoes have a one inch plus lift that I no longer need. Finding shoes for me is a challenge. I looked in Penticton yesterday, and Kamloops today without success. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. > Well, I screwed up BIG TIME on the surgical follow-up appointment! > My [quoted text clipped - 25 lines] > for me is a challenge. I looked in Penticton yesterday, and Kamloops > today without success. It really sounds like you aren't supposed to go back to work on Monday! May thing go as they should. Jo I hope you get the ok on Fri to stay home longer if that is what you feel you need. Also hope the thing with the shoes work out for you. I feel for you sweetie.  SignatureLove and hugs to all Love Squirrely Jo > Well, I screwed up BIG TIME on the surgical follow-up appointment! My > appointment was on Friday (the 23rd) not today. I went all the way to [quoted text clipped - 22 lines] > > Please remove "Ima" to reply. > Well, I screwed up BIG TIME on the surgical follow-up appointment! My > appointment was on Friday (the 23rd) not today. I went all the way to > Kamloops only to find out that I had the wrong day. Oh, don't you hate it when that happens!! it really sucks that you had to drive so far to find out. i gather they don't call you before with a reminder. It's much better when you show up too early, so you can still make the real appt.! (do you hear the voice of experience here? lol) > even there, so they could not try to fit me in. She is squeezing me in > this Friday only because I insisted I needed to see the doc before > going back to work on Monday. This is a real problem because if there > are any changes that need to be made, it does not give me or the > school district much time. I will go in tomorrow and see my principal > and explain what happened. I hope it all works out smoothly. By now, your principal should know you well enough to trust your opinion on not being able to return to work. Hopefully your sub will be available to stay on. (LOL - I remember being taught in grade school to remember the which spelling of "principle" applied to the school setting by thinking of your pricipal as your "pal" - can't say we students always thought that way, but it does work!) > I cannot find shoes in a store, and all my old > shoes have a one inch plus lift that I no longer need. Finding shoes > for me is a challenge. I looked in Penticton yesterday, and Kamloops > today without success. Is there any possibility of having a shoe repair guy remove the lift from yur old shoes? Oh, and I have everything crossed that the rituxan approval goes smoothly for yo and that it WORKS! --- Nann remove the Gator cheer to email me Change everything. Love & forgive. Thank-you Nann. I am still mad at myself for making this mistake, and i will be embarrassed when i have to explain it all again to the surgeon. I plan to go into school later today and talk to the principal (who these days is really a pal). It isn't her i am worried about in all of this, but rather the board. All the paperwork has to be in place, and leaves of absence have to be approved. If i need extra time, the appropriate documentation needs to be in place. The thing with the shoes is that when the shoemaker added the addition, he doesn't just glue it to the sole of the shoe. Instead, he removes the sole, cuts it apart, and sandwiches the addition somewhere in between so that it looks like part of the additional shoe and not just an add-on. He is not local either, but is in Kelowna (1.5 hrs away or so). We have no shoemaker locally. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. > I plan to go into school later today and talk to the principal (who > these days is really a pal). It isn't her i am worried about in all of > this, but rather the board. All the paperwork has to be in place, and > leaves of absence have to be approved. If i need extra time, the > appropriate documentation needs to be in place. Whew, it is rough for there to be so little time to get everything lined up. Hopefully it will all work out fine - you truly do not need to be going back to work before you're ready! > The thing with the shoes is that when the shoemaker added the > addition, he doesn't just glue it to the sole of the shoe. Instead, he > removes the sole, cuts it apart, and sandwiches the addition somewhere > in between so that it looks like part of the additional shoe and not > just an add-on. He is not local either, but is in Kelowna (1.5 hrs > away or so). We have no shoemaker locally. Ah, i see. It's much more complicated than the lifts I've had in the past. That's good when you're using the shoes - only bad whan you've had joint work that changes everything! Hopefully you and the new shoes will meet up soon. I mourn the loss of local shoemakers or shoe repair folks. I know how much things have changed, but they've saved so many favorite shoes & purses and other things made of leather for me over the years. I'll always have a fond spot in my heart for the profession. I'm surprised that we have one in Alpena (pop. ~10,000), but it IS contained in a Red Wing shoestore. f course these days we both either wear Birks or snow boots, but still....... --- Nann remove the Gator cheer to email me Change everything. Love & forgive. I read the other day that because of the loss of jobs, etc, more people are having their shoes repaired instead of buying new ones. It's a shame they can't just alter your old shoes, but then we don't expect improvements like that, do we? Good luck on getting some new shoes. SignatureNavy Take out the FISH to email me. > >> I plan to go into school later today and talk to the principal (who [quoted text clipped - 36 lines] > remove the Gator cheer to email me > Change everything. Love & forgive. Hope all works out for the best for you. Hang in there. You're not in this alone!! DeeTee > Well, I screwed up BIG TIME on the surgical follow-up appointment! My > appointment was on Friday (the 23rd) not today. I went all the way to [quoted text clipped - 22 lines] > > Please remove "Ima" to reply. >Hope all works out for the best for you. Hang in there. You're not in this >alone!! > >DeeTee Thank-you, DeeTee. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Rose,please don't go back too soon. Gwen I am going to start rituxan. In this province there is a fair amount of paper work that is needed to initiate the process, then I have to determine where I will go for the infusions, since they cannot be done locally. Hopefully the infusion centre will be in Kamloops (1 hour away) as opposed to Kelowna (1.5 hours over a bad road in winter) or Penticton (same as previous). Since I will need to be driven, I will need to consider what is best for my driver. The rheumy did not seem convinced that I would be ready to return to work next Monday. We will see what the surgeon says tomorrow. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. |
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