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Medical Forum / Diseases and Disorders / Arthritis / July 2008

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dee tee

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Kelly - 30 Jul 2008 20:39 GMT
Hi Dee Tee (am addressing to the group as well in case anyone else is
nearing rituxan),
I talked to my nurse practitioner and she said that most people are only
having a day or two of fatique after the rituxan treatments and that is due
to the benedryl and the day in the chair.  I suspect mine is due to the side
effects I had and also that I get twice as much prednisone to counteract
that, and that I have 2 days instead of one in the infusion chair each time
(twice as much benedryl etc).  So I suspect it will not be a fatiquing for
you. I did feel a little better at the week and a half point this round.

Just thought I would let you know.  I am slowing meeting the odd person in
the infusion room that is getting rituxan.  They sleep through the procedure
(lucky people) and have no problems whatsoever.  Just so you know that Donna
and I seem to be the exemption to the rule.

Also met a guy who is taking a trial med that will hopefully be released in
a year or so.  He says it is like he never had RA, gets no side effects or
RA effects in between his 28 day infusions, is infused for only 2 hours at
most I would say from start to finish.  So another coming down the tube
eventually.  It is a Canadian based research med and is not a tnf receptor.
So hope again arises!

Kelly
DeeTee - 30 Jul 2008 22:17 GMT
Thanks. I was thinking it would probably mirror my chemotherapy
sessions....I hurt and was exhausted the day of, slept through the day
after, and then by the third day, was back to just being tired all the time.
We'll see. I'm anxious to get started because we are supposed to drive to
Maryland the second weekend of September. I want to be over the worst of the
two infusions before then so I can enjoy my family.

Thanks for the heads up...
DeeTee

> Hi Dee Tee (am addressing to the group as well in case anyone else is
> nearing rituxan),
[quoted text clipped - 20 lines]
>
> Kelly
Kelly - 31 Jul 2008 03:30 GMT
If they can get you in soon you should be over the worst of it DeeTee.  I
had the sore throat today and took tylenol (didn't do a thing for it.).
Since no results I imagined somehow that it was a slight reaction to the
infusion although 24 hours later - took benedryl and sure enough no problems
with the throat until the benedryl wore off.  Apparently I did finally get
the darn side effect but pretty mild compared to last time.

Have my fingers crossed for soon!  By September you should be feeling much
better although the med won't have kicked in yet I am afraid.  Will your
doctor give you a medrol pack??

Kelly
> Thanks. I was thinking it would probably mirror my chemotherapy
> sessions....I hurt and was exhausted the day of, slept through the day
[quoted text clipped - 30 lines]
>>
>> Kelly
DeeTee - 31 Jul 2008 18:22 GMT
He has given me a 5 refill prednisone taper. It starts at 25 mg and goes
down to 5, then I go back to my 3 mg daily. If I need it, all I have to do
is refull it. I am seriously considering refilling it and doing the 25 mg
the week of our trip.

DeeTee

> If they can get you in soon you should be over the worst of it DeeTee.  I
> had the sore throat today and took tylenol (didn't do a thing for it.).
[quoted text clipped - 42 lines]
>>>
>>> Kelly
Donna G. - 31 Jul 2008 09:39 GMT
Wow, Kelly, can't wait to hear more about this new med that is in the
tubes and that only requires a two hour infusion!!!  Although having to
go every month would kind of be a drag.  I like the only having to do
the rituxan every 6 months or so.  Very convenient.

.
.
.
.

Donna
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.
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1.)   ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......

2.)    J.K.M.A.
Kelly - 31 Jul 2008 19:16 GMT
I saw the clinical trial on another page yesterday.  It is called MRA at the
moment - still in phase 3 but always hopeful - at least it isn't another tnf
since I can't take those any longer.  Of course could be longer being
approved and will always need fda approval as well I imagine. But they are
doing trials at some US places as well.

Kelly

> Wow, Kelly, can't wait to hear more about this new med that is in the
> tubes and that only requires a two hour infusion!!!  Although having to
[quoted text clipped - 15 lines]
>
> 2.)    J.K.M.A.
Kelly - 31 Jul 2008 19:18 GMT
http://clinicaltrials.gov/ct2/show/NCT00380601?cntry1=ES%3AJP&rank=7  Link
for one of the clinical trials - too many to list.

Kelly

> Wow, Kelly, can't wait to hear more about this new med that is in the
> tubes and that only requires a two hour infusion!!!  Although having to
[quoted text clipped - 15 lines]
>
> 2.)    J.K.M.A.
 
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