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Medical Forum / Diseases and Disorders / Arthritis / May 2008Rose B. --- re: your sister
Rose, I'm so sorry to hear that Sylvia is still doing so poorly. I can only imagine how difficult this is for all of your family!!! Prayers continuing for all of you!!! Blessings, . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) J.K.M.A. >Rose, >I'm so sorry to hear that Sylvia is still doing so poorly. I can only >imagine how difficult this is for all of your family!!! > >Prayers continuing for all of you!!! >Blessings, >Donna >1.) ANGELS EXIST, but some times, since they don't all have wings, we >call them FRIENDS...... > >2.) J.K.M.A. Thanks Donna G. I appreciate your thoughts and prayers. This is very difficult. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. rose, I'm sorry to hear Sylvia's not doing well. What a difficult time for you and your family. My prayers are with you. diane >rose, I'm sorry to hear Sylvia's not doing well. What a difficult time >for you and your family. My prayers are with you. > >diane Thank-you, Diane. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Sylvia is in my daily prayers since I first read of what happened. Will add the rest of the family to those prayers also. Ann >Sylvia is in my daily prayers since I first read of what happened. Will >add the rest of the family to those prayers also. >Ann Thank you so much. I appreciate this beyond words. I just feel that if we pray enough and remain positive that there is hope. Harold went back to Vancouver today, but I have not been able to talk to him to determine what his feelings are. There is still no change, and the nurse indicated to my cousin that her kidneys will start shutting down. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Rose, Is this the sister and brother-in-law that lost a child several years ago? Your poor family has been through so very much, don't know how you all hang on through all of this!!! Prayers ongoing and keep us posted! Make sure to take good care of you too!!! Hugs, . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) J.K.M.A. Hi Donna, Yes this is the same sister that lost her son, then had breast cancer 8 months later. She went through chemo and radiation but because her cancer was advanced, her lungs were damaged and so she is susceptible to pneumonia. She has one son left, and this is very difficult for him. Her husband lost a brother earlier this year as well. Somehow oow she developed an opportunistic infection. My thinkig though continues to be that she was under-treated for her pneumonia. She was in hospital for two weeks, then was discharged. During her whole hospital stay she ony had oral antibiotics. That does not make sense to me. Even she questioned her doc when she was released if the doseage was adequate. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. RoseB wrote : > Hi Donna, > Yes this is the same sister that lost her son, then had breast cancer [quoted text clipped - 14 lines] > > Please remove "Ima" to reply. I think I'd have to agree with you. Your sister and family are in my prayers. Nell The medical field has much for which to answer. It was the medical 'experts' who caused my second round of hernias for which I am still waiting to see the surgeon. Know that you and your family are in our prayers. DeeTee > Hi Donna, > Yes this is the same sister that lost her son, then had breast cancer [quoted text clipped - 14 lines] > > Please remove "Ima" to reply. >The medical field has much for which to answer. It was the medical 'experts' >who caused my second round of hernias for which I am still waiting to see >the surgeon. Know that you and your family are in our prayers. > >DeeTee Thank-you DeeTee, I am sad to hear that your hernias were a result of medical error. Things like that should not happen. As I was watching Sylvia's nurses I thought about how easy it would be for mistakes to occur. Even with one-to-one nursing care there is a potential for human error. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Rose, Any change in how Sylvia is doing? Any improvements at all? Prayers ongoing! . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) J.K.M.A. >Rose, > >Any change in how Sylvia is doing? Any improvements at all? > >Prayers ongoing! >Donna > >1.) ANGELS EXIST, but some times, since they don't all have wings, we >call them FRIENDS...... > >2.) J.K.M.A. Thanks for your prayers, Donna. The doctor was very negative when we talked to him on Sunday, and what he said was very hard to hear. I hope that he is presenting the worst case scenario, and not a confirmed reality. She has pneumonia once again. I guess because she is immobile. Darren her son is being an absolute rock. He will not allow anyone to think negatively about this. He believes she will come through this. It is denial, but then his positive thinking is sustaining him through this. The nurses at St. Paul's are wonderful. They care about the family members not just the patient. After listening to the doc it was pretty hard to be optimistic, but the nurse took Darren and Harold aside and spoke with them. Sylvia has now been on the ventilator for two weeks. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Prayers still coming that way Rose and my heart is there with you sweetie. I sure hope you have a good outcome for your sister.  SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. > > Thanks for your prayers, Donna. The doctor was very negative when we [quoted text clipped - 13 lines] > Sylvia has now been on the ventilator for two weeks. > Rose @}->-- Rose, it is so hard to watch someone you love suffer from anything and you know you can't do anything to make it work differently. Praying for all of you. Gwen Rose, I'm so sorry to hear that Sylvia is still doing so poorly. I can only imagine how difficult this is for all of your family!!! Prayers continuing for all of you!!! Blessings, . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) J.K.M.A. Sylvia was taken off the respirator today. My cousin Margaret indicated that yesterday, she started to stabilize, and so they planned to try today, and were successful. She still has the breathing tube in but it is connected to oxygen as opposed to the ventilator. We were told to be cautious, she still has a long way to go and is not out of the woods yet. But this is a step in the right direction. We are so excited and so thankful for even this step. The doctor had said on Sunday that there was a good chance she would never have the tube removed and never leave ICU. DId i mention yesterday that i had won a weekend for two getaway at the Pan Pacific in Vancouver plus a $100 gift certificate? I thought we could use it when we go see Sylvia as hotels in downtown Vancouver are so expensive. But maybe i will hold onto this for a bit and the sisters can have a getaway once Sylvia is better. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. > Sylvia was taken off the respirator today. My cousin Margaret > indicated that yesterday, she started to stabilize, and so they [quoted text clipped - 15 lines] > Being educated means that rather than fearing the unknown, > one seeks to understand it. Hi Rose,,,,May God give you a time of peace,,,,give you strength to deal with whatever tomorrow brings. I think you should use your prize at a time that seems right for you and yours. Some people I have known would feel guilty for enjoying themselves with all that is going on. I do not agree with that at all. You would probably be the strongest one there from it if there was a need with Sylvia and others in your family. You know that stress is not our friend. :-) 40mg of steroid every day is not my friend either.... The truth is that I may not have any left by the time I cut back on it. I am trying to say that I worry about Rose too. Rest,,, sleep,,, and peace of mind or mind at rest helps us deal with what life brings us. So much in life is out of our hands and stress and worry does not help much and we do it anyway. So it goes. Harv {{{{{{{{{{{{{ Rose & Family }}}}}}}}}}}}} Continuing the prayers and giving thanks for even the small steps!!! Wonderful to hear Sylvia was able to come off the vent. that is quite an amazing step!!! May she continue to improve and surprise everyone!!! In the mean time, Harv is right, take care of yourself and make sure you are getting some good rest. All this stress has to be taking its toll on all of you!!! Keep us posted!!! . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) J.K.M.A. >{{{{{{{{{{{{{ Rose & Family }}}}}}}}}}}}} >Continuing the prayers and giving thanks for even the small steps!!! >Wonderful to hear Sylvia was able to come off the vent. that is quite an [quoted text clipped - 5 lines] > >Keep us posted!!! >Donna >1.) ANGELS EXIST, but some times, since they don't all have wings, we >call them FRIENDS...... > >2.) J.K.M.A. Thanks Donna. This group has been a real life line for me. Thank-you for your good wishes. We are thrilled t hat she is off the vent. The stress level has been huge for all of us, and I think today we can finally exhale. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Harv, You will ALWAYS have friends, especially here at ASA as we all understand and care!!! God Bless my friend!!! . . . . Donna . . . . 1.) ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2.) J.K.M.A. Thank you for saying that but steroids have a way of stretching the connection between people and I worry about adding to that with quick answers without enough thought behind it. good night my friend. Harv > Harv, > [quoted text clipped - 17 lines] > > 2.) J.K.M.A. Harv, You are right. It is not good to maintain a high level of stress. Today was a particularly difficult time for me, and I found it hard to work and not 'lose it'. Once I heard the good news though, I felt much better, and I think I will actually be able to sleep tonight. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Rose, I pray that Sylvia's recovery will be so fast that everybody will be surprised. And the sisters will have a wonderful time being together on that getaway! Gwen Sylvia was taken off the respirator today. My cousin Margaret indicated that yesterday, she started to stabilize, and so they planned to try today, and were successful. She still has the breathing tube in but it is connected to oxygen as opposed to the ventilator. We were told to be cautious, she still has a long way to go and is not out of the woods yet. But this is a step in the right direction. We are so excited and so thankful for even this step. The doctor had said on Sunday that there was a good chance she would never have the tube removed and never leave ICU. DId i mention yesterday that i had won a weekend for two getaway at the Pan Pacific in Vancouver plus a $100 gift certificate? I thought we could use it when we go see Sylvia as hotels in downtown Vancouver are so expensive. But maybe i will hold onto this for a bit and the sisters can have a getaway once Sylvia is better. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. >Rose, I pray that Sylvia's recovery will be so fast that everybody will be >surprised. And the sisters will have a wonderful time being together on >that getaway! >Gwen Thanks Gwen! Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. I will continue to keep her and your family in my prayers, Rose. HUGS, Carole > Sylvia was taken off the respirator today. My cousin Margaret > indicated that yesterday, she started to stabilize, and so they [quoted text clipped - 17 lines] > > Please remove "Ima" to reply. >I will continue to keep her and your family in my prayers, Rose. Thank-you Carole. I appreciate this. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. It is a great hotel Rose - congratulations. On Saturday nights they have an Italian Buffet with the most incredible antipasto collection and the dessert selection is to die for. Would make a great sister get away once Sylvia is better. Good news on the respirator. Will continue to think very positive thoughts. Kelly > Sylvia was taken off the respirator today. My cousin Margaret > indicated that yesterday, she started to stabilize, and so they [quoted text clipped - 17 lines] > > Please remove "Ima" to reply. >It is a great hotel Rose - congratulations. On Saturday nights they have an >Italian Buffet with the most incredible antipasto collection and the dessert [quoted text clipped - 4 lines] > >Kelly Thanks Kelly, I will email you tomorrow. I am busy with course work tonight and I also need to get working on my application for the scholarship. Tonight I feel better. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. I am so glad you are feeling a little better! Things might just look up now Rose. And just think - May is close to being over so that means that.....June is almost here and report cards will be finished soon. End of the year picnics and end of a difficult year. I always think it is strange that some people think the New Year begins in January. After working in the schools I always think of the year ending in June and starting in September. Hang in there. Kelly >>It is a great hotel Rose - congratulations. On Saturday nights they have >>an [quoted text clipped - 19 lines] > > Please remove "Ima" to reply. That's great news, Rose, but it doesn't mean we'll stop praying for her recovery. Hang in there, Hon. DeeTee > Sylvia was taken off the respirator today. My cousin Margaret > indicated that yesterday, she started to stabilize, and so they [quoted text clipped - 17 lines] > > Please remove "Ima" to reply. Thanks for your good wishes everyone. They had to put Sylvia back on the ventilator last night as she was not able to handle it and her heart was getting too stressed. We were so disappointed at this setback. I now have my sinus infection back too:( Started back on the clavulen and amoxicillin. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. So sorry for the bad news from Sylvia and you. Will keep praying for improvement for both. Gwen Thanks for your good wishes everyone. They had to put Sylvia back on the ventilator last night as she was not able to handle it and her heart was getting too stressed. We were so disappointed at this setback. I now have my sinus infection back too:( Started back on the clavulen and amoxicillin. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. > Thanks for your good wishes everyone. They had to put Sylvia back on > the ventilator last night as she was not able to handle it and her [quoted text clipped - 3 lines] > I now have my sinus infection back too:( > Started back on the clavulen and amoxicillin. Dear Rose; Am so sorry to hear of this setback. Sylvia - and you - have been in my thoughts and prayers. Wishing you both strength. Adelle On Fri, 23 May 2008 09:20:09 -0400, "Adelle" >Dear Rose; > >Am so sorry to hear of this setback. Sylvia - and you - have been in my >thoughts and prayers. Wishing you both strength. > >Adelle Thank-you, Adelle, I appreciate it. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. > Thanks for your good wishes everyone. They had to put Sylvia back on > the ventilator last night as she was not able to handle it and her [quoted text clipped - 9 lines] > > Please remove "Ima" to reply. I am sorry to hear about this setback - still praying for both of you & everyone else who needs prayers on the group. Shannon >I am sorry to hear about this setback - still praying for both of you >& everyone else who needs prayers on the group. > >Shannon Thanks Shannon, It seems like this year is especially tough for many people. I appreciate your prayers. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Sorry to hear about this, Rose. But often the body does what it needs to heal. I will continue to pray for her recovery. HUGS, Carole > Thanks for your good wishes everyone. They had to put Sylvia back on > the ventilator last night as she was not able to handle it and her [quoted text clipped - 9 lines] > > Please remove "Ima" to reply. They could take blood transfusions and pump them into people needing special meds from some of us. Let me see - need mtx and antibiotics - bag B. Rose you need a break! What a pain - literally. Sending you healing rays from down here! Obviously it wasn't Sylvia's time to get off for good but how wonderful that she made it a short time. Longer time next time - prayers going out. Kelly > Thanks for your good wishes everyone. They had to put Sylvia back on > the ventilator last night as she was not able to handle it and her [quoted text clipped - 9 lines] > > Please remove "Ima" to reply. Thanks Kelly, They have scheduled a tracheotomy for tomorrow. I guess the feeling is that if they keep the ventilator tube in any longer it will damage her vocal cords. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Thanks Kelly, They have scheduled a tracheotomy for tomorrow. I guess the feeling is that if they keep the ventilator tube in any longer it will damage her vocal cords. Rose @}->-- (((((((((((((((((((((sylvia, rose and family))))))))))))) i've been following what's been occurring, praying and had hoped sylvia's improvement would be sustainable and built upon. i've hung back a little, because i know how these kinds of situations unevenly and uncertainly unfold. the emotional roller coaster ride these kinds of situations cause must be so exhausting for you and your family. i cannot overemphasize how important any opportunities for respite are at this time, for you and your family, to relieve the unquestionable stress. i worry about you, hon. take the short time involved to do something special for yourself, rose, like treat yourself to a pedicure or a facial, if it is not something you already do for yourself with regularity (i'd suggest a barbershop shave or barbershop facial for the men in the family). even something that small can be of enormous stress relief benefit. my heart goes out to all of you and my prayers continue. kate Thanks Kate, You are right it is an emotional roller coaster. Sometimes it is two steps forward and one step back, and sometimes it is just the step back. But that is life. They have moved her to another section of ICU. I hope that does not mean she will not have the nurses she had last week. Both nurses, who happened to be male, were absolutely top notch. Not that gender makes a difference, but it was so easy for them to shift her when she was off kilter just because they had the added strength. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. congrats on the win Rose, I sure hope you get to use it when Sylvia is doing better. I read all your emails about Sylvia and she is still in my prayers and so is your family. I can imagine the disappointment of her having to go back on the vent but if it helps her it is better that way. SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. > Sylvia was taken off the respirator today. My cousin Margaret > indicated that yesterday, she started to stabilize, and so they [quoted text clipped - 13 lines] > sisters can have a getaway once Sylvia is better. > Rose @}->-- >congrats on the win Rose, I sure hope you get to use it when Sylvia is doing >better. [quoted text clipped - 3 lines] >I can imagine the disappointment of her having to go back on the vent but if >it helps her it is better that way. They have now given her a tracheotomy. I hope that this achieves the intended results. She has been through so much. Rose @}->-- Being educated means that rather than fearing the unknown, one seeks to understand it. Please remove "Ima" to reply. Prayers still coming that way Rose. I hope it achieves the intended results for her too. You all have been thru so much lately. My heart goes out to all of you. SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. > > They have now given her a tracheotomy. I hope that this achieves the > intended results. She has been through so much. > Rose @}->--
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