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Medical Forum / Diseases and Disorders / Arthritis / April 2008

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High Miles - 20 Apr 2008 15:32 GMT
My very good friend just received a diagnosis for her joint pain
and has gone into a serious funk.
She's 64 and feels that is too young to be limited by arthritis or
condemned to a life of dangerous pain suppressing drugs.

While most of us just accept wear and tear as a part of aging,
she is becoming genuinely depressed.
I've tried telling her that it would have been a great deal worse
if she had developed rheumatoid at a much younger age, but
there seems to be no consoling her.

Perhaps it is just the 'fact' that she's aging that has her down.

Has anyone here experienced such a down swing, or know of
anyone who has, and how it can be overcome ?

Dorothy
Jayne - 20 Apr 2008 15:45 GMT
> My very good friend just received a diagnosis for her joint pain
> and has gone into a serious funk.
[quoted text clipped - 13 lines]
>
> Dorothy

Hi Dorothy

I was 38 when my arthritis started, and was very down for a couple of years
until I got a definitive diagnosis.  I think it would differ from person to
person how they deal with it, but it was my dad's decline and death with a
brain tumour at 67 which bucked me out of things I think.  Looking back,
that is when I realised that far worse things can happen - I was by then on
a decent treatment which helped control things, and now 8 years down the
line and two knee replacements later, I'm quite content.

Obviously I'd rather not have pain and limitations, but on the whole life is
okay.

I hope your friend finds some answers soon.

Jayne
ANN M - 20 Apr 2008 16:13 GMT
I don't know of anybody who doesn't get depressed when diagnosed with
any kind of serious or chronic condition.  If she seems to be extremely
depressed you might suggest she ask her doctor for a mood elevating drug
or a referral to a therapist.  
Remind her that this is not the end of her life, but rather a change in
her life and that she can meet any challenge that comes along when her
arthritis is under control.  You are a good friend to look for help in
understanding what she is going through.

Ann
Jo Firey - 20 Apr 2008 16:56 GMT
>I don't know of anybody who doesn't get depressed when diagnosed with
> any kind of serious or chronic condition.  If she seems to be extremely
[quoted text clipped - 6 lines]
>
> Ann

Good point.  Besides which, some anti-depressants really do help with pain
management.

Jo
High Miles - 20 Apr 2008 17:21 GMT
> I don't know of anybody who doesn't get depressed when diagnosed with
> any kind of serious or chronic condition.  If she seems to be extremely
[quoted text clipped - 6 lines]
>
> Ann

My money right  now is on therapy.   I think she needs an objective person
to help convince her that there is much goodness in her life and more to
come.
Thanks for your response.

Dorothy
High Miles - 20 Apr 2008 17:27 GMT
> Hi Dorothy
>
[quoted text clipped - 12 lines]
>
> Jayne

Jayne, you have my sincere sympathy for the years of pain you have surely
had to endure, and I thank you for taking the time to share your experience.

Dorothy
Jayne - 20 Apr 2008 17:46 GMT
> Jayne, you have my sincere sympathy for the years of pain you have surely
> had to endure, and I thank you for taking the time to share your
> experience.
>
> Dorothy

Looking back at what I posted, it now seems a bit flippant, but I didn't
mean it to sound that way.  I think everyone gets down with any illness, and
I don't know the right answers to get out of that.

My husband tried to help, but my kids were too young to be any help (6 and
10).  My mum worried too much so she made me worse in a way.  I climbed out
myself, but it took a long time.  Your friend is very lucky to have someone
like you to be concerned for her, and I'm sure your being there is a big
help, even if it is not immediately evident.

Jayne
Harvey R. Stone - 20 Apr 2008 16:35 GMT
Hi Dorothy,,,,,   First let me say what a good friend you are for your
friend. Many of us wish we had someone like you in our life at the time when
the Rheumatoid was brought into our life.   I had it for 6-7 years before
and Rheumatologist made me face was to be for me for the rest of my life at
the age of 45.   I am 69 now and can still do and go and be,,,, in my life
today.
    It is going to take a little time for your friend to work through
adjusting to the changes in her life but don't we do that all the time is
some form or fashion and I think you may find that your friend is tougher
than you think and the will to live a good usable life doing the things we
want to do IS a very dooooable thing with todays medicines and the
understandings that a good RD has to make these things happen.
     We are here for you and your friend every step of living through this
and doing the best she can to be as normal as she can be.  I hope there is a
way you can have her take part here where sooo many people can talk about
medicines, doctors, side effects, people, life, and on and on but we can
still do this through you if that is what you want.  Tomorrow is going to be
better.

Harv
> My very good friend just received a diagnosis for her joint pain
> and has gone into a serious funk.
[quoted text clipped - 13 lines]
>
> Dorothy
High Miles - 20 Apr 2008 17:25 GMT
> Hi Dorothy,,,,,   First let me say what a good friend you are for your
> friend. Many of us wish we had someone like you in our life at the time when
[quoted text clipped - 16 lines]
>
> Harv

Thanks so much for the encouraging words.
I'm two years older than she and have had a bits and nips of joint trouble
for several years now.    Nothing serious enough to consider prescriptions
yet, but I am not nearly so impacted.   Her spine and hands are affected
most, so she feels that all of the activities she used to enjoy are now
history.
Perhaps she just needs time to put this into proper perspective.

Dorothy
Jo Firey - 20 Apr 2008 16:55 GMT
> My very good friend just received a diagnosis for her joint pain
> and has gone into a serious funk.
[quoted text clipped - 13 lines]
>
> Dorothy

Her reaction is perfectly normal.  The notion that it could be, could have
been worse is really meaningless to her right now.

It is very much like the stages of grief when you get a diagnosis of
potentially limiting medical conditions.  Takes time to take it in and
learn to get on with getting on.

I doubt there is anyone here that doesn't still have bouts of 'why me' or
'life sucks'

Best thing is to listen as much as you are able and let her work it out.

Consolation really isn't something she can get from someone else.

Jo
High Miles - 20 Apr 2008 17:30 GMT
> Her reaction is perfectly normal.  The notion that it could be, could have
> been worse is really meaningless to her right now.
[quoted text clipped - 11 lines]
>
> Jo

You betcha !
She doesn't exactly know what she wants from friends and family yet.
I've cared for people with terminal cancer and recognize some of the
same mental responses in her.   It must just be human nature to try
and console someone who is in physical, mental and emotional pain.
But you're absolutely right.
She has to make her own peace with this.

Dorothy
DeeTee and Bob Taggart - 20 Apr 2008 17:17 GMT
Dorothy (that was my mother's name, too), I have had this mess for over 12
years and I still have days when I am so depressed I just want to sit and
cry. Allow her the pity party but don't tip toe around her. Still ask her to
join you for things and let her decide whether she wants to or not. Give her
a little grieving time then shake her out of it by your friendship.

Let us know how she is from time to time. We'll keep the light on for you.

DeeTee

> My very good friend just received a diagnosis for her joint pain
> and has gone into a serious funk.
[quoted text clipped - 13 lines]
>
> Dorothy
High Miles - 20 Apr 2008 17:33 GMT
> Dorothy (that was my mother's name, too), I have had this mess for over 12
> years and I still have days when I am so depressed I just want to sit and
[quoted text clipped - 5 lines]
>
> DeeTee

Thank you so much.
I'm SO glad I decided to stop in here and ask my   -   simple questions.
Hearing from such positive people is most encouraging.
I'll try to get her to read and post for herself...............when she
is more
herself.    Just now she is  too overwhelmed with her losses.
Guess it'll just take however long it takes for her to normalize a bit.

Dorothy
Diane - 20 Apr 2008 18:00 GMT
Dorothy, is there a chance she would join our group here? This group
has helped me so much over the last decade-plus. I'm 58 and was
diagnosed in 95. The medications, or rather the attitude toward
medications, is something one has to eventually shift. Yes, some of
the drugs can be scary (and I'm on a bunch of them!), but especially
when the disease is caught early, they can bring back a good quality
of life. i hope she has a smart and compassionate doctor to help her.

as someone here mentioned, think of what she's going through in terms
of the stages of dealing with death: denial, anger, bargaining,
depression and acceptance, not necessarily in that order or neatly
divided. we've all been there. i hope she's able to make peace with
this eventually, but it will take time. she's lucky she has a friend
like you.

diane
High Miles - 20 Apr 2008 18:39 GMT
> Dorothy, is there a chance she would join our group here? This group
> has helped me so much over the last decade-plus. I'm 58 and was
[quoted text clipped - 12 lines]
>
> diane

Just called her and asked if she'd come over to read and perhaps post
her own feelings.....................just to unload on people who
understand.
She is clearly not ready to deal with it rationally yet.
She'll have to clear the emotional hurdle first.   She was in denial about
having a 'real' condition for over a year, so mentally, she'll have to
shift gears and that may take a bit of time.
This morning she commented about watching the way I have to get up
when I've been sitting on the ground weeding or planting.
She says she doesn't think she can stand to be that way.
Of course, I told her that we just make adjustments to how we do, what
we do.  It's more important to keep doing the things we enjoy than to
worry over how we have to do them.
I'm sure she'll come around eventually  -  most of us do  -  and since
she's always been the common sense sort, I'm chalking this up to a
justified period of mourning.
I will continue to try and get her to at least read this group, I'm sure
it would be very helpful........................when she's ready.

Dorothy
Navy - 21 Apr 2008 02:56 GMT
I think that the most wonderful result, yes, wonderful, is that she has a
name for what her condition is.  There is medication for it; some is
dangerous, yes, but there is such a variety of drugs for our conditions.
There also is proven treatment for many of the side effects.  Also tell her
that those side effects happen to only 1% to 5% in most cases.  My knees
were so bad, I couldn't wear slacks; the elasticity in the stretch put too
much pressure on them.  Then I found out about Synvisc and similar drugs.  I
get a series of shots each year and, so far, I've been doing pretty good.

All the other comments made are true.  When this diagnosis comes out of the
clear blue sky, it's hard to take in.  You have to take a while to absorb
it.  Do try to emphasize the positive side of it all that there is treatment
available that will allow her to live almost a normal life - maybe different
from before, but all possibilities are there.  We just have to use a
different route to get there.
God bless.
Signature

Navy
Take out the FISH to email me.

>> Dorothy, is there a chance she would join our group here? This group
>> has helped me so much over the last decade-plus. I'm 58 and was
[quoted text clipped - 33 lines]
>
> Dorothy
High Miles - 21 Apr 2008 03:02 GMT
> I think that the most wonderful result, yes, wonderful, is that she has a
> name for what her condition is.  There is medication for it; some is
[quoted text clipped - 12 lines]
> different route to get there.
> God bless.

Thanks for the input.
I'm letting her 'cool off' for a bit and get used to the idea, and then
I'll drive
her down to my joint man.   He's just what she needs.   Gives all the
answers
and more than enough encouragement.

In a totally selfish mode now................I've read about Synvisc and
wondered
if it would be right for my old knees.    Are you happy with your results ?

And part two  -   my arthritis comes with weakness and instability  -
perhaps
all knees do.   Have you ever tried any of the millions of braces or knee
supports ?

Dorothy
Nann Bell - 21 Apr 2008 16:17 GMT
> And part two  -   my arthritis comes with weakness and instability  -
> perhaps
> all knees do.   Have you ever tried any of the millions of braces or knee
> supports ?

I've been fortunate not to have any long-term knee problems, but both of my
parents have.  Have you had any physical therapy to help with the weakness
and instability?  It really helped both of my folks, back before Synvisc was
an option.  My mom has chronic polymyalgia and returns to PT periodically to
update her leg exercises.  The knee is such a weird joint, strengthening the
muscles that support it can do a lot of good, even when you need more
invasive treatment such as Synvisc or even surgery.

Signature

Nann
remove the Gator cheer to email me
       Change everything. Love & forgive.

High Miles - 21 Apr 2008 20:15 GMT
>> And part two  -   my arthritis comes with weakness and instability  -
>> perhaps
[quoted text clipped - 4 lines]
> parents have.  Have you had any physical therapy to help with the weakness
> and instability?

Not this time.   I want to find out if Medicare will pay before I dive in.

 It really helped both of my folks, back before Synvisc was
> an option.  My mom has chronic polymyalgia and returns to PT periodically to
> update her leg exercises.  The knee is such a weird joint, strengthening the
> muscles that support it can do a lot of good, even when you need more
> invasive treatment such as Synvisc or even surgery.

I hope I can give PT another try, it certainly helped with the last episode.
It makes me feel very fortunate to just have the one problem so far, as it
seems so many my age are loaded down with ailments and meds.

Dorothy
Joan Carter - 20 Apr 2008 21:51 GMT
>Thank you so much.
>I'm SO glad I decided to stop in here and ask my   -   simple questions.
[quoted text clipped - 3 lines]
>herself.    Just now she is  too overwhelmed with her losses.
>Guess it'll just take however long it takes for her to normalize a bit.

Hi Dorothy, you have had some great responses. This is a great
group of people. I have had arthritis for about seven years now,
rheumatoid and osteo, as well as MS which I have had for more
than 30 years. The arthritis causes more pain and problems than
the MS. I consider my arthritis fairly well controlled with
medication but I still have days of really bad pain. Now that the
weather is improving and I can get out and walk more I seem to do
better, but the last couple of days I have not been able to do
that and want to sit down and howl. I think we all have days like
that. However all that would do is make the neigbourhood dogs
howl too and that would be a terrible ruckus. Although sometimes
a good venting helps a lot, releases a lot of tension.

Encourage your friend to tune in here, when she is ready, and she
will find some good folks.

Joan
GaryZ - 20 Apr 2008 22:15 GMT
Hi Dorothy,

If your friend could/would be so bold as to email me, I will try to help.
Been there, done that, still working on it. Public forum is ok and can be
done if she cares to do that.
GaryZ

> My very good friend just received a diagnosis for her joint pain
> and has gone into a serious funk.
[quoted text clipped - 13 lines]
>
> Dorothy
Nann Bell - 21 Apr 2008 16:17 GMT
> My very good friend just received a diagnosis for her joint pain
> and has gone into a serious funk.
[quoted text clipped - 13 lines]
>
> Dorothy

OK, I finally got a day where my hands will let me weigh in.  In my case, I
was first slammed by my inflammatory arthritis (species: psoriatic) at the
age of 28, 22 years ago.  I actually had several advantages in adjusting to
it - 1) I'd had chronic allergies since grade school so taking medication all
the time was not a new experience for me, 2) I'm the youngest of a nuclear
family with a host of chronic illnesses and had watched others deal with them
matter-of-factly for years, 3) Daddy had RA, back when the treatment options
were fewer - and so had his mom - and both found ways to do all they could
for as long as they could and 4) i'd had "spells" since high school that had
told me this day was coming.  All that said - I still had to really struggle
with the adjustment.  I still remember grieving over my fingers changing
shape as folks had long complimented on lovely hands.  (despite nails
brutalized by gardening and other such hobbies, LOL)  So, it's definitely
normal, even when you are prepared for this to happen.

The big thing to look out for is how long this depression lasts.  If it
doesn't lift over time - time to adjust and time to see how much modern meds
can help - then you might want to intervene with her doc.  But do give her
some time to adjust, which I already gather you've been reassured to do.  
Heck, i wasn't sure any fellow would want to take on someone with my known
illness but have been joyfully married for 17 years to a fellow who said 'but
you're emotionally healthy - physical disability I can handle!"

Right now, it sounds like you are providing her the most important thing out
there - a caring, understanding & supportive friend.  There is absolutely
nothing like having someone you can trust with your fears and your pain and
who still encourages you to do all you reasonably can - and even stuff you
shouldn't do but have decided you want so much the aftermath will be worth
it.
Oh, and you didn't mention how much pain she is currently in, but that might
be contributing to her depression.  Getting the physical pain under control
makes a big difference in the depression.  Since she's been dealing with this
for over a year already, the pain may have really worn her down mentally,
even more so if it's been interfering with her sleep.  That should improve as
they get things under control.

Signature

Nann
remove the Gator cheer to email me
       Change everything. Love & forgive.

High Miles - 21 Apr 2008 20:12 GMT
>> My very good friend just received a diagnosis for her joint pain
>> and has gone into a serious funk.
[quoted text clipped - 49 lines]
> even more so if it's been interfering with her sleep.  That should improve as
> they get things under control.

Ya know  -  she says she just worked thru or around the discomfort until she
was told what was causing it.    Now she says.....................it's PAIN.
She goes about 50 -50 with anger and sadness.  That's a good sign.
People who get good and angry often have too much energy to be really
depressed for very long.

She's not yet experiencing any weakness because of the inflammation
and I hope that holds off until she makes her peace with this stage.

Thanks for your encouraging response.
We DO all need encouragement from time to time don't we ?

Dorothy
Nann Bell - 23 Apr 2008 13:45 GMT
> Thanks for your encouraging response.
> We DO all need encouragement from time to time don't we ?

Amen!!!  and Hear, Hear!!!

Signature

Nann
remove the Gator cheer to email me
       Change everything. Love & forgive.

 
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