Medical Forum / Diseases and Disorders / Arthritis / April 2008
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High Miles - 20 Apr 2008 15:32 GMT My very good friend just received a diagnosis for her joint pain and has gone into a serious funk. She's 64 and feels that is too young to be limited by arthritis or condemned to a life of dangerous pain suppressing drugs.
While most of us just accept wear and tear as a part of aging, she is becoming genuinely depressed. I've tried telling her that it would have been a great deal worse if she had developed rheumatoid at a much younger age, but there seems to be no consoling her.
Perhaps it is just the 'fact' that she's aging that has her down.
Has anyone here experienced such a down swing, or know of anyone who has, and how it can be overcome ?
Dorothy
Jayne - 20 Apr 2008 15:45 GMT > My very good friend just received a diagnosis for her joint pain > and has gone into a serious funk. [quoted text clipped - 13 lines] > > Dorothy Hi Dorothy
I was 38 when my arthritis started, and was very down for a couple of years until I got a definitive diagnosis. I think it would differ from person to person how they deal with it, but it was my dad's decline and death with a brain tumour at 67 which bucked me out of things I think. Looking back, that is when I realised that far worse things can happen - I was by then on a decent treatment which helped control things, and now 8 years down the line and two knee replacements later, I'm quite content.
Obviously I'd rather not have pain and limitations, but on the whole life is okay.
I hope your friend finds some answers soon.
Jayne
ANN M - 20 Apr 2008 16:13 GMT I don't know of anybody who doesn't get depressed when diagnosed with any kind of serious or chronic condition. If she seems to be extremely depressed you might suggest she ask her doctor for a mood elevating drug or a referral to a therapist. Remind her that this is not the end of her life, but rather a change in her life and that she can meet any challenge that comes along when her arthritis is under control. You are a good friend to look for help in understanding what she is going through.
Ann
Jo Firey - 20 Apr 2008 16:56 GMT >I don't know of anybody who doesn't get depressed when diagnosed with > any kind of serious or chronic condition. If she seems to be extremely [quoted text clipped - 6 lines] > > Ann Good point. Besides which, some anti-depressants really do help with pain management.
Jo
High Miles - 20 Apr 2008 17:21 GMT > I don't know of anybody who doesn't get depressed when diagnosed with > any kind of serious or chronic condition. If she seems to be extremely [quoted text clipped - 6 lines] > > Ann My money right now is on therapy. I think she needs an objective person to help convince her that there is much goodness in her life and more to come. Thanks for your response.
Dorothy
High Miles - 20 Apr 2008 17:27 GMT > Hi Dorothy > [quoted text clipped - 12 lines] > > Jayne Jayne, you have my sincere sympathy for the years of pain you have surely had to endure, and I thank you for taking the time to share your experience.
Dorothy
Jayne - 20 Apr 2008 17:46 GMT > Jayne, you have my sincere sympathy for the years of pain you have surely > had to endure, and I thank you for taking the time to share your > experience. > > Dorothy Looking back at what I posted, it now seems a bit flippant, but I didn't mean it to sound that way. I think everyone gets down with any illness, and I don't know the right answers to get out of that.
My husband tried to help, but my kids were too young to be any help (6 and 10). My mum worried too much so she made me worse in a way. I climbed out myself, but it took a long time. Your friend is very lucky to have someone like you to be concerned for her, and I'm sure your being there is a big help, even if it is not immediately evident.
Jayne
Harvey R. Stone - 20 Apr 2008 16:35 GMT Hi Dorothy,,,,, First let me say what a good friend you are for your friend. Many of us wish we had someone like you in our life at the time when the Rheumatoid was brought into our life. I had it for 6-7 years before and Rheumatologist made me face was to be for me for the rest of my life at the age of 45. I am 69 now and can still do and go and be,,,, in my life today. It is going to take a little time for your friend to work through adjusting to the changes in her life but don't we do that all the time is some form or fashion and I think you may find that your friend is tougher than you think and the will to live a good usable life doing the things we want to do IS a very dooooable thing with todays medicines and the understandings that a good RD has to make these things happen. We are here for you and your friend every step of living through this and doing the best she can to be as normal as she can be. I hope there is a way you can have her take part here where sooo many people can talk about medicines, doctors, side effects, people, life, and on and on but we can still do this through you if that is what you want. Tomorrow is going to be better.
Harv
> My very good friend just received a diagnosis for her joint pain > and has gone into a serious funk. [quoted text clipped - 13 lines] > > Dorothy High Miles - 20 Apr 2008 17:25 GMT > Hi Dorothy,,,,, First let me say what a good friend you are for your > friend. Many of us wish we had someone like you in our life at the time when [quoted text clipped - 16 lines] > > Harv Thanks so much for the encouraging words. I'm two years older than she and have had a bits and nips of joint trouble for several years now. Nothing serious enough to consider prescriptions yet, but I am not nearly so impacted. Her spine and hands are affected most, so she feels that all of the activities she used to enjoy are now history. Perhaps she just needs time to put this into proper perspective.
Dorothy
Jo Firey - 20 Apr 2008 16:55 GMT > My very good friend just received a diagnosis for her joint pain > and has gone into a serious funk. [quoted text clipped - 13 lines] > > Dorothy Her reaction is perfectly normal. The notion that it could be, could have been worse is really meaningless to her right now.
It is very much like the stages of grief when you get a diagnosis of potentially limiting medical conditions. Takes time to take it in and learn to get on with getting on.
I doubt there is anyone here that doesn't still have bouts of 'why me' or 'life sucks'
Best thing is to listen as much as you are able and let her work it out.
Consolation really isn't something she can get from someone else.
Jo
High Miles - 20 Apr 2008 17:30 GMT > Her reaction is perfectly normal. The notion that it could be, could have > been worse is really meaningless to her right now. [quoted text clipped - 11 lines] > > Jo You betcha ! She doesn't exactly know what she wants from friends and family yet. I've cared for people with terminal cancer and recognize some of the same mental responses in her. It must just be human nature to try and console someone who is in physical, mental and emotional pain. But you're absolutely right. She has to make her own peace with this.
Dorothy
DeeTee and Bob Taggart - 20 Apr 2008 17:17 GMT Dorothy (that was my mother's name, too), I have had this mess for over 12 years and I still have days when I am so depressed I just want to sit and cry. Allow her the pity party but don't tip toe around her. Still ask her to join you for things and let her decide whether she wants to or not. Give her a little grieving time then shake her out of it by your friendship.
Let us know how she is from time to time. We'll keep the light on for you.
DeeTee
> My very good friend just received a diagnosis for her joint pain > and has gone into a serious funk. [quoted text clipped - 13 lines] > > Dorothy High Miles - 20 Apr 2008 17:33 GMT > Dorothy (that was my mother's name, too), I have had this mess for over 12 > years and I still have days when I am so depressed I just want to sit and [quoted text clipped - 5 lines] > > DeeTee Thank you so much. I'm SO glad I decided to stop in here and ask my - simple questions. Hearing from such positive people is most encouraging. I'll try to get her to read and post for herself...............when she is more herself. Just now she is too overwhelmed with her losses. Guess it'll just take however long it takes for her to normalize a bit.
Dorothy
Diane - 20 Apr 2008 18:00 GMT Dorothy, is there a chance she would join our group here? This group has helped me so much over the last decade-plus. I'm 58 and was diagnosed in 95. The medications, or rather the attitude toward medications, is something one has to eventually shift. Yes, some of the drugs can be scary (and I'm on a bunch of them!), but especially when the disease is caught early, they can bring back a good quality of life. i hope she has a smart and compassionate doctor to help her.
as someone here mentioned, think of what she's going through in terms of the stages of dealing with death: denial, anger, bargaining, depression and acceptance, not necessarily in that order or neatly divided. we've all been there. i hope she's able to make peace with this eventually, but it will take time. she's lucky she has a friend like you.
diane
High Miles - 20 Apr 2008 18:39 GMT > Dorothy, is there a chance she would join our group here? This group > has helped me so much over the last decade-plus. I'm 58 and was [quoted text clipped - 12 lines] > > diane Just called her and asked if she'd come over to read and perhaps post her own feelings.....................just to unload on people who understand. She is clearly not ready to deal with it rationally yet. She'll have to clear the emotional hurdle first. She was in denial about having a 'real' condition for over a year, so mentally, she'll have to shift gears and that may take a bit of time. This morning she commented about watching the way I have to get up when I've been sitting on the ground weeding or planting. She says she doesn't think she can stand to be that way. Of course, I told her that we just make adjustments to how we do, what we do. It's more important to keep doing the things we enjoy than to worry over how we have to do them. I'm sure she'll come around eventually - most of us do - and since she's always been the common sense sort, I'm chalking this up to a justified period of mourning. I will continue to try and get her to at least read this group, I'm sure it would be very helpful........................when she's ready.
Dorothy
Navy - 21 Apr 2008 02:56 GMT I think that the most wonderful result, yes, wonderful, is that she has a name for what her condition is. There is medication for it; some is dangerous, yes, but there is such a variety of drugs for our conditions. There also is proven treatment for many of the side effects. Also tell her that those side effects happen to only 1% to 5% in most cases. My knees were so bad, I couldn't wear slacks; the elasticity in the stretch put too much pressure on them. Then I found out about Synvisc and similar drugs. I get a series of shots each year and, so far, I've been doing pretty good.
All the other comments made are true. When this diagnosis comes out of the clear blue sky, it's hard to take in. You have to take a while to absorb it. Do try to emphasize the positive side of it all that there is treatment available that will allow her to live almost a normal life - maybe different from before, but all possibilities are there. We just have to use a different route to get there. God bless.
 Signature Navy Take out the FISH to email me.
>> Dorothy, is there a chance she would join our group here? This group >> has helped me so much over the last decade-plus. I'm 58 and was [quoted text clipped - 33 lines] > > Dorothy High Miles - 21 Apr 2008 03:02 GMT > I think that the most wonderful result, yes, wonderful, is that she has a > name for what her condition is. There is medication for it; some is [quoted text clipped - 12 lines] > different route to get there. > God bless. Thanks for the input. I'm letting her 'cool off' for a bit and get used to the idea, and then I'll drive her down to my joint man. He's just what she needs. Gives all the answers and more than enough encouragement.
In a totally selfish mode now................I've read about Synvisc and wondered if it would be right for my old knees. Are you happy with your results ?
And part two - my arthritis comes with weakness and instability - perhaps all knees do. Have you ever tried any of the millions of braces or knee supports ?
Dorothy
Nann Bell - 21 Apr 2008 16:17 GMT > And part two - my arthritis comes with weakness and instability - > perhaps > all knees do. Have you ever tried any of the millions of braces or knee > supports ? I've been fortunate not to have any long-term knee problems, but both of my parents have. Have you had any physical therapy to help with the weakness and instability? It really helped both of my folks, back before Synvisc was an option. My mom has chronic polymyalgia and returns to PT periodically to update her leg exercises. The knee is such a weird joint, strengthening the muscles that support it can do a lot of good, even when you need more invasive treatment such as Synvisc or even surgery.
 Signature Nann remove the Gator cheer to email me Change everything. Love & forgive.
High Miles - 21 Apr 2008 20:15 GMT >> And part two - my arthritis comes with weakness and instability - >> perhaps [quoted text clipped - 4 lines] > parents have. Have you had any physical therapy to help with the weakness > and instability? Not this time. I want to find out if Medicare will pay before I dive in.
It really helped both of my folks, back before Synvisc was
> an option. My mom has chronic polymyalgia and returns to PT periodically to > update her leg exercises. The knee is such a weird joint, strengthening the > muscles that support it can do a lot of good, even when you need more > invasive treatment such as Synvisc or even surgery. I hope I can give PT another try, it certainly helped with the last episode. It makes me feel very fortunate to just have the one problem so far, as it seems so many my age are loaded down with ailments and meds.
Dorothy
Joan Carter - 20 Apr 2008 21:51 GMT >Thank you so much. >I'm SO glad I decided to stop in here and ask my - simple questions. [quoted text clipped - 3 lines] >herself. Just now she is too overwhelmed with her losses. >Guess it'll just take however long it takes for her to normalize a bit. Hi Dorothy, you have had some great responses. This is a great group of people. I have had arthritis for about seven years now, rheumatoid and osteo, as well as MS which I have had for more than 30 years. The arthritis causes more pain and problems than the MS. I consider my arthritis fairly well controlled with medication but I still have days of really bad pain. Now that the weather is improving and I can get out and walk more I seem to do better, but the last couple of days I have not been able to do that and want to sit down and howl. I think we all have days like that. However all that would do is make the neigbourhood dogs howl too and that would be a terrible ruckus. Although sometimes a good venting helps a lot, releases a lot of tension.
Encourage your friend to tune in here, when she is ready, and she will find some good folks.
Joan
GaryZ - 20 Apr 2008 22:15 GMT Hi Dorothy,
If your friend could/would be so bold as to email me, I will try to help. Been there, done that, still working on it. Public forum is ok and can be done if she cares to do that. GaryZ
> My very good friend just received a diagnosis for her joint pain > and has gone into a serious funk. [quoted text clipped - 13 lines] > > Dorothy Nann Bell - 21 Apr 2008 16:17 GMT > My very good friend just received a diagnosis for her joint pain > and has gone into a serious funk. [quoted text clipped - 13 lines] > > Dorothy OK, I finally got a day where my hands will let me weigh in. In my case, I was first slammed by my inflammatory arthritis (species: psoriatic) at the age of 28, 22 years ago. I actually had several advantages in adjusting to it - 1) I'd had chronic allergies since grade school so taking medication all the time was not a new experience for me, 2) I'm the youngest of a nuclear family with a host of chronic illnesses and had watched others deal with them matter-of-factly for years, 3) Daddy had RA, back when the treatment options were fewer - and so had his mom - and both found ways to do all they could for as long as they could and 4) i'd had "spells" since high school that had told me this day was coming. All that said - I still had to really struggle with the adjustment. I still remember grieving over my fingers changing shape as folks had long complimented on lovely hands. (despite nails brutalized by gardening and other such hobbies, LOL) So, it's definitely normal, even when you are prepared for this to happen.
The big thing to look out for is how long this depression lasts. If it doesn't lift over time - time to adjust and time to see how much modern meds can help - then you might want to intervene with her doc. But do give her some time to adjust, which I already gather you've been reassured to do. Heck, i wasn't sure any fellow would want to take on someone with my known illness but have been joyfully married for 17 years to a fellow who said 'but you're emotionally healthy - physical disability I can handle!"
Right now, it sounds like you are providing her the most important thing out there - a caring, understanding & supportive friend. There is absolutely nothing like having someone you can trust with your fears and your pain and who still encourages you to do all you reasonably can - and even stuff you shouldn't do but have decided you want so much the aftermath will be worth it. Oh, and you didn't mention how much pain she is currently in, but that might be contributing to her depression. Getting the physical pain under control makes a big difference in the depression. Since she's been dealing with this for over a year already, the pain may have really worn her down mentally, even more so if it's been interfering with her sleep. That should improve as they get things under control.
 Signature Nann remove the Gator cheer to email me Change everything. Love & forgive.
High Miles - 21 Apr 2008 20:12 GMT >> My very good friend just received a diagnosis for her joint pain >> and has gone into a serious funk. [quoted text clipped - 49 lines] > even more so if it's been interfering with her sleep. That should improve as > they get things under control. Ya know - she says she just worked thru or around the discomfort until she was told what was causing it. Now she says.....................it's PAIN. She goes about 50 -50 with anger and sadness. That's a good sign. People who get good and angry often have too much energy to be really depressed for very long.
She's not yet experiencing any weakness because of the inflammation and I hope that holds off until she makes her peace with this stage.
Thanks for your encouraging response. We DO all need encouragement from time to time don't we ?
Dorothy
Nann Bell - 23 Apr 2008 13:45 GMT > Thanks for your encouraging response. > We DO all need encouragement from time to time don't we ? Amen!!! and Hear, Hear!!!
 Signature Nann remove the Gator cheer to email me Change everything. Love & forgive.
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