Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Arthritis / April 2008

Tip: Looking for answers? Try searching our database.

OTP  Neurologist's report today

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
sweetpickleNO@SPAMknology.net - 15 Apr 2008 00:43 GMT
Well, I'll be having tests for two or three weeks, I guess.  Actually doing
a cat scan of my brain (can't have MRI because of implanted defibrillator),
plus nerve condution study, a tilt table test and two or three others.
Doctor told me he knew he was throwing a lot at me today so call him if I
had questions or concerns.

I had mentioned here that I had tremors, and I equated it with my ICD
because when I got home from the hospital I noticed it for the first time.
Prior to that I could write legibly and my hands didn't shake.  Dr. Boiser
said it was just coincidental -- I actually have Parkinsons Disease.   He
noticed my handwriting first and then mentioned the tremors around my mouth
which I had never noticed.  I can see them now when I look in the mirror
with my mouth closed.  He thinks it is mild so I only take 1/2 tablet 3
times a day (I just hate that 3 times a day stuff).  That reminds me that I
have to get the prescription filled before the pharmacy closes.  I'll finish
this later.----I'm back.  The med is Sinemet 25/100.  He said it has some
side effects for some people,  like making them sleepy.  I told him I go to
bed anywhere from 8 PM to 12 AM get up between 10 AM and 12 PM.  He said
it's a good thing he only gave me 1/2 a tablet or I'd sleep all the time!
He also said it will probably make my IBS worse - I could really do without
that!

Also, he told me why I have fallen so many times.  I have periphral
neuropathy in my feet.  So if my brain tells my feet to look out, there's
something in the way, my feet don't get the message.  He said I have to
start using a cane - a 4 footed one.  I got one in January of last year when
I broke my ankle, but it was one with a large base, and I could not walk
with it.  I just lent it to someone who had a hip replacement 2 weeks ago,
and hope he hasn't used it because I found a place this afternoon who will
swap it out for a small base.  The friend who actually borrowed it for him
is to bring it back tomorrow afternoon; let's just hope he didn't use it.  I
sent it with the plastic still covering it!

He also told me to get rid of my throw rugs. I told him they have slip
strips on the back, the ones at the front & carport doors.  I've already
moved them out of the patio.

He really did throw a lot at me today and I can't think of anything else
right now.  But I did have good news when I had my protime checked (2 weeks
late).  While I felt so bad I completely forgot about it, but it was 2.6.
That made the 4th protime at the same reading, taking 3 mg of coumadin every
night.  I just hope it will stay that way.

I have to let some other folks know about all my news so will stop now.  I
think I've told everything I can remember anyway -- and I thought it was
just old age!

Gwen
shenmei9wise@gmail.com - 15 Apr 2008 02:28 GMT
{{{{{{{{{{{{{{{{{{{{{{{{{Gwen}}}}}}}}}}}}}}}}}}}}}}}

Wow-that is a lot of stuff to handle in one day.  You are, as always,
my heroine, and I sure hope I can do this as gracefully as I've seen
you do it, kid.

m
ANN M - 15 Apr 2008 03:55 GMT
Gwen,
That certainly is a lot to hear in one day.  I'm sure you will be okay
with it all and the doctor knows that.
I've had the nerve conduction study and it showed peripheral neuropathy
in my feet too and I sometimes use my cane.  
I hope they don't make appts. for those tests too early in the mornings.
I will keep you in my daily prayers.

Ann
sweetpickleNO@SPAMknology.net - 15 Apr 2008 04:21 GMT
Ann, one is for 8:00 am and following another one at 9:15.  At least she
made them the same day.  She apologized when I told her I don't do mornings!
She will do better next time.  In fact my next appointment with the doctor
there is at 2:15.  She said well at least she got one right!  But I guess
she will have to take the time the hospital gives her!
Thanks so much for the prayers.  One thing I appreciate learning from my dad
is a very strong faith in God.
Gwen

> Gwen,
> That certainly is a lot to hear in one day.  I'm sure you will be okay
[quoted text clipped - 5 lines]
>
> Ann
DeeTee and Bob Taggart - 15 Apr 2008 03:15 GMT
Hang in there, Sweetheart! We will be praying for you.

DeeTee

> Well, I'll be having tests for two or three weeks, I guess.  Actually
> doing a cat scan of my brain (can't have MRI because of implanted
[quoted text clipped - 44 lines]
>
> Gwen
Nann Bell - 15 Apr 2008 05:40 GMT
Ah, geez, Gwen, picking up another diagnosis and another pill is never a fun
thing.  I can't decide whether to be glad that the doc is checking you out so
thoroughly or sad that you need this.  i suppose I'll settle for some of
each.  Keeping you in my prayers and may the Sinemet help without side
effects.

(((((((((((((Gwen)))))))))))))

Signature

Nann
remove the Gator cheer to email me
       Change everything. Love & forgive.

Donna G. - 15 Apr 2008 06:06 GMT
{{{{{{{{{{{{[ Gwen }}}}}}}}}}}}]

Wow, Gwen, that definitely is a whole lot to have to digest in one day!

Hope they get everything else sorted out.

I have had the tilt table test and that is how they figured out why I
was passing out all the time.  Turned out my bp ran so low that I needed
two meds to keep it up enough to keep me from passing out.  Now, I
usually only have problems with the very very low bp issues when ever I
am sick or dehydrated.   The tilt table test is easy.  They strap you to
a table and take your bp while you are laying on the table, then they
tilt the table so that you are almost completely upright, then they just
monitor your bp, heart rate, and respirations for about 15-20 minutes.
If nothing happens in that time period, they give you a med that speeds
up your heart a bit and watch you for several more minutes to see if
anything happens.  Basically what they are trying to do is to see if
your bp takes any major drops and to see if you pass out or anything
(thus all the straps to hold you on the table).   If you do pass out or
start to get dizzy/light headed, etc, they tilt the table back down so
that you are in a laying flat position and see how long it takes for you
to recover.  Usually a cardiologist is either in the same room or very
near by during the test.

Good luck to you!!!

.
.
.
.

Donna
.
.
.
.
1.)   ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......

2.)    J.K.M.A.
Squirrely - 15 Apr 2008 06:24 GMT
Prayers coming that way. Boy you are having it as hard as Donna. Remember
you have to return some of those disorders. So get in line.

Signature

Love and Hugs to all
Jo the squirrely one
I am nuts about you.

> Well, I'll be having tests for two or three weeks, I guess.  Actually
> doing a cat scan of my brain (can't have MRI because of implanted
[quoted text clipped - 44 lines]
>
> Gwen
Navy - 15 Apr 2008 15:25 GMT
Gwen, what are you taking for the tremors?  I have to take Xanax four times
a day, or my hands shake so badly, I can't even carry some plates to the
table.  I don't know if I tremble any place else because if I decrease the
medication, my hands get so bad, I don't care if it is anywhere else, unless
it shows up when my hands are behaving - then we have another problem.

I hope these tests work out for you and give you some answers.  Our prayers
are out for you.

Signature

Navy
Take out the FISH to email me.

> Well, I'll be having tests for two or three weeks, I guess.  Actually
> doing a cat scan of my brain (can't have MRI because of implanted
[quoted text clipped - 44 lines]
>
> Gwen
sweetpickleNO@SPAMknology.net - 15 Apr 2008 20:25 GMT
Navy, I'm hoping the Sinament will help with the tremors.  They are worse at
times than at others.  when I'm already not feeling well, they are worse.
Gwen

> Gwen, what are you taking for the tremors?  I have to take Xanax four
> times a day, or my hands shake so badly, I can't even carry some plates to
[quoted text clipped - 54 lines]
>>
>> Gwen
Kelly - 15 Apr 2008 19:50 GMT
Hi Gwen,
My father in law has parkinsons Disease and he takes Sinemet.  The
sleepiness was more pronounced when he first took it and his evening dose he
takes at dinner but he gets drowsy by then (but then several ounces of booze
taken with sinemet, an antidepressant and gabapentin will do that!  Idiot!).

People with Parkinson have a tendency to shuffle their feet instead of
picking them up and that is one of the concerns with the area rugs (although
really none of us should have them and especially not seniors or people with
bifocals).  This is especially concerning with the periphral neuroprathy as
you lose sensation in most cases in your feet and can't tell where your
bearings are.  I have that in my leg from the enbrel reaction and that is
one of the problems with my gait and my balance.  Ask your doctor if their
is rehab or physio that you can do that  will continue to work on core
stabilization, balance (especially practice getting in and out of chairs
without your hands if possible - over and over again to strengthen your
legs.  Hold onto the arms after you get up to make sure your bp isn't too
low and you don't get dizzy.  Ensure your feet are firmly planted at the
same level across - don't trust sensation of your feet to tell you this).
Best to get a physio to help you to get the right positioning of your body
for this.  Everyone actually should be practicing this for balance and to
prevent falls.  It will also ensure that you can maintain your independence.

Also make sure you get some physio and ot help for parkinson related
problems now so you are strong in the areas you need when time comes.  Then
you can head this off quickly!  Get the pt to work on your gait and balance
so that your body gets the messages from the brain properly.  The periphral
neuroprathy as you have noticed stops that from happening - it can be
retrained as I have seen in the last few weeks - not all the way but every
bit helps.  If the gait gets bad the hips and knees get bad - not a
combination you want  with arthritis - trust me.  Wish I could have had the
help before now.  As it is the last few weeks have helped the hips a tiny
bit.

You can handle this -A lot of stuff but the skills you have learnt with
arthritis all apply here.  Opening jars, aids at the table, light weight
cups, getting stabilized before walking, using walking aids, taking meds
with meals and religiously (preferably without large amounts of booze -
goodness knows I know the results of that with my fil the social drinker!
Of course he will outlive me and what he heck he is 88 now so....)

Sorry to see you with one more diagnosis but great to know what the problem
is.  Now you can avoid those falls with help.  Of course with 3 different
disease you have to get into the return line - which one do you want to
return???

Hugs,
Kelly
> Well, I'll be having tests for two or three weeks, I guess.  Actually
> doing a cat scan of my brain (can't have MRI because of implanted
[quoted text clipped - 44 lines]
>
> Gwen
sweetpickleNO@SPAMknology.net - 15 Apr 2008 20:54 GMT
Kelly, I'll just be generous and return them all!  Don't you think that's
nice of me?

My daughter reminded me  when I called her that she has told me before to
mention to the doctor that when I raise my left leg, the toe of my left foot
droops toward the floor.  I never thought to mention it to anybody.  But she
has noticed it for quite a while.  Felt fine to me.

I'll talk to the doctor about getting help on the balancing stuff.

Gwen

> Hi Gwen,
> My father in law has parkinsons Disease and he takes Sinemet.  The
[quoted text clipped - 94 lines]
>>
>> Gwen
Diane - 16 Apr 2008 15:34 GMT
gwen, what great advice you're getting from people! i'm sorry you have
to deal with all of this, though. i'm starting to trip and lose
balance and the orthopod i just saw says i have something neurological
going on with my foot--the one that's deformed from RA. so first i'm
getting a different brace than the one i have now. then the testing
begins. kelly, your post was very helpful! i'm going to request PT
when i get the brace deal sorted out.

Gwen, take care of yourself.

diane
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.