LOL.....no, Kelly, they have not been telling me it gets easier with
each treatment.   All they keep telling me is to hang in there and they
will try to work on the side effects.  I saw my lung doctor last week
and he was going to talk to the immunologist too and give her some
suggestions as to making things easier so that I will continue with the
infusions.  He and my pcp both know I'm not going to keep up with these
infusions if they continue to be as rough as they have been thus far.

I really am so very blessed to have such caring doctors.   They know I
will put up with a lot, but these reactions from the infusions are not
something I am willing to put up with for the rest of my life, so they
know they have to try to get them better controlled if I am to keep up
on doing them.

My lung doctor and I had a very long long talk and discussed many things
this last visit.

We talked about my allergic reaction to the antibiotic that was the one
that always worked for me.  He said he isn't all that concerned about
it, especially now that I have a port, because the port opens up a whole
nother book of things they can use via IV through the port.  He said
they can just have someone come out to my home and hook up IV
antibiotics if they need to now that I have the port.  This made me feel
a little better about that area.

We also talked about my bad knee and if I needed surgery on that knee,
this is the first time he rather firmly said if I need surgery he wanted
it to be at the U of M hospital instead of over at St. Joes because he
wants to be right there for the surgery and wants the immunologist to be
able to be right there also.   He said he would find me a good
orthopedic guy if I would be willing to have the surgery over at the U
of M where he is.  I said, lets wait to see what the MRI shows first,
and then we can go from there.  He's worried about things given both my
lung issues and then now add in the immuno- deficiency stuff too.

Just had the MRI done on saturday.  That's a whole nother story in and
of itself!!!

The rehab doctor, I saw last week as well. He did another round of botox
injections into the muscles in the back of my thigh to try to cut down
on the spasticity I continue to have since my stroke.  He said if the
MRI doesn't show the need for surgery, that  he would like to see me try
synvisc or one of the other similar types of products.  Although when he
was doing his exam, he said he could really feel the crunching going on
in my knee!

Whew so many different things to think about!  Makes my head spin
sometimes.

As always, never a dull moment!!!  LOL

Hugs and blessings to you all!

.
.
.
.

Donna
.
.
.
.
1.)   ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......

2.)    J.K.M.A.

{{{{{Donna}}}}}

DeeTee

Hey, I like you!

and for you to be so dreading something after all you normally deal with,
makes a real impression on me. Oh, and because I like you, I want you to
stick around - and I figure you'll be around longer if they can make the IVIG
infusions tolerable for you.  And I'll bet ya pretty much everyone here at
ASA agrees with those sentiments.

This storm is supposed to be heavier downstate; we're only getting 2-3
inches.  indchills in the low single digits though.  I have one thing to do
this afternoon, but otherwise I'm staying indoors!  We still have so much ice
from last week, walking is really dangerous.  Snow on top of ice will make it
even worse.  sigh............  

Not yet.  This is a process that is giving us a lot of training in patience!