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Medical Forum / Diseases and Disorders / Arthritis / November 2007Nann update
I saw my RD back on the 8th. There was good news - while my joints have worsened *some* since stopping Enbrel, it isn't a dramatic worsening yet and we agree we can watch things for a while longer before trying to find a safe DMARD for me. Also, my IGG level has returned to solidly normal since being off Enbrel. This rules out CVID for me. I'm thinking now that the whole non-absorption of protein may have been a blessing that kept me from developing more severe immune impairment from long-term Enbrel use. Ya never know, I'm just glad we don't have to rebuild my immune system! The bad news was that my blood pressure was high and it was high when I saw my PCP 17 days earlier. We're talking 145-50 over 95-100. I usualy have lovely blood pressure, so this is truly worrying everyone. From my RD appt. I was off to meet Mother for our geneaology trip in Ohio. I intended to call my PCP from the road, but you know how that goes, esp. when you don't want your mom to worry about you too much! aAnyway, I'm now waiting on a call back from my PCP (he wasn't in last Friday). I think we really need to look at what is causing this, because my BP has been high since that laparoscopic biopsy back in Sept., as near as we know. Personally, I think something still ain't right. We'll see.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Stress, a cold, just about anything can give you a one time high blood pressure reading. However, if it stays elevated for a period of time, that's a concern. Please don't wait too long to call her back, Nann. It's important. Hugs, DeeTee >I saw my RD back on the 8th. There was good news - while my joints have > worsened *some* since stopping Enbrel, it isn't a dramatic worsening yet [quoted text clipped - 26 lines] > biopsy back in Sept., as near as we know. Personally, I think something > still ain't right. We'll see. well, you've got SOME good news there. but that laparoscopic procedure sure did turn out to be a setback for you. i'm so sorry about that. i hope the BP was just a fluke, but as dee tee says, it's important to keep an eye on it. are you on pb med now? diane > well, you've got SOME good news there. but that laparoscopic procedure > sure did turn out to be a setback for you. i'm so sorry about that. > i hope the BP was just a fluke, but as dee tee says, it's important to > keep an eye on it. are you on pb med now? > > diane Saw my PCP yesterday. BP isn't super high - and in fact was better at his office than it has been for several weeks. It was still 138/90 though. We're starting a low dose of an "older, therefore generic and inexpensive" med for it (which I need to get over to my drugstore and pick up!). He thinks that once i get more of the recent excess weight off and am more active again, it should resolve and we'll watch it on this med. I'd managed to lose the 5 pounds I put on from inactivity post-biopsy, so this just encourages me to keep working on the other 10 I've put on since we moved here. He's really good about realizing that chronic illness, fatigue and living in a rural area makes it really difficult to keep up with the exercise angle, so at least I don't have to deal with lectures from an ucomprehending doctor. Now, if I can just keep people from wanting me to eat more dessert! This is the sort of area that illustrates the old thinking that having a rotound pastor and family means a church is doing well. We've had to fight to eat moderately and healthily at all these dinners we go to! LOL and I'm just hoping my majorly painful hands of the last 2 days are weather related, though hitting that medrol dose pack for a flare is tempting...... I might really get the house good and clean with some steroid energy! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Nann, I hope you can get something that will help with the joints. Good that your IGG level has returned to normal. I hope all goes well with getting your bp back down too. Take care. SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. >I saw my RD back on the 8th. There was good news - while my joints have > worsened *some* since stopping Enbrel, it isn't a dramatic worsening yet [quoted text clipped - 27 lines] > biopsy back in Sept., as near as we know. Personally, I think something > still ain't right. We'll see. {{{{{{{{{{{{{nann}}}}}}}}}}} y'know, you've been through so much for so long recently, sweetie, that i can't help thinking that part of your bp issue might have to do with the enormous stressfulness of what you went through. but, hey, i'm not a doctor. i know when butch was so ill for those 16 1/2 months my bp shot up way higher than your numbers (something like 185/120 and so did my son's). i figured it was probably stress related, lack of sleep and my own physical pain issues. my pcp was not a happy camper about it. she thought i was heading for a stroke and threatened to put me on bp meds on the spot, if i couldn't find a way to get it back down, and even scared me by telling me that many caregivers don't survive their spouses, or often die within 5 years of their spouses. i stumbled upon a yoga breathing technique, very soon after that appmt., that worked for me. and thanks to that breathing exercise, i'm usually around 117/76 now. if you are interested, let me know and i'll explain the breathing technique for you. kate I saw my RD back on the 8th. There was good news - while my joints have worsened *some* since stopping Enbrel, it isn't a dramatic worsening yet and we agree we can watch things for a while longer before trying to find a safe DMARD for me. Also, my IGG level has returned to solidly normal since being off Enbrel. This rules out CVID for me. I'm thinking now that the whole non-absorption of protein may have been a blessing that kept me from developing more severe immune impairment from long-term Enbrel use. Ya never know, I'm just glad we don't have to rebuild my immune system! The bad news was that my blood pressure was high and it was high when I saw my PCP 17 days earlier. We're talking 145-50 over 95-100. I usualy have lovely blood pressure, so this is truly worrying everyone. From my RD appt. I was off to meet Mother for our geneaology trip in Ohio. I intended to call my PCP from the road, but you know how that goes, esp. when you don't want your mom to worry about you too much! aAnyway, I'm now waiting on a call back from my PCP (he wasn't in last Friday). I think we really need to look at what is causing this, because my BP has been high since that laparoscopic biopsy back in Sept., as near as we know. Personally, I think something still ain't right. We'll see. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Kate, I'm very interested so please let me know. Four bp meds are just too many to have to take every day. Gwen > {{{{{{{{{{{{{nann}}}}}}}}}}} y'know, you've been through so much for so > long recently, sweetie, that i can't help thinking that part of your bp [quoted text clipped - 47 lines] > biopsy back in Sept., as near as we know. Personally, I think something > still ain't right. We'll see. Gwen, I have been doing "square" breathing for a bit now and it is amazing how it lowers the bp a bit. The nurses were impressed when I did it to take away the anxiety of the rituxan - the bp went down noticably within minutes. It is part breathing, part visualization. Practice in a quiet spot with no distraction until you can do it anytime anywhere. You visualize a square in your mind. The first side take a breath in expanding your diaphram, the second side hold the breath, third side let it out bringing your ab muscles towards your spine, then hold. You hold and breath for the same count. For example you might start at a count of 4 on each side. Gradually build up (not speeding up the count) until you increase the counts. I can now do 12 per side. Important to relax and not hyperventilate. Good luck - I am still on bp meds but most of that is the prednisone edema (which is going down quickly now that I am dropping the prednisone but the drop is making me dopey - what else is new.) Kelly > Kate, I'm very interested so please let me know. Four bp meds are just > too many to have to take every day. [quoted text clipped - 54 lines] >> biopsy back in Sept., as near as we know. Personally, I think something >> still ain't right. We'll see. yeah, my PCP thinks it's the additional couple of post-biopsy pounds added to the lack of exercise. He really thinks we'll get it all under control and be able to get me off meds down the road. The low dose we're doing for now is to protect my heart, esp. with my body's tendency to do strange things. I already was working on getting back to the weight I was when we moved up here to the land of constant homemade desserts. This is extra motivation. I actually know a variety of relaxation techniques and have used them in the past. Generally a *high* bp for me is 120/80, if I'm really calm it might be 110/68. That's why no one liked several weeks in the moderately high range, including me. I didas much relaxation stuff as possible before my last RD appt, keeping in mind that I was in the waiting room. My pulse was 64, even after aughing and chatting with the nurse on the way back, but BP was 145/95. Go figure. Well, we'll get this calmed down again. I'm quite appreciative of my docs who tlk straight to their patients! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > {{{{{{{{{{{{{nann}}}}}}}}}}} y'know, you've been through so much for so > long recently, sweetie, that i can't help thinking that part of your bp [quoted text clipped - 14 lines] > > kate >> On Nov 19, 5:57 pm, Nann Bell <hanbellGOGAT...@earthlink.net> wrote:I'm thinking now that the whole non-absorption of protein << Looks like you may have to ramp up your plant intake .. Those short-chain fatty acids again .. "CONCLUSION: Supplementation of pectin, as a soluble fiber, in the diets, stimulated SCFA production, had a trophic effect on the different parts of the intestines, and greatly stimulated protein synthesis in those tissues." Dietary pectin stimulates protein metabolism in the digestive tract. [JOURNAL ARTICLE] Nutrition 2006 Nov 1. Pirman T, Ribeyre MC, Mosoni L, Rémond D, Vrecl M, Salobir J, Patureau Mirand P OBJECTIVE: The aim of this study was to determine if protein metabolism was altered in small and large intestines by feeding pectin, a soluble fiber known to stimulate cecal production of short- chain fatty acids (SCFAs) and to have a trophic effect in these tissues. METHODS: Twenty-four weanling male Sprague-Dawley rats were fed ad libitum for 14 d with a balanced control diet or an isoproteic, isocaloric pectin (citrus) diet (80 g/kg). SCFA production, intestinal histomorphometry, and protein synthesis were determined in the proximal and distal parts of the small intestine, the cecum, and the colon. Protein synthesis rates were determined by measuring the (13)C valine incorporation rate in tissue proteins. RESULTS: Pectin feeding slightly decreased food intake and growth rate. It increased the acetate, propionate, and butyrate pools in the cecum. Pectin feeding resulted in heavier intestinal tissues corresponding to higher villus height in the small intestine and crypt depth in the small and large intestines compared with feeding of the control diet. Compared with the control group, the rats fed the pectin diet had significantly higher protein synthesis rates in all the parts of their intestines. CONCLUSION: Supplementation of pectin, as a soluble fiber, in the diets, stimulated SCFA production, had a trophic effect on the different parts of the intestines, and greatly stimulated protein synthesis in those tissues. Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk > I saw my RD back on the 8th. There was good news - while my joints have > worsened *some* since stopping Enbrel, it isn't a dramatic worsening yet and [quoted text clipped - 21 lines] > remove the Gator cheer to email me > Simply the thing I am shall make me live --- William Shakespeare |
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