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Medical Forum / Diseases and Disorders / Arthritis / November 2007

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enbrel question

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shenmei9wise@gmail.com - 04 Nov 2007 01:19 GMT
i got a major cold a few weeks ago which I am just recovering from.  I
actually missed my family's gathering for my dad's memorial in
phoenix.  It took me longer to get over this than I thought it
should.  I actually send almost a week in bed and than another week
getting exhausted walking up the stairs to my bedroom.  I have felt
tired but not too tired to hold a book or answer the phone.  So , i
have not had an enbrel shot for 3 weeks (I take it once a week and I
was due the day i got sick).  Every joint in my body hurts in ways
they haven't hurt for three years.  I have been off enbrel for three
weeks before and not even noticed much difference.

So here's the question:  i have talked with three o ther people who
got this uper respiratory thing I had and they have all had joint
issues and non of them have arthritis.  All of them had joint pain
after the worst of the cold was gone.  That indicated to me that my
joint issues might still be an active viral infection.  If that's the
case, i don't want to do enbrel for a week or so longer....however,
what if it's not and it's just lack of enbrel that is causing the
joint problems.

I am too tired to have a sense of what I should do.. but I held that
enbrel shot in my hand today and it didn't seem like the right thing
to do so I put it back in the fridge.  Any suggestions?

m
jofirey - 04 Nov 2007 02:11 GMT
>i got a major cold a few weeks ago which I am just recovering from.  I
> actually missed my family's gathering for my dad's memorial in
[quoted text clipped - 21 lines]
>
> m

Trust your gut.  Wait another week.

Weigh the worst than can happen if you miss another week vs. the worst if
you still have a viral infection going on.

Jo
hanbell@earthlink.net - 04 Nov 2007 15:14 GMT
> Trust your gut.  Wait another week.

Those are the exact words that I thought of!  I tended to always err
on the side of being too cautious with returning to enbrel because
I've always been prone to infection, but I think it's safer to err in
that direction for all of us.  And with the reports from others of
similar symptoms....... you done right!

Also, while everyone variees, my experience hasn't been that the
benefits of enbrel wear off that quickly, which makes me think your
pain is more likely to be the virus.  Thanks goodness you didn't get
it the day AFTER your enbrel!

Nann
d'huit - 04 Nov 2007 02:28 GMT
i got a major cold a few weeks ago which I am just recovering from.  I
actually missed my family's gathering for my dad's memorial in
phoenix.  It took me longer to get over this than I thought it
should.  I actually send almost a week in bed and than another week
getting exhausted walking up the stairs to my bedroom.  I have felt
tired but not too tired to hold a book or answer the phone.  So , i
have not had an enbrel shot for 3 weeks (I take it once a week and I
was due the day i got sick).  Every joint in my body hurts in ways
they haven't hurt for three years.  I have been off enbrel for three
weeks before and not even noticed much difference.

So here's the question:  i have talked with three o ther people who
got this uper respiratory thing I had and they have all had joint
issues and non of them have arthritis.  All of them had joint pain
after the worst of the cold was gone.  That indicated to me that my
joint issues might still be an active viral infection.  If that's the
case, i don't want to do enbrel for a week or so longer....however,
what if it's not and it's just lack of enbrel that is causing the
joint problems.

I am too tired to have a sense of what I should do.. but I held that
enbrel shot in my hand today and it didn't seem like the right thing
to do so I put it back in the fridge.  Any suggestions?

m

hi sweetie!  i sure hope you feel better soon.  it sounds like it's been a
physically miserable 3 weeks for you.  (((((((((((((((((((missy
m))))))))))))))

question -- how long did your doctor, or your friend the doctor, tell you
this particular virus would last/remain active?

if you haven't seen a doctor, then my suggestion would be to call your
friend, the doctor, and see what he understands this virus' recovery time
is; how long it remains active.  that would give you a better source of
information.

or, if he's not available-- if you are absolutely certain this is the exact
same virus, how long did the recovery time take for the 3 others who were
not arthritics?   how long did their joint pain last until it was gone,
after getting over the worst of it?

i'm guessing -- the virus might not still be in active mode, but the joint
pain might be a residual from the dying/dead virus still being processed,
absorbed by your immune system.

i'm thinking, if your recovery time was longer than the other 3 people, then
maybe your virus might have been complicated with some other thing, too.

my sense is telling me -- you shouldn't be this bad off after 3 weeks,
sweetie.  i think you should be on an upwards swing, maybe not joint-wise,
but this level of fatigue has me very concerned.  ah, but i just remembered
you also have fms to contend with.  so, maybe that's part of what's going
on, too.

i'm not much help, i'm afraid,  but i hope i pointed you in a direction that
works for you, sweetie.

kate
shenmei9wise@gmail.com - 04 Nov 2007 03:06 GMT
> <shenmei9w...@gmail.com> wrote in message
>
[quoted text clipped - 59 lines]
>
> kate

Hi Kate,
I actually don't have FMS.  Adrenal exhaustion for sure.  Until my
post 9/11 thing, i don't think I have ever been tired for more than a
day or two-even that resolved after a while.  So in doing some
research, I probably recovered as fast if not faster, than the other
people who have had this thing as far as upper respirtory goes (but
then again, I treated myself every day and took chinese herbs by the
gallons and injected thymus).  I think you are probably right residual
virus die off.  However, after I used Jo's criteria, I am going to
wait a week, keep going with the anti-viral herbs andI'll do enbrel
next week.  I am just so weired out by this whole year.  I really need
a good healthy body!

m
d'huit - 04 Nov 2007 06:06 GMT
On Nov 3, 7:28 pm, "d'huit" <threeceda...@comcast2.net> wrote:
> <shenmei9w...@gmail.com> wrote in message
>
[quoted text clipped - 63 lines]
>
> kate

Hi Kate,
I actually don't have FMS.  Adrenal exhaustion for sure.  Until my
post 9/11 thing, i don't think I have ever been tired for more than a
day or two-even that resolved after a while.  So in doing some
research, I probably recovered as fast if not faster, than the other
people who have had this thing as far as upper respirtory goes (but
then again, I treated myself every day and took chinese herbs by the
gallons and injected thymus).  I think you are probably right residual
virus die off.  However, after I used Jo's criteria, I am going to
wait a week, keep going with the anti-viral herbs andI'll do enbrel
next week.  I am just so weired out by this whole year.  I really need
a good healthy body!

m

oh.  you don't have fms.  where in the world did i ever get the idea that
you sometimes have fibro fog bouts?  or at the very least, sometimes can't
find nouns in your head---shush, don't tell anybody, but that's why i use so
much wordy imagery.  i can and sometimes have to come up with a thousand
words to describe the single noun i can't remember.LOL

sounds like you have a good and workable plan there, missy m.  also sounds
like you used a very good and workable plan to recover faster than most from
this respiratory thing.

i so hear you about being weirded out by this whole year.  (i just deleted
why i can relate to that.  too much me, not enough you.)  it really has been
a sucky year for you, sweetie.  wish i could send you a good healthy bod.
you deserve one.

kate
Donna G. - 04 Nov 2007 06:43 GMT
{{{{{{{{{{{{{{{{{{{ M }}}}}}}}}}}}}}}}}}}

So sorry you have been so under the weather as of late.   Sure has been
one very rocky road for you this year!   Sending prayers that you get to
feeling much better real soon!

I think I have to agree with Jo, and suggest you wait at least one more
week to see how you are doing.   Seems like you  have been fighting one
infection after another as of late.

Did your UTI finally clear itself up?

How are you doing otherwise?

How's Megan and Logan doing?

Hugs for you all!!!

Donna
.
.
.
.
1.)   ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......

2.)   Hey MJ, tit for tat, I got your back!

3.)    J.K.M.A.
sweetpickleNO@SPAMknology.net - 05 Nov 2007 04:24 GMT
I agree that m needs a new, healthy body, Kate.  Since we can't give it to
her, let's just ask God to send it to her ASAP.
Gwen

> On Nov 3, 7:28 pm, "d'huit" <threeceda...@comcast2.net> wrote:
>> <shenmei9w...@gmail.com> wrote in message
[quoted text clipped - 102 lines]
>
> kate
Harvey R. Stone - 04 Nov 2007 11:34 GMT
>> <shenmei9w...@gmail.com> wrote in message
>>
[quoted text clipped - 81 lines]
>
> m

The fatigue for you is much like the fatigue I had which sent me to the
doctor for x rays.   You could have a problem with your lungs that needs
attention.
Those viruses are harder on us than a person thinks.   As great as Enbrel is
for inflam.arth.,,,,, sometimes it is not a friend to our lungs or sinuses.
Good luck with it and please do not let things get much worse.
Harv
Thumper - 04 Nov 2007 19:36 GMT
>>> <shenmei9w...@gmail.com> wrote in message
>>>
[quoted text clipped - 89 lines]
>Good luck with it and please do not let things get much worse.
>Harv

I agree Harv.  It sounds like I was feeling before I had congestive
heart failure.  It might be a lung thing.  I thought I had a
respiratory virus until I started to drown.
Thumper
Squirrely - 04 Nov 2007 03:58 GMT
I am not sure you are going to like what i have to say.

It could be the virus M, as we have had it for months and it does cause pain
with it. I  heard the one virus going around can last  up to 6 months. Jim's
parents have had a virus and it has lasted also for months so far for them
and it is down  your way where they live. So it might be the same one.

I hope not, I wouldn't wish that on anyone. I just had to go back into the
drs because I started running a fever again and was really sick feeling with
it, so I thought it was an infection, she says no just the virus. So here we
go again.

I have had major arthritis, fms, and muscle spasms with it. So it could just
be that, that is causing the issues.

Signature

Love and Hugs to all
Jo the squirrely one
I am nuts about you.

>i got a major cold a few weeks ago which I am just recovering from.  I
> actually missed my family's gathering for my dad's memorial in
[quoted text clipped - 21 lines]
>
> m
Kelly C. - 04 Nov 2007 16:03 GMT
Rachel and I both have been struggling to recover from some cold virus from
Hell. It just keeps lingering.

I finally took my Enbrel last night, because my wrist was beginning to swell
up and hurt.

Sorry you're feeling so lousy still. I'd wait at least a few more days, but
if you don't have a fever, it's likely there's no bacterial infection, and
you're likely safe doing your injection.

Hugs,
Kelly C.

>i got a major cold a few weeks ago which I am just recovering from.  I
> actually missed my family's gathering for my dad's memorial in
[quoted text clipped - 21 lines]
>
> m
Jean - 04 Nov 2007 19:59 GMT
I had bronchitis in Sept. and my RD told me when the fever disappeared I
could start the Enbrel again.  And after three weeks, I did.  :o)

Jean
 
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