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Medical Forum / Diseases and Disorders / Arthritis / November 2007Pa, nothing is helping
I have PA and my meds are working fine. TG My sister is in bad pain. She waited about a year before seeing a doctor .. she was in denial She took the nsaids, then mtx, then mtx and enbrel, ,worked for a few months now on humera (not sure of spelling) for a few months and it is not really working. Doc sent her to find out about the new intravinus drugs. Went to the rumy that does this and was told it is not approved for PA yet and he did not want to fight for it as she was not that bad that day. I asked her and she said today her hands were not too bad but her feet hurt. Denial denial. Anyway, when this began we were told options were endless. Seems that is not so. Anyone have insight on what she could do or expect in future... Ralph > I have PA and my meds are working fine. TG > [quoted text clipped - 18 lines] > > Ralph Hi Ralph, I believe that Remicade is approved for Ankylosing Spondylitis which is one of the spondyloarthropathies, as is PA. Remicade is done by IV infusion, is that the drug you are referring to? As far as other drugs go...maybe Orencia or Rituxan, but as far as I know those are being used in extreme RA cases...I don't know of many or any Spondys using these as of yet. I have AS and I know what she is talking about regarding her feet. I am on Enbrel, mtx, Nsaids and a muscle relaxer for fibro and I STILL have the pain in my feet...it can be awful at times. I hope she can find something, Char >> I have PA and my meds are working fine. TG >> [quoted text clipped - 32 lines] > I hope she can find something, > Char Hi Char,,, it is good to see you on the board again. I hope you are doing well. Harv > > I have PA and my meds are working fine. TG > [quoted text clipped - 34 lines] > > - Show quoted text - She was going to try orencia. Doc said it is not for her right now as it will not be covered Hey Char, so glad to see you back here again. How is it going with you? We have missed you being around here. Come around more if you can.  SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. >> I have PA and my meds are working fine. TG >> [quoted text clipped - 32 lines] > I hope she can find something, > Char I agree, good to hear from you, Char. SignatureNavy Take out the FISH to email me. > Hey Char, so glad to see you back here again. How is it going with you? We > have missed you being around here. Come around more if you can. [quoted text clipped - 35 lines] >> I hope she can find something, >> Char > I believe that Remicade is approved for Ankylosing Spondylitis which > is one of the spondyloarthropathies, as is PA. > Remicade is done by IV infusion, Yes, for about 2 years I was on Remicade for AS before switching to Embrel. The only problem I had with Remicade was severe itching -- only during the infusion. ERROR: General Protection Fault - Condom not installed. On Nov 4, 11:35 pm, "california_chief" <Fire_Chief@Jamacha_Junction_FD.ca.us> wrote: > > I believe that Remicade is approved for AnkylosingSpondylitiswhich > > is one of the spondyloarthropathies, as is PA. [quoted text clipped - 6 lines] > > ERROR: General Protection Fault - Condom not installed. Hi all! <waving> I am doing ok, thanks for asking! We are changing seasons here and my body isn't liking it very much. Squirrely, you guys had an earthquake out there? Did it affect you, and how are you feeling? Chief, Harv and Navy...I hope all of you are well, Char > Hi all! <waving> > I am doing ok, thanks for asking! > We are changing seasons here and my body isn't liking it very much. > Squirrely, you guys had an earthquake out there? Did it affect you, > and how are you feeling? > Chief, Harv and Navy...I hope all of you are well, The earthquake in San Jose occurred a week after we left the region. We haven't heard from the 2 hostess we stayed with, but Mary's sister in San Rafael 18 miles north across the bay in Marin County sure felt it. We left Santa Cruz Sunday morning after hearing about the fires in Los Angeles and Orange Counties. After we left Santa Maria Monday morning, we began to hear about the fires down here. Arrived home and discovered that there were 5 LARGE ones burning in the county and portions of North and East county were being evacuated. That evening we watch the Harris blaze approaching 5 or 6 UHF TV transmitters/antennas less than 2 miles from our home. There is one dirt road into and out from that mountain top, but they got firefighters up there and we didn't lose a single TV station. We are doing well, back to square dancing (slow, with the classes) 3 months after my rip surgery. After warnings about another hot weekend with RED FLAG warning approaching, the weather decided it was winter. <g> Have to sleep with a blanket the past 5 nights. |
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