Nina - I, too, am on Prednisone, Methotrexate, and Plaquenil, but mine is
for Sjogren's Syndrome with inflammatory arthritis and severe Fibromyalgia.
However, I wanted you to know your post had been seen. Someone should be
along shortly who can help you with the vasculitis information.

Welcome to the group.
DeeTee

hi nina, and welcome to asa!   it seems to me that i recall at least one of
our members has or had vasculitis.  wish i could help you but, i suspect
someone with similar vasculitis experiences to yours will notice your post
and respond.   lots of our members have ra. so, i know you'll get tons of
help with that, if you need any.

hope you stick around and become a member of our family.  there is much
knowledge and wisdom from all over the world for you to tap into here.   but
there also are many warm and loving hearts, who offer hugs, tears, prayers,
healing thoughts, laughter and lifelong friendship.  our group is not just
about acquiring information.  we are also a place where you can come to
vent, or whine, release and relieve frustrations and tensions, share your
triumphs or disappointments . . . etc., with people who understand and can
relate.

once again, welcome.

kate

Hi all,

I am new to this group and am wondering if anyone else here suffers from
vasculitis? 4 years ago I was dx with fibromyalgia because of the pain and
arthralgia. 2 years ago I had to get a new rheumy who then decided I had RA
instead of fibromyalgia because of the constant swollen and tender bilateral
joints. Last year I was DX with Leukocytoclastic Vasculitis and told it
would resolve on its own and that it would remain cutaneous (I now have
kidney involvement). After a month of constant pain, my rheumy decided a
course of prednisone would help clear it up. I was lucky to have a symptom
free holiday last year and managed to go from Oct. through Dec. without any
symptoms. Then before the new year I developed bronchitis and the vasculitis
started again. I have not been able to get rid of the vasculitis since then.

I am on prednisone, Methotrexate, and Plaquenil, yet I still have constant
petechiae and purpura, with nasty flare ups monthly. The necrosis is
progressing with each flare up and I worry about having open sores. I have
gotten to the point that my rheumy says there is nothing they can do except
give me a medrol pack to add to my meds each time I have a flare up. I have
no real question except to find out if anyone else suffers from Vasculitis
and what you have or are doing to help control the symptoms.

Nina,

are you from fms ng. If you are  hi, long time no see. I am sorry to hear
you are going thru this. I hope something works out for you.