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Medical Forum / Diseases and Disorders / Arthritis / October 2007

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update on my sister

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Diane - 10 Oct 2007 05:47 GMT
you guys always get my bad news, so i thought i'd send you some good
for a change. recap: my sister has advanced MS, husband died in march,
fell and broke her hip 2 months ago. sank into a depression. had
trouble finding an aide. got kicked out of rehab because medicare
wouldn't pay because she couldn't bear weight on either leg.

update: there's life back in her voice! she has a wonderful aide from
russia who could actually lift her to move her from her chair to her
bed to the toilet etc. about 2 weeks ago, she could start bearing
weight on her right leg, so she's now in outpatient rehab. she
probably should have been in rehab for years and maybe she wouldn't
have lost as much function as she has (but who knows?). she called
excited yesterday because they had her standing between the parallel
bars. it's been so long since she's stood up. they also have a
standing box that holds her upright for half an hour. they also have a
specialized MS rehab program she may be eligible for. she can now
transfer herself from her chair to her scooter (with the aide standing
close by). she can see the day she'll be able to drive as she was
before. i'm thrilled for her and so relieved. she keeps getting uti's,
but she also seems able to get rid of them so far. she has to be super
careful catheterizing. a concern i do have is that now that she's
standing, she's getting some minor pain in the repaired (not replaced)
hip. she had no pain before now. i don't know if this is normal or
not. she sees her doc thursday.

anyhow, just wanted to give some good news for a change. thanks for
all the prayers and concern you've shown me for her. please keep those
prayers coming.

diane
Squirrely - 10 Oct 2007 08:35 GMT
well that is good news. Progress is always good to hear too. I hope she
keeps making considerable progress. It will do her outlook good.

I hope the pain is not an added problem.

Keep us posted. I like to hear updates so I can direct my prayers the right
way.

Still praying for a healing and good outlook for her.
Signature

Love and Hugs to all
Jo the squirrely one
I am nuts about you.

> you guys always get my bad news, so i thought i'd send you some good
> for a change. recap: my sister has advanced MS, husband died in march,
[quoted text clipped - 26 lines]
>
> diane
ANN M - 10 Oct 2007 18:00 GMT
This is excellent news.  The fact that she is able to do things for
herself again has given her lots of hope for the future. I would say
that is a very good cure for depression.  Thanks for sharing because I
have her in my prayers and wondered how she was doing.
Ann
sweetpickleNO@SPAMknology.net - 10 Oct 2007 18:08 GMT
Diane, that really is good news.  Sounds as if things may be going her way
for a change; about time!
Gwen

> you guys always get my bad news, so i thought i'd send you some good
> for a change. recap: my sister has advanced MS, husband died in march,
[quoted text clipped - 26 lines]
>
> diane
jofirey - 10 Oct 2007 19:28 GMT
I'm glad she is doing so well.  She will stay in my prayers.

I'll add her aide as well.  The only thing that made my Aunt Elsie's last
years tolerable were the health care aides from the Philippines that cared
for her.  My aunt died a few years ago, but one of the aides we still
consider a member of the family.

Jo
> you guys always get my bad news, so i thought i'd send you some good
> for a change. recap: my sister has advanced MS, husband died in march,
[quoted text clipped - 26 lines]
>
> diane
DeeTee and Bob Taggart - 10 Oct 2007 19:47 GMT
Diane, this is wonderful news! It doesn't mean, though, that we'll stop the
prayers.

DeeTee

> you guys always get my bad news, so i thought i'd send you some good
> for a change. recap: my sister has advanced MS, husband died in march,
[quoted text clipped - 26 lines]
>
> diane
d'huit - 10 Oct 2007 22:49 GMT
ohhh, that is sooo good to read, diane. that poor dear has been through so
much.  those baby steps of actually feeling a sense of accomplishment, no
matter how small, are so very important to attitude.  her attitude means a
lot.

i can't speak for everyone who ever broke bones.  but with most of my broken
bones, even after some having been healed a bazillion years ago, there is
still some pain from time to time, but not unbearable pain (but, it can be a
bit overwhelming, for me, when several sites want to get into the pain
parade at the same time.  and i doubt that your sister will experience
that.).  more often than not, that kind of pain seems to be weather change
related or overuse related--and i am speaking in terms of healing that
occurred a long time ago.

there cannot help but be some minor pain issues during rehab, especially 24
to 48 hours after a rehab session, for many kinds of fractures. this is
because muscles were damaged, too.  these muscles tend to be protective of
injured areas (even after these injuries are completely healed) and need to
be re-educated to perform in the way they were meant to perform.  severe
pain during rehab is not good, though.

hope that helps, sweetie.

love and hugs to both of you,
kate

you guys always get my bad news, so i thought i'd send you some good
for a change. recap: my sister has advanced MS, husband died in march,
fell and broke her hip 2 months ago. sank into a depression. had
trouble finding an aide. got kicked out of rehab because medicare
wouldn't pay because she couldn't bear weight on either leg.

update: there's life back in her voice! she has a wonderful aide from
russia who could actually lift her to move her from her chair to her
bed to the toilet etc. about 2 weeks ago, she could start bearing
weight on her right leg, so she's now in outpatient rehab. she
probably should have been in rehab for years and maybe she wouldn't
have lost as much function as she has (but who knows?). she called
excited yesterday because they had her standing between the parallel
bars. it's been so long since she's stood up. they also have a
standing box that holds her upright for half an hour. they also have a
specialized MS rehab program she may be eligible for. she can now
transfer herself from her chair to her scooter (with the aide standing
close by). she can see the day she'll be able to drive as she was
before. i'm thrilled for her and so relieved. she keeps getting uti's,
but she also seems able to get rid of them so far. she has to be super
careful catheterizing. a concern i do have is that now that she's
standing, she's getting some minor pain in the repaired (not replaced)
hip. she had no pain before now. i don't know if this is normal or
not. she sees her doc thursday.

anyhow, just wanted to give some good news for a change. thanks for
all the prayers and concern you've shown me for her. please keep those
prayers coming.

diane
Diane - 11 Oct 2007 01:51 GMT
kate, her pain during rehab is not severe at all. (2 on a 1-10 scale),
but just different since she had no pain at all til now. your
explanation makes sense to me. she sees her surgeon tomorrow, so we'll
see what he says.

diane
d'huit - 11 Oct 2007 02:46 GMT
kate, her pain during rehab is not severe at all. (2 on a 1-10 scale),
but just different since she had no pain at all til now. your
explanation makes sense to me. she sees her surgeon tomorrow, so we'll
see what he says.

diane

yes, i got that her pain levels were minor, though i was thinking level 3 or
4.   so, you're saying it is during her rehab sessions when this pain occurs
(not necessarily after a session, which would be normal, too), if i read you
correctly.

at that pain level, which sounds very good to me, it really does sound like
her muscles were being protective.  and now, they are obviously being very
gently required, through rehab exercises, to function in more normal ways
than the way they have been functioning.

diane, it sounds to me like she had a very good and gentle rehab therapist.
i like that she does have a gentle therapist, cuz she's already been through
a lot.  if the surgeon doesn't give you guys a satisfactory answer to the
pain question, her therapist certainly can give you guys the answer, if
asked.

kate
Nann Bell - 11 Oct 2007 13:32 GMT
> anyhow, just wanted to give some good news for a change. thanks for
> all the prayers and concern you've shown me for her. please keep those
> prayers coming.

this is just wonderful news, Diane.  It's amazing what a little hope can do.  
The prayers are still coming for more and more improvement from rehab and
giving thanks for a capable and caring aide.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Kelly - 12 Oct 2007 06:23 GMT
So glad to see progress and to hear the life in her voice Diane - I could
hear it with your email.!  That is what this is all about - hope and
progress.

Both of you deserve it!

kelly
Adelle - 12 Oct 2007 14:41 GMT
> you guys always get my bad news, so i thought i'd send you some good
> for a change. recap: my sister has advanced MS, husband died in march,
[quoted text clipped - 24 lines]
> all the prayers and concern you've shown me for her. please keep those
> prayers coming.

Wonderful news, Diane!!!

Maybe the new pain is the newly connected tissue reacting to actually having
to work, or work differently? - I had that with arthroscopy on my knee to
shift my kneecap way back in law school . Hoping it sorts itself out soon.

Adelle
Diane - 12 Oct 2007 17:51 GMT
my sister saw her surgeon, who said the pain is normal and she can do
as much exercise as the pain will allow her to do. she wishes she had
PT more than 3x/week. she's anxious to get going!

adelle, how are you and your family holding up?

diane
Adelle - 12 Oct 2007 18:33 GMT
> my sister saw her surgeon, who said the pain is normal and she can do
> as much exercise as the pain will allow her to do. she wishes she had
[quoted text clipped - 3 lines]
>
> diane

That's great! But remind her it's possible to work too hard and set herself
backwards. Pacing is important. To put in a plug for the home team - The Red
Sox have had their share of injuries this year. But with several of them,
they 'benched players and put them on strict work schedules that they
weren't permitted to exceed. The result - most everyone is as healthy as
possible for this pennant/world series race. If pampered elite athletes have
to be careful not to overdo rehab and follow instructions, why shouldn't we
follow their example?   GO Sox!!!!!!

Thanks for asking! Things here are getting back on course.

Becca read your reply to her. Despite silence, one could tell she was
pleased you said you would use something she contributed. It has influenced
her behavior. She would never let me edit her work because I'm 'too strict
and a perfectionist.' (Damn straight). Well, yesterday, not only did she ask
me to edit her National Honor Society application essay, but she followed my
advice! Or so she says. She wouldn't let me see the second copy because she
wasn't going to do any rewrites at that point.

Yesterday was meeting day for the Special Education team to go over the
results of Ian's testing. Essentially, we have a child with a superior
intellect (IQ around 126) with apraxia which causes him to process verbal
expression very slowly - both oral and written. He also has executive
functioning issues so can't organize his thoughts or work. He writes on the
level of a seven or eight year old at ten years; it takes him twice as long,
and its a disorganized product. He also has dysgraphia (not diagnosed, but
its obvious) so this immature product from a really smart kid is also
illegible. He also has some processing issues.

He'll get OT to learn how to keyboard and  work with the speech therapist on
how to get words from his brain to his written work; he'll go to the Title 1
reading program to get help in how to process and understand a story and
repeat that process in his own writing, and he needs to be seen by a
neurologist to follow up on the executive function/processing stuff to see
if he'd benefit from ADD meds. And through all this, he doesn't qualify for
an Education Plan (has more teeth in terms of the school having to follow
it) because he's making 'adequate progress'  (because he's getting B's and
A-'s ) the new criteria for SPED services.

It's both a curse and a blessing he's so smart. On the one hand, the school
psychiatrist said the gap between his IQ and other parts of his testing
occurs in less than 1% of the population and is so stark it poses no
question to her that it's a neurological disability that should be addressed
through services. But because of it, he won't qualify under the state law
for some of those services which are only available under the SPED program
because he is smart enough to compensate in other ways (sophisticated word
choice - when you can figure it out from the phonetic spelling, good oral
answers, etc.). He'll only qualify if he doesn't progress before the next
review.

Dog's whining to go out - gotta go.  Adelle
 
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