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Medical Forum / Diseases and Disorders / Arthritis / October 2007this silly damn body
Well, the pain from the laparoscopic biopsy is easing, but still requires pain meds and there are still things I cannot do. I saw the surgeon again today and he kept saying, "this is NOT normal." I said I'd figured as much, because if this were normal sending patients home with 30 darvocet to get through would be flat out sadistic and he just doesn't strike me as a sadistic sort. He agreed. Even elastic waistbands are still painful and I cannot wear my more fitted clothes at all because of swelling. Also not normal. But the pain and the swelling are both imrpoving on their own, so we'll watch it a while longer. I'm to call him back in a week if I'm not improved enough to go without vicoden. I just want to be able to roll over in bed again! meanwhile, I've seen the hematologist. She thinks the wonky, roller-coaster elevated platelet count is part of the whole auto-immune inflammation thing. sigh. And she added an IGG to my labs for her, to see if low immunoglobulins have resolved with being off Enbrel or if we'll need to keep that in consideration. And saw my RD - we're waiting until my next appointment to decide where to go DMARD-wise, after he gets the report from the hematologist and, hopefully, I'm fully recovered from this biopsy. Back last June the GI guy postulated that the lymph node inflammation might be related to the psoriasis and PA and we seem to be back there again. But there's still no explanation for me not absorbing protein on Enbrel. I'm getting really tired of being mysterious or, as my RD put it, "really interesting". For now, I'm trying to wrap up the growing season in my vegetable garden, but bending over hurts! blast, blast, blast. If I'd had any idea my body was going to rebel like this, they would have had a real battle talking me into the biopsy.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Wouldn't you know that "when it rains, it pours"! {{{{Nann}}}} Nanny > Well, the pain from the laparoscopic biopsy is easing, but still requires > pain meds and there are still things I cannot do. I saw the surgeon again [quoted text clipped - 37 lines] > into > the biopsy. Oh Nann, I am sorry to hear you still suffering like this. I sure hope it get more speedy and goes away totally. I feel for you and you are still in my prayers. SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. > Well, the pain from the laparoscopic biopsy is easing, but still requires > pain meds and there are still things I cannot do. I saw the surgeon again [quoted text clipped - 37 lines] > into > the biopsy. {{{{{Nann}}}}} DeeTee > Well, the pain from the laparoscopic biopsy is easing, but still requires > pain meds and there are still things I cannot do. I saw the surgeon again [quoted text clipped - 37 lines] > into > the biopsy. (((((((((((((((((((((nann)))))))))))))))))) ohhh, bummer, hon. i just hope and pray that you feel better soon and that they figure it all out soon for you. in hindsight, it might well be that your subconscious intuition was putting up red flags about this current physically painful situation being the possible result. but, it is so difficult to ascertain the meaning of strong negative reactions, in advance of an event, because our emotions and rationalizations get in the way. well, for me that's the case anyway. hang in there, sweetie. kate Well, the pain from the laparoscopic biopsy is easing, but still requires pain meds and there are still things I cannot do. I saw the surgeon again today and he kept saying, "this is NOT normal." I said I'd figured as much, because if this were normal sending patients home with 30 darvocet to get through would be flat out sadistic and he just doesn't strike me as a sadistic sort. He agreed. Even elastic waistbands are still painful and I cannot wear my more fitted clothes at all because of swelling. Also not normal. But the pain and the swelling are both imrpoving on their own, so we'll watch it a while longer. I'm to call him back in a week if I'm not improved enough to go without vicoden. I just want to be able to roll over in bed again! meanwhile, I've seen the hematologist. She thinks the wonky, roller-coaster elevated platelet count is part of the whole auto-immune inflammation thing. sigh. And she added an IGG to my labs for her, to see if low immunoglobulins have resolved with being off Enbrel or if we'll need to keep that in consideration. And saw my RD - we're waiting until my next appointment to decide where to go DMARD-wise, after he gets the report from the hematologist and, hopefully, I'm fully recovered from this biopsy. Back last June the GI guy postulated that the lymph node inflammation might be related to the psoriasis and PA and we seem to be back there again. But there's still no explanation for me not absorbing protein on Enbrel. I'm getting really tired of being mysterious or, as my RD put it, "really interesting". For now, I'm trying to wrap up the growing season in my vegetable garden, but bending over hurts! blast, blast, blast. If I'd had any idea my body was going to rebel like this, they would have had a real battle talking me into the biopsy. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > (((((((((((((((((((((nann)))))))))))))))))) ohhh, bummer, hon. i just hope > and pray that you feel better soon and that they figure it all out soon for > you. Thank you - both to Kate and to everyone else. My frustration tolerance is pretty much gone right now. Even Mike had lost a week in there somewhere and understood my frustration more when he realized yesterday was post-op day 19, not 12 as he thought! Supposedly driving was to be ok after 5 days but I didn't dare drive even a couple of blocks around here until yesterday (day 19). Until then, the pain on certain common, movements, even with pain meds, was so severe I would have run the car off the road if I just turned a tad the wrong way. Even now, I don't really want to drive much and I admit to some relief when Mike said he'd take me into town for my dentist appt. tomorrw. The whole, supposed, muscle inflammation and spasm IS improving, but just so very slowly. Oh, and yesterday i woke with a rash around the two more painful sites. I decided to hope it was just a reaction to Sore-No-More; I put some on before going out to the garden a bit on our very warm and humid Monday (probably our last day like that for 7 months). It seemed to worsen before imrpoving, but was much better today. Whew! It had me worrying about a hidden infection for a bit. Now the psoriasis is trying to destroy a thumbnail and a toenail. (where's KJ for toenail inspection?) It isn't too bad elsewhere at the moment, but if we don't start a DMARD next month, I will have to get quite serious about treating these nails. Those years of having the psoriasis in remission were so very lovely...... > in hindsight, it might well be that your subconscious intuition was putting > up red flags about this current physically painful situation being the > possible result. That's what I keep thinking. I couldn't come up with ANY reason that I was so reluctant to do the biopsy, not even reason to explain the strength of my feelings. I decided to ride it out though with the knowledge that it wasn't fear of seriuos mishaps or complications that were driving the reluctance. The last 3 weeks have been truly sufficient to explain it though. I'm going with my subconscious knowing my body would react abnormally to the whole thing. but, it is so difficult to ascertain the meaning of strong > negative reactions, in advance of an event, because our emotions and > rationalizations get in the way. well, for me that's the case anyway. yup, and who would have come up with a specific complication of laparoscopy that is pretty much unknown? With no testing available to support our theory of what's going on, I geuss this part won't be a journal article though. I did help some in the further education of a relatively young surgeon though. ;-) Can you see the faces the next time they want to cut on my abdomen and I'm begging for a real incision over laparoscopy? heehee SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare I sneezed - twice - this morning without doubling over in pain!!!!! I've been doing everything possible to avoid sneezes because they've been so painful since the "procedure". I never dreamed it could be so exciting to sneeze! LOL Still hurts to bend over, but the severity is lessening. I may even feel decent by our diocesan convention (an Episcopalian thing) next week. This is a nice thing to brighten a dreary, rainy day. Made a large rice bag (2 lbs of rice) yesterday to speed healing int he affected area. Other compress solutions have been problematic, but I didn't feel up to making the rice bag until yesterday. With fall settling in outdoors, I threw in several whole cloves for scent. Makes me think of fruitcake and spiced cider every time I nuke it! heehee SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >I sneezed - twice - this morning without doubling over in pain!!!!! I've > been doing everything possible to avoid sneezes because they've been so [quoted text clipped - 12 lines] > outdoors, I threw in several whole cloves for scent. Makes me think of > fruitcake and spiced cider every time I nuke it! heehee :-) Keep on keepen on Nann. aaah, hot spiced cider,, that does bring back a memory or two. I can almost smell it. Harv nann, i just can't believe what a rough road this has been for you! something really went kaflooey. it sounds like you've turned a corner, though, and i hope that improvement continues. lucky you have mike to help you out. diane I sneezed - twice - this morning without doubling over in pain!!!!! I've been doing everything possible to avoid sneezes because they've been so painful since the "procedure". I never dreamed it could be so exciting to sneeze! LOL Still hurts to bend over, but the severity is lessening. I may even feel decent by our diocesan convention (an Episcopalian thing) next week. This is a nice thing to brighten a dreary, rainy day. Made a large rice bag (2 lbs of rice) yesterday to speed healing int he affected area. Other compress solutions have been problematic, but I didn't feel up to making the rice bag until yesterday. With fall settling in outdoors, I threw in several whole cloves for scent. Makes me think of fruitcake and spiced cider every time I nuke it! heehee SignatureNann oh, owies! sneezing sound helacious for you. ((((((((((((nann)))))))))) well, here's hoping healing is picking up its pace for you! boy, you've been through a lot with this post-op stuff! did your rice bag help you, sweetie? if you had mentioned adding nutmeg, i probably would have started craving pumpkin bread!LOL (btw, your use of cloves in it just reminded me! i have to make another of my own homemade batches of a kind of carpet fresh using freshly ground cloves and baking soda. i love the smell it leaves behind in the carpet, once vacuumed, and the furbaby smell it gets rid of.<smile>) feel better soon, hon. kate remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > did your rice bag help you, sweetie? if you had mentioned adding nutmeg, i > probably would have started craving pumpkin bread!LOL (btw, your use of > cloves in it just reminded me! i have to make another of my own homemade > batches of a kind of carpet fresh using freshly ground cloves and baking > soda. i love the smell it leaves behind in the carpet, once vacuumed, and > the furbaby smell it gets rid of.<smile>) hmmm, we periodically use the Arm & Hammer carpet stuff with "Pet Hair Release" to help clean up Puddin's shedding, but it does smell like baking soda rather strongly. Maybe I should try adding some spices. Hadn't thought of that before. Speaking of spices, I made "Middle Eastern Style Spaghetti Squash" for a pot-luck today. Cardamom, coriander, ginger, allspice and white pepper in the squash. Yummmy. Found some good spaghetti squash recipes on the internet which is fortunate as our plants were prolific again this year. Of course, I think I'll have to get Mike to help me get the spaghetti and butternut squash indoors as bending over to pick them up ain't working so well right now. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Nann, I sure hope you are doing better now. I can only imagine the frustration you have had to deal with, with all this going on. Oh that is not good with the rash. I hope it went away again. It just doesn't seem fair when everything starts to act up at once like now with your psoriasis acting up more again. You take care and hang in there. I can see that you are really a very strong person though. I don't think I would have made it thru all you have. SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. > >> (((((((((((((((((((((nann)))))))))))))))))) ohhh, bummer, hon. i just [quoted text clipped - 72 lines] > Can you see the faces the next time they want to cut on my abdomen and I'm > begging for a real incision over laparoscopy? heehee The rash is clearing up nicely, thank goodness. It's time for something to go right! On the other hand, I seem to have flared things up again by, of all things, dust-mopping under the bed Friday. My sinuses were telling me it needed doing and bending over was going well enough that I thought it was ok. The combo of bending and mopping (or Swiffer-ing, to be more precise) apparently was too much for the muscles. Then I foolishly tried to lay on my left side in bed this morning. sigh......... I've really been hitting the Vicodin again today. When I check in with the surgeon tomorrow, I think I'll suggest following up with my closer-to-us PCP and see if physical therapy or any other kinds of treatments might help. I'm getting close to losing it, even with mega-support from Mike and Puddin'. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > Nann, > [quoted text clipped - 8 lines] > You take care and hang in there. I can see that you are really a very strong > person though. I don't think I would have made it thru all you have. Hang in there, Sweetie! DeeTee . It's time for something to > go right! On the other hand, I seem to have flared things up again by, of > all things, dust-mopping under the bed Friday. My sinuses were telling me [quoted text clipped - 29 lines] >> strong >> person though. I don't think I would have made it thru all you have. Nann, prayers will continue for you to heal completely so that you can do the things you need or want to do without causing you more problems. You also have had more than your share lately and it really is time for that to stop (I'm sure you agree). Lean on that support from Mike and Puddin'; they'll get you through. Gwen > The rash is clearing up nicely, thank goodness. It's time for something > to [quoted text clipped - 31 lines] >> strong >> person though. I don't think I would have made it thru all you have. Glad to hear the rash is clearing up Nann, I am happy for you with that. Shame on you for making yourself flare with the mopping. I know how it is though, ;-) I know with the sinus stuff you have to get that stuff out of there. I do the same thing. I sure hope something works out for you and soon. I feel for you and my heart goes out to you on all this. I can imagine you getting close to losing it, most anyone would at this point. SignatureLove and Hugs to all Jo the squirrely one I am nuts about you. > The rash is clearing up nicely, thank goodness. It's time for something > to [quoted text clipped - 15 lines] > I'm > getting close to losing it, even with mega-support from Mike and Puddin'. This really isn't suppose to be happening nann. Wish they would get to the bottom of it for you. Sending you gentle hugs and encouragement. Kelly > Well, the pain from the laparoscopic biopsy is easing, but still requires > pain meds and there are still things I cannot do. I saw the surgeon again [quoted text clipped - 37 lines] > into > the biopsy. You're in my prayers, Nann. May the pain soon be completely gone. Gwen > Well, the pain from the laparoscopic biopsy is easing, but still requires > pain meds and there are still things I cannot do. I saw the surgeon again [quoted text clipped - 37 lines] > into > the biopsy. > Well, the pain from the laparoscopic biopsy is easing, but still requires > pain meds and there are still things I cannot do. I saw the surgeon again [quoted text clipped - 37 lines] > into > the biopsy. Sending gentle hugs an virtual chocolate. Adelle |
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