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Medical Forum / Diseases and Disorders / Arthritis / October 2007

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Vit. D LEVELS

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johnie - 25 Sep 2007 20:10 GMT
Noticing that several of us are coming up short on the D side lately I
am real curious how widespread this has become. It is up in the Fibro
group also.
If you are having to supplement Vit. D because of low labs please
check in here.
What was going on that sent you or your Dr. looking in this direction.
thanks...

D-less in the desert,
johnie
california_chief - 25 Sep 2007 21:32 GMT
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
> group also.

vitamin D - One of several vitamins having antirachitic activity.  The
vitamin D group, whic is fat-soluble, includes D2 (calciferol), D3
(irradiated 7-dehydrocholesterol, D4 (irradiated 22-dihydroergosterol, and
D5 (irradiated dehydrositosterol).  It is essential in calcium and
phosphorus metabolism; consequently, it is required for normal development
of bones and teeth.  A deficiency of vitamin D causes imperfect skeletal
formation, rickets, and caries.

rickets - A disease of bone formation in children, most commonly the result
of vitamin D deficiency, marked by inadeequate mineralization of developing
cartilage and newly formed bone, causing abnormalities in the shape,
structure, and strength of the skeleton.  This condition may be prevented by
exposure to ultraviolet light (sunlight or artificial light) and
administration of vitamin D in quantities that provide 400 I.U. of vitamin D
activity per day.  Vitamin D deficiency disease in adults is know as
osteomalacia.
EDTIOLOGY:   Rickets has many causes, including diseases that affect vitamin
D or phosphorus intake, absorption and metabolism; renal tubular disorders;
and diseases in which the child is chronically acidotic, among others.

> If you are having to supplement Vit. D because of low labs please
> check in here.
> What was going on that sent you or your Dr. looking in this direction.

My rheumatologist thought a calcium supplement along with a DMARD would be
beneficial.  He suggested a calcium-vitamin D combination.  I also get 12 or
more 5-minute exposures to sunlight (depending on the seasons) when I take a
break from this keyboard.  <g>

... I bring you these 15.....oops.....CRASH.....10 commandments.
sweetpickleNO@SPAMknology.net - 25 Sep 2007 22:08 GMT
Dr. Saway didn't tell me why he decided to check my Vit D, but when he sent
me to the lab, that was included.
Gwen

>> Noticing that several of us are coming up short on the D side lately I
>> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 38 lines]
>
> ... I bring you these 15.....oops.....CRASH.....10 commandments.
Nann Bell - 25 Sep 2007 22:45 GMT
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 6 lines]
> D-less in the desert,
> johnie

I was tested last spring because of the extreme fatigue I've been battling
and life around the 45th parallel is conducive to coming up short on D.  I
was taking 1000IU/day at the time in my multi-vit and calcium pills.  I came
up short on one of the 3 scales in the labs and he had me increase it by
another 200 IU/day.  Of course, we were also getting into the good natural D
season up here so I can't really report until next winter.

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Nann
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Adelle - 26 Sep 2007 00:13 GMT
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 6 lines]
> D-less in the desert,
> johnie

My pain and fatigue levels weren't improving with treatment for my RA. They
were also increasing over the course of the day, so he ordered the blood
test, and sure nuff, the level was low. Eight weeks of a mega supplement
fixed it. That was 18 months ago. Hasn't been an issue since.

Adelle
d'huit - 26 Sep 2007 00:15 GMT
Noticing that several of us are coming up short on the D side lately I
am real curious how widespread this has become. It is up in the Fibro
group also.
If you are having to supplement Vit. D because of low labs please
check in here.
What was going on that sent you or your Dr. looking in this direction.
thanks...

D-less in the desert,
johnie

what was going on was the low impact shattering of my wrist and the ulnar
break near my elbow and the porosity of my bones.  my hand surgeon called my
rd and had her run tests on me for vit.d deficiency.  (up here in the great
northwest, vit. d deficiency is common.)  labs turned out very low and i was
put on 10,000 i.u. vit.d. daily for a time.

kate
jofirey - 26 Sep 2007 02:15 GMT
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 17 lines]
>
> kate

I'm starting to wonder if somehow calcium supplements are causing the
vitamin D deficiency.  Is it possible that extra calcium is binding up
vitamin D and taking calcium alone "uses up" the vitamin D in your system?

Either that or the doctors are suddenly testing D levels because they can.

Jo
Joan Carter - 26 Sep 2007 03:18 GMT
>I'm starting to wonder if somehow calcium supplements are causing the
>vitamin D deficiency.  Is it possible that extra calcium is binding up
>vitamin D and taking calcium alone "uses up" the vitamin D in your system?

Jo, Vitamin D is necessary for the uptake of Calcium.

>Either that or the doctors are suddenly testing D levels because they can.

Doctors have tended to ignore the need for Vitamin D. Years ago
my mother was put on Calcium and not Vit. D. I told her at that
time that she ought to be taking Vit. D as well, had her doctor
not told her that? However, she was one of those who thought the
doctors were gods, and a mere nurse knew nothing. Researchers
have suggested that up to 4,000 I.U. if Vitamin D is necessary. I
take 1,000 I.U. in summer and 2,000 in winter.  I'll see if I can
find the information on D.

I have never had my D level tested. What they do know now is that
the recommended daily dose of 400 I.U. is not sufficient, and I
think it was even lower in the states.

Joan
Joan Carter - 26 Sep 2007 03:32 GMT
>I'm starting to wonder if somehow calcium supplements are causing the
>vitamin D deficiency.  Is it possible that extra calcium is binding up
>vitamin D and taking calcium alone "uses up" the vitamin D in your system?
>
>Either that or the doctors are suddenly testing D levels because they can.

Jo, try looking up Vitamin D and Dr. Reinhold Vieth and Vitamin D
and Dr. Ashton Embry. The latter has backed off on his suggestion
of up to 4,000 I.U. daily due to risk of toxicity. Embry is
really big on diet and supplements. His son has MS and he was
saying that diet and supplements was causing him to do well. As
those of us with MS know, it can be good one day and bad the next
practically, a lot like arthritis.

Vieth is now suggesting 1,500 I.U. per day. My rheumatologist
said the 2,000 I.U. I take in winter is safe. Guess it depends on
who you talk to. I see my neuro tomorrow for my annual visit,
must ask him.

At the moment we still have summer weather, it was 30 degrees
today and lots of sun. Too hot to be outside for long, but I
still manage some sun. I have been able to be out for most days
if it is not the hot part of the day. By the way, our temps are
in Celsius, that translates to around 90 F. :-)

Joan
sweetpickleNO@SPAMknology.net - 26 Sep 2007 19:34 GMT
Joan, I'm glad you explained the difference between C & F temperatures.  I
was shaking my head at 30 degrees being hot!
Gwen

>>I'm starting to wonder if somehow calcium supplements are causing the
>>vitamin D deficiency.  Is it possible that extra calcium is binding up
[quoted text clipped - 22 lines]
>
> Joan
Alice Faber - 26 Sep 2007 04:10 GMT
> I'm starting to wonder if somehow calcium supplements are causing the
> vitamin D deficiency.  Is it possible that extra calcium is binding up
> vitamin D and taking calcium alone "uses up" the vitamin D in your system?
>
> Either that or the doctors are suddenly testing D levels because they can.

It's the law of unintended consequences at work. It used to be thought
that sufficient exposure to sunlight would allow the body to synthesize
all of the vitamin D it needs. But now that people are being told to use
sunscreen on any body part that might be exposed to the sun, even for a
few minutes, that synthesis doesn't take place.

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"[xxx] has very definite opinions, and does not suffer fools lightly.
This, apparently, upsets the fools."
    ---BB cuts to the pith of a flame-fest

jofirey - 26 Sep 2007 04:42 GMT
>> I'm starting to wonder if somehow calcium supplements are causing the
>> vitamin D deficiency.  Is it possible that extra calcium is binding up
[quoted text clipped - 9 lines]
> sunscreen on any body part that might be exposed to the sun, even for a
> few minutes, that synthesis doesn't take place.

I really don't know.  I don't know anyone who is that faithful with the
sunscreen.  Of course some women have sunscreen in their makeup but that is
just the face.

I do know that for me, I do not need to dump any more chemicals into my
gastro-intestinal tract.  But I've made a point of getting at least fifteen
minutes of sun every day that I possibly can for years.

I sort of have to plan it into my day, because I pretty sun intolerant and
can't sunbathe or spend a long time in the mid day sun or I get sun
poisoning.  Thankfully in northern California I can get enough sun before
11am or after 2 pm to keep a slight tan and keep feeling OK.

Jo
d'huit - 27 Sep 2007 04:59 GMT
<.gentle snip>

I'm starting to wonder if somehow calcium supplements are causing the
vitamin D deficiency.  Is it possible that extra calcium is binding up
vitamin D and taking calcium alone "uses up" the vitamin D in your system?

Either that or the doctors are suddenly testing D levels because they can.

Jo

i'm not sure what the exact answers are to those questions.  however, my
thought for the first question is that it seems unlikely to me.  (i think it
is more likely that taking calcium supplements is causing more cases of
kidney stones than once was the statistical norm.)  lifestyles have changed
dramatically, in the past 40 years.  the young are more indoor oriented,
what with computer games, tv and such and thus more prone to deficiency;
the elderly and the handicapped (except golfers<g>) generally spend more
time indoors.  more jobs are mainly indoors now, too, making people more
prone to it.

my thought for your second question is that vitamin d is necessary for
absorption, so the calcium taken alone simply would not be absorbed if there
was no available vit. d present.  but, what you are positing is possible.

as to the more widespread testing, i suspect that is because the largest
generation in this nation's history is entering the stage in life where
osteoporosis becomes a serious health issue (although, i did know a 12 year
old boy in the ortho wards, back in '71, who had an extreemly severe case of
osteoporosis and non-unions as a result.).

roughly about 10 years ago, i had a chiropractor take some xrays of my
spine.  at the time she mentioned that i might have some degree of
osteopenia, also stated that xrays show only about 75% of whatever damage is
actually occurring.   that prompted me to do some information gathering
about osteoporosis.  so, this is old information and may or may not have
been disproven since.

i stumbled upon what was pressumed to be fact, based upon research studies
back then, that certain foods and beverages we consume bind to the calcium
in our bones and remove it through our cleansing processes--things like
carbonated beverages, almonds (which i'd never give up--my favs!) and
assorted other very common things i can no longer recall.

i'm thinking, if this info is accurate, then it hurts those industries'
bottom lines, so the information has been somewhat hushed up, because i
rarely hear it mentioned.  but these common foods and beverages could be
also contributing to the seemingly sudden awareness of
osteopenia/osteoporosis and more testing for bone density and vit. d
deficiencies and the push to consume more calcium and vit. d.

kate
Alice Faber - 26 Sep 2007 00:32 GMT
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 5 lines]
>
> D-less in the desert,

I think there must have been an HMO directive of some sort. A friend of
mine with recalcitrant joint pains was just found to be massively
deficient. My GP ordered the test for me at about the same time. My
results were OK, with the level of supplementation I'd arrived at on my
own, so I didn't get the loading dose, though I was told to keep up with
what I'm doing.

Signature

"[xxx] has very definite opinions, and does not suffer fools lightly.
This, apparently, upsets the fools."
    ---BB cuts to the pith of a flame-fest

Duckie - 26 Sep 2007 01:46 GMT
Because of the pred and my post menapausal age, I have been taking
calcium but the last 9 months the RD specially asked about extra D and
I added it back then. Now I can say yes to him when he asks. So no
test to my knowledge save the bone density which shows osteopenia.
Duckie

> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 6 lines]
> D-less in the desert,
> johnie
ANN M - 26 Sep 2007 01:58 GMT
I'm on D therapy for a specific problem not related to my RA.  It's a
very high level of Parathyroid Hormone Intact and a low level of two of
the D vitamins.  I take paricalcitol (1 MCG) every day and twice a week
take 50,000 int'l units of ergocalciferol.  The vitamin C levels
continue to be fine which is curious.   As a side effect,  my latest
bone scan showed a huge improvement over a year ago.

Ann
nanny - 27 Sep 2007 16:20 GMT
johnie, Michael Baugh brought up the subject several times over the years
about shortages of Vitamin D and how important it was to get it checked out.
Probably a lot of us "shrugged it off" (as I did).  Then, in the last year,
with bone scans ordered for both my mother and me, it was found that we're
both deficient in Vitamin D and that she has Osteoporosis as well.  We are
both on prescribed Vit. D supplements now, and I'm studying the list of
foods rich in this vitamin.  Nanny
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 6 lines]
> D-less in the desert,
> johnie
Kate - 04 Oct 2007 02:17 GMT
> Noticing that several of us are coming up short on the D side lately I
> am real curious how widespread this has become. It is up in the Fibro
[quoted text clipped - 6 lines]
> D-less in the desert,
> johnie

Taking 50,000IU Vit D weekly cuz of osteoporosis not responding to
calcium supplemetns alone...could it be the new meds doing this?
Enbrel, hunmira etc? Kate-ps off to Disneyworld for the week! can't
wait for that Tower of terror- my fav and the Blue Man Group
 
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