Medical Forum / Diseases and Disorders / Arthritis / September 2007
Someone talk me down of this one
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jofirey - 04 Sep 2007 07:07 GMT Sometimes we get into discussions of handicap parking permits. When they can or should be used, their miss use etc. And the fact that often you cannot readily see why someone is disabled.
I always try to at least mentally give them the benefit of the doubt. Many people have problems I don't see, but really would not want to share.
But yesterday we parked next to a Big ole pick-up truck that had handicap plates. One of those with the king cab that can be such a bitch to climb into and out of if you are physically in good shape.
I couldn't get into one of those trucks or back out anymore even with help. Nothing in the truck bed indicated it ever carried any special equipment.
So what disability am I not thinking of that allows you to run around in a big ole truck with oversize wheels but can't park out a few spaces.
Jo
Carole - 04 Sep 2007 07:51 GMT > Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you > cannot readily see why someone is disabled. Well, I would need a ladder to get into one of those because of the arthritis in my knees, but if my knees were fine, the congestive heart failure entitles me to a disabled permit since I can only walk short distances. So that could be it.
Carole
Carole - 04 Sep 2007 17:35 GMT PS I actually had someone tell me once that I didn't "look disabled". Thankfully, since I was a teacher, I have a number of "looks" that always worked on students. So I used one of those, looked at her straight in the face and said "And exactly what does severe congestive heart failure look like?" And with that, I walked away :-)
Carole
Joan Carter - 04 Sep 2007 22:19 GMT >PS >I actually had someone tell me once that I didn't "look disabled". >Thankfully, since I was a teacher, I have a number of "looks" that >always worked on students. So I used one of those, looked at her >straight in the face and said "And exactly what does severe congestive >heart failure look like?" And with that, I walked away :-) That's beautiful, Carole, well said. Wish I had been there to see her reaction.
My sister was talking about a seeing eye dog, that wears a muzzle when around others, (dental office) and she said she would prefer to see some people wear muzzles rather than dogs. I sort of have to agree. :-)
Lee O. - 05 Sep 2007 00:35 GMT I have a few aches and pains from OA, but do not use the placard for that. I use it to get my Senior Companion clients as close to the stores and doctor offices as possible. They need all the help they can get.
Carole - 05 Sep 2007 02:07 GMT > That's beautiful, Carole, well said. Wish I had been there to see > her reaction. Hopefully, she will never judge another person again. If I accomplished that, then I'm happy :))
> My sister was talking about a seeing eye dog, that wears a muzzle > when around others, (dental office) and she said she would prefer > to see some people wear muzzles rather than dogs. I sort of have > to agree. :-) Yea, or a nice piece of duct tape :-)))))
Carole
spodosaurus - 04 Sep 2007 07:59 GMT > Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you [quoted text clipped - 14 lines] > > Jo Someone who ended up with a disability and cannot afford to replace their vehicle? Someone with heart problems? Someone undergoing long term chemotherapy? The list is quite long.
Ari
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Leslie & The Furbabies in MO. - 04 Sep 2007 14:54 GMT I *love* driving big four wheel drive trucks! It's total murder getting in and out of them, but it's my little way of thumbing my nose at OA, RA, FMS and PPS. I also have a step installed on them so I can slowly and carefully climb in and out of them. But once I make it inside the cab I'm free and flashy and "normal" for a while. Sadly, my last big Dodge 4 door, four wheel drive with the hemi engine (11 miles per gallon on the 04 model but the newer hemi's get much better mileage) had to be traded off on a puny little truck- a Chevy Colorado. My heart still aches for that Dodge..... and getting in and out of the puny truck still isn't all that easy, either.
Leslie- 4 months out on my new hip and still with a fair amount of muscle pain, constantly swelling leg and foot and an icky limp but determined to get past that, too!
> Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you [quoted text clipped - 15 lines] > > Jo jofirey - 04 Sep 2007 21:15 GMT >I *love* driving big four wheel drive trucks! It's total murder getting in >and out of them, but it's my little way of thumbing my nose at OA, RA, FMS [quoted text clipped - 10 lines] > pain, constantly swelling leg and foot and an icky limp but determined to > get past that, too! Thank you all. Like I say, I try to give others the benefit of the doubt that I expect. But I was having trouble with this one. (Not like I would do or say anything to them) I just needed help with my irritation level.
I gotta remember people thinner than me with OK knees can still have problems I don't see. Or still be hanging on to what they can, when they can.
Jo
Cindy - 05 Sep 2007 14:09 GMT Jo, we are only human and irritable happens...It is nice to come here, ask and vent and get help with a nagging question ;) instead of voicing that frustration on others... Yep...we are all in this together, and sometimes hanging on to anything normal is what gets us through the day... Hugs Cindy
> Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you [quoted text clipped - 15 lines] > > Jo debbie m - 05 Sep 2007 22:30 GMT Jo,
I know i've thought the same thing at times. However, I have fibro and I don't "look" disabled. There have been times I was aching all over, but no one would have known it by the way I carried myself. As an example I have come the place where I can not take care of my disabled daughter by myself anymore (after 30 years). My pain level had skyrocketed. When I ask for help at the day program gettting her in and out of the car the director said, "But you look so good. We didn't realize you needed help."
Anyway, I guess what I am trying to say is we just don't know unless we are really in their body. At least you gave them the benefit of the doubt.
debbie m.
> Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you [quoted text clipped - 14 lines] > > Jo DeeTee and Bob Taggart - 06 Sep 2007 04:34 GMT Easy - it was a mental handicap.
The other person
> Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you [quoted text clipped - 15 lines] > > Jo d'huit - 06 Sep 2007 08:51 GMT Sometimes we get into discussions of handicap parking permits. When they can or should be used, their miss use etc. And the fact that often you cannot readily see why someone is disabled.
I always try to at least mentally give them the benefit of the doubt. Many people have problems I don't see, but really would not want to share.
But yesterday we parked next to a Big ole pick-up truck that had handicap plates. One of those with the king cab that can be such a bitch to climb into and out of if you are physically in good shape.
I couldn't get into one of those trucks or back out anymore even with help. Nothing in the truck bed indicated it ever carried any special equipment.
So what disability am I not thinking of that allows you to run around in a big ole truck with oversize wheels but can't park out a few spaces.
Jo
i've read yours and all the other replies. by now, i suspect you are already "talked down out of this one", sweetie. at least, i hope so. hey, and everybody (not just disabled people) is allowed to get a teensy bit cranky once in awhile. i know i sure do and so does my son.
i read all these responses, because i've been looking for the common thread that makes people think others are not disabled. i know it's not an obvious visual common thread, because i can't tell you how many times i've had people question me about my parking in handicapped spaces--me, with a clearly visible parking permit and limp and cane (most of the time). and how many, many times i've heard people tell me how strong i am--when my bod is outrageously acting up, but i don't want to bother anybody with that fact and don't ask for help. or when something catastrophic happens in my life and my insides are churning and mental overwhelm hits, or i can't get a handle on my emotions inside to cope well enough to suit me, and still don't ask for help.
and why don't i ask?--probably because i sort of know/believe/think that even though things might be permanent, in the physical sense, many/most are also temporary in the mental and emotional sense. (by that i mean riding out whatever it is, until the mental and emotional changes; and it usually does.) and too, possibly because i know that adapting has been my way of life, since 1971--so, maybe i'm self-deluded and think/believe i can adapt to/handle anything.<g> that's not totally true, i just don't do what i know i can't do (but i do try doing what i haven't convinced myself yet that i can't do, too). and btw, i may not ask for it often, but i do sooooo gratefully accept help, so it is not my being too proud. i don't think.<smile>
i think i may have found the common thread to why people have a hard time accepting that others are disabled, even though they may not look disabled--i think it's 'tude--an unintentionally deceptive attitude, made apparent by body english (demeanor and facial expression) or by what is said or not said. i'm thinking . . . it's kind of like the difference between experiencing the same horrible thing as somebody else, where one of you winds up living like a victim and the other doesn't. soooo, maybe many "normal" and disabled people expect disabled people to have the demeanor (bearing and behaviors) and speech patterns of a victim.--not sure about that being exactly correct, but it sounds plausible (as one of many possible sets of expectations). y'think? but i think i'm saying, it's about expectations not being met, or someone not fitting the expectations of what others think disabled looks/sounds/seems like. more than just stereotypical expectations, though.
ok, all done for now, cuz my brain hurts. i think i sprained my brain by using it too much on this.LOL i'll leave the finishing of my incomplete thinking to the rest of you guys.
kate
jofirey - 06 Sep 2007 16:01 GMT > Sometimes we get into discussions of handicap parking permits. When they > can or should be used, their miss use etc. And the fact that often you [quoted text clipped - 78 lines] > > kate You 'splained it pretty good Lucy.
People, including us, expect disabled people to look and moreover act a certain way.
Disabled people will, if they can, do anything and everything at their disposal not to look and act that way. As much for our own mental well being as for pride.
Another perspective, I used to complain when I hurt. I don't anymore. It doesn't make me feel any better anyway, and it allows me to focus on pain I'm better off emotionally to ignore.
I'm seeing my RD this afternoon. Her nurse will do a pain assessment along with the weight and pulse and blood pressure. I've been known to burst into tears at that point from keeping it bottled up. Still I think I'm better off if that genie spends most of its time in the bottle.
Jo
(I'll save the Robert Frost poetry for another day. A Place Apart)
d'huit - 06 Sep 2007 21:21 GMT <gentle snip>
> Jo > [quoted text clipped - 59 lines] > > kate You 'splained it pretty good Lucy.
**LOL! my brother used to call me that! only, he meant lucy van pelt, of the charlie brown comic strip, because my logic and his didn't quite jive.LOL
People, including us, expect disabled people to look and moreover act a certain way.
Disabled people will, if they can, do anything and everything at their disposal not to look and act that way. As much for our own mental well being as for pride.
Another perspective, I used to complain when I hurt. I don't anymore. It doesn't make me feel any better anyway, and it allows me to focus on pain I'm better off emotionally to ignore.
***i hear that. we all deal with pain in our own way, whatever works best for us. when i'm hurting most, i tend to look for things to do for myself that will help make my bod feel better. and when that fails, i tend to look for things to laugh about, even my own pain if i can make an absurd mental picture of it or an absurd characture of myself and of what it is causing me to do at that moment.
I'm seeing my RD this afternoon. Her nurse will do a pain assessment along with the weight and pulse and blood pressure. I've been known to burst into tears at that point from keeping it bottled up. Still I think I'm better off if that genie spends most of its time in the bottle.
***(((((((((((((((((((jo)))))))))))))))) oh dear. i'm dismayed that happens to you like that. that genie sounds toooo intense! maybe it's not the right bottle? meaning, maybe there's another/better way, for you, to suppress it? i'm not saying you haven't tried a million other ways. but maybe there's a million and one ways? don't give up trying to find what really helps you most, jo. hang in there, sweetie.
kate
Jo
(I'll save the Robert Frost poetry for another day. A Place Apart)
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