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Medical Forum / Diseases and Disorders / Arthritis / August 2007

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shenmei9wise@gmail.com - 14 Aug 2007 01:23 GMT
So guys, here's the deal.  I have a new house.  It is in the santa
cruz mountains on two beautiful acres.  We have a little B&B that is
very accessible.  We have been booked solid since Mid June and are
starting to have free time.  Any of you on this coast want a free
vacation in Santa Cruz?  Kate, Joe, Elena, Caroline and John, Jo and
Jim, come spend a few days vacationing.

Slight update:  Megan is slightly better thanks to non allopathic
treatment and I just can't even talk about it any more than that.

I have a new daughter type person.  She is slightly older than most of
my girls have been but i have know her since she was 15.  She was on
her own then and got into a situation that turned into domestic
violence.  I found this huge house thinking meg was moving here (she
has since changed her mind) and extricated Ola from the situation she
was in.  She is a wonderful young woman and we get along famously
being Aquarius, scorpio, taurus, as well as tigers.  We live
smashingly well together.  Now if I can just figure out a way to make
enough money to support us <g>

I am recovering from the knee injury and have new extremely expensive
health insurance.

I am so sorry I have been out of touch but I have barely managed to
pull off any of this and keep up with Megan's healthcare needs, Ola's
stuff, my health, and moving (no easy move, this, as I sold most of my
four bedroom houseful of furniture when i left redwood street).  we
had to completely furnish a five bedroom house and a B&B on a very
limited budget.

so that's the haps-email me or call and come visit when you can

m
sweetpickleNO@SPAMknology.net - 14 Aug 2007 03:16 GMT
Thank you so much for the update!  Sounds as if you have been extremely busy
with so many things to do and look after.  Glad there is some improvement
for Megan and that you are recovering from the knee injury.  Seems as if it
has been forever, huh?
Hope you and Ola won't have to work too hard to handle the B&B.  Who does
the cooking?  Pray it will be very successful and you'll make lots of money
on it so you won't have to worry about needing income (but do you ever have
enough).  Moving is always a big job, and having to furnish the house & B&B
had to make it even harder.  But it sounds like a beautiful place and one
that you will enjoy.
Hope you will be able to post more often now.  BTW, how is Logan doing now?
Gwen

> So guys, here's the deal.  I have a new house.  It is in the santa
> cruz mountains on two beautiful acres.  We have a little B&B that is
[quoted text clipped - 29 lines]
>
> m
DeeTee and Bob Taggart - 14 Aug 2007 15:43 GMT
Piggy-backing on Gwen's post here...if we ever get to California, we'd love
to stay at your B&B. However, who knows when or if we'll ever travel again.
I'm pretty worn out right now - just had the last chemo. So maybe in a year
or two...we'll see.

I'm really happy that you've got something you wanted. It was about time for
you to get something nice! Have fun doing the B&B thing.

DeeTee

> Thank you so much for the update!  Sounds as if you have been extremely
> busy with so many things to do and look after.  Glad there is some
[quoted text clipped - 43 lines]
>>
>> m
shenmei9wise@gmail.com - 14 Aug 2007 16:08 GMT
I will go back and google (I have really not even had time to lurk)
how you are doing DeeTee.  I have to tell you, I am so glad we did the
bracelet thing-I never have mine off and It has kept me feeling
connected to you even when I haven't had a clue as to what was
happening.  When you are in remission, I think I am going to do take
this one off and change it for a bracelet that just say friends on one
side and prayer on the other.  It is amazing to me that having a
symbol on ones wrist could keep me so connected.

I'll google for updates-

m

> > Thank you so much for the update!  Sounds as if you have been extremely
> > busy with so many things to do and look after.  Glad there is some
[quoted text clipped - 45 lines]
>
> >> m
d'huit - 16 Aug 2007 03:22 GMT
I will go back and google (I have really not even had time to lurk)
how you are doing DeeTee.  I have to tell you, I am so glad we did the
bracelet thing-I never have mine off and It has kept me feeling
connected to you even when I haven't had a clue as to what was
happening.  When you are in remission, I think I am going to do take
this one off and change it for a bracelet that just say friends on one
side and prayer on the other.  It is amazing to me that having a
symbol on ones wrist could keep me so connected.

I'll google for updates-

m

you know what surprises me?  i was just thinking, on monday, how i felt the
same exact way about the bracelet you sent that i wear 24/7 for deetee and a
ring a friend of mine (younger sister to my friend of 40 years who died of
breast cancer two months after butch passed away) gave me last year.  i wore
her ring 24/7 since i found out, last month, she had to have breast biopsies
done in both breasts on the 9th.  the ring just seemed to call to me to wear
it, like it was saying "stay close" (and there were a few times i'm glad i
heard/felt that.).  the relief on monday was, "benign masses" in both her
breasts' biopsies.  it felt lovely to remove the ring, on monday, with happy
thoughts; and now, to be able to wear it anytime, with more happy thoughts,
is way cool.  i look at the bracelet and feel -- that's going to be what
happens with the bracelet, too.

kate

> > Thank you so much for the update!  Sounds as if you have been extremely
> > busy with so many things to do and look after.  Glad there is some
[quoted text clipped - 47 lines]
>
> >> m
shenmei9wise@gmail.com - 15 Aug 2007 16:01 GMT
Hi Gwen,
Ola cooks!  We actually do a continental breakfast and do things like
fruit salad, homemade jams, yogurt and homemade granola and whatever
major thing she decides to bake which might be scones or muffins.  We
deliver a little basket each morning to your door .  This morning it
is hot blackberry scones with blackberry jam (from our own
blackberries), a fresh  fruit salad, yogurt, organic fresh roasted
coffee.  We are just going to go until end of october which is
basically the season here and we'll start again in April.  we have a
visiting professor who will move in for November until April 15th.

I am not planning on injuring myself again, that is for sure.  Those
days of fracturing something and having it totally healed in two
weeks, are behind me (as you well know!).  The problem is that once
again I found that I had to take pred just to keep going and five
months later, I have another 30 lbs  I so do not do well with that
drug.  i don't even go through the appetite thing.  I eat my normal
good zonish type diet (which doesn't include the Scones <g>) and still
gain weight.  I am down to 2 mg. medrol every other day so hopefully
will be able to start dropping a few pounds soon.  It is such a double
whammy-if i am on pred, I am probably not working out.  well, I can
spend the winter watching the rain and walking on my treadmill and
trying to shed those pounds.  I'll tell you, Gwen, if someone had told
me even six years ago that i would have been thrilled to reach 210 and
that 200 would be my dream weight, I would have thought they were
nuts.  The major thing about this disease is that I will never again
be guilty of vanity!

ah well....So how are you?  How is your heart?
sweetpickleNO@SPAMknology.net - 15 Aug 2007 19:51 GMT
Melinda, just can't tell you how nice it is to see you posting!  We really
do miss you, lady, when you're not around.
My heart is doing fine as far as I can tell.  The little machine by my bed
checks it out ever so often and so far, so good.  Having more problems with
my lungs than my heart now.  Have to sleep with oxygen (and have the tube
imprint on my face every morning) and the doctor gave me a prescription this
week for a humidifier
to be added as the oxygen alone is drying me out too much and I wake up with
a sore throat and very dry mouth every morning.  I'll have another CT scan
in two months to compare with the one 4 months ago to see what the fibrosis
is doing.  I am very pleased with the pulmonologist I changed to; he is much
more agressive than the first one I had.  I have to thank my cardiologist
for suggesting I get a second opinion--he's the one who discovered the lung
problem in the first place (bless him).
I really hated being tied down for so long with my broken ankle but I am so
glad now that my orthopedist was so careful that I had plenty of time to
heal.  He reminded me of my age when I would get in a hurry.  My ankle never
swells and never hurts.
Vanity---what's that?  I lost 25 pounds during my hospital stays and being
so sick.  My skin is just hanging all over me and I look haggard. Only my
face is beginning to look fuller, but as of Sept. 1st I'll be down to 2 mg
of pred a day for a month, then down to 1 a day after that.  Again I don't
have any clothes that fit!
Your continental breakfast sounds wonderful, especially the scones and
blackberry jam.  Reminds me of picking blackberries when we lived on a farm.
I ate as many as I took to the house, and they were so good.  I usually
ended up with lots of scratches though.
My very best to you, Megan, Logan and Ola  - and the professor!
Love ya!  Gwen

in message news:1187190069.018820.98380@i13g2000prf.googlegroups.com...
> Hi Gwen,
> Ola cooks!  We actually do a continental breakfast and do things like
[quoted text clipped - 25 lines]
>
> ah well....So how are you?  How is your heart?
Nann Bell - 20 Aug 2007 05:44 GMT
> Hi Gwen,
> Ola cooks!  We actually do a continental breakfast and do things like
[quoted text clipped - 4 lines]
> blackberries), a fresh  fruit salad, yogurt, organic fresh roasted
> coffee.  

Ok, that does it - if Mike and I make it to the bay area in 2009 as we've
talked about doing (long tale there), we'll simply have to try booking a room
with you.  that's just the kind of breakfast we can get into (just no diary
for me - i have a true milk allergy).

> I am not planning on injuring myself again, that is for sure.  

please, please please do not injure yourself, stick with that determination!

and keep taking care of Megan.  both of you are in my prayers.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

california_chief - 14 Aug 2007 05:19 GMT
M wrote:

> We have a little B&B that is very accessible.  We have been
> booked solid since Mid June and are starting to have free time.
> Any of you on this coast want a free vacation in Santa Cruz?
> Kate, Joe, Elena, Caroline and John, Jo and Jim, come spend a
> few days vacationing.

Ohhhhhhh, tempting.   Mary and I will be in San Jose in early
October for a dance festival, then thinking of traveling a week.
I'd love to stop at Felton for the steam trains.  <g>
shenmei9wise@gmail.com - 15 Aug 2007 15:03 GMT
Joe,
it would be great to see you and Mary in October.  We are about three
miles from felton.  I know we have are booked from the 6th-13th of
October but that is our only booking so far in october. Our house
though, has a guest bedroom so there is a place for you to stay no
matter what.  When you get a little better idea as to what your
schedule is, let me know.

m
Duckie - 14 Aug 2007 07:44 GMT
John left this morning [and then sat in the SF airport for 5 hours
until they finally decided they should just get another plane] for
Idaho to go paddling. Called me to tell me he finally made and then
called again about an hour later to say the river had been closed due
to forest fire. So he and four girls from the paddling club back east
are there with their fingers crossed that they are going to make it on
to some river.  Anyway, I digress...  We have just moved as well and
it sounds like you are living in boxes like we are.
I will send this along to his email and ask when he gets back to town.
Sounds like it would be nice.
I have been tapped to babysit Noah for the first week of school and
then Jen still gets her time off save for that week. They have finally
found a sub and did that today - wee late on that front. I had him for
about 5 hours today while Jen tried to put her room back in shape and
he slept only a tiny bit the whole time he was here. Reminds me of his
mother. He turned 10 weeks old today and weighs 9 lb 9oz so he is
getting there.
Take care of yourself.
Duckie

On Aug 13, 5:23 pm, shenmei9w...@gmail.com wrote:
> So guys, here's the deal.  I have a new house.  It is in the santa
> cruz mountains on two beautiful acres.  We have a little B&B that is
[quoted text clipped - 29 lines]
>
> m
california_chief - 14 Aug 2007 15:53 GMT
> John left this morning [and then sat in the SF airport for 5 hours
> until they finally decided they should just get another plane] for
> Idaho to go paddling. Called me to tell me he finally made and then
> called again about an hour later to say the river had been closed
> due to forest fire.

Wildfires Flare in Idaho
Monday, August 13, 2007      16:30 MDT
The conditions are bad, fire fighters are exhausted but the fires rage on in
http://www.2news.tv/news/9135086.html

Fire Continues to Threaten Several Mountain Towns
Monday, August 13, 2007       21:22 MDT
Fire managers tackling the East Zone Complex say there aren't enough
resources to suppress all these fires.
http://www.2news.tv/news/9141251.html
Duckie - 16 Aug 2007 02:50 GMT
Chief he called today and says their stuff is still stuck in the lower
put in and it can't be flown out. They are lucky as some left the day
before and have been forbidden to put in but are having to camp out
while they wait.  The guides and the stuff [oars, pdas, canoes, etc]
are stuff with all the food for 30 people for the week. Turns out that
the forest fighters are running out of food so the guides are cooking
and serving the men when they come in for a break. Guess that turns
out for the best in the overall picture. Sure hope the forest service
will pay them back for that but who knows.
In the meantime, John and the girls have made their way to McCall [?]
and settled into hotel there. John and another have scouted out the
rivers near by and rented canoes for 4. The canoe place has loaned
them paddles, pdfs, and their van to get the stuff to and fro.  So
they plan on heading out tomorrow and finally get in some paddling. No
guides you understand -- hence the river scouting.
Thanks for the links. Watched the weather channel for 1/2 hour on
Monday and they didn't so much as mention any fires.
Duckie

On Aug 14, 7:53 am, "california_chief"
<Fire_Chief@Jamacha_Junction_FD.ca.us> wrote:

> > John left this morning [and then sat in the SF airport for 5 hours
> > until they finally decided they should just get another plane] for
[quoted text clipped - 10 lines]
> Fire managers tackling the East Zone Complex say there aren't enough
> resources to suppress all these fires.http://www.2news.tv/news/9141251.html
Nann Bell - 20 Aug 2007 01:28 GMT
> Chief he called today and says their stuff is still stuck in the lower
> put in and it can't be flown out. They are lucky as some left the day
> before and have been forbidden to put in but are having to camp out
> while they wait.  

Grim.  We've been wanting to head up to this great waterfall in the U.P. that
we love (Tahquamenon Falls if anyone wants to google it - it's one of our
favorites and we've seen MANY waterfalls).  There's a large wildfire in the
vicinity of the park though - even at the best we'd be coping with lots of
smoke, don't want to think about the worst.  Hopefully it will finally rain
in northern Michigan and the UP next week.  It's insanely dry here while they
flood even more in Texas.  Sure wish this weather would even out some.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Squirrely - 14 Aug 2007 22:23 GMT
Glad you checked in M, I was so worried about you. Glad you got another
house. I  wish you luck with the B&B.

Glad to hear Megan is doing slightly better. Congrats on the new daughter.

I hope you can get the financial problems taken care of and have money to
live off.

It sure sounds like you have been busy. I hope you are recovering from the
knee injury with no more problemss.

You take care and know that you are thought of always.

Signature

Love and Hugs to all
Jo the squirrely one

> So guys, here's the deal.  I have a new house.  It is in the santa
> cruz mountains on two beautiful acres.  We have a little B&B that is
[quoted text clipped - 29 lines]
>
> m
d'huit - 16 Aug 2007 02:53 GMT
ouuuu . . . the santa cruz mountains . . .  you got lucky, on that score,
huh?<smile>  i've always loved the santa cruz mountains.  sounds like lots
of elbow room and fresh air.

also sounds like it's been very stressful for you, in terms of energy and
financial expenditure, hon.  i wish it didn't have to be that way for you.
i'm pleased to hear your knee injury is getting better and that megan
finally has some improvement happening.  and glad to hear that ola is such a
good match for you and your life.  how cool that she was blest to have you
to rescue her and is a blessing to you at the same time.

why do we, many of us, always seem to apologize for being out of touch, when
each of us only has just so much time and energy to squish everything in our
lives into?  so, cut that out.<whispered gently>

when you are all settled in, maybe late this fall or early winter, i'll get
a chance to finally meet you, missy m.

it's lovely to know you are still hanging in there and filling your corner
of the world with your goodness.  thank you for making the time to fill us
in.

kate

So guys, here's the deal.  I have a new house.  It is in the santa
cruz mountains on two beautiful acres.  We have a little B&B that is
very accessible.  We have been booked solid since Mid June and are
starting to have free time.  Any of you on this coast want a free
vacation in Santa Cruz?  Kate, Joe, Elena, Caroline and John, Jo and
Jim, come spend a few days vacationing.

Slight update:  Megan is slightly better thanks to non allopathic
treatment and I just can't even talk about it any more than that.

I have a new daughter type person.  She is slightly older than most of
my girls have been but i have know her since she was 15.  She was on
her own then and got into a situation that turned into domestic
violence.  I found this huge house thinking meg was moving here (she
has since changed her mind) and extricated Ola from the situation she
was in.  She is a wonderful young woman and we get along famously
being Aquarius, scorpio, taurus, as well as tigers.  We live
smashingly well together.  Now if I can just figure out a way to make
enough money to support us <g>

I am recovering from the knee injury and have new extremely expensive
health insurance.

I am so sorry I have been out of touch but I have barely managed to
pull off any of this and keep up with Megan's healthcare needs, Ola's
stuff, my health, and moving (no easy move, this, as I sold most of my
four bedroom houseful of furniture when i left redwood street).  we
had to completely furnish a five bedroom house and a B&B on a very
limited budget.

so that's the haps-email me or call and come visit when you can

m
shenmei9wise@gmail.com - 16 Aug 2007 03:19 GMT
Kate,
come now!  I am known for being impatient!  We have tons of room, tons
of bathrooms, beauty beyond and a perfect little place for you to come
to...

It is so amazing, weatherwise.  we got to sit out for all those
amazing meteor nights and have the sky clear and the nights warm,
something completely alien to santa cruz in the summer and yet we are
20 minutes from the beach.

Get that ticket-we'll pick you up at SF, I have an extra car, all your
friends from here can come visit and it is restful.. I have a
treatment room at the house and I can stick lots of needles in you.
come on, you haven't had a better offer than this, have you?

m
d'huit - 16 Aug 2007 04:56 GMT
" . . . and I can stick lots of needles in you.
come on, you haven't had a better offer than this, have you?" ROTFLMBDO!!!
i think you are being sincere, but . . . it does sound a bit dissuasive,
don't you think?LOL  lucky for you/me, i'm not afraid of needles.LOL<i'm
still cracking up>  that was hilariously well-worded!  and irresistable,
missy m.<smile>  btw, that wasn't impatient--that was sweet!

i wish i could go now!  i'd drop everything in a new york minute, if i
thought i could.  i'm tied up through october 1st, sweetie.  eye tests,
mamos, 2 birthdays, a wedding; and an upcoming weekend of supervising 2
nephews and my son (the only weekend, for the next 4 months, that all 3
adult cousins can get together to do this for me) using a rented bobcat--i
know where the engulfed field fences are supposed to be avoided or else have
to pay for a new rented bobcat brushhog (ouch!).

come and get all the free blackberries you want before the 26th--i've about
an acre of them that are going to be gone, if the guys can persuade the
berries with the bobcat.  need to level the playing field between my
wildness in wanting to live on my 3 acres and the wildness of encroaching
blackberries (couldn't even see two outbuildings nor my meditation aldar
grove, until last weekend and two nephews with flailing machetes.).

how 'bout i be there after that, if that's ok with you, with my christopher
moore books (i've been wanting to read), my cane and a huge smile that says,
"i made it! FINALLY!".

kate

Kate,
come now!  I am known for being impatient!  We have tons of room, tons
of bathrooms, beauty beyond and a perfect little place for you to come
to...

It is so amazing, weatherwise.  we got to sit out for all those
amazing meteor nights and have the sky clear and the nights warm,
something completely alien to santa cruz in the summer and yet we are
20 minutes from the beach.

Get that ticket-we'll pick you up at SF, I have an extra car, all your
friends from here can come visit and it is restful.. I have a
treatment room at the house and I can stick lots of needles in you.
come on, you haven't had a better offer than this, have you?

m
sweetpickleNO@SPAMknology.net - 16 Aug 2007 18:06 GMT
You ladies are making me wish I lived on the west coast!
Gwen

>" . . . and I can stick lots of needles in you.
> come on, you haven't had a better offer than this, have you?" ROTFLMBDO!!!
[quoted text clipped - 44 lines]
>
> m
Duckie - 17 Aug 2007 01:38 GMT
Now Melinda that is exactly what I need. Lost my A. at the first of
the year. She gave me another name and I went to him until my knee
surgery but I hated him. I actually do best with Japanese treatment --
less needles is better with me and NO massage and this guy just didn't
listen. So I haven't been back but keep asking more and more people if
they know someone I can see without driving north of SF. So far I have
had no luck. It has been since March and my body is screaming for some
treatment.
We are in Redwood City if you have any ideas.
We are heading to Mass to christen Noah in ??? September???  I sure
plan on making an appointment or two with Marty when we get back. But
in the meantime....
Duckie

.... I have a
> treatment room at the house and I can stick lots of needles in you.
> come on, you haven't had a better offer than this, have you?
>
> m
shenmei9wise@gmail.com - 17 Aug 2007 04:00 GMT
hi Caroline,
I know a few people in the city but no one on the penninsula.  I would
love to treat you-any possibliity you have a massage table at your
house? as soon as you get back, please come down and spend the night
and let me actually treat you.  You know, we could do a whole new kind
of gimpfest.  We could do a retreat and have massage and acupuncture
and all sorts of fun stuff-

serioulsy, I'll get you some referrals but they will probably be in SF
and anytime you can get here, I'll treat you.  I love the elegance of
Japanese acupuncture but like Korean even more-few needles but very
five elements (you find a constitutional strength and weakness and
treat for that while throwing in some meridian based needles.

Will need to look up some addresses and phone numbers but will get
back to you soon

m
Duckie - 20 Aug 2007 01:36 GMT
Good to know about Korean. I basically do best with set of four
putting my pulses back in order which in turn seems to make me overall
stronger and in little pain. Just peaked and looks like you an
firechief have written me at this account.  I will send you both the
California one.
Duckie
....
> serioulsy, I'll get you some referrals but they will probably be in SF
> and anytime you can get here, I'll treat you.  I love the elegance of
[quoted text clipped - 6 lines]
>
> m
Aim - 20 Aug 2007 21:17 GMT
As soon as T gets a new job and we're financially stable again, we are
SO there. I'm thinking November-ish...

Aim

> So guys, here's the deal.  I have a new house.  It is in the santa
> cruz mountains on two beautiful acres.  We have a little B&B that is
[quoted text clipped - 29 lines]
>
> m
 
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