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Medical Forum / Diseases and Disorders / Arthritis / July 2007lurking and/or MIA - me, that is
Life in these northern zones gets so busy in the summer! I have, of course, been quietly building a flare since getting completely off the vacation medrol. About a week ago the feet began kicking in and now the little toe on my left foot is tormenting me. That toe would have been about 50th on my list of joints I expected to flare and it has gone from fully behaved to fully flaring. By the time I see my RD on the 9th, he should be able to see some real activity, rather than going by notes from previous RDs. I had my blood drawn Friday - cross your fingers that *something* has changed with the enbrel on hold! Last week we took a 3 night, 2 day camping trip over to Sleeping Bear Dunes National Lakeshore. God must have approved of us doing this, as the first day was one of those blessed, mysterious good days for me. I was even collecting and carrying leftover firewood from sites a quarter mile away! We hiked a bit both days. I was at about half-flare on day 2, but we still managed the Dune Climb http://www.nps.gov/slbe/planyourvisit/dune_climb.htm in the earlye vening. Thought about going a bit further for a Lake Michigan view, but concluded after a bit that the sand was too deep and tiring. I was worrying about kicking in leg cramps from this all. Coming downhill was really fun though, even on your feet. You just sink down and down and down.... Back to full flare now though - hands, wrist, feet and rib cage. Couldn't handle buying a watermelon last Thursday, that's for sure! lol (they looked good, though!) I've been trying to catch up on weeding the garden since the Germany trip, but am only making dents. Now I'm flying down to Florida tomorrow to visit with my hometown and go to another reunion of my high school band. In the absence of a Gimpfest, this group is next best - similar level of laughing and acting up! Just a bit harder to keep up with, lol. When I get back, I'll be getting ready for the big V-J day commemoration here, as well as spending a half day to get to my RD appt. I'll try to report in on the RD visit, but otherwise will probably be MIA or just quickly lurking until mid-August. Prayers continue for all, esp. Joe, Leslie, Kiki, Diane and Diane's sister for recovery and for all of Adelle's family. May it be a good couple of weeks for all.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare nann, it was so good to see you back on asa today! your'e so missed, but it sounds like you have plenty going on, so we understand. I am floored you could do the kind of camping activity/hiking/dune climbing you did! wow! no wonder you're flaring. i hope you can get that under control soon. enjoy the rest of the summer. hugs, diane > nann, it was so good to see you back on asa today! your'e so missed, > but it sounds like you have plenty going on, so we understand. I am > floored you could do the kind of camping activity/hiking/dune climbing > you did! wow! no wonder you're flaring. i hope you can get that under > control soon. enjoy the rest of the summer. ummmmmmm, have I mentioned my stubborn streak lately? LOL Actually, for me - in fact, for both of us - camping and day hiking is as vital as paddling is to Mary Z. It's a spiritual refreshment/renewal type thing. The problem her is that Michigan parks are overwhelmingly designed to cram in as many RVs as possible, whereas we prefer more isolated tent sites and not having to pay for hokups we don't even use! We've tried, and rejected, most of the state parks. Have one or two we still like and this National Park and the township campground we ended up in were both quite nice. Mike is now 62 and just got the Senior Pass, so I think we'll return there a lot! I couldn't do it without Mike though. He knows we can only tent camp as long as he can handle the stakes and do most of the water fetching. And he does the driving (he's a lousy passenger, anyway!). We keep our meals simple and use a lot of teamwork in doing stuff. He usually gets the fire going. He's blessed to have someone who wants to camp as long as possible and I'm blessed to have someone who makes it possible for me to do what I no longer can alone. And we're both blessed that we have don't a meat cleaver in the house for me to cerry out some of the home amputations I've been threatening some of my joints with! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare ((((((((((((((((((((((nann)))))))))))))))))) i can sooo relate to the "meatcleaver urge". i think we are both most fortunate that we love ourselves too much to be that brutal to ourselves.<g> boy, any kind of foot pain is the pits. i always find it amazing how something as tiny as a toe can demand and command so much attention! my first thought, when you were talking about dunes, was ohhhhh . . . being buried in nice warm sand up to my chin would seem like heaven.LOL but walking on deep sand would be hell. you do have a busy calender, but it does sound like good medicine for you, sweetie. enjoy. kate On Sun, 29 Jul 2007 16:02:10 -0400, Diane wrote (in message <1185739330.631533.79000@z24g2000prh.googlegroups.com>): > nann, it was so good to see you back on asa today! your'e so missed, > but it sounds like you have plenty going on, so we understand. I am > floored you could do the kind of camping activity/hiking/dune climbing > you did! wow! no wonder you're flaring. i hope you can get that under > control soon. enjoy the rest of the summer. ummmmmmm, have I mentioned my stubborn streak lately? LOL Actually, for me - in fact, for both of us - camping and day hiking is as vital as paddling is to Mary Z. It's a spiritual refreshment/renewal type thing. The problem her is that Michigan parks are overwhelmingly designed to cram in as many RVs as possible, whereas we prefer more isolated tent sites and not having to pay for hokups we don't even use! We've tried, and rejected, most of the state parks. Have one or two we still like and this National Park and the township campground we ended up in were both quite nice. Mike is now 62 and just got the Senior Pass, so I think we'll return there a lot! I couldn't do it without Mike though. He knows we can only tent camp as long as he can handle the stakes and do most of the water fetching. And he does the driving (he's a lousy passenger, anyway!). We keep our meals simple and use a lot of teamwork in doing stuff. He usually gets the fire going. He's blessed to have someone who wants to camp as long as possible and I'm blessed to have someone who makes it possible for me to do what I no longer can alone. And we're both blessed that we have don't a meat cleaver in the house for me to cerry out some of the home amputations I've been threatening some of my joints with! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare I envy you the tenting Nann. Pat decided long ago it was no longer fun for him but even at the RA I continued for a long time camping once or twice a year with the kids at first and then my pathfinders (older girl guides). That is truly over now but I do miss it. In BC we have some incredible tenting spots that are reasonable. Might just have to try one more camp at one point with Kyle (5 year old nephew) but definitely not this year. We are having a "sleepover" in grama's condo next week - in a comfortable bed! He is sleeping on the floor in his inflatable airmattress sleeping bag. no bugs, no smoke! We might make smores in the microwave though! Kelly >> nann, it was so good to see you back on asa today! your'e so missed, >> but it sounds like you have plenty going on, so we understand. I am [quoted text clipped - 35 lines] > some > of my joints with! Safe travels to you Nann, and sure hope you get to feeling better real soon!!! Hope the trip is all you hope it to be and more!!! Hugs, Donna . . . . 1. ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2. J.K.M.A. Nann, sorry to hear the flaring going on you have been dealing with. I hope it soon goes away and gives you a break. the camping and all else that you do sounds awesome and I can't imagine how you do it. But am proud of you for doing it. I can see how strong you are with it all. have a safe trip there and back. take care. let us know how the rd appt goes and what he is going to do for you when you can. SignatureLove and Hugs to all Jo the squirrely one "Nann Bell" > Life in these northern zones gets so busy in the summer! I have, of > course, [quoted text clipped - 47 lines] > for recovery and for all of Adelle's family. May it be a good couple of > weeks for all.
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