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Medical Forum / Diseases and Disorders / Arthritis / July 2007

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Screaming Knees!

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decrepit1 - 25 Jul 2007 02:58 GMT
Hi, I am very new to this support group stuff, I have never joined
before, but thought I would give it a try. I feel like I am constantly
whining about pain, but am trying to maintain my life with some
dignity! It is just like in the TV commercials, 57, but feel like 107!
I have recently been to the RA doctor, and she took me off diclofenac,
and on mass doses of Tylenol. The tylenol does not seem to work at
all! I have just today heard of Arthrotec. Anyone take this? I was
taken of the dyclofenac for minor stomach upset, and I think this
would help that, and want to go on something more than the tylenol,
for now I feel crippled. I have OA in my knees, feet, ankles, and
spine. The worst is the knees, and it is screaming  pain to try and
walk or step off a curb. I had x rays today so they can compare old
ones from 4 years ago. Is it just me being a whiner, or is OA really
this painful? I feel right now like my whole being is hurting! I am
thinking of a cane, cause sometimes it feels like my knee is giving
out on me and I stumble, is this also part of OA? Please advise, and
thanks for listening.
Harvey R. Stone - 25 Jul 2007 03:28 GMT
Hi Bonita,    Welcome to ASA where everyone here does a little whining
every now and then.   Did the RD say that you have OA?   Take X-rays and
knows who much damage there is in your knees.  Here is a site with a great
deal of OA information.
http://web.archive.org/web/*/http://home.gci.net/~cushman4/oa-gcs.htm

I have misplaced DrDocs web site.   I hope someone else will post it for
you.

Harv

<BonitaHamilton@gmail.com> wrote in message
news:1185328700.695550.3460@z24g2000prh.googlegroups.com...
> Hi, I am very new to this support group stuff, I have never joined
> before, but thought I would give it a try. I feel like I am constantly
[quoted text clipped - 13 lines]
> out on me and I stumble, is this also part of OA? Please advise, and
> thanks for listening.
sweetpickleNO@SPAMknology.net - 25 Jul 2007 03:31 GMT
Hi decrepit1.  Yeah, I know, that's what you feel like you are!  Yes, OA can
really be very painful.  And I cannot imagine the RD putting you just on big
doses of tylenol.  I tried Arthrotec but could not take it.  My OA affected
my right hip more than anything else and I had it replaced; I could hardly
walk it hurt so bad, so I really feel for you.  A cane would not be a bad
idea at all; it should help you keep your balance and help you get all the
weight off your knee and keep you from stumbling so much.
When do you go back to see the doctor?  Hopefully it will be very soon and
you can get a report on the xrays made today.  If you feel like whining,
just go right ahead and whine.  Many of us have used the group for that.
You just have to let go at times, and we do understand your pain.  You must
make your doctor understand your pain also; insist that she give you
something for it.  And do let us hear how things go, please.
Gwen

> Hi, I am very new to this support group stuff, I have never joined
> before, but thought I would give it a try. I feel like I am constantly
[quoted text clipped - 13 lines]
> out on me and I stumble, is this also part of OA? Please advise, and
> thanks for listening.
Kelly - 25 Jul 2007 04:14 GMT
As well as a rheumatologist (which is the rd you saw) you need a good
physiotherapist and an occupational therapist to help you along.  See if you
have an Arthritis Self Management Program put on by peers of the Arthritis
Society.  you won't believe how much difference pain management and joint
management will make.  Yes this might mean a cane or walker for a bit until
your muscles build up or until a joint replacement if needed on those hips.
It could be your doctor is waiting to see the results of the tests before
putting you on another med.  Do mention arthrotec - it does work for some.
others might benefit more from naproxen and a stomach protector.
Unfortunately it is a trial and error thing to begin with - many
anti-inflammatories with some working different on some people.

The physio will assess how you are walking and if you need some modalities
(which could be  equipment they have or as simple as ice or heat), include
some exercises to help your balance, gait, build up muscles.  She will make
recommendations to you (Could be a he - sorry).

The occupational therapist will assist you in ways to do things different,
maybe splinting.  For example - instead of bending over they may suggest a
reacher.  Different ways of getting out of a chair (high firm cushion -
scooting to edge of chair, levering out), different ways to protect your
joints - ie:  strengthening larger muscles to help protect, getting out of
cars differently (sideways with legs then levering out), perhaps orthotics
to correct the way you are standing and walking in shoes.  They are
invaluable to me.

A site on the internet that is helpful to me is www.arthritis.ca   Hit the
tab on the top called living well and follow some of the links.  If you add
this information to a book called the Arthritis Self Help Book by James
Fries (a mandatory book in my opinion for everyone with arthritis) you have
a starting point.  this site also has the information on ASMP - the
Arthritis Self Management program I told you.

Feel free to whine here - lots of help.  I have given you a start but there
is more assistance but don't want to overwhelm you.  There is a way out of
the pain cycle you are in - and you have started it.  The cane would be an
excellent idea if properly set up with a physio.  They would show you how to
use it properly, whether it should be that or a walker to start, and set it
to the right height.  With the information coming from the rd you are on the
road.

You can handle this - but feel free to whine and gather information.  In the
meantime your age, occupation etc would be of help - that way someone can
help even further.  we have people of all ages here; with families; without;
with jobs; without; in pain; in control of their pain; out of pain; and with
multiple problems and only one or two joints.  It is all arthritis under
many many many names from RA to OA to gout, to tennis elbow.  I met a woman
with washer woman's complaint - the technical name escapes me at the moment.
Same complaint - pain and how do I manage it.  She is in a treatment plan
and has gathered her team now and would like to be back at work by October.
On her way.

So welcome.  Our hot tub seems to be out of order at the moment and the
bartender in our little virtual club is now on a med that doesn't allow him
to drink so he is a little slow making the margaritas.  One of our member
drops by occasionally with a few jokes to lighten our pain and we often talk
of our families and lives - makes the pain more reasonal when we have
support.

Check out the one link and when you are ready for another let me know.  That
link also has some of the osteo meds but depending on your age and whether
it is inflammatory your rheumatologist may drift into a different tack.
hang in there and see what the xrays say.

by the way you didn't mention - are you in the states?  That sometimes
differs as to how the medical system works.

Take care - and welcome.

Kelly in BC
> Hi decrepit1.  Yeah, I know, that's what you feel like you are!  Yes, OA
> can really be very painful.  And I cannot imagine the RD putting you just
[quoted text clipped - 28 lines]
>> out on me and I stumble, is this also part of OA? Please advise, and
>> thanks for listening.
Joan Carter - 25 Jul 2007 23:45 GMT
>Is it just me being a whiner, or is OA really
>this painful? I feel right now like my whole being is hurting! I am
>thinking of a cane, cause sometimes it feels like my knee is giving
>out on me and I stumble, is this also part of OA? Please advise, and
>thanks for listening.

My right knee is screaming in sync with yours. If you listen
carefully you can hear it. Yes, it hurts. I take extra strength
Tylenol for it, eases it a bit. Have you tried ice or heat? It is
good you are having another X-ray to compare with the other. That
should tell your doctor something. And feel free to whine away,
we all do it from time to time.

Joan
Donna G. - 26 Jul 2007 04:23 GMT
No, you are not being a whiner!

Most definitely OA can hurt and cause pretty substantial pain!  When you
are in a lot of pain, it's hard to concentrate on much else.   And, yes,
when you are in that much pain, you tend to walk differently and that
can throw off your center of balance.  Using a cane might be a good idea
for now, until they figure out what is going on with that knee.

Sometimes x-rays will show the problem, and other times an MRI is
needed.  

Use ice or heat to see if that does give you some relief.  Like others
have said, there are many different types of anti-inflammatories out
there that work well for different people, so don't give up.  It may
also be that you might need something a little stronger for the pain, so
talk to your doctors about that.

As the others have said, it is good to strengthen the muscles as much as
possible, so look into some physical therapy and occupational therapy
and work hard at it.  

Hang in there, come back here for support and to keep us updated as to
how you are doing, and best of luck to you!!!

By the way, what state or area of the world are you in?   Perhaps
someone here could help you locate doctors or facilities to help you out
a bit!

Donna
.
.
.
.
1.   ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......

2.    J.K.M.A.
Alix - 28 Jul 2007 13:34 GMT
Whining is acceptable--we all do it from time to time--glad your RD is
looking into things--

Signature

Be at peace,

Alix

Be humble. Trust always and a great deal in divine Providence; never never
must you let yourselves be discouraged, despite contrary winds. - Saint
Pauline of the Agonizing Heart of Jesus (1865-1942)

Nann Bell - 29 Jul 2007 13:41 GMT
Hiya!  

as others have said - OA can definitely hurt that much and you may well have
significant degeneration in that knee now.  That can cause all the other
troubles you mention.  My mom actually looked bow-legged before her knee
replacement because of how it broke down.  She was in such bad shape, she
asked for physical therapy pre-op to strengthen the muscles she'd barely been
using.

Arthrotec is a good/bad anti-inflammatory.  The additional medication in it
that is supposed to make it easier on your stomach actually *aggravates* the
stomach for many people.  I was one of those - arthrotec gave me horrible
stomach aches, diclofenac is fine.  There's no way of knowing which side
you'll be on without trying it.

The Xrays should tell your doc a lot about where to go from here.  Meanwhile,
there are other options for pain control.  Let your doc know the tylenol
isn't doing the job and ask what else can be donw for now.  And do consider
PT/OT as others have suggested.

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Nann
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