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Medical Forum / Diseases and Disorders / Arthritis / July 2007skin problem
Wondered if anyone has had this happen from taking Plaquenil (this what a phamacy told me). I am changing color and it is mostly noticable on my face. I have large area's of gray skin. Still have some pink at the hair line, nose, and a small area at the eyebrow..It is ugly and wonder if it will ever go away? I have an appointment with the RA doc the 18th. I feel like hiding! Gee, Connie, I have never heard of this before! Sure sounds unpleasant. I was on plaquinil for years and never had any problems with it! Sure hope things turn around for you, if it is the plaquinil. . . . . Donna . . . . 1. ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2. J.K.M.A. This is the 10th or 11th reply message, to a message I've never seen. > Gee, Connie, I have never heard of this before! Sure sounds unpleasant. > I was on plaquinil for years and never had any problems with it! > Sure hope things turn around for you, if it is the plaquinil. > Donna Original message was HTML from web tv. "Wondered if anyone has had this happen from taking Plaquenil (this what a phamacy told me). I am changing color and it is mostly noticable on my face. I have large area's of gray skin. Still have some pink at the hair line, nose, and a small area at the eyebrow..It is ugly and wonder if it will ever go away? I have an appointment with the RA doc the 18th. I feel like hiding!" > This is the 10th or 11th reply message, to a message I've never seen. > >> Gee, Connie, I have never heard of this before! Sure sounds unpleasant. >> I was on plaquinil for years and never had any problems with it! >> Sure hope things turn around for you, if it is the plaquinil. >> Donna I've been taking Plaquenil for a long time and never had a reaction like this. After reading your post, I went to MedLine and looked up the side affects listed and it does say possible a skin rash, but nothing like you describe. Ann Hi Joe, Here is the original post: skin problem Group: alt.support.arthritis Date: Fri, Jul 13, 2007, 2:59pm (EDT-2) From: JCArmijo Wondered if anyone has had this happen from taking Plaquenil (this what a phamacy told me). I am changing color and it is mostly noticable on my face. I have large area's of gray skin. Still have some pink at the hair line, nose, and a small area at the eyebrow..It is ugly and wonder if it will ever go away? I have an appointment with the RA doc the 18th. I feel like hiding! Connie "Donna G." > Hi Joe, > > Here is the original post: Thanks Donna. Much appreciated. >Wondered if anyone has had this happen from taking Plaquenil (this what >a phamacy told me). I am changing color and it is mostly noticable on my >face. I have large area's of gray skin. Still have some pink at the hair >line, nose, and a small area at the eyebrow..It is ugly and wonder if it >will ever go away? I have an appointment with the RA doc the 18th. I >feel like hiding! Do you take any mineral supplements? The only thing I know that causes skin greying such as you describe is colloidal silver. (Mind you I am not a doctor, just guessing here). I think of myself as one of the poster children for plaquenil. I have taken it off and on since 1972 (now off). I am sorry to hear of your problems. I can imagine how frustrated you must be! Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. No gold for me! I take Neutron, Imuran, Methotexate, garlic, fish oil, prenatal vitamin, calcium and folic acid (oh, yes vitaminC). I finally called a tri-care pharmacist and she said Plaquinil can get into the pigmentation cells. So I suppose this is unusual. I guess I need to see if the RA doc has had any other patients that has had this happen..I suppose the only docs that has sen it will know if it will go away..Thanks so much for everyones response..You are such a great group. I have been a lurker for years.. No gold for me! I take Neutron, Imuran, Methotexate, garlic, fish oil, prenatal vitamin, calcium and folic acid (oh, yes vitaminC). I finally called a tri-care pharmacist and she said Plaquinil can get into the pigmentation cells. So I suppose this is unusual. I guess I need to see if the RA doc has had any other patients that has had this happen..I suppose the only docs that has sen it will know if it will go away..Thanks so much for everyones response..You are such a great group. I have been a lurker for years.. ------------------------------------------------------------------------------ ~ Connie~ Thanks for the info Connie and your late on the coming out of hiding.:-) Harv I am old to this group (old as dirt). I remember the day of Larry and Char! Harv you have been here a long time also. Not to many old timers left..Take care and God Bless you all (sorry to be so politically uncorrect, but I am a rebel at heart!) Connie, It's good to see you pop in! It has been a very long time since we have seen you drop in and say hello. Stop by more often!!! Hugs, Donna . . . . 1. ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2. J.K.M.A. >I am old to this group (old as dirt). I remember the day of Larry and >Char! Harv you have been here a long time also. Not to many old timers >left..Take care and God Bless you all (sorry to be so politically >uncorrect, but I am a rebel at heart!) Now are you the Connie that lived on the house boat? If you are, you better tell us all about what has happened since we last heard from you. If you are not, a brief bio will do. LOL Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Connie, is this you? Canal Boat? I used to love to read your posts. Ann I loved your posts too if we have the right Connie. I remember when you sold the house, and bought and outfitted the boat. It was quite exciting. Gwen > Connie, is this you? Canal Boat? I used to love to read your posts. > > Ann Hi Gang, This is NOT Connie & Robert who are on the canal boat house. Entirely different Connie! . . . Donna . . . . 1. ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2. J.K.M.A. > Hi Gang, > > This is NOT Connie & Robert who are on the canal boat house. > > Entirely different Connie! > Donna and a most welcome Connie from the past never the less. Harv Sorry..How I wish I was the one living on a houseboat..I live in New Mexico.. Connie, please let us know what the doctor says after you see him. Ann I went to see the PA and found out I was suppose to be taking the Imuran once a day..I don't know who screwed up, but they and the bottle said to take it 3X a day. That maybe the reason the Plaquinil was able to get in the skin cells..I do believe my color is dimming a little.. Connie, Do you mind if I ask what dose of imuran you are on? I take imuran and take 100 mg twice a day, so it can be taken more than once a day. Actually, my RD said I could take it once a day, twice a day, or three times a day, what ever worked out best for me. . . . Donna . . . . 1. ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2. J.K.M.A. Donna, the dose was 50mg 3X a day. I have dieted and lost at least 25lbs and I think that made a difference in the dose. Glad to know I wasn't overdosed as much as I thought I had been. The doc said it can affect the lungs..so be careful.. Connie, The Imuran actually has much less chance of effecting the lungs than mtx does. When I got the interstital fibrosis from RA lung, my doctors pulled me off of the mtx and put me on high dose steroids and the imuran as imuran is one of the things that is supposed to help RA lung and its related problems. I have been on the imuran for years and never had a problem with it what so ever. Hope things turn around for you soon and what ever the skin issue is goes away! Best wishes!!! Donna . . . . 1. ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... 2. J.K.M.A. I am old to this group (old as dirt). I remember the day of Larry and Char! Harv you have been here a long time also. Not to many old timers left..Take care and God Bless you all (sorry to be so politically uncorrect, but I am a rebel at heart!) ------------------------------------------------------------------------------ ~ Connie~ When I was a young man,,,, I would of called you a sweetheart and politically be dammed. Harv >Wondered if anyone has had this happen from taking Plaquenil (this what >a phamacy told me). I am changing color and it is mostly noticable on my >face. I have large area's of gray skin. Still have some pink at the hair >line, nose, and a small area at the eyebrow..It is ugly and wonder if it >will ever go away? I have an appointment with the RA doc the 18th. I >feel like hiding! Hi, there, I did an internet search and found that gold can also cause the skin to turn gray. You would not also happen to be on gold, would you? http://health.yahoo.com/topic/arthritis/medications/drug/healthwise/d00250a1 Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. |
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