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Medical Forum / Diseases and Disorders / Arthritis / June 2007boniva
does anyone take this besides sally fields? I took it for 3 months and then quit. I am scared pea green of the stuff. I have osteoporsis besides ra, and have taken prednisone for the past 18 months. I know i need to take something for my bones as i flunked the bone density test. the main reason I am afraid of boniva besides it being a new drug and the fact I do not trust any thing that is advertized so much, it seems like an awful high dose and it gets in your body and i do not think it is eliminated at all like most drugs. several years ago I took fosamax daily and did ok until the doc.gave me a prescription for a once a week dose. after taking that for awhile I had a terrible reaction and ended up in the er with iv morphine. I drink a quart of non fat milk daily, but get no weight bearing exercise. Would appreciate any advice you good people can give. Shirlawn > does anyone take this besides sally fields? I took it for 3 months and > then quit. I am scared pea green of the stuff. I have osteoporsis > besides ra, and have taken prednisone for the past 18 months. Which only makes the osteoporosis worse. > I know i > need to take something for my bones as i flunked the bone density test. Get it dealt with ASAP. In 2005 I had more than a dozen stress and compression fractures because the doctors didn't believe that someone of my age and on my medication (and who was still walking and exercising) could have had so much skeletal damage. I'm 32 and now take Actonel weekly. > the main reason I am afraid of boniva besides it being a new drug and the > fact I do not trust any thing that is advertized so much, Worrying because of advertising is not rational. > it seems like an > awful high dose and it gets in your body and i do not think it is > eliminated at all like most drugs. Why do you say this? > several years ago I took fosamax daily > and did ok until the doc.gave me a prescription for a once a week dose. > after taking that for awhile I had a terrible reaction and ended up in the > er with iv morphine. Was it a different drug? What else changed? What reaction? This doesn't make much sense on its own. > I drink a quart of non fat milk daily, but get no > weight bearing exercise. Is the milk fortified with vitamin D? Calcium supplementation on its own does next to nothing. Even with vitamin D, it's unlikely to help. The prednisone will keep tearing down your bone density and the lack of exercise will make that happen much faster. You need to be on a prescription medication to get your bone density up and then you can start thinking about getting medical clearance for exercise. Otherwise, get ready to be welcomed into the world of stress and compression fractures (and possibly potentially fatal hip fractures). Ari  Signaturespammage trappage: remove the underscores to reply Many people around the world are waiting for a marrow transplant. Please volunteer to be a marrow donor and literally save someone's life: http://www.abmdr.org.au/ http://www.marrow.org/ I am on boniva. I think anyone with your health condition should be on something for the bones, no question. As far as advertising, well everthing you buy is advertised by one star or another. It is a ploy but works too. At least it gets your attention. I believe in using something for bone loss, whether it is boniva, fosomax, the IV biophos and or the nasal spray that helps. Can't think of the name of that right now. Taking oral calcium and milk and mild products just isn't enough when you have that much bone loss. Or on the border of bone loss janers I agree that the bone density stuff is so important. For Diane Witt that was one of the things that made treatment for her so tough. She had major bone loss that could not be reversed and caused major pain in the spine. I am struggling right now with the oral meds but managing to take the calcium, vitamin D and will go to the doctor in September to see about the nasal spray. If you are concerned about the boniva ask if you can tolerate fosomax or actonel. Either once a week or every day. Also if you can lift even cans of food (small tomato paste ones count) and do some weight training that will help incredibly. My mom reversed her osteo with weight training when walking good distances every day didn't do the trick. That was before even going on didrinol -spelled wrong I know. That reversed the last bit from osteopenia (low end) to normal bone density. At the age of 66 that was pretty incredible. Good luck. Kelly >I am on boniva. I think anyone with your health condition should be on > something for the bones, no question. [quoted text clipped - 10 lines] > > janers I was put on Fosomax daily at one time. Two weeks after I started, my right thumb started swelling and hurting. It never had before. I stopped the Fosomax and told my RD and my doctor what happened. They both said no, that the Fosomax had nothing to do with it. So I started back. Two weeks to the day I started back, it happened again the same way. I started reading on it, and one side effect was it could cause joint pain. And I agreed; it really could-and did. So I'll never take Fosomax again. I'll try something else if I need to, but not Fosomax. Gwen >I agree that the bone density stuff is so important. For Diane Witt that >was one of the things that made treatment for her so tough. She had major [quoted text clipped - 29 lines] >> >> janers gwen thanks for your info on fosamax. i'm sorry you have the lung thing. that must be miserable. during my lurking i caught something about you having something serious, but i didn't get all rhe details as between my slow computer and my sore hands i have many days that i do not have the computer on. i hope you are on your way to a full recovery. shirlawn thanks kelly. i will try the lifting cans thing. i have some dumbells starting at 3 lbs. i might even try them. shirlawn I've just had a bone density test requested by my pulmonologist, who also just put me on prednisone for my lung problems. I'm to take 4 mg every morning for a month, then 3 mg every morning for a month, then 2, and then finally just 1 every day. I don't like the idea, but every time he has anything checked the fibrosis is worse. Guess I just choose my poison. Gwen >> does anyone take this besides sally fields? I took it for 3 months and >> then quit. I am scared pea green of the stuff. I have osteoporsis [quoted text clipped - 44 lines] > > Ari > I've just had a bone density test requested by my pulmonologist, who also > just put me on prednisone for my lung problems. I'm to take 4 mg every [quoted text clipped - 3 lines] > is worse. Guess I just choose my poison. > Gwen Hi Gwen,,, I do not have fibrosis,,, I do have lungs lots of scar tissue that is not getting any better in my lungs... It is why I will not be trying Methx again to control my RA. It is why when tested my oxygen level in my blood stream is low on a good day or time and gets used up quickly, no matter how hard I work to get in better shape. Most of my damage is from 25 or 30 years of two or more packs of cigs a day. My,,, my ,,, I could not afford to smoke today. I think I had a small amount of damage from Methx in my lungs but my RA needed to be controlled also and I have to live with what is left. Harv Harv, my pulmonologist had an overnight oxygen test done on me and discovered that my reading was under 90 and sometimes under 70 during the night. So now I am on oxygen when I am sleeping. Really has made me sleep better. Gwen >> I've just had a bone density test requested by my pulmonologist, who also >> just put me on prednisone for my lung problems. I'm to take 4 mg every [quoted text clipped - 14 lines] > controlled also and I have to live with what is left. > Harv > I've just had a bone density test requested by my pulmonologist, who also > just put me on prednisone for my lung problems. I'm to take 4 mg every [quoted text clipped - 3 lines] > worse. Guess I just choose my poison. > Gwen That's a relatively tiny dose. I wouldn't worry about bone density with that for that time period. Ari >>> does anyone take this besides sally fields? I took it for 3 months and >>> then quit. I am scared pea green of the stuff. I have osteoporsis [quoted text clipped - 39 lines] >> >> Ari Signaturespammage trappage: remove the underscores to reply Many people around the world are waiting for a marrow transplant. Please volunteer to be a marrow donor and literally save someone's life: http://www.abmdr.org.au/ http://www.marrow.org/ thanks ari. you are always the voice of reason. > it seems like an > awful high dose and it gets in your body and i do not think it is > eliminated at all like most drugs. Why do you say this? the doc told me boniva went right to the bones, so i assumed once i had it i would always have it. Was it a different drug? What else changed? What reaction? This doesn't make much sense on its own. no, it was fosamax but the once weekly instead of daily. the reaction i had was pain, very severe starting in my bladder area and slowly rising into my abdomen. it felt rather like muscle spasms internally. when the pain reached my chest then i had intermitant shooting pains down my arms. that felt like electric shocks. i do get plenty vit d as i am in the sun doing gardening and messing around in general outside. thanks for your interest and encouragement. i might just say to hell with it and take the pill. fosamax and boniva are the same drug according to the drug web site. shirlawn > thanks ari. you are always the voice of reason. LOL You haven't read enough of my posts...especially in misc.fitness.weights and other places when I take time to Troll periodically :) >> it seems like an >> awful high dose and it gets in your body and i do not think it is [quoted text clipped - 4 lines] > the doc told me boniva went right to the bones, so i assumed once i had it > i would always have it. I'll have to research its mechanism of action. If it's just another type of inorganic phosphate medication that helps the body with bone calcification then it's just like all of them - the molecules that help with the calcium binding are going to stay there with the calcium, just like in normal bone. > Was it a different drug? What else changed? What reaction? This doesn't > make much sense on its own. > > no, it was fosamax but the once weekly instead of daily. the reaction i > had was pain, very severe starting in my bladder area and slowly rising > into my abdomen. it felt rather like muscle spasms internally. I had something with similar symptoms with the fentanyl pain killer patch...except it affected skeletal muscle as well and started in my feet...during a time when I had half a dozen stress fractures there. Except with me, it started with the second patch (first patch primed me I guess). I wonder if the once weekly version had another active ingredient or an ingredient to allow it to be taken orally that you didn't get along with. It also may have reacted with another medication taken in close proximity (a few hours) of the dose...? > when the > pain reached my chest then i had intermitant shooting pains down my arms. > that felt like electric shocks. Yikes! With the fentanyl reaction the cramping hit my pelvic floor and abdominal and spinal muscles right up to my diaphragm, but it was more searingly painful than the terrifying experience you had...chest and arm pain would have been extremely scary. > i do get plenty vit d as i am in the sun doing gardening and messing > around in general outside. > > thanks for your interest and encouragement. i might just say to hell with > it and take the pill. fosamax and boniva are the same drug according to > the drug web site. shirlawn If so, then I'd take the first and second doses under medical supervision for a few hours given the severity of the reaction you've described above. Do not be on your own when you take it, just in case. A little caution in this case can save a lot of trouble/anxiety. Not alone for a few hours after the first two pills, please. Ari Signaturespammage trappage: remove the underscores to reply Many people around the world are waiting for a marrow transplant. Please volunteer to be a marrow donor and literally save someone's life: http://www.abmdr.org.au/ http://www.marrow.org/ If so, then I'd take the first and second doses under medical supervision for a few hours given the severity of the reaction you've described above. Do not be on your own when you take it, just in case. A little caution in this case can save a lot of trouble/anxiety. Not alone for a few hours after the first two pills, please. i'll wait until i can research more. there is a long article on boniva in rxlist.com i can't sit at the computer longer than 30 min. as my back gets to hurting. so i was going to print it and read it sitting in the recliner, but the printer wouldn't work. shirlawn I took 5 weekly doses of Fosamax and almost ended up in the ER, but toughed it out. It took about a month for my bowels to unlock. Actonel was starting to do the same thing, to a lesser degree. So far, I'm going without a bone-builder drug, despite being on pred 4mg/day. > does anyone take this besides sally fields? I took it for 3 months and > then quit. I am scared pea green of the stuff. I have osteoporsis [quoted text clipped - 10 lines] > > Would appreciate any advice you good people can give. Shirlawn thanks judy. yes, i have heard that i am not the only one that has reacted to fosamax. about all you can do is talk to your doc about getting off the pred as soon as possible. you didn't say if you have ra or something else, but if it is ra i hope you can take one of the disease modifying drugs. i take methotrexate 15 mg a week, and have been on it for most of 25 years.shirlawn I'm diagnosed with limited scleroderma and polymyositis. The pred dose is MUCH lower than at the begining of treatment. I'm also on mtx 10mg/week and Cellcept, plus blood pressure meds. > thanks judy. yes, i have heard that i am not the only one that has > reacted [quoted text clipped - 5 lines] > take methotrexate 15 mg a week, and have been on it for most of 25 > years.shirlawn > I took 5 weekly doses of Fosamax and almost ended up in the ER, > but toughed it out. It took about a month for my bowels to unlock. > Actonel was starting to do the same thing, to a lesser degree. I had horrible GI problems on Actonel, but - knocking on wood - I've had nothing but good luck with Fosamax. The secret to life? Just hang around until you get used to it. |
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