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Medical Forum / Diseases and Disorders / Arthritis / June 2007The Day After.....
I'm having a nice rest today. Spent yesterday at the Science Centre with my nephews - almost 4 hours on my feet, except for a couple snack breaks - whew! I started the anti-inflammitories as soon as I woke up and took them right through to bedtime. Also went on a lovely evening walk with my sister. The OA in my knees and hands made things stiff and achy this morning but better than I expected. Of course, tomorrow may be a very different story! ;-) I might sign up for adult swimming lessons this summer. I really don't like swimming but my Doc recommends it and she has given me good advice over the years so the least I can do is try it. The pool has a ramp as well as ladders to help people get in and out of the water, as well, the classes are kept small so I might meet some nice people. Hey, you never know where you will find new friends! :-p Oops, my "bad knees chocolate" supply seems to be getting low. I think I heat some milk chocolate calling my name...... Cinnamin Toronto, Canada Hi Cinnamin, Loved reading your letter..What has been your problem? RA or is it one of the Myositis that I seem to have. They still don't know which one it is..I've had Ct.scan, MRI, 2 Pet scans, EMG and nerve conduction test. They came out fine. I'm on prednisone and it's awful and not doing any good what so ever...Now besides pred. I'm taking Methotrexate, still see no improvement. Any one else in this group have a problem like this? Loooooove my chocolate...;-) Nel > with my nephews - almost 4 hours on my feet, except for a couple snack > breaks - whew! I started the anti-inflammitories as soon as I woke [quoted text clipped - 16 lines] > > Toronto, Canada I've been diagnosed with polymyositis and limited scleroderma. I'm on mtx 10mg/week, prednisone 4mg/day (well down from earlier dosage) and Cellcept. My joint pain is greatly relieved, blood labs are doing much better, but muscle weakness persists. The mtx took about a month to start working for the joint pain and inflammation. If nothing else, I think the progression of my condition has been slowed, but the blood labs ARE much better. Have you had a muscle biopsy? That's supposed to help with myositis diagnosis. > Hi Cinnamin, > Loved reading your letter..What has been your problem? [quoted text clipped - 27 lines] >> >> Toronto, Canada Hi Judy, They really haven't dx my problem yet..I've been on Pred. for about 6 months, and now taking 11mg. That seemed to do no good, so my Rheumy put me on 4mtx for 2 weeks, then 5 two weeks, then 6 for the last 3 weeks, but I really don't see any change..I go see him next week and was hoping I was getting better so he would lower my pred...I would love to get it cut back. I'm black and blue all over my legs and hands. Face a bit fat, I'm losing some hair..Maybe it's the pred. that's keeping me down. My problem is I can't walk very far, my legs give out, can't climb stairs with out holding on and getting up from a chair or even the toilet is hard to do. I think that's how I bruise my hands, pushing up..I haven't had the Muscle Biopsy yet. He hasn't said anything about it. Guess he's waiting to see what he thinks is wrong with me..I sure miss going to the malls and doing my garden and etc. I can make it to lunches and I make myself go to the market and drugstore (PILLS!!)I take one of their carts to hold on though. My Rheumy did mention Cellcept to me, I can't remember why it was brought up.. My GP thought I had Polymyalgia R. but after having me on pred for about 4 or 5 months decided to send me to a Rheumy..and he didn't think it was PR. I sure wish they could find out something... Thanks for answering my message....take care...... Nel > I've been diagnosed with polymyositis and limited scleroderma. I'm on mtx > 10mg/week, prednisone 4mg/day (well down from earlier dosage) and [quoted text clipped - 38 lines] >>> >>> Toronto, Canada > Hi Judy, > They really haven't dx my problem yet..I've been on Pred. for about 6 > months, and now taking 11mg. That seemed to do no good, so my Rheumy put > me on 4mtx for 2 weeks, then 5 two weeks, then 6 for the last 3 weeks, but > I really don't see any change. Most people do not get help right way. Some people have to get the amount to 15 mg or above before real help takes place. .I go see him next week and was hoping I was > getting better so he would lower my pred...I would love to get it cut > back. I'm black and blue all over my legs and hands. Face a bit fat, I'm > losing some hair. Its the Methx and you need folic acid to stop the hair and others from taking place. .Maybe it's the pred. that's keeping me down. > My problem is I can't walk very far, my legs give out, can't climb stairs > with out holding on and getting up from a chair or even the toilet is hard > to do. Been there, done that,,, it really is about your DMARD doing its job in controlling inflam.arth.... Drink plenty of water each day. Take folic acid and a good one a day vit. and maybe things will start to turn around. I think that's how I bruise my hands, pushing up..I haven't had the > Muscle Biopsy yet. He hasn't said anything about it. Guess he's waiting to > see what he thinks is wrong with me. Make sure your RD knows what your day is like,,, how your feel,,, what you can and can't do each day,,,,,,,, EXPECT help from your doctor. .I sure miss going to the malls and > doing my garden and etc. I can make it to lunches and I make myself go to > the market and drugstore (PILLS!!)I take one of their carts to hold on [quoted text clipped - 6 lines] > Thanks for answering my message....take care...... > Nel Please come back and tell us what your doctor thinks and does... EXPECT answers. Write down you questions and hand them to the doc if you need to. You will never get help if the doctor does not know what is taking place. Harv Thanks Harv, Are you still having trouble off and on? The Dr. did give me folic acid with the MTx... Are you feeling any better, and which Myositis did or do you have? I hear there is no cure..I just can't believe this is happening to me. I've always been in good shape, never over weight and always exercised. I can't do any with my legs. I still can lift weights but not a heavy as I was... I do try and drink lot's of water and take a multi Vit., omega 3, and Co q 10 , maybe not enough. Any more suggestion you have I'll try.. Thanks again for your message........Nel >> Hi Judy, >> They really haven't dx my problem yet..I've been on Pred. for about 6 [quoted text clipped - 46 lines] > > Harv >Hi Cinnamin, > Loved reading your letter..What has been your problem? [quoted text clipped - 6 lines] > Loooooove my chocolate...;-) >Nel Hi Nel, I'm fairly fortunate so far, OA in both knees and hands. My Doc describes my knees as " beyond cortisone and halfway to surgery" (She has an interesting way with words). I've had good luck with Synvisc and physio so my knees are as stable as possible at the moment, although stairs will never be a joy. As for the hands - oh well, had to happen someday. Sometimes I end up with really strange typing errors, especially first thing in the morning! Don't tell anyone - I had chocolate milk with breakfast this morning. Yum 8-) Hi Cinnamin, I sure hate to hear about your knees and hands. I don't know what's worse, my trouble or yours. I can't do any exercise because of my legs get too weak and start to hurt until I sit down, then I'm fine..I need to exercise. I was dancing 2 times a week and yoga and all those goodies until this struck me slowly. Seems to be getting worse, I'm beginning to think the prednisone is keeping me down. My Rheumy even said my symptoms sounded like the effects you get from pred..Maybe he has some other ideas when I go back next week, because I'm not getting any better, and for some reason he didn 't want me to have a muscle biopsy... Have you had the Dark Chocolate cashews, oh my!! are they good..I can't make it through the day without my fix..yummoo.......Thanks for answering me.....Hope you get better without the knee surgery....Nel news:cvmk731u6mrfi5ni4dov31brj7jsb6qj59@4ax.com... >>Hi Cinnamin, >> Loved reading your letter..What has been your problem? [quoted text clipped - 20 lines] > Don't tell anyone - I had chocolate milk with breakfast this morning. > Yum 8-) |
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