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Medical Forum / Diseases and Disorders / Arthritis / June 2007off to the IV
Well I am off to my second rituxan iv today - hopefully we can get it in all the way today and not have to repeat this crap tomorrow. I took 45 mg of prednisone before bed as ordered last night. guess what?? No sleep, bitchy as hell! My face loves 45 mg of prednisone - that doesn't help. But it is great for the junk reading. Read 2 books and am 1/2 way through the Fiery Cross by Gabaldon as well. I get 100 ml of solumedrol by drip at 8:30 this am and if the rituxan doesn't go in all the way today then we repeat this tonight 45 and 100 tomorrow. Jo - if this continues tomorrow tell your husband I am coming to visit you tomorrow. Will give a whole new meaning to dark chocolate eating, salt craving, witchy woman! He will love you all the more after that. My husband is very nicely treading lightly this morning. On the move side we are getting there. The house looks a mess on this side but almost all the boxes are packed and most of the cupboards are empty. The fridge is empty with the exception of what is needed until next monday (which is very very little). The housekeeper can clean that tomorrow as it has to be stored in our garage until the new house. Upstairs bathroom and closets are emptied and Pat just has to empty 2 bookcases and his office. My sewing room has one more box to pack but i am still quilting. The rental house has the dishes unpacked into the cupboards, fridge loaded and the clothes in the closet (oh and most of the sewing room has started to be unpacked. Getting there!) So all is sort of well. Wish me luck today. Might not be able to post today but by tomorrow night should be okay. Kelly kelly, here's hoping it goes smoothly this time. at least you still have your sense of humor. diane > kelly, here's hoping it goes smoothly this time. at least you still > have your sense of humor. > > diane Yes,, and I hope her family has just as good sense of humor. 45 mg of pred at night time is kind of cruel,,,,, maybe at early afternoon would of been better for her sleep. Harv >> kelly, here's hoping it goes smoothly this time. at least you still >> have your sense of humor. [quoted text clipped - 5 lines] > been better for her sleep. > Harv It wouldn't. Best you can hope for is to take it right at bedtime and hope to get to sleep and get in a few hours before it kicks in. Jo I talked steady until 10 this morning; well maybe until 12:30. I don't need to take extra tonight which is good. It had to be evening so it was in my blood stream for this morning Harvey but yes I had 2 hours sleep (not in a row), read a couple of books etc. Of course it did not go entirely smoothly (if it had why would we have nurses that of course need that adrenoline rush. I had the same reaction at 37.5 ml as I did last time but this time I knew it was coming so we only needed the benedryl in the iv and not the epi. So that was good. Stopped the med for an hour until it was all over and then started again at 1/2 the first dose. So I go back tomorrow, get my 100 mg iv solumedrol and we start again at 9:00. We finished at 4:00 which was good. Of to bed. I am absolutely exhausted. Still have to tape up my iv port with a glove so I can sleep with it. Take care everyone. thanks for the wishes. kelly >> kelly, here's hoping it goes smoothly this time. at least you still >> have your sense of humor. [quoted text clipped - 5 lines] > been better for her sleep. > Harv kelly, you are one brave and touch woman! good luck tomorrow. diane Oh Kelly I am sorry it didn't go the way we had hoped it would. I am sorry that you have to do this all over again tomorrow.  SignatureLove and Hugs to all Jo the squirrely one >I talked steady until 10 this morning; well maybe until 12:30. I don't >need to take extra tonight which is good. It had to be evening so it was [quoted text clipped - 15 lines] > > kelly That's okay Jo. It actually went great in a way - the damn med went in and that was the object of the game. The incident wasn't as bad as last time and we could continue (partially because I could know this time exactly what the pattern was and we could stop and restart the infusion. I never did get to the no breathing stage which was great!!) Of course I do have to go back today again which is a pill but we know the speed (dead low) and we will therefore get all this in one way or another. Then we wait for the darn stuff to hopefully work. So it was positive jo and darn it I am still here which after the first time seems like a little miracle. I don't mind saying I was a little scared last infusion. Anyhow don't think I told anyone about the presents for the infusion staff and my doctor. I bought an Australian winie for all 4 called "Kelly's Revenge" and wrote thank you cards for each of them and tied them to the bottles. The cards basically thanked them for going the extra mile last time and every time they have looked after me. The extra hours, the extra precautions that they might not have always made for a person they knew didn't have all these weird side effects. I thanked them also for doing everything in helping me get "revenge on my RA" (A play on the wine's name). Told my rd that it was a cheap wine compared to the one I gave him when my arava sort of worked but he said actually it was a great wine growing area in Australia and he could hardly wait to try it out. He is so great. Anyhow off to get changed. Slept all night - don't think I moved. Kelly > Oh Kelly I am sorry it didn't go the way we had hoped it would. I am sorry > that you have to do this all over again tomorrow. [quoted text clipped - 19 lines] >> >> kelly Hi Kelly,,,, I have one more thing to say about taking 45mg of pred. right before bed and you can ask your doctor about it if you want to. It will eat a hole in your stomach taken by itself before you lay down. It is the same way with taking Naprosyn or Aspirin before you lay down. It is far better for the person for these things to be taken with food just a little earlier maybe an hour before a person lays down for a nights sleep. I know you are glad that the first round is over and its on to what comes next. Saying a little prayer just for Kelly of ASA that all goes well. Harv >I talked steady until 10 this morning; well maybe until 12:30. I don't >need to take extra tonight which is good. It had to be evening so it was [quoted text clipped - 25 lines] >> of been better for her sleep. >> Harv I did that Harvey. I also take prevacid at night and in the morning and never take my meds and lie down right away - I also eat a bit of food with it - usually crackers or something light. thanks - the first round is done. Picture perfect today. Now we just wait until month 4 to see if it worked. Fingers crossed. kelly > Hi Kelly,,,, I have one more thing to say about taking 45mg of pred. > right before bed and you can ask your doctor about it if you want to. It [quoted text clipped - 38 lines] >>> of been better for her sleep. >>> Harv >So all is sort of well. Wish me luck today. Might not be able to post >today but by tomorrow night should be okay. Kelly, I hope all goes well today, no set-backs at all. I read part of your message to Jim, about the Prednisone, and he thinks someone should start a support group for husbands whose wives are on steroids. :-) Joan >>So all is sort of well. Wish me luck today. Might not be able to post >>today but by tomorrow night should be okay. [quoted text clipped - 5 lines] > > Joan Just for the record, husbands who are on steroids are no fun either. Jo > Just for the record, husbands who are on steroids are no fun either. > > Jo LOLOL, Been there, done that. harv > Well I am off to my second rituxan iv today - hopefully we can get it in > all the way today and not have to repeat this crap tomorrow. I took 45 mg [quoted text clipped - 25 lines] > > Kelly Oh I hope it goes well for you today. I know exactly how you feel. And you know better than to act out, but the least little thing and you really just can't help it. (PS Come ahead. I'm only on 2mg a day and the floors could use a good cleaning.) Jo I hope all went well For you Kelly. I hope you were able to get it all done in one day. Man you must be a speed reader or they were small books. ;-) LOL about telling Jim that. Glad your hubby is treading nicely. Sounds like the packing and moving is going well. That is good. I have been wishing you luck and praying for you. You take care and let us know how you are doing as soon as you can. SignatureLove and Hugs to all Jo the squirrely one > Well I am off to my second rituxan iv today - hopefully we can get it in > all the way today and not have to repeat this crap tomorrow. I took 45 mg [quoted text clipped - 25 lines] > > Kelly I feel your pain. I had to take large doses of a pred-like steroid for my first two chemos and stayed awake all night the first night, then took it early in the evening for the second one and was able to get some sleep about 2 AM for the second. Then the oncologist decided I was responding so well I don't have to take it anymore. They still give me a hefty dose in the IV with the chemo, but I am over it by bedtime. Hang in there, Hon, and good luck with the rituxan. DeeTee > Well I am off to my second rituxan iv today - hopefully we can get it in > all the way today and not have to repeat this crap tomorrow. I took 45 mg [quoted text clipped - 25 lines] > > Kelly Thank goodness DeeTee. Goodness knows we must have enough of this stored up. Are you hanging in there? I had to take my bracelet off yesterday but it was in my bag. Kelly >I feel your pain. I had to take large doses of a pred-like steroid for my >first two chemos and stayed awake all night the first night, then took it [quoted text clipped - 36 lines] >> >> Kelly Yes I'm hanging in there. The bone pain is pretty bad and it seems to be 24/7. There are times I can't sleep because of it, but that's what my recliner's for. The Darvocet works sometimes, but not others. I have another chemo on Friday so we'll see if it changes anything. Hugs, DeeTee > Thank goodness DeeTee. Goodness knows we must have enough of this stored > up. [quoted text clipped - 44 lines] >>> >>> Kelly > Yes I'm hanging in there. The bone pain is pretty bad and it seems to be > 24/7. There are times I can't sleep because of it, but that's what my > recliner's for. The Darvocet works sometimes, but not others. I have > another chemo on Friday so we'll see if it changes anything. > > Hugs, DeeTee Oooh what would we do without our recliner's...... Mine has broken twice and I have fixed it twice since. I love my recliner every since I had trouble with acid reflux. It was the only place I could get a little sleep. To be honest,,, I can't feel your pain and I am glad but that does not mean that I will feel your pain in the future. Good luck on Friday and that's another thing that I do not have history on but maybe in the future. Most assuredly "hugs" and a pat on the back with a kiss on the cheek. You are one of my heroes and keep putting one foot infront of the other one because it is what you do so well... Do you know what I mean? Harv Thank you, Harv. I don't feel very heroic, though. I don't really have a whole lot of choice in the matter. Hugs, DeeTee >> Yes I'm hanging in there. The bone pain is pretty bad and it seems to be >> 24/7. There are times I can't sleep because of it, but that's what my [quoted text clipped - 15 lines] > one because it is what you do so well... Do you know what I mean? > Harv I wish I had an answer for that DeeTee. I know others that have complained about that too and they don't have the arthritis with it as well. wishing you the best - maybe on Friday they will have an answer for you. Gentle hugs and prayers that things get better fast. Kelly > Yes I'm hanging in there. The bone pain is pretty bad and it seems to be > 24/7. There are times I can't sleep because of it, but that's what my [quoted text clipped - 51 lines] >>>> >>>> Kelly |
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