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Medical Forum / Diseases and Disorders / Arthritis / May 2007Chemo Hurts
Oh, not the actually taking in of the chemicals. That's no more painful that having an IV for several hours. No, the second day out, I got what feels like the fibromyalgia flare from hell. There is not a joint or muscle on my body that doesn't hurt bad. It's been nearly impossible to sleep through it. The pain medicine barely touches it. Thank goodness for the anti-nausea medicine. That at least has been a God-send. I spent most of yesterday in bed. It's 4 AM and I am feeling a little better. I am hoping the worst of it is passing. Two days like this is certainly enough! I have lost 21 pounds since this saga began. I just don't have any interest in food. When I do get hungry, I try to eat, but it's not always easy to make myself eat something. Saltine crackers seem to be the only thing at times that will help. On a more positive note, I got the new hats I ordered. I really like them. I'm gonna look sharp when I do get to go to church. We went over to Wal-Mart briefly yesterday since that's the only place that sells the cottage cheese I like. I wore a mask and my cancer awareness hat and used one of their little go-carts. We weren't even there a whole half hour, but it was outside these four walls. Then we came home and I went back to bed. DeeTee ((((((((((((DeeTee)))))))))))))) you know, the past few months after I take my enbrel I flare like the dickens for a few hours. I think of it as my body and the enbrel duking it out. I wonder if something similar is happening with your body post-chemo, but on a massive scale with the meds being more massive. I hope you are able to get some decent nutrition in you. They must have something worked out to help cancer patients get nutients - this just isn't the time for your body to be nutrient deprived! (Puddin' keeps insisting on making me type one-handed, so signing off and take care for now!)  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare {{{{{DeeTee}}}}} I know it must be a rough time for you right now. More than you deserve to go through. Anything out of the ordinary done to us brings a FM flare from hell, as you say. And, certainly, chemotherapy is a strong jolt to your body. I hope you enjoy wearing your new hats and that you will continue to retain the good attitude you seem to have. Nanny > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee DeeTee, I wasn't even thinking what it would do to FM...OWWW. I know that when I am in a flare and finally go in for a shot of steroids in the behind...That for a few days afterwards..I am going to be worse than when I go in...Before it finally kicks butt and helps..I think that is why I wait it out as long as I can.. I cannot even imagine what these powerful drugs do to your body...Not to mention having to sit still in one place for that many hours at a time.... I know that I cannot sit still for long periods...And just getting over surgery...The FM Monster must be verry po'd right now.... Lots and lots of hugs... Cindy > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee The walls start looking thicker and thicker, and then its time to get out. I'm glad you were able to. The right brand of cottage cheese is critical for those who eat it because they like it. What brand do you like? I can't get either of my favorites any more. Both dairies closed. My youngest daughter is going through morning sickness nausea. She said her stomach is better it she makes herself eat a little bit all day. I hope you were able to get out today for a little while. Keep those walls at bay. Jo {{{{{{{{{{{{{{{{{{{{{{{{{{{DeeTee}}}}}}}}}}}}}}}}}}}}}}}}}} m Reiters small curd. It's always good. Any other brand, you take your chances whether you'll get a good tub or not. DeeTee >> Oh, not the actually taking in of the chemicals. That's no more painful >> that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 36 lines] > > Jo Hi DeeTee, > Oh, not the actually taking in of the chemicals. That's no more painful that > having an IV for several hours. No, the second day out, I got what feels [quoted text clipped - 18 lines] > > DeeTee Chemo may hurt, but the pain will end in time and you will still be alive. Cancer hurts also but, cancer kills. Your doctor should have given you information about what to expect from the chemo. Sarah was given the choice of chemo or radiation and we chose the radiation. This site has lots of good information on chemotherapy. http://www.chemocare.com/ Sending Good Thoughts, {{{{DeeTee}}}} GrampaHugs, Alex, -- Any information is included for informational or entertainment purposes only, is based on my personal experiences & is an expression of my opinion. **************************************************** * Love radiating from 45.10n x 93.30w M/SP Mn * http://home.comcast.net/~apbarna/ * http://goldenmist.org/ahr_faq/index.html * http://goldenmist.org/grampahugs/ * http://goldenmist.org/ **************************************************** ouch! that chemo is raging war against the bad guys in your body. it sounds miserable, but also sounds like it's doing its job. when john has a terrible (crohns) flare and can't eat much, he drinks ensure. could you do that? it helps him get the nutrition and calories he needs to keep going. love you, sweetie. hang in there and know we're here for you even at 4 am. diane DeeTee.....[(((((((((((((((gentle hug))))))))))))))). My very good friend and neighbor is going through exactly what you are, and it is hard! Right in the middle of her worst part of chemo, her house burned to the ground, in the middle of the night. She and her husband got out with only the clothes they were wearing. (Her husband sleeps in only his underwear). I have taught her to use the scooters at Wally World, and I can connect with your joy at getting out of the 4 walls if only for 30 minutes. When she's feeling up to it, she and I go "scooting". Are they giving you pred dose packs? They give Judy a dose pack after each chemo session and she feels great for a few days, then, she's in bed until the next session. Keep "scooting" as much as you can and know that many, many prayers are offered up for you each day. Gloria > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee {{{DeeTee}}} Since the anti-nausea drug is working, ask your doc to increase the dose of whatever you're taking that's for nerve pain. If you're not on anything for nerve pain, ya need ta be, m'dear! Extra Gentle Huggings from Rosie Signature"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Oh, not the actually taking in of the chemicals. That's no more painful that > having an IV for several hours. No, the second day out, I got what feels [quoted text clipped - 18 lines] > > DeeTee {{{{{{{{{{{{{{{{{{{{DeeTee}}}}}}}}}}}}}}}}}}}}}} I do hope the worst is behind you and that you are feeling better with each new day. Gentle Hugs, Carole {{{{{{{{{{{{{{{ DeeTee }}}}}}}}}}}}}}}}} . . . . . . . . Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 20 lines] > > DeeTee ((((((((((((((DeeTee))))))))))))) I can't imagine what you're going through. Maybe a pred dose pack would help with the pain? And maybe ensure or some other nutrient drink for nutrition? Lots of love, Ashley ========= ~~AN. Some cancer patients they will actually give pred to, to increase their appetite. . . . Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... > Some cancer patients they will actually give pred to, to increase their > appetite. > > Donna G. > . Oh yes,,, it will do that,,,, cancer patient or not. Harv OH Sweetie, ouch I feel for you. Glad the nausea meds are working to help you out though. That is good. I am wondering since I had a flare up like that a few days ago with the pred issue and dehydration thing, if maybe that might be what flared you too. Could it be you needed more fluids to combat what you have been losing. Just wondering. I hate to see anyone suffer. If you have trouble with the nausea and such I am wondering if you could drink pedialyte to keep your electrolytes in somewhat of a balance. SignatureLove and Hugs to all Jo the squirrely one > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee I will piggyback to what Jo said. My girlfriend (who is healthy and very active in fitness - rowing, walking, running and weight training) found when she was taking chemo for breast cancer that she ached everywhere afterwords. The solution for her was water, water and more water. She figured the dehydration was part of the problem. The food - well you will gain that back as you go - just keep on hand stuff you like and eat many small meals - crackers, cheese, toast etc. Try for some high calorie things you might not eat - ie: butter on your toast, skip the fat free yoghurt and go for the 2%, - those little things that we tend to have lowered our calorie count for. Try not to lean on empty calories such as pop - instead go for cheese which is higher in calories but also has protein. As for the outings - well Diane those are really necessary. They can be short, even a drive in the car can count. Trust me I do understand getting out! We went for breakfast this morning, home for pain meds and naps and out to my in-laws for dinner tonight. Really did not need tonight but was nice to get out. Hang in there - the rest of us are doing the prayers, candles and thoughts. You have the hardest job but know we are all standing right behind you (wouldn't that make an incredible picture - you receiving IV treatment with 100 of these prednisone laden gimpy support people leaning on canes holding candles in the distance behind you! A wonderful picture!) Kelly in BC canada > OH Sweetie, ouch I feel for you. Glad the nausea meds are working to help > you out though. That is good. [quoted text clipped - 31 lines] >> >> DeeTee > Hang in there - the rest of us are doing the prayers, candles and > thoughts. You have the hardest job but know we are all standing right > behind you (wouldn't that make an incredible picture - you receiving IV > treatment with 100 of these prednisone laden gimpy support people > leaning on canes holding candles in the distance behind you! A > wonderful picture!) That is a beautiful picture! And very true :) --Ashley ========= ~~AN. > Hang in there - the rest of us are doing the prayers, candles and > thoughts. You have the hardest job but know we are all standing right > behind you (wouldn't that make an incredible picture - you receiving IV > treatment with 100 of these prednisone laden gimpy support people > leaning on canes holding candles in the distance behind you! A > wonderful picture!) Silly! Now DeeTee's going to be laughing hysterically during her chemo (when she pictures this) & the nurses are going to try to have her committed for being crazy. Really, though, it is a beautiful picture & just what is going on. Feel better, DeeTee. Shannon Yup - you can see it now can't you. Candle drippings in their clean hospital and all these mangy people. But it is a good picture. Kelly >> Hang in there - the rest of us are doing the prayers, candles and >> thoughts. You have the hardest job but know we are all standing right [quoted text clipped - 12 lines] > > Shannon Yep - I have lots of those little 1 ounce bars of sharp cheddar. I have been known even pre-cancer to make a meal of crackers and cheese. Love it! I have a 32 ounce water cup that I fill repeatedly throughout the day. Drinking water has never been a problem for me. When I get ill, I get dehydrated and they usually give me an IV which makes me feel better. I'll have to remember that the next time I go. DeeTee >I will piggyback to what Jo said. My girlfriend (who is healthy and very >active in fitness - rowing, walking, running and weight training) found [quoted text clipped - 59 lines] >>> >>> DeeTee What a picture you explained there Kelly, now I will keep seeing that. ;-) SignatureLove and Hugs to all Jo the squirrely one >I will piggyback to what Jo said. My girlfriend (who is healthy and very >active in fitness - rowing, walking, running and weight training) found [quoted text clipped - 24 lines] > > Kelly in BC canada ((((((((((((((((DeeTee)))))))))))))))))) I have no suggestions but am thinking about you. Nell Look on the bright-ish side: if chemo felt good everyone would be doing it once a year for 'cancer prevention' and the people who need it (you) would have to wait in line... This way there's no queue. :) (sorta like the theme park noone wants to visit) Ari Signaturespammage trappage: remove the underscores to reply Many people around the world are waiting for a marrow transplant. Please volunteer to be a marrow donor and literally save someone's life: http://www.abmdr.org.au/ http://www.marrow.org/ Dear DeeTee, Enjoy your hats and your outings!!!! Keep up a spiritual practice at home (people who meditating or pray often have better rates of recovery from medical interventions) until you can get back to being in crowds. Wish things were easier for you. Glad the anti-nausea meds work for you. My Mom is in the group of people for whom they only work for about 48 hours, then she needs to switch to a different med. Keep in mind that feeling full and loss of appetite are both symptoms of the disease and side effects of treatment. Here is a website with coping hints: http://www.cancer.gov/cancertopics/eatinghints/page3 Here is a website for a very neutral protein I've been thinking of ordering for both my Mom and my underweight son http://www.unjury.com/reg/about.shtml It looks pretty interesting. Wishing you energy for coping and as much laughter as you can find in a day. Adelle > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee Thank you. I have printing out the eating hints and will try them. DeeTee > Dear DeeTee, > [quoted text clipped - 48 lines] >> >> DeeTee I am so sorry that you are having to indure such pain and suffering. I really hope you start to eat a bit better. Have you tried to drink those ensure drinks?. I know that they are awful, but it might help you in the nurishment dept. You need good nurishment while you are taking chemo. Getting out and about is so good for a person who is ill its good to hear that you are getting out even if it is to the store..its better than the same four walls. I am thinking about you and wishing you well ok? ((((Gentle Hugs))))))))))) RhondaM > Oh, not the actually taking in of the chemicals. That's no more painful > that having an IV for several hours. No, the second day out, I got what [quoted text clipped - 18 lines] > > DeeTee |
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