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Medical Forum / Diseases and Disorders / Arthritis / April 2007

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Update, thanks and please keep Megan in your prayers

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shenmei9wise@gmail.com - 15 Apr 2007 04:56 GMT
I have had a bizarre and horrible week.  Megan got her first epidural
on Thursday (for the RSD)  I hauled my fractured knees, dislocated rib
and highly exhausted body up to the city to meet her at a surgery
center (which shall remain nameless).  Long story short, she had an
anaphalctic reaction to probably the iodine .  She was the last
patient of the day, there was no doc in the facility when she stopped
breathing and her throat closed and her pulse ox dropped to 78 and her
blood pressure droped to 65/40 and she turned blue.  They didn't have
even an epi pen, let alone a crash cart the was actually stocked.
Thank God i was there.  And yes acupuncture can indeed stop an
anaphlactic
reaction.  drove her back to Sebasatopol, put her in bed wit hot water
bottles, heating pads and tons of blankets.  she eventually stopped
shaking.

I haven't a clue as to how much longer i can keep doing this stuff.

Got back to santa cruz today and got the mail.  There was a wonderful
card from someone (asa) that said exactly what I needed to hear-this
was a big one this time.  It gave me back enough to just keep going.
I expect is was Donna G as it is a michigan postmark and sure sounded
like the magical incredible Donna G.  Whoever sent that card with
those words of comfort, I can only hope you know how much I needed
that exact thing at that exact time.

I would appreciate it if you can keep Megan in your prayers

m
jofirey - 15 Apr 2007 05:19 GMT
>I have had a bizarre and horrible week.  Megan got her first epidural
> on Thursday (for the RSD)  I hauled my fractured knees, dislocated rib
[quoted text clipped - 22 lines]
>
> I would appreciate it if you can keep Megan in your prayers

You and Megan will of course stay in our prayers.  As far a keeping on,
keeping on.  I suspect to just don't know how to quit.  Which under the
circumstances is just as well.

I'm sure it was the iodine.  And I'm sure you know that it is critical that
she never takes it again.

When you are at one of those low spots, remind yourself to remember how many
people there are in you corner.

Jo
shenmei9wise@gmail.com - 16 Apr 2007 02:46 GMT
> <shenmei9w...@gmail.com> wrote in message
>
[quoted text clipped - 38 lines]
>
> Jo

Hello Jo (who I have missed big-time, by the way)

We will do a skin test for the iodine but since there was only
marcaine, iodine and medrol and we know two of those are fine for her,
i think you are probably right about the iodine.

I think her epidural days are probably over.  Funny thing is, we were
doing so well with hypnosis, acupuncture and supplements.

m
Diane - 15 Apr 2007 16:33 GMT
thank god you were there, m. sounds like criminal behavior on the part
of the facility. i'm so sorry megan (and you) had to endure this on
top of everything else.

diane
Alex B., - 15 Apr 2007 20:56 GMT
Sending Good Thoughts,
{{{{Megan,Melinda}}}}

GrampaHugs,
Alex,

> I would appreciate it if you can keep Megan in your prayers
>
> m

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Kelly - 15 Apr 2007 21:45 GMT
Double the amount of candles burning tonight!  Bizarre and horrible
describes it.  Soothing thoughts going your way Melinda - Try somehow to get
some meditative time for yourself.  How is Logan doing in all this?  Is
Megan managing to get some rest in between pain time?

Will be thinking of you this week and hoping things improve!

kelly

>I have had a bizarre and horrible week.  Megan got her first epidural
> on Thursday (for the RSD)  I hauled my fractured knees, dislocated rib
[quoted text clipped - 24 lines]
>
> m
Squirrely - 15 Apr 2007 22:04 GMT
OH M, sweetie, it has been a horrible week for you. I am so sorry that has
happened with Megan. I hope she is doing better now.

What a stupid thing to do when there was no doctor or equipment there. I
can't believe they did that when so many people do show up allergic to the
iodine.

I hope something is being done about that.

You take care sweetie and heal as best as you can. Which i know you are
doing. ;-)

Still have you and Megan and Logan in my prayers.

Signature

Love and Hugs to all
Jo the squirrely one

>I have had a bizarre and horrible week.  Megan got her first epidural
> on Thursday (for the RSD)  I hauled my fractured knees, dislocated rib
[quoted text clipped - 24 lines]
>
> m
Donna G. - 16 Apr 2007 01:36 GMT
OMG Melinda!!!

How in the world does a place that does epidural injections not have a
doctor there at all times?   How do they not have any epinepherine or a
stocked crash cart???  That is just plain crazy!!!

Wow, sending healing prayers for Megan, you, and Logan.  

Sheesh,  Did Megan even get the epidural injection?

Next time, if there is a next time, I hope Megan can find a reputable
and appropriately run pain clinic to help her through all that she is
going through.

Hang in there Melinda, you WILL get through this.  Please, try, though,
to take some extra special care of yourself and let some of Megans
friends be there for her once in a while too.

Love you!!!

signed the ornery one,

Donna G.
.
.
.
ANGELS EXIST, but some times, since they don't all have wings, we call
them FRIENDS......
shenmei9wise@gmail.com - 16 Apr 2007 02:42 GMT
Donna,
She did the epidural without a sedative or valium.  The doctor I think
just assumed she was having a difficult time because she didn't have a
sedative.  He had a dentist appointment, and just bailed.  It took
probably five minutes after she hit recovery for her to fully start
all the syptoms.  when they first brought her in she had a pulse ox of
98 and good blood pressure. It took a good two minutes for her to
crash. It was so much worse than my post described.  Megan is too
vulnerable right now for me to not be managing her care.  She actually
isn't  even taking a bath right now without okaying it with me or
Caroline or Michael.

The bizzare thing is that no one did a follow-up call on Friday.

There is always a reason for everything.  I sat outside on that porch
at Megan's house, knowing what excellent medcine looks like and
knowing most people in this country don't get that care and I am clear
that this last part of my life is going to be making sure everyone has
access to excellent medical care.  It has to be more than just the
homeless medical project or MSF/DWB.  Whatever I have to do to change
healthcare access, I promised God I am going to do that.

m
Donna G. - 16 Apr 2007 04:13 GMT
OH, Melinda, I wasn't meaning for you to bail totally on Megan.  I know
she needs you right now and your help, but you also do have to be kind
to yourself in order to truly be there for Megan and everyone else you
are always so willing to help.   Just please be kind to yourself too!!!

I hear you about the poor healthcare for so many.  I have to say that
while I was in the hospital for a that month (january) right after my
stroke, I saw some very strong examples of both what good medicine can
look like and what very poor medicine can look like.  It truly can be
horrifying.   The other thing I truly find disturbing in the medical
profession is the doctors/health care providers who listen for about 2
seconds to someone and then decide they are just depressed, it's all in
their head, they are over reacting, they are faking it, etc.    That
still goes on far too much and it seems as if when ever a doctor doesn't
have a clear cut picture of something or can't figure out what the
problem is, then they just label the patient as depressed or tell them
it's all in their head or some other nonsense.   I hate that.   I'd
rather see a doctor admit they just plain don't know that to start
throwing labels at people.   To me they are just plain being lazy when
they start doing that.     Ugggh----sorry about the little rant, but I
have seen way to many people at the hands of health care professionals
like that.

In any case, Melinda, you know you are always in our hearts and prayers
and I know you will sort this all out and get Megan to a better spot.  I
guess I just worry about you too and pray that you take care of youself
some as well.

Blessings to you dear friend!

Donna G.
.
.
.
ANGELS EXIST, but some times, since they don't all have wings, we call
them FRIENDS......
Nann Bell - 16 Apr 2007 14:13 GMT
seriously, do report this clinic to everyone under the sun.  Taht is part of
making sure this doesn't happen to anyone else.  I've spent too much times
around the health care systems to beleive there was anything they did right,
esp. knowing a large percentage of the pop. is allergic to iodine and they
should *always* be on the lookout for reactions to it.  There are options
other than iodine, of course, but Megan may be too traumatized by this to
even consider an epidural again.

I won't bother to echo you on the current health care delivery system - we
agree on enough social issues that it'll suffice to say I'm with you.  We're
blessed in this part of Michigan to have a really good sliding scale clinic
system.  It was started decades back, when there was more money for such
things, because this part of the state has been economically depressed ever
since the original timber stands gave out.  It's staffed mostly with recent
grads working here to help pay off their med school loans, but more doctors
are joining it later in life because they want to HELP.  It's reassuring.

Meanwhile, don't forget to call on your extensive support system of folks who
love you out there to help with all Megan is going through.  Naturally you
want to make everything right yourself as her mom, but you need to heal also.
Take care of yourself as well as Megan - you can do more when you are
healthier.  And I know you both have many people who love you and who want
the chance to help you all get through this.

and of course you will both be in my prayers.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

jofirey - 16 Apr 2007 16:11 GMT
> seriously, do report this clinic to everyone under the sun.  Taht is part
> of
[quoted text clipped - 5 lines]
> other than iodine, of course, but Megan may be too traumatized by this to
> even consider an epidural again.

The whole situation scares the living daylights out of me.  Even a person
who has had iodine in the past without a problem can have a life threatening
reaction to it at a later time.

Everyone involved should know this.  A first reaction is very common and no
big deal - if it is treated promptly and properly.

Even if the doctor had been present, these idiots were apparently not
equipped to handle a reaction.

I do believe that there is a higher power that guides our lives.  Even when
we sometimes would choose to be guided in an easier direction.  If Melinda
hadn't been there, the consequences would have been so much more grave.  Did
she deserve to be put through this?  No of course not.  But she did see
immediately what was happening and was in a unique position to help.  She is
also in a unique position to see to it that this doesn't happen to someone
else at that facility.

Did Megan deserve to go through this?  Again of course not.  But her trust
in Melinda got her through.  So I have to believe there were angels
whispering in their ears.  And that they listened to them.  Of course they
would have preferred a message saying don't go there.  But we don't always
get what we want.  We can only hope we get what we need.  In this case their
next iodine sensitive patient likely did get what they need.  Megan's life
isn't the only one that was saved.

Jo
Nann Bell - 16 Apr 2007 14:13 GMT
I hope you are reporting that surgery center to someone in power!  They
violated numerous requirements for patient safety - as I'm sure you know.  
Allergies to iodine are so common they should be more than prepared for
anaphylactic shock.  Thank goodness you were there.  I didn't know
acupuncture could work for anaphylaxis, but I'm certainly glad that it could!

BTW, email your cuurrent snail mail address.  I've thought of sending cards
or notes a couple of times, but wasn't sure stuff would be forwarded from
your old address.
Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

shenmei9wise@gmail.com - 16 Apr 2007 17:01 GMT
My friend Caroline and I have already drafted an official complaint.
She is home for a few months before dong another MSF field tour and
has lots of time to push this through.  I know more people in this
city who are in positions to change the surgery center's process than
you can imagine.  In this particular case, you'd have to be Oprah to
be able to get more done.  This is my city-I've taught at the medical
school, my two ex's are very well known infulential doctors  (Jeff is
still at the CDC as well as being a past member of the NIH advisory
board for clinical research)  I am so on this thing.  I do believe as
Jo said, that there was a reason this happened with Megan instead of
someone else because parts of it will never happen again.

m
Nann Bell - 17 Apr 2007 00:02 GMT
> My friend Caroline and I have already drafted an official complaint.
> She is home for a few months before dong another MSF field tour and
[quoted text clipped - 9 lines]
>
> m

good to hear, though hardly surprising!  Most parents would take on this
clinic for treating their child like this, but we know a crusader such as
yourself will be quite effective!  It just still stuns me that the clinic was
so abyssmally equipped.  They took less care than my assorted allergist
offices have with desensitization shots!

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

DeeTee and Bob Taggart - 16 Apr 2007 21:32 GMT
What an awful experience. You will BOTH be in our prayers.

DeeTee

>I have had a bizarre and horrible week.  Megan got her first epidural
> on Thursday (for the RSD)  I hauled my fractured knees, dislocated rib
[quoted text clipped - 24 lines]
>
> m
Cindy - 17 Apr 2007 14:15 GMT
Nothing much to add here, but lots of hugs and prayers....
Geesh...in this day and age...in this country...You would not think this
could happen...
She is lucky to have you with her...
Lots of hugs and prayers...
Cindy
>I have had a bizarre and horrible week.  Megan got her first epidural
> on Thursday (for the RSD)  I hauled my fractured knees, dislocated rib
[quoted text clipped - 24 lines]
>
> m
 
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