Medical Forum / Diseases and Disorders / Arthritis / April 2007
Update, thanks and please keep Megan in your prayers
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shenmei9wise@gmail.com - 15 Apr 2007 04:56 GMT I have had a bizarre and horrible week. Megan got her first epidural on Thursday (for the RSD) I hauled my fractured knees, dislocated rib and highly exhausted body up to the city to meet her at a surgery center (which shall remain nameless). Long story short, she had an anaphalctic reaction to probably the iodine . She was the last patient of the day, there was no doc in the facility when she stopped breathing and her throat closed and her pulse ox dropped to 78 and her blood pressure droped to 65/40 and she turned blue. They didn't have even an epi pen, let alone a crash cart the was actually stocked. Thank God i was there. And yes acupuncture can indeed stop an anaphlactic reaction. drove her back to Sebasatopol, put her in bed wit hot water bottles, heating pads and tons of blankets. she eventually stopped shaking.
I haven't a clue as to how much longer i can keep doing this stuff.
Got back to santa cruz today and got the mail. There was a wonderful card from someone (asa) that said exactly what I needed to hear-this was a big one this time. It gave me back enough to just keep going. I expect is was Donna G as it is a michigan postmark and sure sounded like the magical incredible Donna G. Whoever sent that card with those words of comfort, I can only hope you know how much I needed that exact thing at that exact time.
I would appreciate it if you can keep Megan in your prayers
m
jofirey - 15 Apr 2007 05:19 GMT >I have had a bizarre and horrible week. Megan got her first epidural > on Thursday (for the RSD) I hauled my fractured knees, dislocated rib [quoted text clipped - 22 lines] > > I would appreciate it if you can keep Megan in your prayers You and Megan will of course stay in our prayers. As far a keeping on, keeping on. I suspect to just don't know how to quit. Which under the circumstances is just as well.
I'm sure it was the iodine. And I'm sure you know that it is critical that she never takes it again.
When you are at one of those low spots, remind yourself to remember how many people there are in you corner.
Jo
shenmei9wise@gmail.com - 16 Apr 2007 02:46 GMT > <shenmei9w...@gmail.com> wrote in message > [quoted text clipped - 38 lines] > > Jo Hello Jo (who I have missed big-time, by the way)
We will do a skin test for the iodine but since there was only marcaine, iodine and medrol and we know two of those are fine for her, i think you are probably right about the iodine.
I think her epidural days are probably over. Funny thing is, we were doing so well with hypnosis, acupuncture and supplements.
m
Diane - 15 Apr 2007 16:33 GMT thank god you were there, m. sounds like criminal behavior on the part of the facility. i'm so sorry megan (and you) had to endure this on top of everything else.
diane
Alex B., - 15 Apr 2007 20:56 GMT Sending Good Thoughts, {{{{Megan,Melinda}}}}
GrampaHugs, Alex,
> I would appreciate it if you can keep Megan in your prayers > > m
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Kelly - 15 Apr 2007 21:45 GMT Double the amount of candles burning tonight! Bizarre and horrible describes it. Soothing thoughts going your way Melinda - Try somehow to get some meditative time for yourself. How is Logan doing in all this? Is Megan managing to get some rest in between pain time?
Will be thinking of you this week and hoping things improve!
kelly
>I have had a bizarre and horrible week. Megan got her first epidural > on Thursday (for the RSD) I hauled my fractured knees, dislocated rib [quoted text clipped - 24 lines] > > m Squirrely - 15 Apr 2007 22:04 GMT OH M, sweetie, it has been a horrible week for you. I am so sorry that has happened with Megan. I hope she is doing better now.
What a stupid thing to do when there was no doctor or equipment there. I can't believe they did that when so many people do show up allergic to the iodine.
I hope something is being done about that.
You take care sweetie and heal as best as you can. Which i know you are doing. ;-)
Still have you and Megan and Logan in my prayers.
 Signature Love and Hugs to all Jo the squirrely one
>I have had a bizarre and horrible week. Megan got her first epidural > on Thursday (for the RSD) I hauled my fractured knees, dislocated rib [quoted text clipped - 24 lines] > > m Donna G. - 16 Apr 2007 01:36 GMT OMG Melinda!!!
How in the world does a place that does epidural injections not have a doctor there at all times? How do they not have any epinepherine or a stocked crash cart??? That is just plain crazy!!!
Wow, sending healing prayers for Megan, you, and Logan.
Sheesh, Did Megan even get the epidural injection?
Next time, if there is a next time, I hope Megan can find a reputable and appropriately run pain clinic to help her through all that she is going through.
Hang in there Melinda, you WILL get through this. Please, try, though, to take some extra special care of yourself and let some of Megans friends be there for her once in a while too.
Love you!!!
signed the ornery one,
Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS......
shenmei9wise@gmail.com - 16 Apr 2007 02:42 GMT Donna, She did the epidural without a sedative or valium. The doctor I think just assumed she was having a difficult time because she didn't have a sedative. He had a dentist appointment, and just bailed. It took probably five minutes after she hit recovery for her to fully start all the syptoms. when they first brought her in she had a pulse ox of 98 and good blood pressure. It took a good two minutes for her to crash. It was so much worse than my post described. Megan is too vulnerable right now for me to not be managing her care. She actually isn't even taking a bath right now without okaying it with me or Caroline or Michael.
The bizzare thing is that no one did a follow-up call on Friday.
There is always a reason for everything. I sat outside on that porch at Megan's house, knowing what excellent medcine looks like and knowing most people in this country don't get that care and I am clear that this last part of my life is going to be making sure everyone has access to excellent medical care. It has to be more than just the homeless medical project or MSF/DWB. Whatever I have to do to change healthcare access, I promised God I am going to do that.
m
Donna G. - 16 Apr 2007 04:13 GMT OH, Melinda, I wasn't meaning for you to bail totally on Megan. I know she needs you right now and your help, but you also do have to be kind to yourself in order to truly be there for Megan and everyone else you are always so willing to help. Just please be kind to yourself too!!!
I hear you about the poor healthcare for so many. I have to say that while I was in the hospital for a that month (january) right after my stroke, I saw some very strong examples of both what good medicine can look like and what very poor medicine can look like. It truly can be horrifying. The other thing I truly find disturbing in the medical profession is the doctors/health care providers who listen for about 2 seconds to someone and then decide they are just depressed, it's all in their head, they are over reacting, they are faking it, etc. That still goes on far too much and it seems as if when ever a doctor doesn't have a clear cut picture of something or can't figure out what the problem is, then they just label the patient as depressed or tell them it's all in their head or some other nonsense. I hate that. I'd rather see a doctor admit they just plain don't know that to start throwing labels at people. To me they are just plain being lazy when they start doing that. Ugggh----sorry about the little rant, but I have seen way to many people at the hands of health care professionals like that.
In any case, Melinda, you know you are always in our hearts and prayers and I know you will sort this all out and get Megan to a better spot. I guess I just worry about you too and pray that you take care of youself some as well.
Blessings to you dear friend!
Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS......
Nann Bell - 16 Apr 2007 14:13 GMT seriously, do report this clinic to everyone under the sun. Taht is part of making sure this doesn't happen to anyone else. I've spent too much times around the health care systems to beleive there was anything they did right, esp. knowing a large percentage of the pop. is allergic to iodine and they should *always* be on the lookout for reactions to it. There are options other than iodine, of course, but Megan may be too traumatized by this to even consider an epidural again.
I won't bother to echo you on the current health care delivery system - we agree on enough social issues that it'll suffice to say I'm with you. We're blessed in this part of Michigan to have a really good sliding scale clinic system. It was started decades back, when there was more money for such things, because this part of the state has been economically depressed ever since the original timber stands gave out. It's staffed mostly with recent grads working here to help pay off their med school loans, but more doctors are joining it later in life because they want to HELP. It's reassuring.
Meanwhile, don't forget to call on your extensive support system of folks who love you out there to help with all Megan is going through. Naturally you want to make everything right yourself as her mom, but you need to heal also. Take care of yourself as well as Megan - you can do more when you are healthier. And I know you both have many people who love you and who want the chance to help you all get through this.
and of course you will both be in my prayers.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
jofirey - 16 Apr 2007 16:11 GMT > seriously, do report this clinic to everyone under the sun. Taht is part > of [quoted text clipped - 5 lines] > other than iodine, of course, but Megan may be too traumatized by this to > even consider an epidural again. The whole situation scares the living daylights out of me. Even a person who has had iodine in the past without a problem can have a life threatening reaction to it at a later time.
Everyone involved should know this. A first reaction is very common and no big deal - if it is treated promptly and properly.
Even if the doctor had been present, these idiots were apparently not equipped to handle a reaction.
I do believe that there is a higher power that guides our lives. Even when we sometimes would choose to be guided in an easier direction. If Melinda hadn't been there, the consequences would have been so much more grave. Did she deserve to be put through this? No of course not. But she did see immediately what was happening and was in a unique position to help. She is also in a unique position to see to it that this doesn't happen to someone else at that facility.
Did Megan deserve to go through this? Again of course not. But her trust in Melinda got her through. So I have to believe there were angels whispering in their ears. And that they listened to them. Of course they would have preferred a message saying don't go there. But we don't always get what we want. We can only hope we get what we need. In this case their next iodine sensitive patient likely did get what they need. Megan's life isn't the only one that was saved.
Jo
Nann Bell - 16 Apr 2007 14:13 GMT I hope you are reporting that surgery center to someone in power! They violated numerous requirements for patient safety - as I'm sure you know. Allergies to iodine are so common they should be more than prepared for anaphylactic shock. Thank goodness you were there. I didn't know acupuncture could work for anaphylaxis, but I'm certainly glad that it could!
BTW, email your cuurrent snail mail address. I've thought of sending cards or notes a couple of times, but wasn't sure stuff would be forwarded from your old address.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
shenmei9wise@gmail.com - 16 Apr 2007 17:01 GMT My friend Caroline and I have already drafted an official complaint. She is home for a few months before dong another MSF field tour and has lots of time to push this through. I know more people in this city who are in positions to change the surgery center's process than you can imagine. In this particular case, you'd have to be Oprah to be able to get more done. This is my city-I've taught at the medical school, my two ex's are very well known infulential doctors (Jeff is still at the CDC as well as being a past member of the NIH advisory board for clinical research) I am so on this thing. I do believe as Jo said, that there was a reason this happened with Megan instead of someone else because parts of it will never happen again.
m
Nann Bell - 17 Apr 2007 00:02 GMT > My friend Caroline and I have already drafted an official complaint. > She is home for a few months before dong another MSF field tour and [quoted text clipped - 9 lines] > > m good to hear, though hardly surprising! Most parents would take on this clinic for treating their child like this, but we know a crusader such as yourself will be quite effective! It just still stuns me that the clinic was so abyssmally equipped. They took less care than my assorted allergist offices have with desensitization shots!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
DeeTee and Bob Taggart - 16 Apr 2007 21:32 GMT What an awful experience. You will BOTH be in our prayers.
DeeTee
>I have had a bizarre and horrible week. Megan got her first epidural > on Thursday (for the RSD) I hauled my fractured knees, dislocated rib [quoted text clipped - 24 lines] > > m Cindy - 17 Apr 2007 14:15 GMT Nothing much to add here, but lots of hugs and prayers.... Geesh...in this day and age...in this country...You would not think this could happen... She is lucky to have you with her... Lots of hugs and prayers... Cindy
>I have had a bizarre and horrible week. Megan got her first epidural > on Thursday (for the RSD) I hauled my fractured knees, dislocated rib [quoted text clipped - 24 lines] > > m
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