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Medical Forum / Diseases and Disorders / Arthritis / April 2007

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OTP - joining the not good news club (long)

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Adelle - 22 Mar 2007 05:17 GMT
Hi!

Just spoke to my mom. Turns out she's not eligible for the last chance drug
trial (for metastatic cancer) because her kidney function is insufficient.
She has an appointment tomorrow to discuss next steps and set up an
appointment with the pain clinic.

She says she wants to come out to visit. With the tumors invading the bones,
I'm afraid she'd fracture something in the process of traveling. I think
this has popped into her head because even though she's hoping there is more
that can be done, the denial is beginning to fade about her future and she
wants to be with the grandkids more before its too late. Its sad.

I want to accommodate her need to see the kids. Just not sure how to do it
after spending 4K we don't have trying to keep my husband's car on the road.
We should travel to her because we are healthier. But getting three (or
four) of us 2/3 way cross country is a physical and financial ordeal.

<sigh>

Anyway - prayers for my Mom, Dorothy (or Thea, she goes by both) would be
appreciated. At this point, not sure what the best prayer is. Is it better
to wish for more treatment and prolonging her time? Or is it best to pray
for the least painful resolution? So far, all I can come up with is a prayer
for her to have some more time in a better feeling state so that she has a
chance to do the emotional journey that she needs to take.

An acquaintance of mine died end of last week. A very sweet lady from our
synagogue (a teacher who initiated the Reading Is Fundamental Program
locally back in the '60's). Her husband has been my mentor in synagogue
politics (he's a past president). They were married 58 years. They were on
vacation and were in a fender bender. She seemed fine and was talking and
such, but wound up with a brain bleed and slipped into a coma within a
couple of hours. They aren't sure whether the bleed was caused by the
accident or happened after just because of a weak vessel. The funeral and
first day of shiva was yesterday; they had to wait until her grand-daughters
could make it back from Australia where one is working and the other is on a
semester abroad program.. We've all been thrown for a loop. And its really
gotten all messed up with what is happening to my mom.

Sometimes - life can be a puzzle that you wish you had the answer key for -
just so you could have a hint as to whether you're on the right path (or
have already made a wrong guess and have fouled everything).

Signature

Adelle

RoseB - 22 Mar 2007 05:50 GMT
I am sorry to hear your news about your Mom and your friend. Please
accept my condolences on the loss of your friend.

It is difficult to know what is best for yopur Mom. My uncle died of
lung cancer ten years ago. Prior to his passing he wanted to go to a
family reunion. People thought he was too sick and convinced him to
stay home for fear that he would not be able to tolerate the trip. In
retrospect those same people are now saying that they wished that he
had been able to go. Even if it ultimately would have shortened his
time, it would have brought such joy for him to see everyone once
again.

I understand that each situation is different, and you want what is
best for your Mom. Quality vs quantity is not entirely the issue, as
you don't want to cause her more pain.

I will remember her and your family in my thoughts and prayers.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
vickie b. - 22 Mar 2007 09:16 GMT
(((((adelle)))))
(((((thea)))))
(((((family)))))

My heart and prayers go out to all of you at this time.  My prayer is
for strength, courage, and God's will at this time for your mother.
And yes I know what it is to have sick parents a long way off.

Vickie B.
Ann - 22 Mar 2007 15:22 GMT
Adelle, I have no good advice for you other than probably to let your
mother decide if she is able to travel to visit with you.  Just want to
extend my hand in sympathy and let you know I was with my mother during
her battle with malignant brain cancer and I understand everything you
must be feeling.  Prayers will be said for Dorothy.

Ann
Diane - 22 Mar 2007 15:25 GMT
Adelle, I'm sorry your family and for your synagogue community. you
must be roiling with emotion. i love the prayer you have for your
mother
>>So far, all I can come up with is a prayer
for her to have some more time in a better feeling state so that she
has a
chance to do the emotional journey that she needs to take. <<
and that's how i'll pray for her as well.

best,

diane
Alex B., - 22 Mar 2007 16:31 GMT
Sending Good Thoughts,
{{{{Dorothy,Adelle}}}}

GrampaHugs,
Alex,

> Hi!
<snip>
> Anyway - prayers for my Mom, Dorothy (or Thea, she goes by both)
> would be appreciated. At this point, not sure what the best prayer
[quoted text clipped - 21 lines]
> for - just so you could have a hint as to whether you're on the right
> path (or have already made a wrong guess and have fouled everything).

--

****************************************************
* Love radiating from 45.10n x 93.30w   M/SP Mn
* http://home.comcast.net/~apbarna/
* http://goldenmist.org/ahr_faq/index.html
* http://goldenmist.org/grampahugs/
* http://goldenmist.org/
****************************************************
Carole - 22 Mar 2007 16:33 GMT
I will keep your Mom and your family in my prayers. I don't know what
the answer is, but I can feel for your Mom wanting to spend more time
with her grandchildren. They bring such joy to grandmothers :)

I will also pray for your friend who passed and her family. It's hard to
lose a friend. I still miss my friend Joan who passed last September.

{{{{{{{{{{{{{{Adelle}}}}}}}}}}}}}}}

Carole

> Hi!
>
[quoted text clipped - 39 lines]
> just so you could have a hint as to whether you're on the right path (or
> have already made a wrong guess and have fouled everything).
jofirey - 22 Mar 2007 17:01 GMT
> Hi!
>
[quoted text clipped - 40 lines]
> for - just so you could have a hint as to whether you're on the right path
> (or have already made a wrong guess and have fouled everything).

Prayers that she can do as much as possible without causing anymore pain.

Sometimes you just have to believe God knows what is best and pray based on
that.

Jo
Squirrely - 22 Mar 2007 19:22 GMT
Oh Adelle, I am sorry to hear this news. My prayers and thoughts are still
coming that way.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Just spoke to my mom. Turns out she's not eligible for the last chance
> drug trial (for metastatic cancer) because her kidney function is
[quoted text clipped - 38 lines]
> for - just so you could have a hint as to whether you're on the right path
> (or have already made a wrong guess and have fouled everything).
Cindy - 23 Mar 2007 14:46 GMT
Adelle, I am praying for your Mom and your family. I cannot imagine what you
are going through now. Which ever way it happens, I do hope that she gets to
see the children. And I think that praying for her to have the best quality
of life while she is here is the best that any of us can hope for, as we are
any of us...just one heart beat away from the other side. God only knows
when he will be ready to take us home. Some of us has a better heads up than
the rest...Prayers are surely needed for us that are left behind..I suppose
that is my cheesy way of offering comfort...
Know that I am praying for you...and your family..
Also for your friend and her family as well..
Hugs Cindy
> Hi!
>
[quoted text clipped - 39 lines]
> just so you could have a hint as to whether you're on the right path (or
> have already made a wrong guess and have fouled everything).
Adelle - 23 Mar 2007 15:38 GMT
> Adelle, I am praying for your Mom and your family. I cannot imagine what
> you
[quoted text clipped - 13 lines]
> Also for your friend and her family as well..
> Hugs Cindy

Thank you, Cindy. Not cheesy at all. And thanks to everyone. Your support
really helps right now.

Spoke to my mom yesterday. Even though she wasn't eligible for the test
chemo that seems to work at reducing tumors, they decided to let her try a
new drug that targets the cells which feed the growth of cancer cells. Not
as bad for the kidneys (my guess is because dead cancer cells get processed
in the kidneys and can overwhelm the organ - it was how my dad passed.). The
results on this new drug are all over the place, with no clear pattern yet.
A truly last ditch effort to do *something.* And I think she finds solace in
helping the docs learn something more about this rare kind of cancer and how
it responds to stuff.

Off to research costs for her visit.

Adelle
Cindy - 23 Mar 2007 17:47 GMT
Your Mom sounds alot like mine, always thinking of others. Praying that this
new treatment does well for her..
Hugs Cindy

> > Adelle, I am praying for your Mom and your family. I cannot imagine what
> > you
[quoted text clipped - 30 lines]
>
> Adelle
DaKittster - 24 Mar 2007 09:35 GMT
>Thank you, Cindy. Not cheesy at all. And thanks to everyone. Your support
>really helps right now.
[quoted text clipped - 12 lines]
>
>Adelle

You'll all be in my thoughts and prayers.  It's all I can offer, even
though I went through something similar with my own Mother.  The hard part
is that even when you know the end is coming, a person is never ever
totally prepared when the end actually comes.  It's still a shock.  Just be
sure to let her know she is loved and cherished, and that her life had
value and meaning and purpose.

--
DaKittster
(Formerly LadyK)
Harvey R. Stone - 24 Mar 2007 13:21 GMT
>>Thank you, Cindy. Not cheesy at all. And thanks to everyone. Your support
>>really helps right now.
[quoted text clipped - 29 lines]
> DaKittster
> (Formerly LadyK)

That is so well said and done.   The thing is that not everyone gets the
chance to do that will the people we love and are a big part of our life.
It makes a person think that they should do the value and meaning thing
before it becomes a must do type thing....  Hhhhm I may do some of that
today.
thanks for the push in the right direction,,,,
harv
Donna G. - 25 Mar 2007 06:50 GMT
Amen, Harv and LadyK.   I wish I would have had the chance with my
brother before he died a year ago.  His death was so sudden and
unexpected, that you are left feeling like there were a million and one
things you wanted to tell him but never got the chance to.  The one
comforting thing for our family is that we have always been a close
family and always tell each other that we love one another and we always
try to do small things to show that love throughtout the year.   Our
cruise was definitely a time to spend with just family and to bond
closer with one another and appreciate one another.  

In any case, Adelle, praying that what ever the right answer is for your
mom and your family, that it will become clear and that you all will
feel comfortable with the decisions in the end.   You have always been
there for your mom, so I imagine she knows how very much she is loved
and cared about already.   Your time together at the end, whether it be
in person or via the phone or whatever, will be the most memorable, so I
pray that you all make the best of it and that you all share your
special love for one another.

You and yours (including your mom) are in my prayers and I pray that you
all find peace, strength, and  comfort.

Hugs,

Donna G.
.
.
.
ANGELS EXIST, but some times, since they don't all have wings, we call
them FRIENDS......
shenmei9wise@gmail.com - 26 Mar 2007 18:35 GMT
Will light a candle for your mom, Adelle.

{{{{{{{{{{{{{{{{{{{{{Adelle and family}}}}}}}}}}}}}}}}}}}}}}
Adelle - 02 Apr 2007 15:05 GMT
Thank you, Melinda!

Adelle

> Will light a candle for your mom, Adelle.
>
> {{{{{{{{{{{{{{{{{{{{{Adelle and family}}}}}}}}}}}}}}}}}}}}}}
 
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