Medical Forum / Diseases and Disorders / Arthritis / February 2007
Ping: Harv
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Donna G. - 10 Feb 2007 05:16 GMT Just wondering how you are doing and feeling? I know you have had a bit of a rough go of it these last several months and I pray that things are starting to ease a bit for you!!!
Please let us know, as we DO care!!!
Hugs,
Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS......
Harvey R. Stone - 10 Feb 2007 14:00 GMT > Just wondering how you are doing and feeling? I know you have had a > bit of a rough go of it these last several months and I pray that things [quoted text clipped - 4 lines] > Donna G. > . That is sooo nice and there is only one,,, one Donna G... After two rounds of bronchitis that nearly put me in the hospital, it is still coming back but more slowly this time. Ya know,,,, we should learn from what takes place in our lives. When I tested positive for TB(which proved out that I was only exposed) I went through 7 months of a very strong anti-biotic. 7 months of nooooo RA. I have been through 2 months of dealing with my lungs,,,, nooo signs of RA after being on two different anti-biotics in that time. I have 6 months of Enbrel in my frig. I am going to try to talk my RD, after he is fully informed about the last 2 months,,, into letting me try the old anti-biotic treatment to control my RA. He and I have talked about it two other times and he has no faith in it because of what has taken place with other people under his care that tried to use it. I keep telling myself that twice being in remission should be enough to recognize that something is going on in my gut that regular dmards and anti-tnfs are not controlling. We shall see said the blind man.
Harv
Cindy - 10 Feb 2007 14:29 GMT I wonder Harv..Why sometimes The Doctors are afraid to listen to US...You know...We are the ones that have been living with our Bodys for sometime now... Mine has been...shhhh(49) years...You would think that by now...I would know Something.. Hoping that you have a better go of it soon...Hate to hear that the Bronchitis is coming back... Prayers..and hugs Cindy
> > Just wondering how you are doing and feeling? I know you have had a > > bit of a rough go of it these last several months and I pray that things [quoted text clipped - 24 lines] > > Harv Harvey R. Stone - 10 Feb 2007 20:40 GMT >I wonder Harv..Why sometimes The Doctors are afraid to listen to US...You > know...We are the ones that have been living with our Bodys for sometime [quoted text clipped - 6 lines] > Prayers..and hugs > Cindy Hi Cindy,,,, Welllll, the RD has seen me more than once loose control of my RA. He knows how far I go down before starting to come back with steroids and dmards. I am going to have to tell him that this is my doing and not his fault no matter what happens. Harv
Ps 68 years and RA from 38... My goodness,,,, I have been dealing with this for 30 years.
Adelle - 11 Feb 2007 03:38 GMT >>I wonder Harv..Why sometimes The Doctors are afraid to listen to US...You >> know...We are the ones that have been living with our Bodys for sometime [quoted text clipped - 15 lines] > Ps 68 years and RA from 38... My goodness,,,, I have been dealing with > this for 30 years. Harvey;
I was doing abx therapy for a couple of years cause we first thought all my stuff was Lyme disease (and I still think that was a component as some neuro symptoms never came back after I stopped the abx, though joint symptoms did).
The abx are a great anti-inflammatory. That's why they prescribe it for acne (which is an inflammatory condition, not bacterial). But my uncle the Pedi RD says that so far, all of the studies seem to show that abx therapy doesn't retard joint erosion; it just reduces inflammation. So you feel good, but can't tell how the joints are eroding until its too late.
If it weren't for the extreme sun sensitivity and constant yeast issues, I'd still be on the abx. But I might also consider adding in a DMARD for joint protection.
Adelle (whose current therapy of Plaquenil and Arthrotec are working pretty well most of the time.)
GARY Z - 11 Feb 2007 14:04 GMT > Hi Cindy,,,, Welllll, the RD has seen me more than once loose control of > my RA. He knows how far I go down before starting to come back with [quoted text clipped - 4 lines] > Ps 68 years and RA from 38... My goodness,,,, I have been dealing with > this for 30 years. Hey Harv! Most people get to retire after 30 yrs. of hard work. How about it? Ready to pull the plug?!
:-) GaryZ
Harvey R. Stone - 11 Feb 2007 14:37 GMT >> Hi Cindy,,,, Welllll, the RD has seen me more than once loose control of >> my RA. He knows how far I go down before starting to come back with [quoted text clipped - 10 lines] > :-) > GaryZ Retire from RA??? You bet. Oh by the way, I put a golfing joke in the newsgroup yesterday just for you. Harv
RhondaM - 10 Feb 2007 21:11 GMT Hmm what to do with 6 mos supply of enbrel....I bet that thought has crossed your mind.. I am in the same boat with a 4 mos supply in the fridge..lol. You know Harv the antibiotic thing seems like it would be something worth the docs looking into further. I know that my RA seems better when I am on antibiotics and I do not flare at all. NIce to see you
> Just wondering how you are doing and feeling? I know you have had a > bit of a rough go of it these last several months and I pray that things [quoted text clipped - 10 lines] > ANGELS EXIST, but some times, since they don't all have wings, we call > them FRIENDS...... Donna G. - 11 Feb 2007 03:37 GMT Awwwww, Harv, I'm really sorry to hear that you are still having such a rough time. I know that the bronchitis can take a lot out of you and can just leave you totally exhausted---especially with all of the coughing and such. Sure praying that things settle down for you SOON!!! Please, please take it easy. Rest and be extra kind to yourself.
Hope your doctor will at least listen and discuss with you your interest in the antibiotic protocol and that you both might come up with a plan that you both can live with.
Blessings to you Harv! . . .
Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS......
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