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Medical Forum / Diseases and Disorders / Arthritis / December 2006Santa came to my house early!
Hi everyone - great news. There is a Santa Claus and she works for Bristol Myers Squibbs. They are the company that makes Orencia or Abatacept. They are sending my med to my pharmacy, booking my infusion and best of all for the time being while approval is going through the system (which could take a bit) it is covered 100%. I can't tell you how great that makes me feel. We were spending RRSP money until our house sold and goodness knows how long that is going to take. So maybe even as early as next week. There really is help out there sometimes. I had my worst night last night and honestly the pain and worry made me wonder if everything was worth it. On top of all this the bullying on the newsgroup almost made me pull out again last night but I am hear for support and that doesn't do anyone any good. So this is a sign of hope for everyone. Merry Christmas - maybe my year has turned for the better. Now to stay healthy long enough to get the first 3 infusions under way. Maybe a cute face mask. Kelly (((((((((((((((((((kelly)))))))))))))))) that IS great news!!! HURRAHHHHH for santa claus! may orencia be the magic bullet that make you feel so much better, kelly i'm sorry you had such a difficult night, last night. and i am sooooo glad you didn't pull out of asa, kelly. we need your dearness, as much as you need our support. kate Hi everyone - great news. There is a Santa Claus and she works for Bristol Myers Squibbs. They are the company that makes Orencia or Abatacept. They are sending my med to my pharmacy, booking my infusion and best of all for the time being while approval is going through the system (which could take a bit) it is covered 100%. I can't tell you how great that makes me feel. We were spending RRSP money until our house sold and goodness knows how long that is going to take. So maybe even as early as next week. There really is help out there sometimes. I had my worst night last night and honestly the pain and worry made me wonder if everything was worth it. On top of all this the bullying on the newsgroup almost made me pull out again last night but I am hear for support and that doesn't do anyone any good. So this is a sign of hope for everyone. Merry Christmas - maybe my year has turned for the better. Now to stay healthy long enough to get the first 3 infusions under way. Maybe a cute face mask. Kelly now THAT is some excellent news! diane >So maybe even as early as next week. There really is help out there >sometimes. I had my worst night last night and honestly the pain and worry >made me wonder if everything was worth it. On top of all this the bullying >on the newsgroup almost made me pull out again last night but I am hear for >support and that doesn't do anyone any good. So this is a sign of hope for >everyone. Oh, Kelly, my fellow Canadian. That IS good news. Let's hope you get the medicine quickly and that it works fast. As for the bullying, I don't understand Harvey's problem. He took issue with me once saying I shouldn't be commenting on something medical. That after I was a nurse for forty years. I think I may put him in my kill file because no one needs to read the stuff he writes. So you look after YOU, and know that people here really care and are glad for your good news. And Melinda, I have heard so many good things about you, and although I don't feel I "know" you, so many people can't be wrong, so you hang around too, please. Anything you have said always sounds pretty good to me. --- Joan Wow, what a great Santa! I'm really happy for you! If I could dance I'd do a dance of joy...but with my bones, it's not a good idea, LOL :)) So I'll tap my toes :))) Hugs, Carole :) > Hi everyone - great news. There is a Santa Claus and she works for Bristol > Myers Squibbs. They are the company that makes Orencia or Abatacept. They [quoted text clipped - 16 lines] > > Kelly Kelly, I am so glad that Santa came through for you. Good does come to good people sometimes; so happy that it is coming to you. May your Christmas be as wonderful as you want it to be, and may you soon be feeling well again. Gwen > Hi everyone - great news. There is a Santa Claus and she works for > Bristol Myers Squibbs. They are the company that makes Orencia or [quoted text clipped - 16 lines] > > Kelly Oh, Kelly, you just made MY christmas as well!!! What wonderful news for you! Now, praying, praying, praying that this will bring you some much needed relief and have you feeling better in no time. Thank you for sharing this with us and for always being an inspiration through even your toughest of times. Hugs, Donna G. . . . ANGELS EXIST, but some times, since they don't all have wings, we call them FRIENDS...... >Hi everyone - great news. Terrific! I will call you tonight after dinner.Are you getting a biiiiiiiiiiiiiig blizzard? Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. It is rainy so hard the ditches are overflowing and the wind is due to pick up anytime. Suspect we will again be out of power tonight (we were out for 6 hours yesterday). It is also close to freezing - go figure - this is Victoria. Okay Joan you can gloat - we deserve it here in daffodil land. Pat is off to Vancouver to take Marc (youngest) and his girlfriend for dinner and visit friends. I just did not have the energy to go with him. Glad I didn't as the ferries will be a windy mess! Will talk to you later. This was a surprise I really wasn't expecting. Thanks everyone - you know my win is really yours too. Any hope in this lousy disease affects us all. I know all of you keep me going through the tough times. Kelly >>Hi everyone - great news. > [quoted text clipped - 6 lines] > > Please remove "Ima" to reply. >It is rainy so hard the ditches are overflowing and the wind is due to pick >up anytime. Suspect we will again be out of power tonight (we were out for >6 hours yesterday). It is also close to freezing - go figure - this is >Victoria. Okay Joan you can gloat - we deserve it here in daffodil land. Not gloating at all. This is not good weather in many places. Losing power is not good. You especially need daffodils and sunshine, I really think bad weather actually increased pain, or at least our tolerance. We've had a lot of rain in Ontario this year, and a few days ago the sun came out and I suddenly thought, "I feel better." So I wish you sunny skies as well as the new medicine. :-) --- Joan That's super news Kelly and I know you will have a Merry Christmas now. Let's hope you get the first dose as soon as next week. Ann That is great news about the med Kelly. I hope you have wonderful luck with it and that it is the miracle drug you need. I hope the storm doesn't cause you alot of problems.  SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > Hi everyone - great news. There is a Santa Claus and she works for > Bristol Myers Squibbs. They are the company that makes Orencia or [quoted text clipped - 16 lines] > > Kelly Kelly, That is great news...Sometimes when we least expect it...We are blessed...I think that is when it comes full circle...You know...What goes round comes round... Sending you lots of hugs and prayers and best wishes all round.. Hugs Cindy > Hi everyone - great news. There is a Santa Claus and she works for Bristol > Myers Squibbs. They are the company that makes Orencia or Abatacept. They [quoted text clipped - 16 lines] > > Kelly I got my cooler and instructions for carrying in the med to the doctors from the pharmacy today by Fedex. I guess this really is going to happen! Still pinching myself today - we started this whole process for a new med in June for goodness sake. I went looking at shoes that might fit yesterday - I might actually be able to walk on these feet without screaming soon. It will work. Thanks for the prayers, hugs and wishes everyone. Honestly I don't know what I would do without everyone on this group. Well almost everyone. ****boy drives me nuts all the time and a few others I can block sometimes but sometimes they drive me bonkers too. Thanks again, Kelly WOOOOOOOOOOO HOOOOOOOOOOOO!!! Party tonight at Kelly's! I'll bring the cyberbooze. (if I can get through all this snow) Come on, play along? What snacks are y'all bringing? Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. No sweet things please! Last night I ate a whole bag of licorice allsorts for dinner - ouch! I know better but it was a great binge. I try so hard to stay out of that stuff. Tonight I took my inlaws for dinner because we were all bored and cold sitting in the dark in our respective houses - had a great souvlaki dinner and ate all the vegetables - and then came home and had 2 pieces of fruit. Much more balanced. So I will bring pita and humous tonight to put in some fibre in my diet (plus the garlic will stop the vampires and colds!) Oh and a cyber hot rum as we are suppose to wake up to a little snow tomorrow. Thanks for the party Rose - just knock loudly people - I have the music a little loud. Kelly > WOOOOOOOOOOO HOOOOOOOOOOOO!!! > [quoted text clipped - 11 lines] > > Please remove "Ima" to reply. BANG, BANG (on the door) I've got a crockpot of sweet 'n sour meatballs with chunks of purple onion and green, yellow and red peppers. They disappear fairly quickly at parties so I made a double batch. I'm very excited to hear how the new med works for ya Kelly. Hope it kicks in right away and works miracles. Kimmy > No sweet things please! Last night I ate a whole bag of licorice allsorts > for dinner - ouch! I know better but it was a great binge. I try so hard [quoted text clipped - 29 lines] > > > > Please remove "Ima" to reply. I'm bringing my yummy vegetarian barbecue beans! It's one of our standards that I make many times through the year. Mike gets irritated with me when I take it to potlucks because we never have leftovers! lol (while you're at it Kimmy, I think I'd love that meatball recipe. But if I take it to a potluck here, it'll probably be considered another of my "exotic, southern" recipes!) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Happy to pass it on Nann - You need a bag of frozen meatballs (NOT italian, I buy either homestyle or swedish) I don't know weight-wise what size it is but there's a smaller pkg that runs around $3 and then the size I buy is around $6) 1 red pepper 1 green pepper 1 yellow pepper 1 large purple onion 1 bottle sweet 'n sour sauce (Kikkoman) or two of small bottles of LaChoy Cut the onion and peppers into chunks. Layer meatballs and veggies in crockpot (I use my 4 qt.) dump the sauce over the top, set it to low and cook till the veggies are soft. (I usually cook 'em about 7 hours so the flavors blend) Really easy and even the kids eat 'em! Kimmy > I'm bringing my yummy vegetarian barbecue beans! It's one of our standards > that I make many times through the year. Mike gets irritated with me when I [quoted text clipped - 3 lines] > take it to a potluck here, it'll probably be considered another of my > "exotic, southern" recipes!) Sounds good, Kimmy. I might try this recipe. I don't have a slow cooker, but I can adapt. Thx. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. sounds good and I can always use another easy recipe! And I just recently splurged and bought a larger oval crockpot (on double sale) to supplement my ancient, smaller, round one. Meanwhile, GFS has good deals on frozen meatballs....... SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > Happy to pass it on Nann - > [quoted text clipped - 17 lines] > > Kimmy That sounds good! I just got a crockpot at Value Village for $6 with a removeable dish so I can put it in the dishwasker :) So I'll give this a try! Is there a difference in taste between LaChoy and Kikkoman? I also make my own sweet n sour sauce. There was a Chinese takeout near where I used to live in NYC and I wish I could get the recipe for their sweet n sour sauce....it was the best I've ever had in my whole life! Carole > Happy to pass it on Nann - > [quoted text clipped - 34 lines] >>take it to a potluck here, it'll probably be considered another of my >>"exotic, southern" recipes!) Carole, I really can't taste a difference between the two sauces, I usually go with the one that's less expensive. And yes - I've used my own sweet 'n sour sauce - the bottled sauces are just easier ;) Kimmy > That sounds good! I just got a crockpot at Value Village for $6 with a > removeable dish so I can put it in the dishwasker :) So I'll give this a [quoted text clipped - 45 lines] > >>take it to a potluck here, it'll probably be considered another of my > >>"exotic, southern" recipes!) > Is there a difference in taste between LaChoy and Kikkoman? I also make > my own sweet n sour sauce. There was a Chinese takeout near where I used > to live in NYC and I wish I could get the recipe for their sweet n sour > sauce....it was the best I've ever had in my whole life! I have a recipe for Sweet & Sour Pork that my mother got when she took a Community Ed Chinese cooking class from a teacher who was from southern China. Among other things, she learned there is a difference between northern and southern China sweet & sour sauces. That recipe is too time consuming to make often, but it has totally ruined me for restaurant versions, at least in the areas I've been living in, wiht no real Chinatowns. I've never thought of just trying the sauce separately, without all the hassle of preparing the meat, though. I'll have to consider doing that. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare I'm sorry I won't be at the party, but I just don't do snow! I freeze here in Alabama. Hope all have a good time, and don't eat tooooo much. Gwen > WOOOOOOOOOOO HOOOOOOOOOOOO!!! > [quoted text clipped - 11 lines] > > Please remove "Ima" to reply. >I'm sorry I won't be at the party, but I just don't do snow! I freeze here >in Alabama. Hope all have a good time, and don't eat tooooo much. >Gwen But Victoria is usually very nice. They have flowers that bloom in January. And..........if you like we can take you to teh Empress Hotel for an Olede English high tea. LOL Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Or even better to Buchart Gardens to have tea and look at the snowdrops, tulips and daffodils. We might even be able to warm you up with a hot buttered rum instead of a cup of tea! Kelly >>I'm sorry I won't be at the party, but I just don't do snow! I freeze >>here [quoted text clipped - 10 lines] > > Please remove "Ima" to reply. > But Victoria is usually very nice. They have flowers that bloom in > January. And..........if you like we can take you to teh Empress Hotel > for an Olede English high tea. Hey Rose, Do you ever go to any of the Scottish Gaelic events in Victoria? My friend's group sang for one a few weeks ago. I was under the weather so didn't even attempt to attend. They are playing in Vancouver in February so I'll probably head up north for that. Because of my illness I got a grant to take Scottish Gaelic through the college in Scotland on the Isle of Skye. It's great as I download the soundfiles and workbook pages and then have a phone class once a week. It keeps me busy and I am having fun learning the language :) Carole >Do you ever go to any of the Scottish Gaelic events in Victoria? Hi Carole, I have not taken in any of those events. It sounds like fun. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. That sounds interesting Carole - will have to check them out. My daughter in law teaches choir to senior high - will ask if she has heard of any of their events. Rose is up at Merritt. She is only wishing she was out of the snow and down here where it is darn cold. Kelly >> But Victoria is usually very nice. They have flowers that bloom in >> January. And..........if you like we can take you to teh Empress Hotel [quoted text clipped - 12 lines] > > Carole There is supposed to be a Scottish gaelic choir in Vancouver and another one in Victoria. I haven't quite figured out how to get to Victoria yet. I know I can take a ferry from Fairhaven, but I'd need my car as I can't walk long distances with my CHF. Someone told me that once I get across the border there is a turn off to Victoria, but I don't know if I can take the car going that way. I'd love to see both cities as they look beautiful! I'm also hoping to get to the 2010 Olympics :)))) Carole :-) > That sounds interesting Carole - will have to check them out. My daughter > in law teaches choir to senior high - will ask if she has heard of any of [quoted text clipped - 21 lines] >> >>Carole >> Rose is up at Merritt. She is only wishing she was out of the snow and >> down >> here where it is darn cold. >> >> Kelly send some of that weather down to norhtern Michigan, please! We've been above freezing and raining for over a week now. Most of the snow has melted, everything is brown and dreary and the basement is leaking. this is April weather for us! This native Floridian finds herself once again wishing it would get colder and snow! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >send some of that weather down to norhtern Michigan, please! I would be pleased to send you some of the snow. I think a white Christmas is over-rated. LOL Rose the Snow-Grinch (only because i have trouble wearing boots and getting around in snow. it looks pretty) Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. > I would be pleased to send you some of the snow. I think a white > Christmas is over-rated. LOL heh, I grew up with GREEN Christmasses (we even re-wrote that well-known Irving Berlin song.....). Had one white Christmas in North Carolina in early arthritis days, not again for many years. But still, I prefer snow to cold rain! > Rose the Snow-Grinch > (only because i have trouble wearing boots and getting around in snow. > it looks pretty) I find living with the snow to be much easier in a rural area - as long as you live on a road that gets plowed! It was a royal pain in Boston because there was nowhere for the snow to go. Here we have endless fields. And we lucked into a wonderful deal on superb snow boots - not at all attractive, but we're in rural, tromping through the snow country. Practicality reigns! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Great news kelly! debbie m. > Hi everyone - great news. There is a Santa Claus and she works for Bristol > Myers Squibbs. They are the company that makes Orencia or Abatacept. They [quoted text clipped - 16 lines] > > Kelly |
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