I can sympathise with this crap from some doctors. Its worse when it
comes from someone you respect and trust. Nine months later all those
fractures, at least a dozen in the end, were still there with new
friends and showed up nice and bright on the MRIs. Shopping around and
waiting for the 'next appointment' sucks :-(

Hello stranger!   It is good to see you visit once in awhile, even if
the news isn't so great.
Have the recent storms affected you two?

Glad Trish is on the ball and may have come up with something.

Please keep us updated with any new developments.

... The answering machine is not in right now.
... Please leave your message at the tone.       BEEEEEEP.....

egads!  another medico dinosaur!  i thought they were becoming extinct!
shows you how naive i am.  that doctor needs a reality check!  she sounds
like the lazy one, to me.  ((((((((((((((((((((aim)))))))))))))))))  i'm
sorry you had to endure that.

aim, can you get a hold of all or some of your past medical records, like
radiologist reports, labs, mri results and stuff like that?  a friend of
mine got tired of this kind of treatment and created a binder, divided it up
into sections, like right shoulder, left shoulder, right knee, left knee,
etc.  now she takes that binder with her to any new doctor.  she gets no
guff now, but sadly has had doctors look at the binder and tell her she
should retire.

bless tish for paying attention to what she observes.  please let us know
what your pcp determines.  and while you are at it, hon, ask your pcp for a
referral to a new rd, please.
kate

Saw a new-ish RD a week or so ago. Just haven't had time to write about
it yet.

So apparently all my symptoms all this time, including blood tests and
xrays and whatnot? All in my head.

Yup. You heard it here first. I'm imagining all the xrays, all the blood
tests. All I need is some more exercise and to lose some weight and stop
being a lazy complainer.

Oh and she wouldn't refill my pain meds (which allow me to sleep and
thereby deal with the days better and be more active and break the
vicious cycle I'm in - you all know how that works) and she would only
extend my parking placard a month.

B@stard.

On a related but different note, Tish seems to think it may be Lupus
rather than AS, and I'm starting to wonder if she's not right. There
seem to be a lot of symptoms not explained by AS that would be explained
by Lupus. Like the facial rash that pops up whenever I'm feeling badly.
I have an appt with my GP in a few days, and will ask him to run some
more tests including checking for the antibodies for Lupus to see what
shows up.

Fun!

Oh, and I have some damage in my upper back as shown on the most recent
xrays last week (my first xrays to show any *significant* damage) but
that doesn't mean anything really, per the RD. Stupid.

Yep, I'm still mad. But it's all in my head anyway...

Aim

ARGH!!!!!Another doctor that got Their license off late night TV....1-800-Be
an idiot .com
So sorry that you had to go and pay someone to tell you that you are
Crazy....
Hugs Cindy

EXCUSE ME?!?!?!?!?!??!?!?!?!??!?!??!?!

I surely, surely hope your insurance gives you the option of dumping this
"RD" pronto and moving on to a real one.  Want to come to Michigan?  I have a
very good RD and he's very much into lupus also - severe shortage of
Starbucks though (even Tim Horton's for that matter).  It's good you're
seeing your PCP next week - hopefully he'll agree to run some titers on you.  
Report back to us, ok?

I was just thinking about you earlier today and hoping that all was still
going well with Tish.  It must be, with her still working to get you feeling
better.  Knowing that part of your life is going well puts a smile on my
face.

Oh, Aim, I'm so sorry you had to go to an idiot like that. Are you still
down in Seattle?  There must be someone else you can go to! I wish all
these doctors could go through one day with the pain we have...they
wouldn't be so fast to say we are imagining it!

HUGS,
Carole

GO FIND SOMEONE ELSE!!! We know for sure that it's not in your head, it's in
your joints. Sheesh!

DeeTee

Well, something is up there.  <g>

Sorry gal, couldn't resist.  You probably have more
smarts than that SOB doctor.

... 75% of statisticians are 90% confident 52% of the time.