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Medical Forum / Diseases and Disorders / Arthritis / November 2006

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Lidoderm questions from a lurker

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Angela - 09 Nov 2006 05:10 GMT
Good eveving all  :-)  I hope everyone else is sleepingt and no one
wakes up to see/reply to my post until morning (after daylight).

My pain doc gave me samples today of lidoderm patches.  I've read all
the prescribing info but as usual have questions they never answer.
I'm hoping those who have used them or something similar can share some
exprience.

First question:  Do they have a 'cumulative' (for lack of a better
word) effect or is the response you get from the first one as good as
it gets?

Second question:  Can I use a heating pad with it?

Third question:  The area I need to place it in difficult/impossible
for me to reach.  Inside of my right shoulder blade.  Through the week
I live alone with the cats, my daughter comes home most weekends from
college.  Addinbg to the difficulty is the fact I am in a long arm cast
on my left arm, trying to get my elbow settled down.  Thankfully, the
cast should come off tomorrow and I will "discuss my options" with my
ortho doc.  I have tennis elbow.... again.  I had the tendon repaireed
17 months ago.  It popped again 7 weeks ago.  I expect he'll get to
redo the repair.

Even with oxycontin, lortab 10, and the multitude of RA meds, the pain
from this area under and inside my shoulderblade is near intolerable
and none of the docs have any answers.  On a positive note, my Orencia
infusions seem to be helping get better control of my RA symptoms.  I
hope the benefit will continue to improve.

Thank you to everyone and know that the folks on this group are in my
prayers.

Angela
Fire Chief - 09 Nov 2006 05:37 GMT
> Good eveving all  :-)  I hope everyone else is sleepingt and no one
> wakes up to see/reply to my post until morning (after daylight).

It's only 9:25 p.m. here.  Another hour before heading to the bedroom.

> My pain doc gave me samples today of lidoderm patches.  I've read all
> the prescribing info but as usual have questions they never answer.
> I'm hoping those who have used them or something similar can share
> some exprience.

> First question:  Do they have a 'cumulative' (for lack of a better
> word) effect or is the response you get from the first one as good as
> it gets?

I've been using the patches 3 or 4 years on an "as needed" basis.
2, 3, 4 days a week.  I haven't felt any cumulative effect from them.
The doctor explained that they are "slow release" over the 12 hours
of wearing them.  That's why he also wrote a 'script for Ketoprofen
salve.  It's instant relief!  I found that using it a few hours before
a
patch really, really helps.

> Second question:  Can I use a heating pad with it?

I haven't seen anything pro or con about that.  Perhaps the
phamacist is the best place to get that answer.

> Third question:  The area I need to place it in difficult/impossible
> for me to reach.  Inside of my right shoulder blade.  Through the week
[quoted text clipped - 5 lines]
> 17 months ago.  It popped again 7 weeks ago.  I expect he'll get to
> redo the repair.

I don't have that problem.  I can apply a patch to back of my neck,
between the shoulders.  Other places I use one is the right groin
and right knee.

> Even with oxycontin, lortab 10, and the multitude of RA meds, the pain
> from this area under and inside my shoulderblade is near intolerable
> and none of the docs have any answers.

I haven't gotten to the oxycontin state yet.  The RD this week changed
my meds from Tylenol #3 to Ultram.

> On a positive note, my Orencia infusions

Haven't heard of that before.  How often, and how long do
the infusions take?

> seem to be helping get better control of my RA symptoms. I
> I hope the benefit will continue to improve.

That's good news to hear.  We'll be hoping and praying right
along with you for continuous success with it.

... Filthy rich?   I'm part way there.
Angela - 09 Nov 2006 12:56 GMT
Thank you Fire chief!  Helpful and kind as always.

> > Second question:  Can I use a heating pad with it?
>
[quoted text clipped - 5 lines]
>  Haven't heard of that before.  How often, and how long do
>  the infusions take?

The Orencia infusions take 30 minutes (medication infusion time, not
setting up, discharging, etc.).  The first 3 infusions are 14 days
apart, as a loading dose.  After that, the infusions are every 28 days.

> > seem to be helping get better control of my RA symptoms. I
> > I hope the benefit will continue to improve.

>  That's good news to hear.  We'll be hoping and praying right
>  along with you for continuous success with it.

Thank you.  I need any prayers that I can get.

Angela

> ... Filthy rich?   I'm part way there.
Smokie Darling (Annie) - 09 Nov 2006 16:12 GMT
> > Angela wrote:Thank you Fire chief!  Helpful and kind as always.
>
[quoted text clipped - 9 lines]
> setting up, discharging, etc.).  The first 3 infusions are 14 days
> apart, as a loading dose.  After that, the infusions are every 28 days.

Wow, your first 3 were more frequent than mine, I had one first of
June, one mid June and the 3rd was 28 days after the second.  Didn't
notice any improvement until they put me on Imuran as well, now I'm
seeing some settling of symptoms, don't know if it's the Orencia or the
Imuran or a combination of the two.

Fire Chief:  I think this stuff used to be Abatacept during trial
phase.

Angela:  Are you eligible to have someone come by your house, like a
CNA (certified nursing aide) or a person to help with housecleaning?
Would they be able to help you out with the patch?  I use mine
sparingly, but I use them (on my hips and knees mostly, they don't seem
to work on my hands, wrists, elbows, or shoulders).

I just remember the doc saying not to wear one for more than 12 hours,
and to not put another on for at least 12 hours <sigh>, just one more
thing to remember, huh?

Smokie Darling (Annie) -
Fire Chief - 09 Nov 2006 19:41 GMT
> I just remember the doc saying not to wear one for more than 12 hours,
> and to not put another on for at least 12 hours <sigh>, just one more
> thing to remember, huh?

From the insert, and on each individual package:
      Apply up to three (3) LIDODERM patches at one time
      to cover the most painful area.  Apply patches only
      once for up to 12 hours in a 24-hour period  (12 hours
      on and 12 hours off).  Remove patch if irritation occurs.

Those are the same instruction my RD gave me a couple years ago.
At the moment, I'm wearing one, but usually use 3.

... Eagles may soar, but weasels don't get sucked into jet engines.
DeeTee and Bob Taggart - 09 Nov 2006 15:03 GMT
Angela -

I use the lidocaine patches on an "as needed" basis (LOVE my RD!).  I use
one each day to quiet my sciatic pain and it is a little difficult to get it
positioned right...after all it's on my backside and I can't reach all of
that. :-P  I haven't noticed a cumulative effect, but each time it's as good
as the first. It works for me when I need it. I don't even have to use them
on my shoulder very often anymore. It stopped the pain long enough for the
shoulder to calm down. I have used a heating pad in conjunction with the
lidocaine patch and have had no ill effects. I never asked the doc if that
was a problem.

HTH, DeeTee

> Good eveving all  :-)  I hope everyone else is sleepingt and no one
> wakes up to see/reply to my post until morning (after daylight).
[quoted text clipped - 30 lines]
>
> Angela
ladylove77 - 09 Nov 2006 18:07 GMT
Angela, I have pain in the same place at times.  Mine moves around because
of scoliosis.  When it is just inside the shoulder blade I would like to put
a hot patch on it, but like you say, I can't reach it!  Very frustrating,
isn't it.  Hope you can get some helpful information from your orthopedist.
Gwen

> Good eveving all  :-)  I hope everyone else is sleepingt and no one
> wakes up to see/reply to my post until morning (after daylight).
[quoted text clipped - 30 lines]
>
> Angela
d'huit - 13 Nov 2006 07:06 GMT
same here and for the same reasons as gwen.  but i do resort to a long
heating pad, i've velcroed to my chairback.

wouldn't it be cool if somebody decided to perfect some kind of doublesided
tape idea (like carpet tape, but stickier on the doorjamb side of it and
like painter's tape slight tackiness on the patch side of the tape) for one
of those patches?  like stick the tape to a doorjamb about however high you
need it to be; and then, stick the patch to the slight tacky side of the
tape; and then, you can gently back into the doorjamb to make it stick to
your back exactly where you need it.  my mind is loaded with these kinds
desperate fantasies about pain relief.  sigh . . .

kate

Angela, I have pain in the same place at times.  Mine moves around because
of scoliosis.  When it is just inside the shoulder blade I would like to put
a hot patch on it, but like you say, I can't reach it!  Very frustrating,
isn't it.  Hope you can get some helpful information from your orthopedist.
Gwen

> Good eveving all  :-)  I hope everyone else is sleepingt and no one
> wakes up to see/reply to my post until morning (after daylight).
[quoted text clipped - 30 lines]
>
> Angela
Fire Chief - 13 Nov 2006 08:08 GMT
Kate wrote:

> wouldn't it be cool if somebody decided to perfect some kind of doublesided
> tape idea (like carpet tape, but stickier on the doorjamb side of it and
[quoted text clipped - 4 lines]
> your back exactly where you need it.  my mind is loaded with these kinds
> desperate fantasies about pain relief.  sigh . . .

It could probably be accomplished with double sided Scotch tape.

Or regular Scotch tape doubled over.

... Confucius say too damn much!
 
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