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Medical Forum / Diseases and Disorders / Arthritis / November 2006

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To those who can't sleep..

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PaulG - 05 Nov 2006 07:42 GMT
I'm thinking about you right now and hoping and praying for a miracle
in your life that brings relief to you and yours.
I know that sounds corny but its true. Because of my battle with lack
of deep sleep on a regular basis, unless you've experienced it you
could never know how tormenting and dibilitating it is.

Hang in there folks. It ain't over till its over.......And it ain't
over yet.

Paul.......drinking Pearl Tea(hot milk and water) holding the Fort
whilst the family sleeps...
Jean - 05 Nov 2006 13:27 GMT
Been there, done that Paul.  I went almost two years with very little sleep
and I doubt if I had any deep sleep at all.  My shoulders were so incredibly
painful I would just rock and cry.  I can feel your pain!!!  And the thing
is, the less sleep you get, the more you hurt, which means even less sleep.
It's a vicious cycle.

Have you tried Tylenol PM?  It's non-habit forming and will usually help me
get some deep sleep.  (And I don't wake up with a drug hangover like I do
with some pain meds.)  My RD also gave me Darvocet and Vicodin but they
honestly don't do much.  The Vicodin gives me nightmares and the Darvocet
will help me get to sleep but not stay asleep.

Sending good thoughts your way.

Jean

> I'm thinking about you right now and hoping and praying for a miracle
> in your life that brings relief to you and yours.
[quoted text clipped - 7 lines]
> Paul.......drinking Pearl Tea(hot milk and water) holding the Fort
> whilst the family sleeps...
debbie m - 05 Nov 2006 15:51 GMT
Paul,

What a nice post.  You are welcome to remember me in your prayers when
you can't sleep.  I could use all the help I can get.

debbie m.

> I'm thinking about you right now and hoping and praying for a miracle
> in your life that brings relief to you and yours.
[quoted text clipped - 7 lines]
> Paul.......drinking Pearl Tea(hot milk and water) holding the Fort
> whilst the family sleeps...
Nanny - 05 Nov 2006 22:24 GMT
Thanks for the "thumb's up", Paul!  Nanny
> I'm thinking about you right now and hoping and praying for a miracle
> in your life that brings relief to you and yours.
[quoted text clipped - 7 lines]
> Paul.......drinking Pearl Tea(hot milk and water) holding the Fort
> whilst the family sleeps...
PaulG - 06 Nov 2006 05:31 GMT
Strange isn't it........I had a good day to-day..No pain that I could
speak of, and I even felt some what refreshed.
I go to bed feeling like I'm going to have a fair nights
sleep........then one hour later it all starts again.......Aching arms
and shoulders, lower back pain, legs that wont keep still and tingle to
the point of feeling like an ancient water torture...I would much, much
rather have it the other way round.....
The quiet and stillness make the pain and restlessness much more
profound I realize that...but......There are no buts, it is what it
is....So............

I will once again make the Dr. appointment and once again tell him of
my plight. Hoping, beyond hope that he will prescribe me something that
will work, that I can take with an ailing liver..and that I can afford
its monetary cost and its side effect costs...I'm asking alot aren't I?

I sometimes hate the way it make me react. I feel helpless and whimpy.
I'm a guy you see from the old school. We don't like to show pain or
complain of it....We don't like to feel mastered by
it.........but............it is what it is..................

Night all.........
spodosaurus - 06 Nov 2006 12:33 GMT
> I'm thinking about you right now and hoping and praying for a miracle
> in your life that brings relief to you and yours.
[quoted text clipped - 7 lines]
> Paul.......drinking Pearl Tea(hot milk and water) holding the Fort
> whilst the family sleeps...

How long has it been going on for you? I know how terrible it is.

I had to take a 'strongly suggested' leave and defer my semester's exams
recently as this sleep thing was the final straw in a series of medical
problems.

A year of poor sleep (not including the constant nightmares/flashbacks)
followed by 12+ weeks of worsening sleep from 4-5 hours of fragmented
sleep per night down to 2 hours, then awake, then another 2 hours of
15-30 minute fragments, and finally down to nothing for about 2-3 weeks
(you start losing track of days at this point). I'd take sleeping pills
and they'd have no effect. Then 1.5x the dose...then double...then
mixing...made myself really sick but at that point you start getting
desperate when you've had 12 hours of sleep over two weeks, and it was
only when you were anesthetised by sleeping pills so it wasn't even
really sleep: normal stages and such, just drug induced unconsciousness.
I had to stop driving as I didn't think it was safe. Even when my spine
was full of fractures I could still drive myself places!

I'm finally able to sleep without sleeping pills half the nights during
a week, and even then, at much lower dosages than before. when you keep
going 3-4 days with no sleep, even with taking sleeping pills every
night, it gets really really bad. The first night I had a nightmare
after those weeks of no REM I was so happy!

Regards,

Ari

Signature

spammage trappage: remove the underscores to reply
Many people around the world are waiting for a marrow transplant. Please
volunteer to be a marrow donor and literally save someone's life:
http://www.abmdr.org.au/
http://www.marrow.org/

PaulG - 06 Nov 2006 13:00 GMT
Hi Ari: Man, you've had your troubles too I see. So sorry to hear that,
but glad that things are somewhat better.

For me its been about 2 yrs. of this type of activity at night. I
forgot to mention previously that I was also diagnosed with Mild Sleep
Apnea. So if it isn't the aches and pains waking me, its the Apnea. I'm
going back to the sleep lab in December to see if a CPAP device might
be warranted.

I was saying to my wife this morning that for people who have never had
a sleep problem don't know how bleesed and fortunate they are.

Joni Mitchell said it best..."You don't what you got till it's
gone".....

I hope things keep improving for you Ari, God bless.

Paul
spodosaurus - 06 Nov 2006 13:17 GMT
> Hi Ari: Man, you've had your troubles too I see. So sorry to hear that,
> but glad that things are somewhat better.
[quoted text clipped - 4 lines]
> going back to the sleep lab in December to see if a CPAP device might
> be warranted.

I've been diagnosed anywhere between mild to moderate sleep apnea. I
/need/ a CPAP. I can no longer sleep at all without it. Some people with
mild apnea, in the absence of other sleep problems, don't need a CPAP.
You are not in this category! I like the constant pressure models with
the "ultra mirage" mask. Try the CPAP, try a couple of different masks
(nose, full face, nasal pillows), and get your pressure titrated.

BTW- my sleep apnea is moderate, and the tests didn't show it all the
time because I could barely sleep during them (surprise).

When my sleep problems started (maybe even longer ago than I realise,
now that I think about it in a slightly different way), I noticed that
my wife had mild-moderate sleep apnea as well. She's now using CPAP and
feels wonderful. Far better results than I have had!!! I wouldn't have
noticed had I not been awake. She's always been 'sleepy' and just
thought it was normal, like she was at the extreme end of the bell
curve. We bought a used CPAP and humidifier for her and it's great.
Which reminds me: do not use passive humidification! It's cheaper, but I
don't even know if they make CPAPs anymore without some level of active
humidification.

I have had sleep apnea since I was a child and my paediatrician was
concerned about it. I didn't get treatment until I was in my 20s. It
didn't matter how skinny I was: same sleep apnea, same mask pressure
(+/-0.4cm).

Had I not been treated I would not have survived some of the hospital
stays where I've been unconscious or some of the surgeries under
general. I would have continued to get throat infections at times when
my immune system had been ablated, with disastrous results. When my body
was under strain that normally causes multiple organ failure or at least
damage, I made it through with none. I can't credit all of this to the
CPAP, but I hate to think what it would've been like without that bit of
extra healing power we get from sleep.

> I was saying to my wife this morning that for people who have never had
> a sleep problem don't know how bleesed and fortunate they are.

I said something similar to my doctor recently...not as
diplomatically...after another 3 nights awake hehehe

I don't mind only getting 4-5 hours of semi-fragmented sleep so much
now, because it's SLEEP! I'm hoping someday to get back to the nine
hours a night my body needs given the strain it's under.

Have you tried progressive relaxation therapy? It won't help all through
the night, but I found that done early on it gives a nice bit of mental
relief for a couple of hours, and that's a couple of hours more relief
than I would have had otherwise. There are various brands/methods, the
basics should be detailed online.

> Joni Mitchell said it best..."You don't what you got till it's
> gone".....
>
> I hope things keep improving for you Ari, God bless.

You too, Paul. I hope you're able to grab a few hours when you can.

Ari

Signature

spammage trappage: remove the underscores to reply
Many people around the world are waiting for a marrow transplant. Please
volunteer to be a marrow donor and literally save someone's life:
http://www.abmdr.org.au/
http://www.marrow.org/

star - 07 Nov 2006 05:57 GMT
> > Hi Ari: Man, you've had your troubles too I see. So sorry to hear that,
> > but glad that things are somewhat better.
[quoted text clipped - 71 lines]
> http://www.abmdr.org.au/
> http://www.marrow.org/
 
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