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Medical Forum / Diseases and Disorders / Arthritis / November 2006today's RD visit
major sigh........... my labs from last Thursday showed my albumin seriously plummeting again. My RD thought and thought and thought, then had a brainstorm and ordered some strange tests. He wasn't forth-coming with his suspicions, but you know I looked up the tests. It appears he suspects celiac disease, which is now believed to encompass a broader range of people than previously believed and can hit later in life - not just in childhood. I really don't want to have it - we're talking HUGE change in eating habits for me here! But I've looked it up and there's a distinct possibility he's right. I fit many of the symptoms for adult onset, most of them having appeared recently. I think I'll go ahead and cut way back on the gluten while we're waiting for the lab results. If I'm gona be stuck with this, I might as well get a head start on the diet changes I'll need to make. Damn. Don't want this. Then again, a maker of gluten-free products just expanded into our town as a base of operations....... I really don't want to have this. Then again - if I can get back more energy, it might be worth it. i fear it won't cure my other auto-immune ills though. :(  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Nann, sorry to hear this but it really isn't so hard anymore. The gluten free products have really improved and you really can get used to anything. If it is celiac you will feel so much better that the diet changes will stop bothering you. It has worked that way for me. johnie > major sigh........... > [quoted text clipped - 22 lines] > remove the Gator cheer to email me > Simply the thing I am shall make me live --- William Shakespeare I know that gluten-free is much easier now and getting easier all the time. In fact the new, local business is Heartland's Finest, whose bean flours are reportedly a huge improvement in gluten-free flours. Still, I'm hoping I can have just a bit of gluten from time to time..... I keep thinking about all that lovely Trader Joe's ravioli out in our freezer. I'm coming to terms with the idea, especially now that I'm recovering from a very busy and complicated Wednesday, of which this RD visit was only a segment. Still, I really don't want something else that has to be managed. I'm ready for something that can actually be CURED for a change. If this does prove to be the diagnosis, I think I want to talk to a dietician. I'm already on cholesterol watch and allergic to milk - adding this in will complicate my diet further. Of course, it would be nice to actually *absorb* what I'm eating. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > Nann, sorry to hear this but it really isn't so hard anymore. The > gluten free products have really improved and you really can get used > to anything. If it is celiac you will feel so much better that the diet > changes will stop bothering you. It has worked that way for me. > > johnie Nann, hope you're guessing incorrectly. If not, at least you'll have a head start. Gwen > major sigh........... > [quoted text clipped - 25 lines] > ills > though. :( Oh Nann, wishing the best outcome for you. Will be praying for you. I hope the answer you get helps you out greatly though. Let us know what you find out. SignatureLove and hugs Jo (\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& > major sigh........... > [quoted text clipped - 25 lines] > ills > though. :( {{{{{{Nann}}}}}} DeeTee > major sigh........... > [quoted text clipped - 25 lines] > ills > though. :( nann, just catching up on posts (again). have you had the blood tests done? if you haven't had them yet, don't stop eating gluten now because you need to be eating it for the tests to be accurate. i know a couple of people with diagnosed celiac disease and they do have to be very careful what they eat and even what lipstick they use!), but the change in their physical condition has been remarkable. i also wonder if all that throwing up you were doing a while back could be related to this? diane > nann, > [quoted text clipped - 7 lines] > > diane they drew the bloodwork last Wednesday. That was how I found out what he suspected - by looking up the blood tests he ordered. (actually, I couldn't read his handwriting on a couple of them, but found out what they were from the phlebotomist, who sucks blood out of me on a regular basis) If they decide to to the endoscopic look at things, I shouldn't be recovered enough yet for that to have normalized yet - and I could always eat gluten again for a few days before! We ate out last night and that was an adventure, trying to find something with no wheat. I realized even French Onion soup is out with the topping and I won't be able to do croutons on salad any longer. I've been wondering about that nausea myself, and that weird stomach crud I had last year with major gas and fevers ONLY in the evening. I have allowed myself very small bits of gluten the last couple of days - enjoying it a tad until the diagnosis is more definite - but even so my fatigue and fogged-in brain seem to be improving. I can't for sure link it to that though as I've also been pulling out of a PA flare and the improvement could be this week's enbrel actually kicking in. Either way - I'll take it! It's nice to have my brain returning. Now, if I can just get rid of these muscle cramps! (I am going for a massage Tuesday in hopes of working some of the trouble out of the muscles.) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare ((((((((((((((((((nann)))))))))))))))))))) i'm glad you are feeling better, hope. i think you are due for continual improvement! i vote for that. what were the results of the blood tests for celiacs? and what happens next, sweetie? kate On Sun, 5 Nov 2006 0:25:28 -0500, Diane wrote (in message <1162704328.088580.102550@k70g2000cwa.googlegroups.com>): > nann, > [quoted text clipped - 7 lines] > > diane they drew the bloodwork last Wednesday. That was how I found out what he suspected - by looking up the blood tests he ordered. (actually, I couldn't read his handwriting on a couple of them, but found out what they were from the phlebotomist, who sucks blood out of me on a regular basis) If they decide to to the endoscopic look at things, I shouldn't be recovered enough yet for that to have normalized yet - and I could always eat gluten again for a few days before! We ate out last night and that was an adventure, trying to find something with no wheat. I realized even French Onion soup is out with the topping and I won't be able to do croutons on salad any longer. I've been wondering about that nausea myself, and that weird stomach crud I had last year with major gas and fevers ONLY in the evening. I have allowed myself very small bits of gluten the last couple of days - enjoying it a tad until the diagnosis is more definite - but even so my fatigue and fogged-in brain seem to be improving. I can't for sure link it to that though as I've also been pulling out of a PA flare and the improvement could be this week's enbrel actually kicking in. Either way - I'll take it! It's nice to have my brain returning. Now, if I can just get rid of these muscle cramps! (I am going for a massage Tuesday in hopes of working some of the trouble out of the muscles.) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > ((((((((((((((((((nann)))))))))))))))))))) i'm glad you are feeling better, > hope. i think you are due for continual improvement! i vote for that. [quoted text clipped - 3 lines] > > kate well, it's been a wild week here, including our phone service, and therefore internet, going out periodically ever since Saturday's storm. Folks have been having trouble getting through to us. No news from the doctor, but I think I will call today and ask about the labs. I need to know what to do next. With my albumin having dropped to 2.1 for the second time this year, I'm showing serious signs of malnutrition despite eating a fairly good diet. Gotta follow up with *some* doctor! (of course, today we have a funeral & reception at 11 am, so they may have to call me back at the church. Monday, I'll be taking our 90 year old friend to PT again, so I need to get the doc today!) Meanwhile, the massage is started to wear off - aching legs and some edema again yesterday. How can this be happening when I condsider myself to be in good health??!?!?! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare |
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