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Medical Forum / Diseases and Disorders / Arthritis / November 2006

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I've just been diagnosed...

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bchamberlin - 19 Oct 2006 17:45 GMT
I've had lower back pain for years but the frequency of episodes has
increased over the last year or two. I'm only 37 and I've been told I
have arthritis in the lowest part of my spine.  I'm still waiting to
talk to my regular doctor about it regarding my options.  So far, I've
been told physical therapy, heat/ice, anti-inflametories, and of course
weight loss.

Guess I just came here to talk about it. Sometimes it's so bad I can
hardly pick up my three year old daughter.

--Brian
DeeTee and Bob Taggart - 19 Oct 2006 18:50 GMT
Welcome to the group but sorry you had reason to come here. This is a great
group of people who've all been there, done that, and can give (and take)
great advice. The others should be along soon with their own welcomes, but I
wanted you to know you'd been heard/seen.

DeeTee

> I've had lower back pain for years but the frequency of episodes has
> increased over the last year or two. I'm only 37 and I've been told I
[quoted text clipped - 7 lines]
>
> --Brian
Plantmistress - 19 Oct 2006 19:54 GMT
Greetings, Brian!  Sorry for the reason that you are here, but we are
glad to have you nonetheless. I am only 30, so I know how you feel
about being so young & having arthritis.  There are tons of options for
treatment - you can read about a lot of them here.  Be sure you get a
referral to a rheumatologist (arthritis doctor) - they are up on all
the newer treatments that your GP may not know about.  There are
hundreds (I can't remember exact number - guys???) of types of
arthritis (osteoarthritis, psoriatic arthritis, rheumatoid arthritis,
etc.), so you should probably try to get a more specific diagnosis than
"arthritis."

I happen to have psoriatic arthritis, which my RD has put into
remission with a combination of Humira (a "biological" medication) &
Methotrexate (MTX).  I'm off the MTX now & still seem to be doing fine.

You came to the right place to talk about anything - arthritis
medications, the disease(s) & just general support.

Plantmistress (Shannon)

> I've had lower back pain for years but the frequency of episodes has
> increased over the last year or two. I'm only 37 and I've been told I
[quoted text clipped - 7 lines]
>
> --Brian
bchamberlin - 19 Oct 2006 19:57 GMT
> Greetings, Brian!  Sorry for the reason that you are here, but we are
> glad to have you nonetheless. I am only 30, so I know how you feel
[quoted text clipped - 15 lines]
>
> Plantmistress (Shannon)

Thanks. I apprecaite the warm welcomes.  I'll probably speak to my
doctor next week and get more specific information.  

--Brian
Thumper - 19 Oct 2006 20:01 GMT
>I've had lower back pain for years but the frequency of episodes has
>increased over the last year or two. I'm only 37 and I've been told I
[quoted text clipped - 7 lines]
>
>--Brian
I've had a bad back for 30 years.  (I am now 60.)  I know exactly how
you feel.  I've had every test known to man I think and they have
found nothing but muscle spasms and the like.  I too need to lose
weight but even when I was slim I had problems.   Bad backs are really
tricky because your arthritis may have little to do with it and even a
slight weight loss may suddenly make you feel like a new person.
Some things that may help are a new mattress, a new chair for working
or  watching tv, and for me when all else fails, a chiropractor.  I
was afraid the first time I went to one as I heard all sorts of horror
stories but the guy I went to really worked wonders when all else
failed.

I do know one thing.  Once your back muscles get really screwed up you
have to try many different things to get it right again.  Sometimes
the slightest change in your behavior, like the way you sit etc. will
give you relief and you may not know what did it for you.  Many people
have had problems from merely carrying their wallet in their back
pocket.  My advice is to not have surgery unless that is your last
option.  I have 2 brothers that have had surgery twice each and they
have never been the same.  I think sometimes the surgeons are to quick
to cut.  I think bad backs runs in our family.
Thumper
ladylove77 - 19 Oct 2006 20:02 GMT
Brian, was it a rheumatologist (RD) who diagnosed you.  If not, I urge you
to see one.  They know so much more about arthritis than any other doctor.
Gwen

> I've had lower back pain for years but the frequency of episodes has
> increased over the last year or two. I'm only 37 and I've been told I
[quoted text clipped - 7 lines]
>
> --Brian
bchamberlin - 19 Oct 2006 21:30 GMT
> Brian, was it a rheumatologist (RD) who diagnosed you.  If not, I urge you
> to see one.  They know so much more about arthritis than any other doctor.
[quoted text clipped - 11 lines]
> >
> > --Brian

No, it was just my regular doctor for now.
Kelly - 19 Oct 2006 22:11 GMT
Time to get to a rheumatologist quickly if you don't already have an
appointment.  The other things are important too but you need to have proper
meds which need to be done by an rd (rheumatologist).  There will be others
to talk to you but welcome - this is a great supportive group and yet we
have been where you are.  It is hard to be in so much pain that you can't
live life the way it was meant to be.  In the meantime, teach your 3 year
old daughter that you would love to pick her up but it would be easier if
she climbed up beside you instead and then you would have the energy to read
her a great story and share a glass of milk and crackers.  Kids are more
adaptable than adults so she will think that is great!

Kelly

>> Brian, was it a rheumatologist (RD) who diagnosed you.  If not, I urge
>> you
[quoted text clipped - 15 lines]
>
> No, it was just my regular doctor for now.
bchamberlin - 20 Oct 2006 19:37 GMT
> Time to get to a rheumatologist quickly if you don't already have an
> appointment.  The other things are important too but you need to have proper
[quoted text clipped - 8 lines]
>
> Kelly

I'll do that but I've had other issues which I'm looking into.  On the
31st I'm scheduled for an endoscopy.  Just had all the blood work and
x-rays done in preperation for that so the rheumatologist is going to
have to wait just a little longer.  The thing that really sucks is I'm
not supposed to take any kind of medication until after this procedure.
Wonderful.

--Brian
Jessie - 20 Oct 2006 04:01 GMT
Hi Brian,
I think by now you've probably been convinced to see a rheumatologist.
In the meantime, I would warn against chiropractic care until you've
been diagnosed. I have ankylosing spondylitis (AS), which primarily
affects the spine- beginning with the sacroiliac joint at the very base
of the spine. I know that for people with AS, chiropractic is
counter-indicated because the bones can be brittle and/or you can have
fused vertebrae.
I wish you luck,
Jessica

> I've had lower back pain for years but the frequency of episodes has
> increased over the last year or two. I'm only 37 and I've been told I
[quoted text clipped - 7 lines]
>
> --Brian
gail - 24 Oct 2006 09:09 GMT
Hi Brian,
Welcome to the group.  Oh how I hate to read about another person
coming down with this condition.  I was not much older than you when I
was told I had arthritis.  I was glad it was arthritis and not
something that was going to kill me.  I too had children. It is
important you get to a RA as soon as possible because the new
medication will slow down the progress of the arthritis and that is so
important, and once they find the right medication for you, you will be
in a lot less pain.  While waiting for the RA appointment try not to
stress - really bad for the condition - but easier said then done.  Use
ice and heat packs to help manage the pain and try to keep moving in
the mean time.  Any questions don't hesitate to ask us.
All the best Gail
Fire Chief - 24 Oct 2006 09:46 GMT
Brian wrote:

> I've had lower back pain for years but the frequency of episodes
> has increased over the last year or two. I'm only 37 and I've been
> told I have arthritis in the lowest part of my spine.

I hope your were told that by a rheumatologist (RD) and not a GP/PCP.

If not, you should do nothing until you have visited one.

> I'm still waiting to talk to my regular doctor about it regarding my options.
> So far, I've been told physical therapy, heat/ice, anti-inflametories, and
> of course weight loss.

Anti-inflammatories (NSAIDs) help with the pain, but disease modifying
anti-rheumatory drugs (DMARDs) actually help to slow the process of
the disease.  Physical therapy (PT) and occupational therapy (OT)
can do great wonders.  And of course, weight loss helps prevent or
lessen future damage to the hip, knee, and other joints.  Swimming
and other exercises help to prevent loss of mobility.

> Guess I just came here to talk about it. Sometimes it's so bad I can
> hardly pick up my three year old daughter.

I was 39 when diaganosed with ankylosing spondylsis in 1976 after
I woke with severe lower back pains for several weeks.   30 years
ago we had none of the treatments or drugs people today have.  We
were told to lead a sedimentary life, walk with a cane or crutches to
keep weight off our joints, and that was it.  My neck is now fused, I
had to retire on disability, and I haven't been able to drive in 10
years.

Those are reasons I urge you to see an RD immediately.  Let him
do the lab work and X-rays.  Let him refer you to PT/OT and help
you establish an exercise routine.  You may even be elligible to
enroll in a clinital trial, which isn't possible with a GP/PCP.

BTW, my youngest was 5 years old and I missed many activities
I had enjoyed with his older siblings.

... Microsoft windoze has more holes than Swiss Cheese.
red - 25 Oct 2006 02:35 GMT
> I've had lower back pain for years but the frequency of episodes has
> increased over the last year or two. I'm only 37 and I've been told I
[quoted text clipped - 7 lines]
>
> --Brian

hi brian
i totally understand - i have a 2 year old son and i couldnt even pick
him up or barely just hug him from all the pain. about a year later i
am now on medication (that works) and things are looking up - not only
can i pick him up but i can swing him around:) so dont worry once you
get the final diagnosis (from your rhuematologist) and the meds begin
to work you will feel great (hopefully) and almost normal:)

red
Fire Chief - 25 Oct 2006 18:24 GMT
Brian wrote:

>  I'm only 37 and I've been told I have arthritis in the lowest part of my spine.
>  I'm still waiting to talk to my regular doctor about it regarding my options.

Brian, I forgot to ask in my earlier reply "who told you that you have
arthritis?" and "what kind of doctor made the diagnosis?"

... FATAL BUG:  To have a Volkswagon drop on you.
bchamberlin - 07 Nov 2006 13:50 GMT
> Brian wrote:
>
[quoted text clipped - 5 lines]
>
> ... FATAL BUG:  To have a Volkswagon drop on you.

Sorry for the long waited reply....

My regular doctor had an xray taken of my lower back and she said she
could see it.  I didn't think it was something difficult to diagnose.
I haven't had time to look into it further because I've been dealing
with some reflux problems and ended up having an endoscopy.  Now that
it's over, my doctor was going to give me some anti-inflamatories for
my back.  It's weird though.  She said it's my lowest spine but the
pain I feel seems to be in my lower hip. I guess the spine goes down
further then I realized.
Fire Chief - 07 Nov 2006 19:25 GMT
Joe wrote and asked:

>>  Brian, I forgot to ask in my earlier reply "who told you that you have
>>  arthritis?" and "what kind of doctor made the diagnosis?"

And Brian replied:

> My regular doctor had an xray taken of my lower back and she said
> she could see it.  I didn't think it was something difficult to diagnose.

There are more than 100 forms/types of arthritis, and they all have
different methods/tests for diagnosis.  Some have several tests and
a person who has 3 of 5 or 4 of 6 postitive signs of a particular form
of arthritis is considered to have it.  However some people can have a
form of arthritis and fail the tests/lab work.  Many with rheumatory
arthritis don't show signs of the RF - rheumatoid factor.

I don't believe X-rays alone are a good method of diagnosing any of
those 100+ types of arthritis.  Your "regular doctor", if competent,
should refer you to a rheumatologist - a specialist in arthritis and
its
treatment.

> my doctor was going to give me some anti-inflamatories for my
> back.

Anti-inflammatory medicines (NSAIDs) are not the sole methods
of treating arthritis.  There are also disease modifying (DMARDs)
drugs which can "slow down" the progress of arthritis.  They
don't "cure" or "heal" whatever damage has already occurred.

>  It's weird though.  She said it's my lowest spine but the pain
>  I feel seems to be in my lower hip. I guess the spine goes
> down further then I realized.

When you say "lower hip", do you mean the groin or the buttocks?

The spinal column, consists of 33/34 vertebrae; 7/8 cervial, 12
thoracic,
5 lumbar, 5 sacral, and 4 coccygeal.  The bones of the sacrum and
coccyx are ankylosed in adult life and counted as one.  SYN: backbone

Spinal nevers - One of the nerves arising from the spinal cord;
31 pairs, consisting of 8 cervical, 12 thoracic, 5 lumbar, 5 sacral,
and 1 coccygeal. corresponding with the spinal vertebrae.  Each
spinal nerve is attached to the spinal cord by 2 roots: a dorsal or
posterior sensory root and a ventral or anterior motor root.  The
former consists of afferent fibers conveying impulses to the cord;
the latter of efferent fibers conveying impulses from the cord.  A
typical spinal nerve passes through the intervertebral foramen,
divides into 4 branches.

I can't draw pictures here, but the sciatic nerves from the spine
passes through the hip region into the legs, down to the feet.

Mine began in the lower back and spread to the shoulders and
neck.  My neck is now fused by the disease and I can't drive.

It spread to my hips and knees.  I had a hip replacement in 2000
and eventually the opposite hip will need replacement.

----------------------------------------------------------------------------

rheumatoid factor - Antibodies raised by the body against
immunoblobulins.  They are present in roughly 80% of patients
whith rheumatoid arthritis and in many patients with other
rheumatological and infectious illnesses.  This factor  is used,
WITH OTHER CLINICAL INDICATORS, in the diagnosis and
management of theumatoid arthritis. (emphasis mine)

rheumatologist - A physician who specialized in arthritis.

rheumatology - The division of medicine concerned with
rheumatic diseases.

Taber's CYCLOPEDIC MEDICAL DICTIONARY   19th EDITION

... Skier:  Someone who pays an arm and a leg - to break them.
 
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