Medical Forum / Diseases and Disorders / Arthritis / October 2006
Update on sister #1
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RoseB - 17 Oct 2006 14:48 GMT As you may remember my eldest sister had a tkr over a year ago, on September 21st. In the year since she has been fighting an infection in the incision, has had a vena cava filter installed, has had several surgeries to debride the area, and finally had the prosthesis removed and a "puck" put in.
I believe it is now about a month since the surgery, and she is still fighting infection. She is developing another cavity and they are working to keep that area closed. She is on IV antibiotics that she self-administers and public health nurses come each day or every second day (I'm not sure exactly) to change the dressing and etc.
At her follow-up appointment the surgeon seemed very concerned that she is not improving, and he advised that if things don;t change, he may not be able to put a prosthesis in. That means that she will have a knee without a joint. My sister is a very social person, and this forced immobilization has been very difficult for her. If she is to spend the rest of her life dependent on someone, she will not do well at all.
She could use your thoughts and prayers. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Harvey R. Stone - 17 Oct 2006 14:54 GMT Hi Rose,,,, What your sister is going through is anyone's worst nightmare. She will be prayed for today. Tell her not to give up,,, to keep fighting with a positive outlook and keep use informed on how she is. Harv
> As you may remember my eldest sister had a tkr over a year ago, on > September 21st. In the year since she has been fighting an infection [quoted text clipped - 22 lines] > > Please remove "Ima" to reply. RhondaM - 17 Oct 2006 19:20 GMT I Am sorry that you sis has to go through so much. Just when a person thinks they are going through a bad time you hear about someone worse off than yourself. Kind of puts things in perspective. I will say a prayer for her. RhondaM
> As you may remember my eldest sister had a tkr over a year ago, on > September 21st. In the year since she has been fighting an infection [quoted text clipped - 22 lines] > > Please remove "Ima" to reply. ladylove77 - 18 Oct 2006 03:55 GMT Rose, that really isn't good news! I know we had all hoped that the infection would disappear with the replacement that came out. Will be praying for that to happen. Gwen
> As you may remember my eldest sister had a tkr over a year ago, on > September 21st. In the year since she has been fighting an infection [quoted text clipped - 22 lines] > > Please remove "Ima" to reply. d'huit - 18 Oct 2006 07:06 GMT how disheartening. ((((((((((((((((((you and your sister)))))))))))))))) she certainly has mine, rose. i'm sorry this has been such a difficult journey for her. i'm going to do some healing visualizations for her, visualizing the ulcerations clearing the infection and healing themselves closed. my heart goes out to you both.
kate
As you may remember my eldest sister had a tkr over a year ago, on September 21st. In the year since she has been fighting an infection in the incision, has had a vena cava filter installed, has had several surgeries to debride the area, and finally had the prosthesis removed and a "puck" put in.
I believe it is now about a month since the surgery, and she is still fighting infection. She is developing another cavity and they are working to keep that area closed. She is on IV antibiotics that she self-administers and public health nurses come each day or every second day (I'm not sure exactly) to change the dressing and etc.
At her follow-up appointment the surgeon seemed very concerned that she is not improving, and he advised that if things don;t change, he may not be able to put a prosthesis in. That means that she will have a knee without a joint. My sister is a very social person, and this forced immobilization has been very difficult for her. If she is to spend the rest of her life dependent on someone, she will not do well at all.
She could use your thoughts and prayers. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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RoseB - 18 Oct 2006 14:39 GMT >how disheartening. ((((((((((((((((((you and your sister)))))))))))))))) >she certainly has mine, rose. i'm sorry this has been such a difficult [quoted text clipped - 3 lines] > >kate Thanks Kate. It has been quite a process. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Cindy - 18 Oct 2006 14:27 GMT Rose, I cannot imagine the nightmare this has been for your sister. I do pray that it is over soon and with a good ending.. Hugs Cindy
> As you may remember my eldest sister had a tkr over a year ago, on > September 21st. In the year since she has been fighting an infection [quoted text clipped - 21 lines] > > Please remove "Ima" to reply. RoseB - 18 Oct 2006 14:38 GMT >Rose, >I cannot imagine the nightmare this has been for your sister. I do pray that >it is over soon and with a good ending.. >Hugs Cindy Thank-you, everyone. It has certainly been an ordeal. I will pass on your good thoughts. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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johnie - 18 Oct 2006 18:36 GMT Rose, was the surgeon able to put a time frame on the prosthesis being used or not. I cannot imagine how awful this experience has been for her. She is in my thoughts for a positive outcome.
johnie
RoseB - 19 Oct 2006 05:36 GMT >Rose, was the surgeon able to put a time frame on the prosthesis being >used or not. I cannot imagine how awful this experience has been for >her. She is in my thoughts for a positive outcome. > >johnie Thanks Johnnie, I think they will know in about two weeks. IN the meanitime they have ordered a device of some sort that will keep the sinus area closed. I have not seen this so can not elaborate. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Kelly - 19 Oct 2006 18:04 GMT Rose, I am sending prayers that everything will work itself out. Is this a good doctor or is it time to get someone new? Is she still dealing with the guy on the coast?
Can't imagine what she is feeling. Give her my best please and tell her I am hoping for a great outcome.
Kelly
>>Rose, was the surgeon able to put a time frame on the prosthesis being >>used or not. I cannot imagine how awful this experience has been for [quoted text clipped - 10 lines] > > Please remove "Ima" to reply. Squirrely - 19 Oct 2006 22:17 GMT Rose,
I agree with Kelly and what she said. My prayers are with your sister. I hope this finally gets resolved. She has been suffering with this too too long.
 Signature Love and hugs Jo
(\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _& "> Rose,
> I am sending prayers that everything will work itself out. Is this a good > doctor or is it time to get someone new? Is she still dealing with the [quoted text clipped - 4 lines] > > Kelly RoseB - 20 Oct 2006 00:52 GMT >Rose, > >I agree with Kelly and what she said. My prayers are with your sister. I >hope this finally gets resolved. She has been suffering with this too too >long. It is so frustrating because she was in better shaper before having the surgery. Her other knee could be done but of course she won't risk it now. I really can't imagine what it will be like if they can not put in a prosthesis. I guess you adjust, it is just that with a knee that does not bend you are really limited. With her OA it is not the same as those of us who have been immobilized for a while. Even in pain she was very much a go-getter, has always had a spotless house, and was bery busy socially. Mentally it has been a difficult adjustment. I mean it is for anyone, but maybe we can be more accepting and go on because we deal with it on an on-going basis. When you have an expectation that you can and you can not it is hard to accept. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Squirrely - 20 Oct 2006 18:20 GMT Rose,
I saw your response to this and must have deleted it. So I am responding here.
I am sorry that it is so frustrating for her. I would be frustrated too if I had been better before surgery. I feel for her and my heart goes out to her.
It has to be hard for her with her go-getter ways and now having to be so layed up with this all.
yes, I agree with you on the statement you made about When you have an expectation that you can and you can not it is hard to accept.
I will be keeping her in my prayers and hopefully soon and I mean really soon something will change and the infection will just disappear or the drs will find something that will really work.
Send your sister my love and thoughts. I truly do feel for her.
 Signature Love and hugs Jo
(\__/) .~ ~. )) /O O ./ .' {O__, \ { / . . ) \ |-| '-' \ } )) Warning: squirrels. .( _( )_.' '---.~_ _ _&
>>Rose, >> [quoted text clipped - 18 lines] > > Please remove "Ima" to reply. RoseB - 21 Oct 2006 02:36 GMT >Send your sister my love and thoughts. I truly do feel for her. Thank-you SJ. I will definitely do so. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Nann Bell - 22 Oct 2006 15:27 GMT > With her OA it is not the same as those of us who have been > immobilized for a while. Even in pain she was very much a go-getter, [quoted text clipped - 3 lines] > on-going basis. When you have an expectation that you can and you can > not it is hard to accept. I know just what you mean. That is why I came here to ask about bunion surgery rather tahn accepting what my mom had heard from some of her friends. Our expectations for outcomes are so different, as well as our perception of pre- and post-operative pain.
I would think for your sister the huge difference in activity level caused by this ordeal would make the mental adjustment even harder. We all know how difficult that change is. And of course dealing with a chronic infection affects her whole body and her ability to function.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
RoseB - 20 Oct 2006 00:49 GMT >Rose, >I am sending prayers that everything will work itself out. Is this a good [quoted text clipped - 5 lines] > >Kelly No Kelly, she went to Kamloops this time, and the surgeon seems very good. He is one of our South African docs. It is a problem when a job is botched because sometimes other docs will not touch it with a ten foot pole. This doc seems to be checking into everything really well. I will give her your regards. Thanks. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Harvey R. Stone - 20 Oct 2006 14:50 GMT >>Rose, >>I am sending prayers that everything will work itself out. Is this a good [quoted text clipped - 13 lines] > Thanks. > Rose @}>->-- Hhhhm, One of our South African docs,,,, I bet there is a story there. Want to tell us why you would have S.A. docs? Harv
RoseB - 20 Oct 2006 15:04 GMT >Hhhhm, One of our South African docs,,,, I bet there is a story there. >Want to tell us why you would have S.A. docs? >Harv In Canada we have many doctors from South Africa. They leave their own beautiful country and come to work here. In this small town we have 6 doctors, and 4 of them are from South Africa. In general terms these docs are very well trained.
I can not speak to the political situation that brings them here, but know that many feel that it is better for them to emigrate than to deal with whatever is going on there. We seem to have a shortage of docs so the ones from S. Africa are very welcome.
My doc is from S, Africa, and if he goes away for a bit he gets a locum from Capetown. I have asked Dr. Wahl if he knew drdoc. He spoke very highly of him, commenting that he was _the_ best rheumatologist in South Africa. I thought that was pretty neat. We know how great he is because of the work he has done here and on his website, but to hear one of his countrymen confirm it made it seem even more to be the case. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Harvey R. Stone - 20 Oct 2006 17:18 GMT >>Hhhhm, One of our South African docs,,,, I bet there is a story there. >>Want to tell us why you would have S.A. docs? [quoted text clipped - 18 lines] > case. > Rose @}>->-- Thank you for the reply. I hope drdoc is OK. I am sure you feel blessed to have the doctors in your country. They could take what they are with them. The people that had farm and ranches for over 200 years could not do that as they had to leave their homes in South Africa. So it goes. Harv
d'huit - 26 Oct 2006 04:54 GMT On Fri, 20 Oct 2006 13:50:02 GMT, "Harvey R. Stone" <hrstone@swbell.net> wrote:
>Hhhhm, One of our South African docs,,,, I bet there is a story there. >Want to tell us why you would have S.A. docs? >Harv In Canada we have many doctors from South Africa. They leave their own beautiful country and come to work here. In this small town we have 6 doctors, and 4 of them are from South Africa. In general terms these docs are very well trained.
I can not speak to the political situation that brings them here, but know that many feel that it is better for them to emigrate than to deal with whatever is going on there. We seem to have a shortage of docs so the ones from S. Africa are very welcome.
My doc is from S, Africa, and if he goes away for a bit he gets a locum from Capetown. I have asked Dr. Wahl if he knew drdoc. He spoke very highly of him, commenting that he was _the_ best rheumatologist in South Africa. I thought that was pretty neat. We know how great he is because of the work he has done here and on his website, but to hear one of his countrymen confirm it made it seem even more to be the case. Rose @}>->--
i had a young female pcp, just before the pcp i have now, who was from south africa. she was incredibly charming, as well as being extreemly competent. it was sad for the staff when she went back and she's still very missed. i miss her too.
kate
Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Nann Bell - 20 Oct 2006 13:20 GMT Oh no. I was so certain that once they got that prosthesis out of there she'd beat off the infection. This must be incredibly discouraging for her.
Do you all have full confidence in the doctors who are treating her? Is there any chance of her seeing someone else who might be more experienced in cases such as hers? I figure such responses to tkrs can't be common.
If they can ever get that blasted infection killed off, she will surely feel better and be better able to deal with getting out and about without a knee, but it really doesn't seem right that she should have to do it.
An afterthought - have they investigated the possibility that part of the infection is a reaction to the surgical materials? I'm just remembering that when my dad had his ankle fused in the early days of such fusions, he had external pins in it for a couple of months and had an ongoing infection requiring Cipro the entire time. They decided it was a reaction to the pins. Sure enough, within two weeks of having the pins out he was infintely better and having the infection gone did so very much for his overall health. I don't know if there's any possibility your sister is even reacting to the "puck" or what they could do if she is, but it's a thought. Her system must be so overly sensitized after this horrible year she's had.
Thoughts and prayers for her are continuing.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Harvey R. Stone - 20 Oct 2006 14:53 GMT > Oh no. I was so certain that once they got that prosthesis out of there > she'd beat off the infection. This must be incredibly discouraging for [quoted text clipped - 27 lines] > > Thoughts and prayers for her are continuing. Ya know,,,, I had a good friend that compound fractured his leg on a rug on his stairs that had the same problem with pins. Harv
RoseB - 20 Oct 2006 14:56 GMT Hi Nann, This puck thing delivers antibiotic directly to the site, as far as I know. She has a new surgeon now and is confident in his skill level. He is certainly more proactive. He has ordered a device (that i have not seen so can not elaborate on) that is to keep the wound closed. Maybe this is what Diane Witt had once for one of her wounds that would not heal. I think they have considered all possible reasons about why this has continued. She gets daily nursing care so that helps. She does her own IVs. Thanks for your concern and I will pass on the message. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Nann Bell - 22 Oct 2006 15:27 GMT > Hi Nann, > This puck thing delivers antibiotic directly to the site, as far as I [quoted text clipped - 8 lines] > Thanks for your concern and I will pass on the message. > Rose @}>->-- It's good to know she has a surgeon who has her confidence. That makes such a difference. I am praying that he was just preparing her for the worst case scenario, but that the best case option will still be the result.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
RoseB - 22 Oct 2006 18:29 GMT >It's good to know she has a surgeon who has her confidence. That makes such >a difference. I am praying that he was just preparing her for the worst case >scenario, but that the best case option will still be the result. Thank-you, Nann. As of Friday, it looked as though the wound was starting to close. We just need to keep praying that it continues to do so. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Ginnie - 24 Oct 2006 07:47 GMT Hi, Rose,
Pardon me for coming in late on this thread, but I've been "out of commission" for a few weeks from one nasty fall, then one stupid fall!
Just the other day at the pain doc's waiting room, I ran into a fairly young woman (she looked about 30) who was dealing with infections like your sister's, but hers were in both hips! Yeouch!
For whatever reason, she had both hips replaced when she was about 25, and did really well until late last year, when she got an infection (traveled from somewhere else in her body) in her right hip. She was hospitalized on major antibiotics, and the original device was removed, and she was either jointless or had some kind of "puck" for a while.
They were successful in killing off the infection, and then giving her yet another right hip joint. But the infection managed to travel to her OTHER hip in the meantime. (Why they could stop it in one hip and not the other is a puzzlement to me.)
When I met her, she was a couple of months into a new bunch of antibiotics, with the old replacement hip still in place. They had taken a different tack with the infection in the left side, and briefly knocked her out so they could get a needle into the joint to biopsy the infected tissue, and at the same time, inject bunches of antibiotics directly into the joint area. I 'think' she said they'd sedated her and injected the anti-b's twice. They never removed the fake joint on that left side, left it in place while they were treating her, and they were now satisfied that the infection was a done deal. And she was about to be sent into surgery again to remove the old one, debride the area, and if it looked as clean as they thought it should, give her yet another left knee joint.
Man, what an ordeal! Your sister's problems are just as mind-boggling as this girl's, and from talking to her, I got an idea of just how hard this has been on your sister. But I wanted to pass along this chance encounter to you, so that it might help you or your sister, because it actually helped *me*! I've got a THR and a TKR coming soon, and, instead of grossing me out, her story woke me up to problems that *I* might face, that I had been blithely ignoring. These surgeries are no walk in the park.
So give your sister my very best wishes and a BIG hug, and tell her that there IS a light at the end of the tunnel, and it ain't the train. :-)
Hugs to you both, Ginnie >^..^< __________________________________
>> It's good to know she has a surgeon who has her confidence. That makes such >> a difference. I am praying that he was just preparing her for the worst case [quoted text clipped - 7 lines] > > Please remove "Ima" to reply. d'huit - 26 Oct 2006 05:05 GMT Hi, Rose,
Pardon me for coming in late on this thread, but I've been "out of commission" for a few weeks from one nasty fall, then one stupid fall!
Just the other day at the pain doc's waiting room, I ran into a fairly young woman (she looked about 30) who was dealing with infections like your sister's, but hers were in both hips! Yeouch!
For whatever reason, she had both hips replaced when she was about 25, and did really well until late last year, when she got an infection (traveled from somewhere else in her body) in her right hip. She was hospitalized on major antibiotics, and the original device was removed, and she was either jointless or had some kind of "puck" for a while.
They were successful in killing off the infection, and then giving her yet another right hip joint. But the infection managed to travel to her OTHER hip in the meantime. (Why they could stop it in one hip and not the other is a puzzlement to me.)
When I met her, she was a couple of months into a new bunch of antibiotics, with the old replacement hip still in place. They had taken a different tack with the infection in the left side, and briefly knocked her out so they could get a needle into the joint to biopsy the infected tissue, and at the same time, inject bunches of antibiotics directly into the joint area. I 'think' she said they'd sedated her and injected the anti-b's twice. They never removed the fake joint on that left side, left it in place while they were treating her, and they were now satisfied that the infection was a done deal. And she was about to be sent into surgery again to remove the old one, debride the area, and if it looked as clean as they thought it should, give her yet another left knee joint.
Man, what an ordeal! Your sister's problems are just as mind-boggling as this girl's, and from talking to her, I got an idea of just how hard this has been on your sister. But I wanted to pass along this chance encounter to you, so that it might help you or your sister, because it actually helped *me*! I've got a THR and a TKR coming soon, and, instead of grossing me out, her story woke me up to problems that *I* might face, that I had been blithely ignoring. These surgeries are no walk in the park.
So give your sister my very best wishes and a BIG hug, and tell her that there IS a light at the end of the tunnel, and it ain't the train. :-)
Hugs to you both, Ginnie >^..^<
bummer about the falls, sweetie. hope you're doing much better now.
you're absolutely right. we shouldn't be cavalier or blithe about any surgery, even minor ones. i remember how, at 23, i didn't think my first leg surgery was going to be a big deal--until many surgeries and many years later, to heal up from it all, changed my mind. now, i have to warn any surgeon, even for minor surgery, about the dormant infection in my body that could be disasterous if it was activated again by a surgery. and too, now i always have to go through a preventative course of abx before any surgery. major infections are no joyful experience.
kate __________________________________
RoseB wrote:
> On Sun, 22 Oct 2006 14:27:30 GMT, Nann Bell > <hanbellGOGATORS@earthlink.net> wrote: [quoted text clipped - 13 lines] > > Please remove "Ima" to reply. RoseB - 26 Oct 2006 14:35 GMT Hi Kate, It's great that you are knowledgeable about your own body and can be proactive with the abx.
I think that many of us do carry infections without knowing it.
I think my sister is starting to make progress and the wound vac really helped. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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