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Medical Forum / Diseases and Disorders / Arthritis / October 2006

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hurting!

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Nann Bell - 14 Oct 2006 14:44 GMT
Hey, you other northern midwesterners - are you hurting like the dickens from
this weather change?  It's been straight downhill for me all week - both
joint pain and muscle cramping are tormenting me.  I'm hoping it's jsut the
topsy-turvy weather, but the patttern makes me fear that Enbrel is not
holding me.  I've been off mtx for almost 8 months now and that's just about
right on schedule for when single DMARDs failed to hold me any longer in the
past.  Well, I see my RD on the 1st - come to think of it, I'm probably due
for labs.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Cindy - 14 Oct 2006 14:58 GMT
Well Nann, I live in OK and I am hurting...and flaring...Don't have RA, just
FM and OA....but my body is really telling me about this weather roller
coaster we are on...There is a front coming in tonight bringing rain and
cooler temps...We need the rain so I try not to complain..
Hope you get to feeling better, and that it is just the seasons changing for
you and not your Enbrell not working...
Hugs Cindy
> Hey, you other northern midwesterners - are you hurting like the dickens from
> this weather change?  It's been straight downhill for me all week - both
[quoted text clipped - 4 lines]
> past.  Well, I see my RD on the 1st - come to think of it, I'm probably due
> for labs.
Thumper - 14 Oct 2006 16:34 GMT
>Hey, you other northern midwesterners - are you hurting like the dickens from
>this weather change?  It's been straight downhill for me all week - both
[quoted text clipped - 4 lines]
>past.  Well, I see my RD on the 1st - come to think of it, I'm probably due
>for labs.

Do you have RA?  The weather doesn't affect my RA.
Thumper
Harvey R. Stone - 14 Oct 2006 17:52 GMT
>>Hey, you other northern midwesterners - are you hurting like the dickens
>>from
[quoted text clipped - 12 lines]
> Do you have RA?  The weather doesn't affect my RA.
> Thumper

Nor mine but a person can have OA and RA.
Harv
Nann Bell - 14 Oct 2006 18:14 GMT
> Do you have RA?  The weather doesn't affect my RA.
> Thumper

Mine's PA - temp changes, rain, etc. don't affect it but major barometric
swings often do.  And we've had major changes this week, though I haven't
watched the pressure daily and it's been steadily worse each day.  I really
don't like it that my index fingers are starting to twist again.  sigh...  
hopefully it's the pressure and will improve when the weather settles a bit
this week.  It usually isn't this bad when that's the problem though.

Got a 4 hour trip downstate coming up for the funeral of the former rector
here.  We didn't really know him but he was so loved here that the pastoral
thing to do is to go.  If we don't need to give a ride to anyone else, we'll
stay overnight which will be much easier on me and will lessen the chances of
a car-deer close encounter on our drive home.

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Simply the thing I am shall make me live --- William Shakespeare

ladylove77 - 15 Oct 2006 01:37 GMT
Nann, hope you won't have anyone needing a ride.  You need all the help you
can get.
Gwen

>> Do you have RA?  The weather doesn't affect my RA.
>> Thumper
[quoted text clipped - 16 lines]
> of
> a car-deer close encounter on our drive home.
Nann Bell - 16 Oct 2006 05:24 GMT
> Nann, hope you won't have anyone needing a ride.  You need all the help you
> can get.
> Gwen

Thanks, but if we need to give someone a ride, so be it - they really loved
Steve around here.  Right now, one neighbor who might have ridden with us is
hurting too much from her PMR to go and I don't like that much either.  Life
is complicated.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Lindy - 15 Oct 2006 02:57 GMT
Thumper said:

> > Do you have RA?  The weather doesn't affect my RA.

Oh my gosh, I've had RA for 30 some odd years and it absolutely affects me.
When the weather turns damp and cold, my hands swell up and my one ankle
gets very stiff, almost frozen at times.  Terrible.  I love summer but dread
fall and winter.

  ~Lindy~ diagnosed RA in 1973
Squirrely - 16 Oct 2006 01:09 GMT
Nann,

is this the former rector that had pancreatic cancer. No matter who it is,
my thoughts go out to all involved.

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  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Got a 4 hour trip downstate coming up for the funeral of the former rector
> here.  We didn't really know him but he was so loved here that the
[quoted text clipped - 4 lines]
> of
> a car-deer close encounter on our drive home.
Nann Bell - 16 Oct 2006 12:55 GMT
> Nann,
>
> is this the former rector that had pancreatic cancer. No matter who it is,
> my thoughts go out to all involved.

yes, that's him.  Once it became apparent that the chemo was doing nothing to
even slow the cancer, they stopped it and he went quickly.  

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Squirrely - 16 Oct 2006 16:32 GMT
Oh Nann,

I am glad he went quickly. That way he didn't have to suffer so much more.
But still I am sure it is such a loss to all that loved and cared about him.
I wish they would find some kind of cure for all this cancer stuff.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

>
>> Nann,
[quoted text clipped - 6 lines]
> to
> even slow the cancer, they stopped it and he went quickly.
Nann Bell - 20 Oct 2006 13:20 GMT
> Oh Nann,
>
> I am glad he went quickly. That way he didn't have to suffer so much more.
> But still I am sure it is such a loss to all that loved and cared about him.
> I wish they would find some kind of cure for all this cancer stuff.

with pancreatic cancer, they might be able to cure it if they could figure
out a way to detect it earlier!  (It's almost never detected until it's
already stage 4)  I think they are getting a lot closer, but 10 years down
the road doesn't help the current victims, such as Steve and Carole's friend.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Squirrely - 20 Oct 2006 17:55 GMT
I understand that. The way they have made leaps and bounds with medical
stuff you would think they could find some of these cancers sooner than they
do.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> with pancreatic cancer, they might be able to cure it if they could figure
> out a way to detect it earlier!  (It's almost never detected until it's
> already stage 4)  I think they are getting a lot closer, but 10 years down
> the road doesn't help the current victims, such as Steve and Carole's
> friend.
d'huit - 15 Oct 2006 02:01 GMT
this northwesterner is feeling it, too.  i suspect barometric pressure
changes playing havoc with joint fluids again.  i get the muscle cramping
too, when i get too cold.

it seems to be that time of the year again to pull out the microwavable
pads, mitts and foot/ankle slippers and the electric heating pads.
sometimes those help me and sometimes they just make me feel like i'm doing
something to help myself.<smile>

i suspect this is going to be an early starting, long cold winter.  hope
not.  feel better soon, sweetie.

kate

Hey, you other northern midwesterners - are you hurting like the dickens
from
this weather change?  It's been straight downhill for me all week - both
joint pain and muscle cramping are tormenting me.  I'm hoping it's jsut the
topsy-turvy weather, but the patttern makes me fear that Enbrel is not
holding me.  I've been off mtx for almost 8 months now and that's just about
right on schedule for when single DMARDs failed to hold me any longer in the
past.  Well, I see my RD on the 1st - come to think of it, I'm probably due
for labs.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

RoseB - 15 Oct 2006 02:06 GMT
>i suspect this is going to be an early starting, long cold winter.  hope
>not.  feel better soon, sweetie.
>
>kate
It is actually supposed to be an el nino year, so warm and wet is what
they are saying. Who knows?
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Joan Carter - 15 Oct 2006 02:28 GMT
>i suspect this is going to be an early starting, long cold winter.

I have a feeling you may be right, Kate. The weather forecasters are predicting
a milder winter. That probably means long and cold and snowy! I hope they are
right and we are wrong, although we do need snow and cold for crops to do well
next spring. It's hard to know what to wish for.

I do think you are right about barometric pressure changes and fluid shifts.
It's not the lows and highs that get me, but the changes.
---
Joan
Carole - 15 Oct 2006 17:36 GMT
> this northwesterner is feeling it, too.  i suspect barometric pressure
> changes playing havoc with joint fluids again.  i get the muscle cramping
> too, when i get too cold.

Me too. In my new apartment I'm on the second floor so I can leave my
bedroom window open a little which I like as I love fresh air. But I
also tend to kick the covers off in the middle of the night and then I
wake up early in the morning and my legs are freezing! And when I go to
move, I get cramps in my legs...and it doesn't make me happy. Maybe I
should try sleeping with leggings?

Carole
Squirrely - 16 Oct 2006 01:14 GMT
Carole,

that might be a good idea. I know when it was warm and hot out. The fan even
though facing me would somehow blow the air up and around me to get my back.
I would wake up so hurting. So I found that if I went to bed with a tshirt
on to warm my back, it was better.

Now that it is getting cooler I am having the same problem and I don't have
my window open. You can feel the coldness coming in the window with it
closed.

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Me too. In my new apartment I'm on the second floor so I can leave my
> bedroom window open a little which I like as I love fresh air. But I also
[quoted text clipped - 4 lines]
>
> Carole
d'huit - 16 Oct 2006 02:02 GMT
Carole,

that might be a good idea. I know when it was warm and hot out. The fan even
though facing me would somehow blow the air up and around me to get my back.
I would wake up so hurting. So I found that if I went to bed with a tshirt
on to warm my back, it was better.

***i have the same problem.  i figure air that is circulated by a fan must
be generally a little cooler than ambient air.  as hot as it was this
summer, i couldn't sleep at all without a small quilt across my knees.

Now that it is getting cooler I am having the same problem and I don't have
my window open. You can feel the coldness coming in the window with it
closed.

***yep.  i suspect that's why heavy draperies were used for window
dressings.

kate

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Me too. In my new apartment I'm on the second floor so I can leave my
> bedroom window open a little which I like as I love fresh air. But I also
[quoted text clipped - 4 lines]
>
> Carole
d'huit - 16 Oct 2006 01:57 GMT
d'huit wrote:

> this northwesterner is feeling it, too.  i suspect barometric pressure
> changes playing havoc with joint fluids again.  i get the muscle cramping
> too, when i get too cold.

Me too. In my new apartment I'm on the second floor so I can leave my
bedroom window open a little which I like as I love fresh air. But I
also tend to kick the covers off in the middle of the night and then I
wake up early in the morning and my legs are freezing! And when I go to
move, I get cramps in my legs...and it doesn't make me happy. Maybe I
should try sleeping with leggings?

Carole

i'm with you.  i leave a window open, too.  last winter i resorted to
sleeping in butch's wool hunting socks.  they were too big for me, too big
to stay on.  so i bought wool socks that fit me, for bed.LOL

kate
Nann Bell - 16 Oct 2006 05:24 GMT
> i suspect this is going to be an early starting, long cold winter.  hope
> not.  feel better soon, sweetie.

Despite the El Nino talk, all indicators here are of a long, hard winter.  No
indian summer for starters - straight to late fall.  And the fir trees are
just loaded with cones - another indicator.  The squirrels' coats aren't that
heavy yet, but you can't really judge that for another week or two.  But even
the local natives say our Oct. 13th snow was way too early.  We may really
appreciate going to see the family in Florida for Xmas!

I'm definitely in the mode of getting into fleece pants as soon as I get home
- partly to save my hands doing zippers, buttons, etc, but even more to keep
the leg muscles warm.  Ya do what ya can!

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Simply the thing I am shall make me live --- William Shakespeare

Diane - 15 Oct 2006 03:30 GMT
nann, whatever's causing it, i hope you fel better soon!

diane
Nann Bell - 16 Oct 2006 05:24 GMT
> nann, whatever's causing it, i hope you fel better soon!
>
> diane

Thanks.  At least the muscles that cramped up Thursday are a bit better this
morning.  I'm not limping as much!  It just isn't fair when your traditional
way of stretching actually cramps you up.  I forgot when waking from my nap
Thursday and pointed my toes while stretching - instant calf cramps that took
days to ease.  Gotta remember to get the foot flexed.

We won't discuss the joint pain.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Nanny - 15 Oct 2006 14:42 GMT
Standing on a stool and waving my arms - me too, Nann ;-)  Nanny
> Hey, you other northern midwesterners - are you hurting like the dickens
> from
[quoted text clipped - 9 lines]
> due
> for labs.
Squirrely - 16 Oct 2006 01:15 GMT
Nanny,

get off that stool before you fall and hurt yourself. Didn't you learn
anything from dancing on tables. (for those that don't know this is a joke.)

Signature

  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Standing on a stool and waving my arms - me too, Nann ;-)  Nanny
Nann Bell - 16 Oct 2006 05:24 GMT
> Standing on a stool and waving my arms - me too, Nann ;-)  Nanny

Ah, Nanny - just because our name are so similar is no reason you had to join
me in this!  Well, let's get comfortable in this nice warm corner and wait
for someone to bring us a nice whirlpool to help us feel better.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Squirrely - 16 Oct 2006 01:08 GMT
I feel for you Nann.

I flare all the time when it gets cooler and wetter and storms come in. I
know two days before a storm comes in that it is coming. Then when the storm
hits it goes away.

I am finding that I have to wear warmer clothes etc to protect my sensitive
areas.

Like today it is 67 here. Not that cold. But I have to have a mens
undershirt, tshirt and thermal shirt on to keep my chest and back from
hurting so bad. On days when it is lower than this I have to wear thermal
underwear too to protect hips and knees. That chill gets in there and finds
the areas that are bad. So sometimes I end up sweating because I really am
too warm, but if I take the stuff off then I really suffer in pain.

Take care and I hope it stops soon for you  and that it is not the Enbrel
stopped working.
Signature


  Love and hugs Jo

   (\__/)  .~    ~. ))
  /O O  ./      .'
 {O__,   \    {
   / .  . )    \
   |-| '-' \    } ))      Warning: squirrels.
  .(   _(   )_.'
 '---.~_ _ _&

> Hey, you other northern midwesterners - are you hurting like the dickens
> from
[quoted text clipped - 9 lines]
> due
> for labs.
Becky - 17 Oct 2006 01:50 GMT
Nann,
I am sorry that you are hurting,  I hope that things will settle down for
you soon,
Becky
> Hey, you other northern midwesterners - are you hurting like the dickens
> from
[quoted text clipped - 9 lines]
> due
> for labs.
Duckie - 17 Oct 2006 02:12 GMT
My mother said that the 30 degreee shift in temps just did her in last
week. And she is in Tenn.
Duckie

> Hey, you other northern midwesterners - are you hurting like the dickens from
> this weather change?  It's been straight downhill for me all week - both
[quoted text clipped - 4 lines]
> past.  Well, I see my RD on the 1st - come to think of it, I'm probably due
> for labs.
Ashley - 17 Oct 2006 13:13 GMT
> Hey, you other northern midwesterners - are you hurting like the
> dickens from this weather change?  It's been straight downhill for me
[quoted text clipped - 4 lines]
> DMARDs failed to hold me any longer in the past.  Well, I see my RD on
> the 1st - come to think of it, I'm probably due for labs.

Nann,
I haven't felt any difference with the weather change, but I haven't
been flaring much this year. I'm still feeling the exhaustion and
fatigue from fibro, but not the pain. I think I can deal with that, at
least on most days!!

BTW, Nann, I think you're only a few hours north of me. Maybe we should
do lunch sometime :)

--Ashley

=========
~~AN.
Nann Bell - 20 Oct 2006 13:20 GMT
> Nann,
> I haven't felt any difference with the weather change, but I haven't
> been flaring much this year. I'm still feeling the exhaustion and
> fatigue from fibro, but not the pain. I think I can deal with that, at
> least on most days!!

well, thank goodness for small favors!  At least when you aren't flaring
much, you have a better idea of how you will feel from day to day.  That's an
advantage, especially when you're newlywed with work and school to attend to!

My muscle cramping has improved a bit - until I forget the next time and do
something the way I used to!  heehee

> BTW, Nann, I think you're only a few hours north of me. Maybe we should
> do lunch sometime :)

Am I remembering rightly that you are in Indiana?  We are now way north in
Michigan, which makes it a matter of several hours just to escape the state
in any direction.  Even the local airport is expensive enough that it's a 2-4
hour drive to affordable airfares!  Still, we have plans to visit Mike's kin
in the St. Louis area next Sept. and might be able to work out a detour.

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Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

 
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